Loaʻa iā ʻoe a i ʻole kekahi āu i ʻike ai ka maʻi cell sickle? A laila ua kamaʻāina paha ʻoe i nā pilikia cell sickle ʻeha e hele pū me ka maʻi. Ua ʻike paha ʻoe mai ka ʻike i ka paʻakikī o ka hana ʻana i nā hana o kēlā me kēia lā ma muli o kēia ʻeha hiki ʻole ke hoʻomanawanui. No laila, i kēia lā ke kamaʻilio nei mākou e pili ana i kahi lāʻau lapaʻau hou e hiki ke kōkua i ka hōʻemi ʻana i ke alapine o kēia ʻano ʻeha. ʻO ia ka lāʻau pale i kapa ʻia ʻo Crizanlizumab.
He aha ke ʻano lāʻau lapaʻau kēia?
I ka ʻōlelo maʻalahi, he lāʻau lapaʻau ʻo Crizanlizumab no kahi papa o nā lāʻau lapaʻau i kapa ʻia ʻo 'selectin blockers.' ʻAe, he mea paʻakikī iki anei kēlā? E wehewehe kākou penei.
E noʻonoʻo i ko kākou mau kīʻaha koko e like me ke alaloa e hele ai ke koko. I ka maʻi ʻeha o ke koko, hoʻololi ke ʻano o nā hunaola koko ʻulaʻula (e like me ka ʻeha), pili pū, hui pū, a hana i nā pilikia kaʻa ma kēia 'alaloa'. Ke ālai ʻia ke kahe koko ma kēia ʻano, loaʻa kēlā ʻeha weliweli.
Kōkua pū kekahi protein i kapa ʻia ʻo selectin i kēia mau cell e pili pū. I ka pololei, hana kēia protein e like me ke kāpili a kōkua i nā cell e pili pū. Pale ʻo Crizanlizumab i ka selectin, ka mea e hana e like me kēlā 'pili'. A laila, pili iki nā cell, a emi iho ka pale ʻana i ke kahe koko. ʻO ka hopena, hiki ke hoʻemi nui ʻia ke alapine o kēlā mau 'pilikia cell sickle' ʻeha.
ʻIke pinepine ʻia kēia lāʻau lapaʻau ma ka mākeke ma lalo o ka inoa ʻo ADAKVEO .
He aha kaʻu e haʻi aku ai i ke kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau?
Ma mua o kou hoʻomaka ʻana e lawe i kēia lāʻau lapaʻau, aia kekahi mau mea āu e haʻi aku ai i kāu kauka. He mea nui loa ia no kou palekana e haʻi pololei i kēia mau mea.
- Ua loaʻa paha iā ʻoe kahi hopena maʻi i Crizanlizumab, kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a i ʻole kala?
- Ke hāpai nei ʻoe, a ke manaʻolana nei paha ʻoe e hāpai i ka wā e hiki mai ana ?
- He makuahine hānai waiū anei ʻoe?
Ma muli o kēia ʻike, e maʻalahi i ke kauka ke hoʻoholo inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha.
Pehea ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
ʻAʻole kēia he lāʻau lapaʻau hiki iā ʻoe ke lawe ma ka home. He hoʻokomo ʻana kēia i loko o kahi aʻa. ʻO ke ʻano kēia, ua hāʻawi ʻia ka lāʻau lapaʻau i loko o kou aʻa i loko o kahi ʻōmole, e like me ka saline, ma luna o kahi manawa o 30 mau minuke. Hana ʻia kēia kaʻina holoʻokoʻa ma kahi haukapila a i ʻole ke keʻena lapaʻau ma lalo o ka nānā piha ʻana o kahi loea mālama ola.
I kekahi mau hihia i koho ʻia, hiki i ke kauka ke kuhikuhi i kēia lāʻau lapaʻau i nā keiki ʻōpio ma luna o 16 mau makahiki. Eia nō naʻe, pono e mālama pono ʻia, no laila inā ʻoe e hāʻawi ana i kēia i kāu keiki, e kamaʻilio me kāu pediatrician no nā kikoʻī.
E hoʻomanaʻo, inā he kānalua kou ua lawe nui ʻoe i kēia lāʻau lapaʻau, e kāhea koke aku i ke Kikowaena ʻIke ʻAihue Lahui ma ka Halemai Lahui ma Colombo, a i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
Ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like me kekahi. Hiki iā ia ke hoʻoweliweli i ko lākou ola.
He aha kāu e hana ai inā e poina iā ʻoe kahi mahele o ka lāʻau lapaʻau?
He mea nui loa ka lawe ʻana i kēia lāʻau lapaʻau i nā lā i hoʻonohonoho ʻia a me nā manawa i hoʻonohonoho ʻia. No laila, mai poina i kāu mau hālāwai. Inā ʻaʻole hiki iā ʻoe ke hele i kāu hālāwai i hoʻonohonoho ʻia, e kāhea koke i kāu kauka a e haʻi iā ia. E haʻi aku ʻo ia iā ʻoe i ka mea e hana ai ma hope.
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki iā Crizanlizumab ke hana i kekahi mau hopena ʻaoʻao. Hiki i kekahi o kēia mau mea ke koʻikoʻi, no laila he mea nui e makaʻala iā lākou.
| ʻAno o ka hopena ʻaoʻao | Ka wehewehe a me nā hōʻailona |
|---|---|
| Nā hopena ʻaoʻao koʻikoʻi e pono e hōʻike koke ʻia i ke kauka a i ʻole ka haukapila | |
| Nā hopena maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo a hives paha; pehu o ka maka, lehelehe a i ʻole ke alelo. |
| Nā Hana Hoʻokomo | Kuni, anu, nausea a luaʻi paha, luhi nui, poniuniu, hou, paʻakikī ka hanu ʻana, a i ʻole ke kani ʻana o ka 'cheese' mai ka umauma mai. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| ʻEha kino | ʻEha kua, ʻeha hono, ʻeha ʻōpū |
| ʻĒ aʻe | Ka maʻi pākī |
He mea nui: ʻAʻole i loko o kēia papa inoa nā hopena ʻaoʻao āpau. Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē, e ʻoluʻolu e kūkākūkā me kāu kauka.
Aia kekahi mau mea ʻē aʻe e hiki ke launa pū me kēia lāʻau lapaʻau?
ʻAʻole i ʻike ʻia ka launa pū ʻana o kēia lāʻau lapaʻau me nā lāʻau lapaʻau ʻē aʻe , akā ʻaʻole ia manaʻo ʻaʻole ia e hoʻopilikia.
No laila, no kou palekana ponoʻī, e hāʻawi i kāu kauka i kahi moʻolelo piha a pololei hoʻi o nā lāʻau lapaʻau āpau āu e hoʻohana ai (me nā lāʻau lapaʻau no nā maʻi ʻē aʻe, nā huaora, nā lāʻau lapaʻau kuʻuna, nā mea hoʻohui, a pēlā aku), inā ʻoe e puhipaka ana, a inu waiʻona paha.
Leka Lawe-Home
- He injection intravenous ʻo Crizanlizumab e hoʻemi ana i ke alapine (frequency) o nā pilikia ʻeha i hoʻokumu ʻia e ka maʻi cell sickle.
- Hāʻawi ʻia kēia lāʻau lapaʻau ma kahi haukapila a i ʻole ke keʻena lapaʻau, ma lalo o ka mākaʻikaʻi lapaʻau.
- Ma mua o ka lawe ʻana i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kāu mau maʻi allergies āpau, ka hāpai ʻana, a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- Mai poina i kāu mau manawa i hoʻonohonoho ʻia. Inā ʻaʻole hiki iā ʻoe ke hele, e hoʻomaopopo i ke kauka ma mua.
- Inā loaʻa iā ʻoe nā hopena maʻi ʻaleka (pehu ʻili, hives) a i ʻole nā hopena koʻikoʻi ʻē aʻe (kuni, paʻakikī i ka hanu) i ka wā a ma hope paha o ka lawe ʻana i ka lāʻau lapaʻau, e ʻimi koke i ke kōkua lapaʻau.
- Mai makaʻu e kamaʻilio ākea me kāu kauka e pili ana i nā pilikia āu e loaʻa ai.
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