Ke haʻi aku kāu kauka iā ʻoe a i ʻole kekahi mea kokoke iā ʻoe ua loaʻa iā ʻoe ka Amyotrophic Lateral Sclerosis (ALS), he mea maʻamau ka manaʻo ʻana i kahi kaumaha ma kou puʻuwai. Ua ʻike ʻia kēia maʻi e kekahi poʻe ʻo 'Lou Gehrig's disease'. He maʻi kēia e pili ana i ka ʻōnaehana nerve e hoʻonāwaliwali mālie ana i nā ʻiʻo o ke kino. ʻOiai ʻaʻohe lāʻau lapaʻau no kēia maʻi, aia nā lāʻau lapaʻau e hiki ke kōkua i ka hoʻomalu ʻana i kona wikiwiki a hoʻomaʻalahi iki i ke ola. ʻO Riluzole kekahi o ia mau lāʻau. No laila i kēia lā, e kamaʻilio kākou e pili ana i kēia lāʻau lapaʻau wai Riluzole (hoʻokuʻu waha) ma nā ʻōlelo maʻalahi.
I ka ʻōlelo maʻalahi, he aha ʻo Riluzole?
He lāʻau lapaʻau ʻo Riluzole e kōkua ana i ka hoʻolohi ʻana i ka holomua o ka Amyotrophic Lateral Sclerosis (ALS). Hana ia ma ka hoʻolohi ʻana i ka holomua o ka maʻi. E noʻonoʻo e like me ka hoʻolohi ʻana i kahi kaʻa. ʻAʻole ia e ho'ōla loa i ka maʻi, akā kōkua ia i ka mea maʻi e hana i kā lākou mau hana o kēlā me kēia lā no kekahi manawa lōʻihi a i kekahi ʻano e hoʻolohi i ka hoʻomaka ʻana o nā hōʻailona e like me ka pōkole o ka hanu. Loaʻa pū kēia lāʻau lapaʻau ma lalo o ka inoa inoa ʻo Tiglutik.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau
Ma mua o kou hoʻomaka ʻana e lawe iā Riluzole, he mea nui e ʻike kāu kauka i kou mōʻaukala olakino piha. E hōʻoia e haʻi i kāu kauka e pili ana i kēia mau mea me ka hūnā ʻole i kekahi mea .
- Inā he maʻi kou i ke akepaʻa .
- Inā ua loaʻa iā ʻoe kahi hopena maʻi ʻaleka iā Riluzole, i kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a i ʻole nā mea hoʻoluʻu.
- Inā hāpai ʻoe a i ʻole e hoʻāʻo nei e hāpai .
- Inā he makuahine ʻoe e hānai waiū ana i kahi keiki .
He mea nui loa e haʻi pololei i kēia ʻike i kāu kauka, no kou palekana a no ka loaʻa ʻana o ka pōmaikaʻi nui loa mai ka lāʻau lapaʻau.
Pehea pololei ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
I mea e pono ai ka hoʻohana pono ʻana i kēia lāʻau lapaʻau, he mea nui loa ia e hoʻohana pono.
- He lāʻau lapaʻau wai kēia e lawe ʻia ma ka waha. Pono e lūlū maikaʻi ʻia ka ʻōmole ma mua o ka hoʻohana ʻana.
- E hoʻohana wale i ka puna kūikawā a i ʻole ka mea hoʻoheheʻe wai e hele mai me ka lāʻau lapaʻau e ana iā ia. Mai hoʻohana i nā tīpune maʻamau mai kāu lumi kuke mai, no ka mea, ʻaʻole lākou e hāʻawi iā ʻoe i kahi ana pololei.
- ʻO kēia ka mea nui loa: Pono e lawe ʻia kēia lāʻau lapaʻau ma ka ʻōpū ʻole . ʻO ia hoʻi, ma ka liʻiliʻi he hoʻokahi hola ma mua a ʻelua paha hola ma hope o ka ʻai ʻana. ʻO ka lawe ʻana me ka meaʻai e hōʻemi paha i ka omo ʻana o ka lāʻau lapaʻau i loko o ke kino.
- E lawe i ka lāʻau lapaʻau e like me ke kauoha a kāu kauka, i ka manawa i kauoha ʻia. Mai hoʻonui i ka nui o ka lāʻau a lawe pinepine paha, ʻoiai inā makemake ʻoe.
- Mai ho'ōki koke i ka lawe ʻana i ka lāʻau me ka ʻole o ke aʻo ʻana a kāu kauka.
- Inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i nā keiki, pono ʻoe e kūkākūkā me ke kauka keiki e pili ana i ia mea. Pono paha ka mālama kūikawā.
He aha inā e hala iaʻu kahi mahele o ka lāʻau lapaʻau?
Inā poina iā ʻoe ke lawe i kahi lāʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Akā inā kokoke ka manawa no kāu lāʻau aʻe, e kāpae i ka lāʻau i poina a lawe i ka lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi e hoʻopiha ai i kahi lāʻau i poina.
He aha ka mea e hana ai inā hoʻonui ʻia ka nui o ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe nui ʻoe i ka lāʻau lapaʻau, e hele koke i ka Halemai Pilikia (ETU) kokoke loa. A i ʻole e kelepona i ke Kikowaena ʻIke ʻAi ʻona Lahui ma ka Halemai Lahui ʻo Colombo no ka ʻōlelo aʻoaʻo.
Nā mea ʻē aʻe e pono e hoʻomaopopo i ka wā e lawe ai iā Riluzole
- E ʻike pinepine i kāu kauka: E ʻike i kāu kauka i nā lā i hoʻonohonoho ʻia e ʻike ai pehea ka hopena o ka lāʻau lapaʻau iā ʻoe.
- E makaʻala i nā maʻi: Hiki ke emi iki ka hiki o kou kino ke pale aku i nā maʻi (palekana) i ka wā e lawe ana i kēia lāʻau. No laila, inā ʻike ʻoe i nā hōʻailona e like me ke kuni, ke anu, ka ʻeha o ke kino, a i ʻole ka ʻāʻī ʻeha, mai hoʻōla ponoʻī a e ʻike koke i ke kauka. E hoʻāʻo e noho mamao aku mai ka poʻe maʻi.
- E makaʻala me nā mea ʻeha ʻeha: Mai lawe i nā mea ʻeha ʻeha e like me ka aspirin, paracetamol, a me ibuprofen me ka ʻole o ke kūkākūkā ʻana me kāu kauka, no ka mea hiki i kēia ke kāohi i nā hōʻailona e like me ke kuni.
- Ka hiamoe a me ka poniuniu: Hiki i kēia lāʻau lapaʻau ke hoʻohiamoe a poniuniu paha iā ʻoe. No laila, mai hoʻokele kaʻa, hoʻohana i nā mīkini, a hana paha i kekahi mea e pono ai ka noʻonoʻo a hiki i kou ʻike pono ʻana i ke ʻano o ka hopena o kēia lāʻau lapaʻau iā ʻoe. Inā he ʻelemakule ʻoe, e kū mālie, e like me ke ala ʻana mai kahi noho.
- Puhipaka: E haʻi i kāu kauka inā ʻoe e puhipaka. Hiki i ka puhipaka ke hoʻemi i ka hopena o kēia lāʻau lapaʻau. Inā ʻoe e noʻonoʻo ana e haʻalele i ka puhipaka, e kamaʻilio me kāu kauka e pili ana i ia mea.
Nā hopena ʻaoʻao a me nā pilina lāʻau
E like me nā lāʻau lapaʻau āpau, hiki iā Riluzole ke hana i nā hopena ʻaoʻao. Hiki nō hoʻi i kēia lāʻau lapaʻau ke launa pū me nā lāʻau lapaʻau ʻē aʻe. He mea nui e makaʻala i kēia.
| He aha e hoʻolohe ai | Wehewehena |
|---|---|
| Nā hopena ʻaoʻao e pono ai ke kōkua koke ʻana o ke kauka | |
| Nā hopena maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe a i ʻole ke alelo. |
| Nā Hōʻailona o ka ʻeha o ke akepaʻa | Mimi melemele ʻeleʻele a ʻeleʻele paha, melemele o nā maka a i ʻole ka ʻili, ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, nalowale o ka makemake e ʻai, nausea, luhi ʻē. |
| Nā hōʻailona o ka maʻi | Kuni, anu, a me ka ʻāʻī ʻeha. |
| Nā hopena ʻaoʻao e pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| Nā hopena ʻaoʻao maʻamau | Kuke, ʻeha poʻo, nausea, luaʻi, ʻeha ʻōpū, luhi. |
| Nā pilina me Riluzole | |
| Nā lāʻau lapaʻau a me nā mea ʻē aʻe | Nā lāʻau lapaʻau e like me Allopurinol, nā pila hoʻomalu hānau, Ciprofloxacin, Fluvoxamine, Methyldopa, Sulfasalazine, a pēlā aku. Eia kekahi, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe, nā huaora, nā lāʻau lapaʻau kuʻuna, ka waiʻona, a me ka puhipaka āu e lawe nei. |
Pehea e mālama ai i ka lāʻau lapaʻau?
- E mālama iā ia ma kahi palekana i hiki ʻole i nā keiki ke loaʻa .
- Mai hoʻokomo i loko o ka pahu hau. E mālama ma ka mahana o ka lumi (ma waena o 15 a me 30 kekelē Celsius) .
- He mea nui loa:E hoʻolei i kekahi lāʻau lapaʻau i koe i 15 mau lā ma hope o ka wehe mua ʻana i ka ʻōmole. Mai hoʻohana no nā lā ʻoi aku ma mua o 15.
Leka Lawe-Home
- ʻAʻole lāʻau lapaʻau ʻo Riluzole no ka ALS, akā kōkua ia i ka kaohi ʻana i ka holomua o ka maʻi.
- E lawe mau i kēia lāʻau lapaʻau ma ka ʻōpū ʻole, ʻo ia hoʻi, hoʻokahi hola ma mua a ʻelua paha hola ma hope o ka ʻai ʻana.
- E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe, nā huaora, a me nā kūlana olakino ʻē aʻe āu e lawe nei.
- E ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe nā hopena ʻino e like me ke kuni, ka melemele o ka ʻili, a i ʻole nā maʻi allergies.
- E hoʻolei i kekahi lāʻau lapaʻau i koe i 15 mau lā ma hope o ka wehe ʻana i ka ʻōmole.
- Mai ho'ōki i ka lawe ʻana i ka lāʻau lapaʻau a hoʻololi paha i ka nui me ka ʻole o ke aʻo ʻana a kāu kauka.
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