ʻAʻole anei pilikia kāu keiki liʻiliʻi i ka hoʻōki ʻana i ke koko? E kamaʻilio kākou e pili ana i ka hemophilia!

Ma ke ʻano he makuahine a makua kāne paha, ʻoiai inā e ʻeha iki kāu keiki a kahe ke koko, nui kou makaʻu a me ka hopohopo, ʻeā? He mea maʻamau loa ia. Akā no kekahi mau keiki, ʻoiai mai kahi ʻeha liʻiliʻi, ʻaʻole paha e pau koke ke kahe ʻana o ke koko e like me ka mea maʻamau. I kekahi manawa, hiki iā lākou ke kahe ke koko me ke kumu ʻole. ʻO ke kumu nui o kēia he maʻi i kapa ʻia ʻo hemophilia. ʻO ka lohe ʻana i kēia inoa e hoʻomaka koke paha ʻoe e makaʻu, akā mai hopohopo. E kamaʻilio kākou e pili ana i nā mea āpau i kēia lā me ka maʻalahi a me ka maopopo. E wehewehe wau i kēia mau mea ma ke ʻano hiki iā ʻoe ke hoʻomaopopo.

He aha ka hemophilia?

I ka ʻōlelo maʻalahi, he maʻi laha ʻole ka hemophilia, he maʻi hoʻoilina e hoʻoulu ai i ko kākou koko e paʻa pono ʻole. ʻIke ʻoe, ke loaʻa iā kākou kahi ʻeha liʻiliʻi, e like me ka ʻoki ʻana o ka pahi, e pau kekahi o ke kahe ʻana o ke koko no ka mea ua hui pū kekahi mau protein i loko o ko kākou koko (i kapa ʻia he mau mea clotting ) a hoʻopaʻa i ka ʻeha, e hoʻōki ana i ke kahe ʻana o ke koko. Ua like ia me kahi pā liʻiliʻi e "sila" ana i ka ʻeha.

No laila, he haʻahaʻa ka pae o hoʻokahi a ʻoi aku paha o kēia mau mea hoʻopaʻa koko o nā keiki me ka hemophilia, a i ʻole ʻaʻole lākou e hana pono. ʻO ia ke kumu e lōʻihi ai ka manawa ma mua o ka maʻamau e hoʻōki ai i ke kahe ʻana mai kahi ʻeha liʻiliʻi, a i kekahi manawa hoʻomaka lākou e kahe maʻalahi. No laila, ma ke ʻano he makua o kahi keiki me ka hemophilia, he mea nui loa ia e ʻike pehea e hoʻokele pono ai i ke kahe ʻana inā loaʻa .

He mea hopohopo paha kēia iā ʻoe. Ke noʻonoʻo nei paha ʻoe, "Auē, e kuʻu keiki, e hiki mai ana kēia iaʻu?" Akā e hoʻomanaʻo, me nā lāʻau lapaʻau holomua o kēia wā, hiki i kahi keiki me ka hemophilia ke ola maʻamau a olakino hoʻi. ʻO ka mea nui loa, ʻo ia ka ʻike maikaʻi ʻana o ʻoe a me kou ʻohana i ka maʻi a pehea e mālama ai.

Pehea e mālama ai i ke kahe ʻana o ke koko?

Inā kahe ke koko o ke keiki me ka hemophilia, pili ka lāʻau lapaʻau i ke ʻano o ke kahe koko, ke koʻikoʻi o ka ʻeha, a me kahi e puka mai ai ke kahe koko. ʻO ka hapa nui o ka manawa, hiki ke mālama ʻia ke kahe koko liʻiliʻi mai nā ʻeha liʻiliʻi ma ka home. Eia nō naʻe, ʻo nā ʻeha koʻikoʻi e pono ai ke kipa ʻana i ke kauka, kahi Hemophilia Treatment Center, a i ʻole kahi lumi pilikia o ka haukapila.

I kēia manawa, e nānā kākou i ka mea e pono ai kākou e hana i nā ʻano kahe koko like ʻole. E wehewehe kāu kauka i kēia mau mea āpau iā ʻoe me nā kikoʻī hou aku. Akā, he mea nui loa ka ʻike ʻana i kēia mau mea maʻamau.

He aha e hana ai no nā palapū?

He mea maʻamau ka loaʻa ʻana o nā palapū liʻiliʻi i ka wā e pāʻani ana, e holo ana, a e lele ana paha. I loko o kahi keiki me ka hemophilia, hiki i kēia mau palapū ke lilo i mea nui a ʻeleʻele hoʻi.

• E noʻonoʻo ua kuʻia kāu keiki ma luna o kahi noho i ka wā e pāʻani ana a ua ʻeha kona wāwae. Inā hana ʻia kēlā, e kau i kahi ʻeke hau i wahī ʻia i loko o ke kāwele ma luna o ka ʻeha no kahi o 10 mau minuke. E hana i kēia i kēlā me kēia ʻelua hola. Mai kau pololei i ka hau ma luna o ka ʻili, ʻae? Hiki iā ia ke hōʻino i ka ʻili.
• Eia nō naʻe, e kamaʻilio me kāu hui mālama i kēia mau manawa:
• Inā ʻeha loa ka palapū.
• Inā ʻike ʻia ka nui o ka palapū.
• Inā paʻakikī ka hoʻoneʻe ʻana i ka lālā i ka ʻeha, a inā paha e hōʻeha ia.

He aha inā e kahe ke koko i nā ʻeha waha? (Ke kahe ke koko i ka waha)

Hopohopo iki nā keiki ke loaʻa kahi ʻeha liʻiliʻi i loko o ko lākou waha, no ka laʻana, kahi ʻoki ma ko lākou ʻāʻī i ka wā e palaki ana i ko lākou niho, a i ʻole kahi ʻoki ma ko lākou alelo i ka wā e ʻai ana, a kahe ke koko. Eia ka mea e hana ai i kēlā hihia:

• E kaomi i ka wahi e kahe ana ke koko. ʻO ke ʻano kēia o ka paʻa ʻana iā ia me kahi ʻāpana gauze maʻemaʻe a lole paha no kekahi manawa pōkole.
• Hiki iā ʻoe ke kau i kahi hau hau a i ʻole ka pahu hau i ka wahi. E hoʻopaʻa ke anu i nā kīʻaha koko a hōʻemi i ke kahe ʻana o ke koko.
• Ke pau ke kahe ʻana o ke koko, e pale i ka hāʻawi ʻana i kāu keiki i nā meaʻai paʻakikī a ʻinoʻino (e like me nā biscuits, nā ʻuala palai) a me nā meaʻai a me nā mea inu wela, no ka mea, e hoʻomaka hou paha kēia mau mea e kahe ke koko.
• Inā ʻaʻole e pau ke kahe ʻana o ke koko ma hope o 20 mau minuke, e kāhea aku i kāu hui lapaʻau.

No nā ʻoki liʻiliʻi a me nā ʻōpala

Hiki iā mākou ke mālama pinepine i nā ʻeha liʻiliʻi e like me kēia ma ka home, akā pono e hana pono ʻia kēia mau mea.

• ʻO ka mea mua, e holoi pono i ka ʻāpana ʻoki a i ʻole ka wahi i kahakaha ʻia me ka wai.
• A laila, e kaomi i ka ʻeha me kahi ʻāpana gauze sterile, kahi lole maʻemaʻe, a i ʻole kahi plaster.
• Inā ʻaʻole e pau ke kahe ʻana o ke koko ma hope o 20 mau minuke, e kāhea koke aku i kāu kauka. E haʻi aku ʻo ia iā ʻoe i ka mea e hana ai. Pono paha ʻoe:
• Hāʻawi ʻia ka Factor Replacement Therapy ma ka home. ʻO kēia ka hāʻawi ʻana i ke keiki i kahi factor clotting i nele i ko lākou kino ma ke ʻano he injection. Na ke kauka a me ke kahu maʻi e aʻo iā ʻoe pehea e hāʻawi ai i kēia.
• A i ʻole, e haʻi aku ke kauka iā ʻoe e lawe iā ia i ke kikowaena mālama hemophilia a i ʻole ka lumi pilikia o ka haukapila.

He aha inā he ʻoki nui me ka nui o ke kahe ʻana o ke koko?

He kūlana koʻikoʻi kēia. Mai hopohopo, akā e hahai koke i kēia mau ʻanuʻu.

1. ʻO ka mea mua, e kāohi i ke kahe ʻana o ke koko i ka wikiwiki loa:

• He ʻāpana gauze sterile, kahi lole maʻemaʻe, a i ʻole kahi bandageE kaomi maikaʻi i ka ʻeha.
• Inā pulu ka gauze a i ʻole ka lole i kau ʻia ma luna o ka ʻeha i ke koko, mai wehe, akā e kau i kekahi ma luna a hoʻomau i ke kaomi ʻana.
• Inā hiki, e hoʻomau i ka lima a i ʻole ka wāwae i ʻeha ma luna o ka pae o ka puʻuwai. Hiki i kēia ke kōkua i ka hōʻemi iki ʻana i ke kahe ʻana o ke koko.

2. A laila, e kāhea koke aku i kāu kauka a hahai i kāna mau kuhikuhi:

• ʻO ka mea paha, e paipai lākou i ka factor replacement therapy i ka hikiwawe loa .
• Ua haʻi koke aku ʻo ia i ke kauka e lawe iā ia i ke kikowaena mālama hemophilia a i ʻole ka lumi pilikia o ka haukapila.

I ka manawa e like me kēia, ʻoi aku ka maikaʻi o ka hoʻonele ʻole ʻana i hoʻokahi kekona. E kāhea koke aku i ke kauka a hana e like me kāna ʻōlelo.

He aha inā he kānalua no ke kahe ʻana o ke koko i loko o kahi hui a ʻiʻo paha? (Hiki ke kahe ke koko i loko o kahi hui a ʻiʻo paha)

He mea nui loa kēia. I kekahi manawa, ʻoiai me ka ʻole o kahi ʻeha i ʻike ʻia, hiki i nā keiki me ka hemophilia ke kahe ke koko i loko o ko lākou mau hono (e.g., nā kuli, nā kuʻekuʻe lima, nā kuʻekuʻe wāwae) a i ʻole nā ​​​​ʻiʻo nui (e.g., nā ʻūhā, nā lima). Hiki ke ʻeha loa kēia a hiki ke hōʻeha i ka hono no ka manawa lōʻihi.

• Inā kānalua kāu keiki e hoʻoneʻe i kahi hono, inā he pehu, ʻulaʻula, a mehana paha ma ia wahi, a inā paha e ʻōhumu wale kāu keiki i ka ʻeha ma ia wahi, e kāhea koke aku i kāu kauka.
• E hahai pono i nā kuhikuhi a ke kauka. E ʻōlelo pinepine ʻo ia iā ʻoe e hana i kēia mau mea:
• E hāʻawi i ka factor replacement therapy i ka hikiwawe loa.
• E hoʻopili i ka hau (i kāʻei ʻia i loko o ke kāwele) i kahi o ka ʻeha.
• E hāʻawi i kahi lāʻau hoʻopau ʻeha palekana no ka ʻeha. Eia kekahi laʻana, hiki iā ʻoe ke hāʻawi i ka acetaminophen (e.g., Tylenol).

He mea nui loa: Mai hāʻawi i nā lāʻau ʻeha e like me Aspirin , Ibuprofen (e.g., Advil, Motrin), a me Naproxen Sodium (e.g., Aleve) . Hiki i kēia mau lāʻau ke hoʻonui i ke kahe ʻana o ke koko!

• E ʻōwili mālie i ke hono me kahi kāʻei elastic a i ʻole ka ACE wrap e kākoʻo iā ia.
• E lawe koke i ke kanaka i ke kauka, ke kikowaena mālama hemophilia, a i ʻole ka lumi pilikia o ka haukapila.

He aha inā he ʻeha ma ke poʻo, ka umauma, ka ʻāʻī, a i ʻole ka ʻōpū? (ʻEha i ke poʻo, ka umauma, ka ʻāʻī, a i ʻole ka ʻōpū)

ʻAʻole pono e lawe māmā ʻia kēia ʻano ʻeha. He mea weliweli loa lākou no ka mea hiki iā lākou ke hoʻoulu i ke kahe koko i loko. Inā hāʻule kekahi keiki, paʻi i kekahi mea, a paʻi paha i ko lākou poʻo, umauma, ʻāʻī, a ʻōpū paha me ka ikaika,ʻOiai inā ʻaʻohe ʻeha nui i ʻike ʻia, e kāhea koke aku i ke kauka.

• E hahai pono i nā kuhikuhi a ke kauka. Malia paha:
• Paipai lākou i ka factor replacement therapy koke ma ka home .
• E haʻi aku lākou iā ʻoe e lawe koke iā ia i ka lumi pilikia o ka haukapila, a i ʻole e kāhea i kahi ambulance .

I nā kūlana e like me kēia, hiki i ka hana wikiwiki ke hoʻopakele i ke ola o ke keiki.

I ka manawa hea e pono ai iaʻu e lawe i kaʻu keiki i ka lumi pilikia?

Aia kekahi mau kūlana kahi i kūpono ʻole ai ke mālama ʻana i ke keiki ma ka home a kali paha e kāhea i ke kauka. I ia mau hihia , pono e lawe koke ʻia ke keiki i ka lumi pilikia o ka haukapila kokoke loa, me ka hoʻokaʻulua ʻole.

Eia kekahi mau hihia:

• Inā ʻoe e mālama iā ia e like me ka ʻōlelo a ke kauka, akā ʻaʻole e pau ke kahe ʻana o ke koko.
• Inā ʻeha nui ka ʻōpū o ke keiki.
• Inā ʻulaʻula a ʻulaʻula paha ka mimi o ke keiki (he hōʻailona paha kēia o ke kahe ʻana o ke koko i loko).
• Inā he koko ko kāu keiki i loko o ko lākou ʻōpala, a inā he ʻeleʻele ʻeleʻele ko lākou ʻōpala (e like me ke kēpau).
• Inā loaʻa i ke keiki kahi ʻeha poʻo nui, luaʻi, poniuniu, a huikau paha (he hōʻailona paha kēia o ke kahe ʻana o ke koko i loko o ka lolo).
• Inā pilikia ke keiki i kahi ulia koʻikoʻi (e.g., hāʻule mai kahi kiʻekiʻe, ulia kaʻa).

Inā loaʻa i kāu keiki kekahi o kēia mau hōʻailona, ​​e lawe koke iā lākou i ka lumi pilikia o ka haukapila kokoke loa, me ka hoʻokaʻulua ʻole. He mea nui loa ka hana wikiwiki ʻana i ia mau manawa no ke olakino o ke keiki.

Leka Lawe-Home

ʻAe, no laila e hoʻomanaʻo aku mākou iā ʻoe i kekahi o nā mea a mākou i kamaʻilio ai a mākou e manaʻo nei he mea nui iā ʻoe.

• ʻO ka Hemophilia kahi kūlana i ʻole e paʻa pono ke koko o ke keiki. Eia nō naʻe, hiki ke hoʻomalu ʻia kēia me ka mālama pono ʻana.
• He mea nui loa ia e ʻike ʻoe i ka mea e hana ai inā loaʻa iā ʻoe ke kahe koko. Eia kekahi, e hōʻoia i ka ʻike ʻana o nā lālā ʻē aʻe o kou ʻohana (kāne a wahine paha, nā keiki makua, nā kūpuna) i kēia.
• E mālama i ka pilina maikaʻi me ke kauka e mālama ana i kāu keiki. Mai makaʻu e nīnau i kekahi mau nīnau a hopohopo paha āu. E hana pū me ke kauka e hoʻomohala i kahi hoʻolālā lapaʻau no kāu keiki.
• E mālama mau i nā lako e pono ai ma ka home, e like me nā factor concentrates, ka gauze sterile, a me nā bandage.
• Mai kānalua e kāhea i ke kauka a hele paha i ka haukapila, ʻoiai inā he kānalua a makaʻu paha kou e pili ana i kekahi mea.
• ʻO ka mea hope loa, ʻaʻole ʻoe hoʻokahi.Ua mākaukau mau ke kime mālama ola kino, me nā kauka, nā kahu maʻi, a me nā loea ma nā kikowaena mālama hemophilia, e kōkua a alakaʻi iā ʻoe a me kāu keiki.

Hiki ke paʻakikī ka noho ʻana me ka hemophilia, akā e hōʻoiaʻiʻo ʻia me ka ʻike kūpono, ka mālama, a me ka mālama ʻana i ka manawa kūpono, hiki i kāu keiki ke ola i kahi ola hauʻoli, hana, a hoʻokō e like me nā keiki ʻē aʻe.

ʻO ka hemophilia, ke kahe koko, ke olakino o nā keiki, ke kōkua mua, ke kāpili ʻana o ke koko, ka mālama ʻana i nā pilikia