Ua loaʻa anei iā ʻoe kahi ʻeha poʻo koʻikoʻi a i ʻole ka manaʻo o ka mae ʻana ma kekahi ʻaoʻao o kou kino? I kekahi manawa aia kekahi mau kumu ma hope o kēia mau mea hiki ʻole iā ʻoe ke noʻonoʻo. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi lapaʻau kakaʻikahi akā koʻikoʻi loa. Ua kapa ʻia ʻo ia ʻo ka maʻi Moyamoya . He ʻano ʻē iki ka inoa, ʻeā? E nānā kākou i ke ʻano o ia mea.
He aha ka maʻi Moyamoya?
I ka ʻōlelo maʻalahi, ʻo ka maʻi Moyamoya kahi maʻi e hoʻopilikia ai i nā kīʻaha koko i loko o kou lolo. I ka pololei, he maʻi cerebrovascular ia. ʻO nā kīʻaha koko nui e hoʻolako koko i kou lolo ʻo ia nā aʻa carotid , e holo ana mai nā ʻaoʻao o kou ʻāʻī a i kou lolo. I kēia maʻi, hoʻokahi a i ʻole ʻelua o kēia mau aʻa e emi mālie a paʻa loa paha. Hiki iā ia ke hoʻopilikia i nā aʻa cerebral , e hoʻolako koko ana i nā ʻaoʻao mua a me waena o kou lolo.
E noʻonoʻo e pili ana i ia mea, ma kahi o ʻelua hapakolu o ke alo o ko kākou lolo e hoʻolako ʻia me ke koko a me ka oxygen e kēia mau kīʻaha koko nui. No laila he aha ka mea e hana ai ke emi kēia mau mea? Hoʻemi ka nui o ke koko a me ka oxygen e pono ai ka lolo. Ua like ia me ka wā e paʻa ai kahi paipu wai, hoʻemi ke kahe ʻana o ka wai.
I kēia manawa, he mea kupaianaha ko kākou mau kino. Ke ālai ʻia kekahi kīʻaha koko nui e like me kēia, hoʻāʻo ka lolo e hoʻopiha i ka hemahema ma o ka hana ʻana i nā kīʻaha koko hou a liʻiliʻi. Akā, ʻaʻole ikaika kēia mau kīʻaha koko hou e like me nā kīʻaha koko nui. He nāwaliwali pinepine lākou a liʻiliʻi . Ua like ia me ke alanui nui e ālai ʻia ana a ke hoʻohuli ʻia nei nā kaʻa ma nā alanui ʻaoʻao liʻiliʻi. ʻAʻole hiki i kēia mau kīʻaha koko liʻiliʻi ke hoʻolako i ka lolo me ke koko lawa. Eia kekahi, hiki i kēia mau kīʻaha koko nāwaliwali ke pahū i kekahi manawa. Hiki i kēia ke kumu i ke kahe koko o ka lolo a me nā hahau .
He aha ka manaʻo o ka inoa "Moyamoya"?
He huaʻōlelo Kepanī ʻo "Moyamoya". ʻO ia hoʻi, "he ʻōpuʻu uahi" a i ʻole "e like me ka puhi ʻana o ka uahi." ʻO nā kauka Kepanī ka poʻe mua i ʻike i kēia maʻi. I ko lākou hana ʻana i kahi scan kūikawā o nā kīʻaha koko, i kapa ʻia he angiogram , ua ʻike lākou ua piʻo nā kīʻaha koko liʻiliʻi i hana hou ʻia e like me nā ʻōpuʻu uahi, a i ʻole nā ʻōpuʻu uahi. ʻO ia ke kumu i kapa ʻia ai kēia maʻi ʻo "ka maʻi Moyamoya." ʻAʻole anei he inoa kupaianaha kēlā?
Pehea ka laha ʻole o ka maʻi Moyamoya?
He maʻi laha ʻole kēia. ʻIke pinepine ʻia ma Iapana. Ua ʻōlelo ʻia aia ka awelika o ʻelima mau kānaka no kēlā me kēia haneli tausani e loaʻa ana i kēia maʻi. ʻOiai ma kahi ʻāina e like me ʻAmelika, aia ma lalo o 5,000 mau kānaka me kēia maʻi. No laila hiki ke manaʻo ʻia he mea laha ʻole kēia ma Sri Lanka. Akā i kēlā me kēia manawa, ua hōʻike ʻia kēlā mau maʻi.
He aha nā hōʻailona o ka maʻi Moyamoya?
ʻO nā hōʻailona o kēia maʻi ke kumu o ka emi ʻana o ke kahe koko i ka lolo. ʻO ka manawa pinepine, ʻo ka manawa mua āu e ʻike ai i ka maʻiKe loaʻa kahi hahau, a i ʻole ke loaʻa ʻana o kekahi mau hoʻouka ischemic transient (TIAs) . Ua kapa ʻia kēia mau TIAs he "mini-strokes" e nā kauka. ʻO ke ʻano kēia, ua hoʻopau ʻia ke kahe koko i ka lolo no kekahi manawa a laila hoʻihoʻi ʻia. Akā he ʻōlelo aʻo kēia.
ʻO nā hōʻailona ʻē aʻe paha:
- Ke kahe koko o ka lolo: Hiki ke hana ʻia kēia e ka pohā ʻana o nā kīʻaha koko liʻiliʻi nāwaliwali a mākou i ʻōlelo ai ma mua.
- ʻEha poʻo: Hiki ke loaʻa pinepine, i kekahi manawa ʻeha poʻo nui.
- Nā lohi o ka ulu ʻana: ʻOiai inā loaʻa i nā keiki ʻōpio kēia maʻi, lohi paha ko lākou ulu ʻana ma mua o nā keiki ʻē aʻe.
- Aneurysm: He puʻupuʻu e like me ka pōpō ma kahi ʻāpana o ke kīʻaha koko. Hiki i kēia ke pahū.
- Nā neʻe ʻana me ka makemake ʻole: Nā haʻalulu hiki ʻole ke kāohi ʻia o nā mea e like me nā lālā.
- Nā pilikia me nā hiki ke noʻonoʻo: No ka laʻana, ka paʻakikī i ke aʻo ʻana, ka hoʻomanaʻo ʻana, a me ka noʻonoʻo ʻana.
- Nā pilikia sensory: Hiki ke loli i ka ʻike, ka lohe, ka honi, ka pā, a me ka ʻono.
- Nā hopu ʻana: Nā kūlana e like me ka hopu ʻana.
Loaʻa paha iā ʻoe kekahi a ʻoi aku paha o kēia mau hōʻailona. ʻAʻole e ʻike like nā kānaka a pau iā lākou ma ke ʻano like.
He aha ke kumu o ka maʻi Moyamoya?
ʻO kaʻoiaʻiʻo, ʻaʻole i hiki i nā kānaka noiʻi ke ʻike pono i ke kumu o kēia maʻi. Eia nō naʻe, ua ʻike ʻia he mana hoʻoilina kona, a i kekahi manawa hiki ke lilo i maʻi i loaʻa ma muli o nā kumu ʻē aʻe. Ke hana ʻia nei ka noiʻi ʻana i nā genes e hiki ke hoʻoili i kēia maʻi mai nā mākua a i nā keiki. Ua manaʻo ʻia hoʻi he hiki i kekahi mau mea e like me ka mumū a i ʻole ka maʻi i loko o ke kino ke kumu.
I kekahi manawa, hiki ke loaʻa kēia mau hōʻailona Moyamoya me nā maʻi ʻē aʻe. Ua kapa ʻia kēia he maʻi Moyamoya a i ʻole ka hanana Moyamoya. Eia kekahi laʻana:
- ʻO ka maʻi Down
- ʻO ka maʻi ʻo Graves ( kahi maʻi e pili ana i ka thyroid gland)
- ʻAno Neurofibromatosis 1 (kūlana hoʻoilina)
- ʻO ka maʻi ʻeha koko ( ka maʻi ʻeha koko)
- Atherosclerosis (nā waihona momona i loko o nā kīʻaha koko)
ʻOi aku ka nui o ka poʻe me nā maʻi ʻē aʻe e like me kēia e loaʻa i nā hōʻailona o Moyamoya.
He maʻi hoʻoilina anei ka maʻi Moyamoya?
ʻAe, ua loaʻa i nā mea noiʻi ʻo RNF213ʻO nā loli, a i ʻole nā loli, i loko o kahi gene i kapa ʻia ʻo RNF213 ke kuleana no kekahi mau hihia o fibromyalgia. Ua manaʻo ʻia he protein i hana ʻia e kēia gene, ʻo RNF213, e pili ana i ka ulu ʻana o nā kīʻaha koko.
Ma kahi o 15% o ka poʻe Kepanī me ka maʻi Moyamoya he lālā ʻohana ko lākou i loaʻa i ka maʻi, e hōʻike ana i kahi pilina genetic. Eia nō naʻe, ʻaʻole maopopo loa ke ʻano hoʻoilina pololei.
ʻO wai ka mea i ʻoi aku ka paʻakikī o ka loaʻa ʻana o ka maʻi Moyamoya?
E like me kā mākou i ʻōlelo ai ma mua, he maʻi laha ʻole kēia. ʻOiai ʻo ka maʻi moyamoya, i hoʻokumu ʻia e nā kumu hoʻoilina, ʻoi aku ka maʻamau i waena o ka poʻe Kepanī, ke hōʻike ʻia nei i kēia manawa i waena o nā hui lāhui ʻē aʻe.
ʻOiai ʻaʻole maopopo i nā kānaka ʻepekema ke kumu kikoʻī, ʻoi aku ka pālua o ka loaʻa ʻana o ka maʻi i nā wāhine ma mua o nā kāne.
Hiki ke ulu ka maʻi Moyamoya i kēlā me kēia makahiki. Eia nō naʻe, ʻo nā keiki ma waena o 5 a me 10 mau makahiki a me nā pākeke ma waena o 30 a me 50 mau makahiki ka mea e loaʻa pinepine ai ka maʻi.
He aha nā pilikia e hiki mai ana o kēia maʻi?
Inā ʻaʻole mālama pono ʻia ka maʻi moyamoya, hiki ke loaʻa nā pilikia like ʻole . ʻO kēia mau mea:
- Ka maʻi lolo
- Nā pilikia ʻike
- Nā pilikia ʻōlelo
- Nā maʻi neʻe
- Ka pōʻino mau loa o ka lolo
ʻO ia ke kumu he mea nui e ʻike koke a mālama i ka maʻi.
Pehea ʻoe e ʻike ai inā loaʻa iā ʻoe ka maʻi Moyamoya?
Inā loaʻa iā ʻoe nā hōʻailona o ka maʻi moyamoya, e nānā ke kauka iā ʻoe a nīnau e pili ana i kāu mau hōʻailona. A laila, inā kānalua ʻia ka maʻi moyamoya, hiki iā lākou ke kauoha i nā hoʻokolohua e like me:
- ʻO ka arteriography cerebral: Ma kēia hoʻāʻo, ua hoʻokomo ʻia kahi ʻōmole liʻiliʻi, i kapa ʻia he catheter, i loko o kahi aʻa i loko o kou lima a i ʻole kou wāwae. A laila ua hoʻokomo ʻia kahi wai kūikawā i loaʻa ka iodine (contrast dye) i loko o ke kahe koko ma o ka catheter. A laila lawe ʻia kahi X-ray e ʻike pehea e neʻe ai ka wai ma o nā kīʻaha koko. Hiki iā ʻoe ke ʻike i ke ʻano o ka haiki o nā kīʻaha koko a pehea e kahe ai ke koko.
- Magnetic Resonance Angiography (MRA): He hoʻāʻo ʻeha ʻole kēia e hoʻohana ana i kahi kahua magnetic, nā nalu lekiō, a me kahi kamepiula e nānā i kou mau kīʻaha koko.
- ʻO ke Kiʻi Resonance Magnetic (MRI): He ʻano hana like kēia me MRA. Lawe ia i nā kiʻi o loko o kou kino a hiki ke loiloi i nā hopena o ka maʻi ma kou lolo.
ʻO kēia mau hoʻokolohua ka mea e hiki ai i nā kauka ke haʻi pololei inā loaʻa iā ʻoe ka maʻi Moyamoya a i ʻole.
He aha nā pae o ka maʻi Moyamoya?
He maʻi holomua ka maʻi Moyamoya.He maʻi. ʻO ia hoʻi, inā ʻaʻole mālama ʻia, e ʻoi aku ka ʻino o ka maʻi. Hoʻohana nā kauka i kahi hoʻokaʻawale i kapa ʻia ʻo "nā pae Suzuki" e wehewehe i ke koʻikoʻi o ka maʻi. Hoʻohana lākou i ka ʻike mai ka scan MRA e hoʻoholo ai i ke pae o ka maʻi āu e noho nei. ʻO kēia mau pae Suzuki, ma nā huaʻōlelo maʻalahi, penei:
- Pae 1: Aia kahi ʻoki a i ʻole kahi pale ʻana ma ka ʻaoʻao o loko o ke aʻa carotid.
- Pae 2: Ua hoʻomaka nā lālā apical a pau o ke aʻa carotid e lahilahi. ʻAʻole ʻike nui ʻia kēlā mau kīʻaha koko "uahi" (nā mea liʻiliʻi, me he uahi lā) ma ka angiogram.
- Pae 3: ʻIke maopopo ʻia nā kīʻaha koko ma ka angiogram. Hiki iā ʻoe ke ʻike maopopo i kēlā ʻano "ʻōhū uahi".
- Pae 4: Hoʻomaka mālie nā kīʻaha koko i loko o ka lolo e emi iho. Ma ko lākou wahi, hoʻomaka ke kūkulu ʻia ʻana o nā kīʻaha koko ʻē aʻe (nā kīʻaha koko transdural collateral).
- Pae 5: Ke emi hou aku nei ka nui o nā kīʻaha koko, a ke ulu nei nā kīʻaha koko ʻē aʻe.
- Pae 6: Ua aneane nalowale loa nā kīʻaha koko i loko o ka lolo. Ua ʻoki loa ʻia a ua ālai ʻia paha ke aʻa carotid.
ʻO ka hoʻomaopopo pololei ʻana i kēia mau pae e kōkua i nā kauka e hoʻolālā i ka lāʻau lapaʻau.
He aha nā lāʻau lapaʻau no ka maʻi Moyamoya?
I ka mālama ʻana i ka maʻi moyamoya, ʻo ka pahuhopu nui ka kaohi ʻana i nā hōʻailona a hoʻāʻo e pale i ka ʻino ʻana o ke kūlana. No kēia, hiki i kāu kauka ke kuhikuhi iā ʻoe i kekahi mau lāʻau lapaʻau:
- ʻAspirin: Kōkua ʻo Aspirin i ka pale ʻana a i ʻole ka hōʻemi ʻana i nā ʻūpā koko i loko o kēlā mau kīʻaha koko liʻiliʻi a nāwaliwali i hana hou ʻia.
- Nā lāʻau lapaʻau antiseizure: Hāʻawi ʻia kēia mau mea e pale aku i nā hopu ʻana o ka epileptic (convulsions) i hoʻokumu ʻia e ka epilepsy.
- Nā Anticoagulants: He mau mea hoʻokahe koko kēia. Kōkua lākou i ka pale ʻana i ke koko mai ka hoʻopili ʻana. Eia nō naʻe, he pilikia ko kēia mau lāʻau lapaʻau, ʻo ia hoʻi inā kahe ke koko, hiki ke paʻakikī ke hoʻōki. No laila, hāʻawi akahele nā kauka i kēia mau lāʻau lapaʻau, i nā hihia kūikawā wale nō.
- Nā mea pale i ke kahawai calcium: Hiki i kēia mau mea ke kōkua i ka hōʻemi ʻana i nā poʻo ʻeha i hoʻokumu ʻia e ka migraines. Eia nō naʻe, hiki i kēia mau lāʻau lapaʻau ke hoʻohaʻahaʻa i ke koko, hiki ke hoʻonui i ka pilikia o ka hahau ʻana. No laila, hoʻohana wale ʻia lākou i nā hihia kūikawā.
Akā e hoʻomanaʻo, ʻaʻole hiki i kēia mau lāʻau lapaʻau ke hoʻōki i ka hāiki ʻana o nā kīʻaha koko. No laila, hiki ke ʻoi aku ka maʻi. Inā hana ʻia kēia, hiki i kāu kauka ke kuhikuhi iā ʻoe e hana i ke ʻoki bypass . ʻO kēia ʻoki:
- Ke hana nei i kahi ala koko hou me ka hoʻohana ʻana i nā aʻa olakino ma ke poʻo, e pale ana i ke aʻa i ālai ʻia.
- Ke hoʻohuli hou ʻana i ke kahe o ke koko i nā ʻāpana o ka lolo i hoʻopilikia ʻia.
- Ke wehe ʻana i nā kīʻaha koko i haiki.
E wehewehe pono ana kāu kauka iā ʻoe i ke ʻano o ke ʻoki kino i kūpono loa no kou kūlana, kona mau hopena ʻaoʻao, a me nā pilikia e hiki mai ana.
Hiki ke pale ʻia ka maʻi Moyamoya?
ʻAʻohe ala i hōʻoia ʻia e pale aku ai i ka maʻi Moyamoya, ka mea i hoʻokumu ʻia e nā kumu hoʻoilina. Eia nō naʻe, hiki ke hoʻemi ʻia ka pilikia o ka loaʻa ʻana o ka maʻi Moyamoya ma o ka kaohi ʻana i nā kumu pilikia e pili ana i nā kīʻaha koko a me ka hoʻemi ʻana i ka pilikia o ka atherosclerosis .
Eia kekahi, inā loaʻa iā ʻoe ka maʻi Moyamoya, ʻo ka lawe ʻana i ka lāʻau lapaʻau i kuhikuhi ʻia e kāu kauka me ka pololei a e like me ke kauoha e hiki ke kōkua i ka kaohi ʻana i kāu mau hōʻailona a pale i nā pilikia.
He aha ka mea hiki i kekahi me kēia maʻi ke manaʻo?
No nā kānaka he nui, e ʻoi aku ka ʻino o ka maʻi Moyamoya i ka hala ʻana o ka manawa. I ka wā e emi ai nā kīʻaha koko, hiki iā lākou ke loaʻa i ka hahau . Inā ʻaʻole mālama ʻia, hiki i ka maʻi Moyamoya ke alakaʻi i ka hōʻino nui ʻana o ka neurological, ka hahau, a me ka make.
Eia nō naʻe, hiki i kekahi poʻe ke noho paʻa no nā makahiki me ka ʻole o nā hōʻailona. Ke hoʻomaka ka ʻike ʻia ʻana o nā hōʻailona, hiki i ke kauka ke kuhikuhi i ke ʻoki kino.
He aha ke kūlana o ke ola o kekahi kanaka me ka maʻi Moyamoya?
Inā ʻike koke ʻia ka maʻi a hoʻomaka koke ka lāʻau lapaʻau, hiki i ka poʻe me ka maʻi Moyamoya ke ola i kahi ola maʻamau.
Eia nō naʻe, inā ʻaʻole mālama ʻia, hiki i kēia maʻi ke make. ʻO ia ke kumu he mea nui ka ʻike mua a me ka mālama ʻana.
I ka manawa hea e pono ai i kekahi kanaka me ka maʻi Moyamoya ke ʻimi i ke kōkua lapaʻau pilikia?
Inā ʻike ʻoe i kekahi mau hōʻailona o ka hahau ʻana , pono ʻoe e ʻimi koke i ke kōkua lapaʻau . He mea nui ka manawa ma ʻaneʻi.
Hoʻohana ka American Stroke Association i kahi huaʻōlelo pōkole i kapa ʻia ʻo FAST e maʻalahi ai i ka poʻe ke hoʻomanaʻo. E nānā kākou i kona manaʻo ma ka ʻōlelo Sinhala:
- F - Kūlou ka maka: Ke manaʻo nei kekahi ʻaoʻao o kou maka he mae? Inā ʻoe e hoʻāʻo e minoʻaka, e kūlou anei kekahi ʻaoʻao o kou maka?
- A - Nāwaliwali o ka lima: Hiki iā ʻoe ke hāpai i nā lima ʻelua? Ke hāʻule nei kekahi lima i lalo?
- S - Paʻakikī ʻōlelo: Ua paʻakikī kāu ʻōlelo? A i ʻole lohi paha? Hiki iā ʻoe ke hana hou i kahi ʻōlelo maʻalahi?
- T - Ka manawa e kāhea aku ai i nā lawelawe ulia pōpilikia: Inā ʻike ʻoe i kekahi o kēia mau hōʻailona o ka hahau ʻana, e kāhea koke i ka 911 a kiʻi i kahi kaʻa kaʻa, a i ʻole e hele koke i ka haukapila. He mea nui ka manawa!
ʻO nā hōʻailona ʻē aʻe o ka hahau ʻana e hiki ke komo pū me ka hoʻomaka koke ʻana o:
- Ka huikau
- ʻO ka ʻeha ma kekahi ʻaoʻao o ke kino
- Nā pilikia ʻike
- Paʻakikī ka hele wāwae
- ʻEha poʻo nui loa
He maʻi laha ʻole ka maʻi Moyamoya e hiki ai ke alakaʻi i nā hahau a me nā kahe koko o ka lolo. ʻOiai ʻaʻole i ʻike ʻia ke kumu pololei e nā kānaka noiʻi, ʻoi aku ka maʻamau i nā poʻe Kepanī. Inā loaʻa iā ʻoe kekahi o nā hōʻailona o Moyamoya, e ʻike koke i ke kauka. ʻO ka ʻike mua ʻana a me ka mālama ʻana i ka maʻi Moyamoya ke ʻokoʻa ma waena o ke ola a me ka make. He mea nui hoʻi e ʻike i nā hōʻailona o ka hahau a hana koke inā loaʻa kekahi.
Hōʻuluʻulu Manaʻo (Leka Lawe-Home)
No laila, ke lana nei koʻu manaʻo ua loaʻa iā ʻoe kekahi ʻike e pili ana i ka maʻi Moyamoya a mākou i kamaʻilio ai i kēia lā. Eia kekahi mau mea nui e hoʻomanaʻo ai:
- He maʻi laha ʻole kēia e hoʻohāiki ai i nā kīʻaha koko i loko o ka lolo.
- Hiki ke loaʻa nā hōʻailona e like me ka hahau ʻana , ka ʻeha poʻo , a me nā hopu ʻana .
- He mea nui loa ka ʻike koke ʻana a me ka mālama ʻana i ka maʻi.
- Hoʻokomo pū ʻia ka lāʻau lapaʻau i nā lāʻau lapaʻau a, inā pono , ke ʻoki ʻoki bypass .
- ʻO ka ʻike ʻana i nā hōʻailona o ka hahau ʻana (FAST) hiki ke hoʻōla i ke ola.
Inā loaʻa iā ʻoe a i ʻole kekahi āu i ʻike ai kēia mau hōʻailona, e ʻoluʻolu e ʻimi i ke kōkua lapaʻau. Mai hopohopo, aia nā hopena no nā mea āpau. ʻO ka mea nui loa, ʻo ia ka hana wikiwiki.
ʻO Moyamoya, nā maʻi lolo, ka hahau ʻana, nā kīʻaha koko, nā maʻi neurological, nā maʻi genetic, nā ʻeha poʻo
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