Ua loaʻa koke anei iā ʻoe kahi pehu ʻulaʻula liʻiliʻi ma kou kino, ʻoi aku hoʻi ma kou mau wāwae, kahi i lilo koke ai i ʻeha nui, hohonu, a ʻeha loa? Manaʻo paha ʻoe he ʻeha maʻamau kēia, a ua nahu ʻia paha ʻoe e kekahi pepeke. Akā i kekahi manawa hiki ke ʻoi aku ka paʻakikī ma mua o kēlā, a pono ia i ka nānā kūikawā. I kēia lā ke kamaʻilio nei mākou e pili ana i kahi kūlana i ʻike ʻole ʻia ma Sri Lanka, akā he mea nui e ʻike. ʻO ia ʻo Pyoderma Gangrenosum .
I ka ʻōlelo maʻalahi, he aha ka Pyoderma Gangrenosum?
ʻO Pyoderma Gangrenosum (puana ʻia: pyo-der-ma gane-gra-no-sum) he maʻi ʻili lōʻihi a hoʻi hou. Hoʻomaka ia me kahi puʻupuʻu liʻiliʻi, ʻulaʻula, poni, uliuli) a i ʻole ka pehu piha wai (blister a bullae) ma kou ʻili. A laila ulu koke kēia, pālahalaha, a lilo i ʻeha ākea a hohonu (ulcer) e haki ana ma ka ʻili.
Hiki i hoʻokahi a ʻoi aku paha o kēia mau ʻeha ke ulu ma ke kino. Inā ʻaʻole koʻikoʻi loa ke ʻano, hoʻokahi wale nō ʻeha. Eia nō naʻe, i nā hihia koʻikoʻi, hiki ke ulu nā ʻeha he nui. He ʻeha loa kēia mau ʻeha.
ʻO ka mea nui, ʻo ka Pyoderma Gangrenosum e kū pinepine pū me nā maʻi ʻē aʻe i loko o ke kino. ʻO ke ʻano kēia, hiki ke kū mai ia ma ke ʻano he hōʻailona o kekahi maʻi ʻē aʻe ma mua o kahi maʻi ponoʻī.
ʻO wai ka mea kūpono loa e loaʻa i kēia maʻi?
ʻOiai hiki ke loaʻa kēia maʻi i kēlā me kēia makahiki, he mea kakaikahi loa ia i waena o nā kamaliʻi ʻōpio. ʻOi aku ka maʻamau i nā wahine ma waena o 20 a me 50 mau makahiki. Eia kekahi, inā loaʻa iā ʻoe nā kūlana olakino ma lalo nei, ʻoi aku ka kiʻekiʻe o kou pilikia o ka loaʻa ʻana o Pyoderma Gangrenosum.
- Rheumatoid Arthritis: He maʻi autoimmune kēia e hoʻoulu ai i ka pehu a me ka ʻeha i nā hono.
- ʻO Ulcerative Colitis : ʻO kahi kūlana kahi e pehu ai ka uhi o ka ʻōpū nui.
- ʻO ka maʻi o Crohn: ʻO kekahi maʻi ʻē aʻe e hiki ai ke hoʻoulu i ka mumū ma nā wahi āpau o ka ʻōpala digestive.
- Kekahi mau ʻano maʻi kanesa: ʻoi aku hoʻi nā maʻi kanesa e pili ana i ke koko e like me ka leukemia a i ʻole lymphoma.
ʻAʻole maʻamau loa kēia ʻano ma Sri Lanka. Ma ke ʻano kikoʻī, ma kahi ʻāina e like me ʻAmelika, ua hōʻike ʻia kēia maʻi ma kahi o hoʻokahi i kēlā me kēia haneli tausani kānaka. Akā, ʻaʻole maikaʻi ke hoʻomaopopo ʻole i kēia no ka mea, ʻaʻole ia he mea maʻamau.
He aha nā hōʻailona nui o ka Pyoderma Gangrenosum?
ʻOiai hiki ke loaʻa kēia ʻano ma nā wahi āpau o ke kino, ʻike pinepine ʻia ia ma nā wāwae, nā kuʻekuʻe wāwae, a me nā wāwae. Hiki nō hoʻi ke loaʻa ma nā lima, ka ʻāʻī, a me nā ʻōpū. I kēia manawa e nānā kākou i nā hōʻailona āu e ʻike ai me kēia ʻano.
| Hōʻailona | Wehewehena |
|---|---|
| Nā loli ʻili | ʻIke mua ʻia ia he puʻupuʻu liʻiliʻi, ʻulaʻula, poni, uliuli, a ʻeleʻele paha a i ʻole he pehu piha i ka nahu ma ka ʻili. Hiki i kēia ke ulu koke loa. |
| Nā ʻeha hāmama (Ulcers) | Hohola koke kēlā pehu liʻiliʻi, e lilo ana i ʻeha hohonu a hāmama e haehae ana i ka ʻili. Ua hāpai ʻia a ʻike maopopo ʻia nā kihi o kēia mau ʻeha. |
| ʻEha a me ka pehu | Ua pehu a ʻeha ka ʻeha a me nā wahi a puni, ʻoi aku ka ʻeha ma mua o ka ʻeha maʻamau. |
| Nā hiʻohiʻona ʻē aʻe | Hiki i kekahi poʻe ke ʻike i nā hōʻailona maʻamau e like me ke kuni a me ka ʻeha o nā hono. |
No ke aha e hana ʻia ai kekahi mea e like me kēia? He aha ke kumu?
ʻO ka ʻoiaʻiʻo, ʻaʻole hiki i nā kauka ke kuhikuhi pono i ke kumu kūpono o Pyoderma Gangrenosum, akā ua manaʻo nui ʻia ua hana ʻia e kahi hana hewa i loko o kā mākou ʻōnaehana pale.
I ka ʻōlelo maʻalahi, hoʻomaka hewa ka ʻōnaehana pale o ko mākou kino, ʻo ia hoʻi ka ʻōnaehana pale maʻi, e hoʻouka i ko mākou ʻiʻo ʻili ponoʻī. Kāhea mākou i kēia ʻano maʻi he mau maʻi autoimmune.
ʻO kekahi mea nui loa, i kekahi manawa, ʻo kahi ʻeha liʻiliʻi i ka ʻili, e like me ka ʻoki, ka ʻōpala, a i ʻole ke ʻoki ʻana, hiki ke hoʻoulu a hoʻonui paha i ka Pyoderma Gangrenosum. I ka lāʻau lapaʻau, kapa mākou i kēia 'pathergy' . He hiʻohiʻona kūikawā kēia o kēia maʻi. No ka laʻana, ma hope o ke ʻoki ʻana, hiki ke loaʻa kēia mau ʻeha a puni kahi stoma.
He maʻi lele anei kēia?
ʻAʻole loa. He mea kēia e pono e hoʻomanaʻo pono ʻia.
ʻAʻole he maʻi lele ʻo Pyoderma Gangrenosum. ʻAʻole ia e laha mai ke kanaka a i ke kanaka ma ka hoʻopā ʻana a i ʻole ma kekahi ʻano ʻē aʻe.
Pehea e hōʻoia pololei ai ke kauka i ka Pyoderma Gangrenosum?
ʻO kēia kekahi o nā pilikia nui loa me kēia maʻi. No ka mea, ʻaʻohe hoʻokolohua hoʻokahi e hiki ke hōʻoia, 'ʻAe, ʻo ia nō.' ʻO ia ke kumu e hōʻoia mua ai nā kauka ʻaʻole nā kūlana olakino ʻē aʻe ke kumu. ʻO ia hoʻi, kāpae lākou i nā kumu ʻē aʻe o kēia mau ʻeha pākahi.
E ho'āʻo kāu kauka e hoʻopau i nā mea e like me:
- Nā maʻi bacteria a fungal paha
- Ka maʻi ʻili
- Nā kūlana mumū i loko o nā kīʻaha koko
- Nā maʻi autoimmune ʻē aʻe, e like me lupus
No ka hōʻoia i kēia mau mea, pono paha ʻoe e hana i kekahi mau hoʻokolohua e like me kēia:
- Nā hoʻāʻo koko: E nānā no ka mumū a me nā maʻi ʻē aʻe i loko o ke kino.
- Biopsy: Lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻili mai ka lesion a nānā ʻia ma lalo o kahi microscope.
- Ka laʻana ʻana o ka iwi iwi: Inā kānalua ʻia nā kūlana e like me ke kanesa koko.
- Nā hoʻāʻo kāmela kūikawā: Nā hoʻāʻo e like me ka "(Colonoscopy)" e nānā i ka kolona inā kānalua ʻia kahi maʻi e like me ka maʻi ʻo Crohn.
He aha nā lāʻau lapaʻau no kēia?
Aia kekahi mau lāʻau lapaʻau no Pyoderma Gangrenosum. Na kāu kauka e hoʻoholo i ka lāʻau lapaʻau ma muli o ke koʻikoʻi o kou kūlana.
No nā kūlana liʻiliʻi
I nā pae mua a inā ʻaʻole i koʻikoʻi loa ke ʻano, hiki i ke kauka ke kuhikuhi i nā kirīmi a i ʻole nā mea ʻaila e kau ai ma ka ʻeha.
- Nā kirimina Corticosteroid: He mau lāʻau lapaʻau ikaika kēia e kāohi ai i ka mumū a me ka pehu. Hoʻopili pololei ʻia lākou i ka ʻeha.
Inā koʻikoʻi ke kūlana
Inā nui nā ʻeha, he nui lākou, a i ʻole he koʻikoʻi ka ʻeha, pono paha nā lāʻau lapaʻau waha a i ʻole nā lāʻau lapaʻau kūikawā ʻē aʻe.
- Nā papa Corticosteroids:ʻO nā lāʻau lapaʻau e like me ka prednisone e kaohi i ka mumū ma ke kino holoʻokoʻa.
- Nā lāʻau lapaʻau immunosuppressant: Hana kēia mau lāʻau lapaʻau ma ka hōʻemi ʻana i ka hana o kā mākou ʻōnaehana pale, e pale ana iā ia mai ka hōʻino ʻana i ko mākou kino ponoʻī. ʻO Cyclosporine kekahi o ia mau lāʻau lapaʻau.
- Nā mea olaola: He mau lāʻau lapaʻau hou kēia e pili ana i nā protein kikoʻī i loko o ke kino e hoʻoulu ai i ka mumū.
- Debridement: Hiki i ke ʻoki ʻana i nā ʻiʻo make mai kahi ʻeha ke kōkua i kekahi manawa. Akā he mea weliweli kēia. Ma muli o ke kūlana i kapa ʻia ʻo 'pathergy' a mākou i kūkākūkā ai ma mua, hiki i kēia ʻano hōʻino ʻili ke hoʻonui i ke kūlana. No laila, pono e hana ʻia kēia me ke akahele nui a ma lalo o ka nānā ʻana a kahi loea.
He aha kaʻu mea e pono ai e ʻike i koʻu wā e ola nei me kēia maʻi?
Hiki ke paʻakikī ke noho ʻana me ka Pyoderma Gangrenosum, akā me ka mālama pono ʻana, hiki ke kaohi ʻia.
Mālama ʻeha
- E pale i ka hōʻino ʻana o ka ʻili: E akahele e like me ka hiki me nā ʻoki, nā ʻōpala, a me nā palapū. ʻOiai kahi ʻōpala liʻiliʻi hiki ke lilo i kumu o kahi ʻeha hou.
- E mālama i ka ʻeha maʻemaʻe: E holoi i ka ʻeha me ka wai maʻemaʻe a me ke kopa e like me ke kuhikuhi a kāu kauka. He mea nui loa kēia e pale aku ai i ka maʻi.
- E kāʻei pono: E hoʻohana i nā kāʻei kūikawā ʻaʻole e pipili i ka ʻeha. No kekahi mau ʻeha koʻikoʻi, hiki i kāu kauka ke ʻōlelo aku i nā kāʻei kūikawā, e like me ka hydrocolloid. ʻO ka ʻōlelo aʻo a kāu kauka ka mea nui loa.
Ka manawa e ho'ōla ai
Hiki i kēia maʻi ke hala i nā pule, a i ʻole nā mahina, e ho'ōla. No laila he mea nui e hoʻomanawanui a mai manaʻo i nā hopena koke.
Ola kino noʻonoʻo
He mea maʻamau ke kaumaha a me ke kaumaha i ka wā e hana ai me kahi maʻi ʻeha lōʻihi e like me kēia. E kamaʻilio me kou ʻohana a me ke kauka e pili ana i kou mau manaʻo. E ʻimi i ke kōkua o kahi kākāʻōlelo olakino noʻonoʻo inā pono.
Ke hoʻomaopopo nei i nā kauka ʻē aʻe
Inā loaʻa iā ʻoe ʻo Pyoderma Gangrenosum, e hōʻoia e haʻi i kāu kauka inā ʻike ʻoe iā ia no kekahi kumu ʻē aʻe (e like me ka unuhi ʻana o ka niho a i ʻole ke ʻoki liʻiliʻi), no ka mea, ʻo nā mea āu e hana ai i kou ʻili hiki ke hoʻi hou mai ke ʻano.
Āhea ʻoe e pono ai e ʻike i ke kauka?
Aia kekahi mau kūlana e pono ai ʻoe e ʻike koke i kāu kauka.
- Inā loaʻa iā ʻoe kahi maʻi pilikia e like me ka maʻi ʻaʻai a i ʻole ka maʻi a Crohn a hoʻomohala i nā ʻūlū a i ʻole nā ʻeha ma kou ʻili e ulu wikiwiki ana.
- Inā ʻike ʻia kou ʻeha ua maʻi ʻia (e like me ka ʻulaʻula, ka waihoʻoluʻu poni a puni ka ʻeha, ka piʻi ʻana o ka pehu, a i ʻole kahi ʻala pilau).
- Inā ʻoe e hoʻomohala i nā hōʻailona hou.
- Inā hoʻoulu nā lāʻau lapaʻau i hoʻohana ʻia no ka mālama ʻana i nā hopena ʻaoʻao koʻikoʻi.
Leka Lawe-Home
- ʻAʻole ʻo Pyoderma Gangrenosum he ʻeha maʻamau wale nō. He maʻi ʻili kakaikahi akā koʻikoʻi ia e hoʻoulu ai i nā ʻeha ʻeha.
- ʻAʻole kēia he mea laha. No laila, ʻaʻohe pono e hoʻokaʻawale a makaʻu paha i kahi mea maʻi.
- Hoʻopili pinepine kēia i kahi pilikia me kāu ʻōnaehana pale a me nā maʻi ʻē aʻe, e like me ka arthritis.
- ʻOiai kahi ʻeha liʻiliʻi i ka ʻili e hiki ke hoʻonui i ka maʻi (Pathergy). No laila, he mea nui loa ia e pale iā ʻoe iho mai nā ʻeha.
- He paʻakikī ka ʻike ʻana i ka maʻi a hiki ke lōʻihi ka manawa e mālama ai. He mea nui e hoʻomanawanui a hahai i nā ʻōlelo aʻoaʻo a ke kauka.
- Inā loaʻa iā ʻoe ʻo Pyoderma Gangrenosum, he mea nui e haʻi aku i kāu kauka ma mua o kekahi ʻoki kino a i ʻole kekahi lāʻau lapaʻau e pili ana i ka ʻili.
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