Ua loaʻa anei iā ʻoe kahi scan MRI? I kekahi manawa ʻōlelo ke kauka, 'Pono mākou e hāʻawi iā ʻoe i kahi dye contrast e kiʻi i kahi kiʻi maopopo o loko o kou kino,' ʻeā? ʻO ka hapa nui o ka manawa, palekana loa kēia. Akā i kēia lā ke kamaʻilio nei mākou e pili ana i kahi pilikia kakaikahi loa, ʻoiai no kekahi me ka maʻi puʻupaʻa. Mai makaʻu i kēia, no ka mea, he kakaikahi loa ia ʻaʻole ʻoe e ʻike hou. Akā he mea nui e ʻike.
I ka ʻōlelo maʻalahi, he aha ka Nephrogenic Systemic Fibrosis (NSF)?
He maʻi laha ʻole ka Nephrogenic Systemic Fibrosis (NSF). Loaʻa pinepine ia i nā poʻe me ka maʻi puʻupaʻa ma hope o ka hāʻawi ʻia ʻana o kahi ʻano kala hoʻohālikelike i kapa ʻia ʻo `gadolinium-based contrast agents (GBCAs). He kemika ʻo Gadolinium i loko o kēia kala. Hoʻohana nā kauka i kēia kala hoʻohālikelike e kiʻi i nā kiʻi maopopo i ka wā o nā scan e like me Magnetic Resonance Imaging (MRI).
Inā loaʻa iā ʻoe ka hōʻino ʻana o nā puʻupaʻa, pilikia kou mau puʻupaʻa i ka kānana ʻana i kēia mau GBCA mai kou koko, ʻo ia ke kumu e pilikia ai ʻoe no ka NSF.
Hiki i kēia maʻi ke hoʻomānoanoa i kou ʻili, hoʻopaʻa, pehu, a me ka maneʻo . I kekahi manawa, hiki ke loaʻa kahi kūlana i kapa ʻia ʻo 'joint contracture'. ʻO ke ʻano kēia, ua paʻa kou mau ʻiʻo a me nā tendon i hoʻokahi kūlana (kūlou a hoʻolōʻihi ʻia paha). Hiki i ka NSF ke hoʻopilikia i nā ʻōpū o loko e like me kou puʻuwai a me kou māmā. ʻO kēia no ka mea hiki i nā ʻiʻo a me nā ʻiʻo i loko o kou umauma ke lilo i ʻoʻoleʻa. ʻAʻohe lāʻau lapaʻau i kēia manawa e hoʻōki i ka holomua o kēia maʻi a hoʻohuli paha i kona hopena.
Akā e hoʻomanaʻo i kēia: I kēia manawa ua ʻike nā mea a pau e pili ana i kēia pilikia, ua hoʻōki lākou i ka hāʻawi ʻana i nā kala hoʻohālikelike weliweli i ka poʻe me ka maʻi puʻupaʻa. ʻO ia ke kumu i aneane lohe ʻole ʻia ai kēia maʻi i kēia manawa.
Pehea ka maʻamau o kēia maʻi?
He maʻi laha ʻole kēia. ʻO ka ʻoiaʻiʻo, ʻaʻohe hihia hou o kēia maʻi i hōʻike ʻia no nā makahiki he 10 a ʻoi. Ma hope o 2006, i ka wā i ʻike ai ke kaiāulu lapaʻau i ka pilina ma waena o GBCAs a me nā maʻi puʻupaʻa, ua emi nui ka nui o nā hihia o kēia maʻi. No laila, hōʻike kēia ʻaʻohe pono e makaʻu hou i kēia.
He aha nā hōʻailona o ka NSF?
Hiki ke ʻike ʻia nā hōʻailona i ka lā hoʻokahi i hāʻawi ʻia ai ka dye contrast a i ʻole kekahi mau mahina ma hope. ʻIke pinepine ʻia nā hōʻailona i loko o kekahi mau pule.
E nānā kākou i nā hōʻailona nui.
| Māhele hōʻailona | Wehewehena |
|---|---|
| Nā loli ʻili | Pehu kou ʻili, paʻa, a mānoanoa. ʻIke pinepine ʻia kēia ma nā lima, nā wāwae, a me ke kino. Kākaʻikahi ka helehelena i hoʻopilikia ʻia. |
| ʻAno o ka ʻili | Nā kiko ʻeleʻele a i ʻole nā puʻupuʻu ma ka ʻili. I ka hala ʻana o ka manawa, e lilo paha ka ʻili i ʻano ʻōniʻoniʻo, e like me ka ʻili ʻalani. |
| Ka manaʻo o ka ʻili | ʻIli maneʻo, ʻā, a ʻeha paha. |
| Paʻakikī ke neʻe ʻana | I ka mānoanoa a me ka pehu ʻana o ka ʻili, ʻaʻole hiki i nā ʻiʻo a me nā hono ke neʻe maʻamau. |
| Nā mana kūloko | Ka nāwaliwali nui o nā ʻiʻo. ʻO ka paʻakikī o nā ʻiʻo ke kumu o ka hiki ʻole i ka lālā ke kūlou a pololei paha (Nalowale o ka laulā o ka neʻe ʻana). |
I ka holomua ʻana o ka fibrosis, hiki iā ia ke hana i nā ʻiʻo ʻeha i loko o nā ʻiʻo, nā māmā, ka esophagus, nā maka, a me ka puʻuwai. Hiki i kēia ke hoʻopilikia i ka hana o kēia mau ʻōpū. Hiki iā ia ke alakaʻi i ke kīnā lōʻihi a mau loa, a i kekahi poʻe, hiki ke make.
No ke aha lā e kū mai ai kēia kūlana NSF?
Ua hōʻike ʻia ka hapa nui o nā hihia o NSF ma hope o ka hōʻike ʻana i nā mea hoʻohālikelike gadolinium-based (GBCAs). ʻAʻole maopopo loa pehea e hoʻokumu ai ka kemika gadolinium i ka NSF. Eia nō naʻe, aia kahi pilina maopopo ma waena o nā maʻi puʻupaʻa a me GBCAs. Eia kekahi, ʻike ʻia ka pilikia e kiʻekiʻe aʻe inā hāʻawi ʻia ʻoe i nā dosis kiʻekiʻe o ka gadolinium a i ʻole inā ʻoe e hoʻohana i kekahi mau GBCA (kahiko).
ʻIke pinepine ʻia kēia ʻano i nā poʻe me ka maʻi puʻupaʻa mau loa (CKD) a i ʻole ka poʻe e dialysis ana.
Akā ke ʻōlelo hou aku nei au, mai makaʻu. ʻAʻohe hihia hou o kēia ma kahi o 15 mau makahiki. ʻO ke kumu, ua ʻike nui nā kauka i kēia pilikia. ʻO ia ke kumu ʻaʻole lākou e hāʻawi i nā GBCA kahiko a pilikia i ka poʻe me ka maʻi puʻupaʻa. I kēia manawa, hoʻohana lākou i nā mea hoʻohālikelike palekana a hou.
He aha nā lāʻau lapaʻau no NSF?
ʻAʻohe lāʻau lapaʻau kūikawā i ʻae ʻia no ka NSF i kēia manawa. No ka mea he kakaikahi loa ka maʻi, ua kaupalena ʻia ka noiʻi ʻana i ka lāʻau lapaʻau. Eia nō naʻe, aia kekahi mau lāʻau lapaʻau i hāʻawi i kahi hōʻoluʻolu no kekahi poʻe:
- Dialysis: Kōkua ʻo Dialysis i ka wehe ʻana i ka gadolinium mai kou kino ma hope o ka MRI. He mea kōkua paha kēia no ka poʻe me ka maʻi puʻupaʻa. Eia nō naʻe, ʻaʻohe hōʻoia e pale kēia i ka ulu ʻana o ka NSF.
- Hoʻōla Kino: Hiki i ka hoʻōla kino ke kōkua i ka mālama ʻana i ka neʻe a me ka maʻalahi o kou mau hui.
- Nā Hoʻoili Puʻupaʻa: He koho paha kēia no kekahi mau maʻi NSF.
ʻO ka mea nui loa, ʻo ia ke pale ʻana i ka ʻike ʻana i ka gadolinium inā loaʻa iā ʻoe ka maʻi puʻupaʻa. Akā i kekahi manawa pono paha ka gadolinium e kiʻi i nā kiʻi maikaʻi loa mai kahi MRI. I kēlā mau hihia, e kaupaona kāu kauka i nā pono o ka MRI e kūʻē i nā pilikia liʻiliʻi loa o ka gadolinium .
Āhea wau e ʻike ai i ke kauka?
Me nā hana palekana o kēia manawa, ʻaneʻane ʻole kou manawa e loaʻa ai ka NSF. Eia nō naʻe, inā loaʻa iā ʻoe ka maʻi puʻupaʻa a ua hoʻonohonoho ʻia e loaʻa i kahi MRI, ʻoi aku ka maikaʻi o ke kamaʻilio ʻana me kāu kauka e pili ana i ia mea.
Eia nā manawa e pono ai ʻoe e ʻike i kāu kauka.
| Kūlana | He aha e hana ai |
|---|---|
Inā loaʻa iā ʻoe ka maʻi puʻupaʻa a loaʻa nā hōʻailona ma hope o ka loaʻa ʻana o ka dye contrast no kahi MRI:
| E ʻike koke i kāu kauka. E wehewehe pono i kāu mau hōʻailona. |
| Inā loaʻa iā ʻoe ka maʻi puʻupaʻa a kauoha kāu kauka i kahi MRI me ka dye contrast. | E kamaʻilio me kāu kauka e pili ana i ka pilikia o ka NSF. E nīnau, "Aia kekahi pilikia me kēia ʻano hoʻohālikelike no ka mea he pilikia koʻu i nā puʻupaʻa?" E haʻi iā ia i kāu mōʻaukala olakino piha. |
ʻOiai ʻaʻole ʻawahia nā GBCA hou a ʻike ʻia he palekana, he manaʻo maikaʻi mau ia e kaʻana like i kou mōʻaukala olakino me kāu kauka a kūkākūkā i nā pilikia.
Leka Lawe-Home
- ʻO ka Nephrogenic Systemic Fibrosis (NSF) kahi maʻi laha ʻole i kēia manawa i hoʻokumu ʻia i ka wā i hāʻawi ʻia ai i nā poʻe me ka maʻi puʻupaʻa i nā waihoʻoluʻu hoʻohālikelike kahiko no ka MRI.
- Hiki i kēia ke hoʻomānoanoa a paʻakikī i ka ʻili, a hoʻopilikia i nā hono a me nā ʻōpū o loko.
- Ma muli o ka ʻike nui ʻana o nā kauka i kēia pilikia a hoʻohana i nā ʻano kala ʻokoʻa hou a palekana hoʻi, ʻaʻohe hihia hou o NSF i hōʻike ʻia ma mua o 10 mau makahiki.
- ʻOiai ʻaʻohe lāʻau lapaʻau kūikawā no kēia, ʻo ka pale ʻana ka mea nui loa.
- Inā loaʻa iā ʻoe ka maʻi puʻupaʻa a pono ʻoe e hana i kahi MRI me ka dye contrast, e kamaʻilio mau me kāu kauka e pili ana i nā pilikia kūpono.
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