Inā loaʻa iā ʻoe a i ʻole kahi mea aloha ʻoe ʻo Amyotrophic Lateral Sclerosis (ALS), ʻike mākou i ke ʻano o ka paʻakikī. ʻAʻole maʻalahi ka noho ʻana me kēia maʻi, ka mea e hoʻonāwaliwali mālie ai i nā hunaola nerve e kaohi ana i ko mākou mau ʻiʻo. No laila i kēia lā e kamaʻilio mākou e pili ana i kahi lāʻau lapaʻau e hiki ke kōkua i ka kaohi a me ka hoʻolohi ʻana i ka ʻino o kēia mau hōʻailona. Ua kapa ʻia kēia lāʻau lapaʻau ʻo Sodium Phenylbutyrate; Taurursodiol.
He aha ka mea e hana maoli me kēia lāʻau lapaʻau?
ʻO ka mea mua, e hoʻomaopopo kākou i kēia. ʻAʻole kēia lāʻau lapaʻau he lāʻau lapaʻau piha no ka ALS. Akā, hana ia i kahi mea nui loa. ʻO ka hana a kēia lāʻau lapaʻau, ʻo ia ka pale ʻana i nā hunaola nerve i hōʻino ʻia e ka maʻi. Ma kēia ʻano, hiki iā ia ke hoʻolohi i ka holomua o nā hōʻailona. I ka ʻōlelo maʻalahi, kōkua kēia lāʻau lapaʻau i ka hāʻawi ʻana i kahi hōʻoluʻolu i ka mea maʻi a kāohi i ke ala o ka maʻi i kekahi ʻano.
Hiki paha i nā kauka ke ʻōlelo aku i kēia no nā kūlana olakino ʻē aʻe, no laila inā he mau nīnau kāu e pili ana i kēia, ʻoi aku ka maikaʻi o ke kamaʻilio ʻana me kāu kauka a hoʻoponopono i kēlā mau pilikia.
Nā mea āu e haʻi aku ai i kāu kauka ma mua o ka lawe ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui loa ia e hāʻawi i kāu kauka i kahi wehewehe piha o kou kūlana olakino. E hōʻoia e haʻi iā ia inā loaʻa iā ʻoe kekahi o nā kūlana ma lalo nei.
| Maʻi a i ʻole kekahi kūlana ʻē aʻe | No ke aha e pono ai iaʻu ke hoʻomaopopo i ke kauka ? |
|---|---|
| Maʻi akepaʻa | No ka mea, he mea nui ke akepaʻa no ka wehe ʻana i nā lāʻau lapaʻau mai ke kino. |
| Maʻi puʻupaʻa | No ka mea, kānana nā puʻupaʻa i ka lāʻau lapaʻau. |
| Maʻi puʻuwai (Ka hāʻule ʻana o ka puʻuwai) | Loaʻa i kēia lāʻau lapaʻau ka sodium, hiki ke hoʻopilikia i ka puʻuwai. |
| Ke koko kiʻekiʻe | No ka mea hiki i ka sodium ke hoʻonui i ke koko. |
| Maʻi ʻōpū | No ka mea, hiki i kekahi o nā mea hoʻohui i loko o kēia lāʻau lapaʻau ke hoʻopilikia i ka gallbladder. |
| Maʻi pancreatic | No ka mea hiki ke hoʻopilikia i ka hana o ka pancreas. |
| Nā pilikia ʻōpū | No ka mea, hiki ke loaʻa nā hopena ʻaoʻao e like me ka diarrhea. |
| Nā maʻi ʻaleka i nā lāʻau lapaʻau ʻē aʻe, nā meaʻai a i ʻole nā mea ʻē aʻe | I mea e pale aku ai i ka hoʻoulu ʻana i kahi hopena allergies. |
| Ke hāpai nei a i ʻole e hoʻāʻo nei e hāpai | E nānā pono i nā hopena hiki ke pilikia i ka fetus. |
| Ka hānai ʻana i ka waiū umauma | E makaʻala i ka hiki ke hele ka lāʻau lapaʻau i ka pēpē ma o ka waiū umauma. |
Pehea e pono ai iaʻu ke hoʻohana i ka lāʻau lapaʻau?
He mea nui loa ka ʻike pehea e hoʻohana pono ai i kēia lāʻau.
- Pehea e lawe ai: He lāʻau lapaʻau waha kēia. E hoʻāʻo e lawe iā ia i ka manawa like i kēlā me kēia lā, e like me ke kauoha a kāu kauka.
- Hoʻomākaukau: E kau i ka pauka mai kahi ʻeke lāʻau lapaʻau i loko o ke aniani wai mahana o ka lumi (ma kahi o 240 ml). A laila e hoʻowali maikaʻi e hoʻoheheʻe.
- Ka wā e inu ai: E inu i kēia i ka hoʻomaka ʻana o ka ʻai a i ʻole me kahi meaʻai māmā . Mai lawe i ka ʻōpū ʻole.
- Ke kū nei: E hoʻomau i ka lawe ʻana i ka lāʻau lapaʻau a hiki i ka lōʻihi o ka manawa e ʻōlelo ai kāu kauka. Mai kū i ka hapalua.
Hoʻolohe: Inā manaʻo ʻoe ua lawe nui ʻoe i kēia lāʻau lapaʻau, ʻo ia hoʻi, he overdose, e kāhea koke aku i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo a i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa. E mālama i kēia ma ke ʻano he pilikia.
ʻO kekahi mea ʻē aʻe, ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like me kekahi, ʻoiai inā loaʻa i kēlā kanaka nā hōʻailona like me ʻoe.
He aha kāu e hana ai inā e poina ʻoe i kahi mahele o ka lāʻau lapaʻau?
Mai hopohopo. Inā ʻoe e poina i kahi lāʻau lapaʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Akā inā kokoke ka manawa no kāu lāʻau lapaʻau aʻe, e kāpae i ka lāʻau lapaʻau i poina a lawe i kāu lāʻau lapaʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ka lāʻau lapaʻau pālua e hoʻopiha no kahi lāʻau lapaʻau i poina.
Nā lāʻau lapaʻau ʻē aʻe e launa pū me kēia lāʻau lapaʻau
Hiki i kekahi mau lāʻau lapaʻau ʻē aʻe āu e lawe nei ke launa pū me kēia lāʻau lapaʻau. No laila, he mea nui e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei. ʻOi loa aku inā ʻoe e lawe ana i kekahi o kēia mau lāʻau lapaʻau:
- Kekahi mau antacids
- ʻO Cholestyramine
- ʻO Colesevelam
- ʻO Colestipol
- ʻO Cyclosporine
- ʻO Probenecid
ʻAʻole piha kēia papa inoa. He mea nui e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei, me nā lāʻau lapaʻau i kauoha ʻia a me nā lāʻau lapaʻau ʻole, nā huaora, nā lāʻau lapaʻau lāʻau, a me nā lāʻau lapaʻau kuʻuna. He mea nui hoʻi e haʻi i kāu kauka inā ʻoe e puhipaka, inu waiʻona, a hoʻohana paha i nā lāʻau lapaʻau ʻē aʻe.
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke hana i kekahi mau hopena ʻaoʻao. He koʻikoʻi kekahi o lākou, he mea maʻamau kekahi.
| ʻAno o ka hopena ʻaoʻao | Nā hōʻailona |
|---|---|
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, lehelehe, alelo a i ʻole ka puʻu, paʻakikī ke hanu. |
| Nā hopena ʻaoʻao maʻamau e pono e hōʻike ʻia i ke kauka inā hoʻomau a hoʻopilikia paha lākou | |
| Ka maʻi pākī | ʻŌpū. |
| Ka luaʻi | Manaʻo e luaʻi ana. |
| ʻEha ʻōpū | ʻEha a ʻoluʻolu ʻole paha o ka ʻōpū. |
ʻAʻole i hoʻokomo ʻia nā hopena ʻaoʻao āpau i loko o kēia papa inoa. Inā loaʻa iā ʻoe kekahi mea ʻē aʻe ma waho aʻe o kēia mau mea, e ʻimi i ke kōkua lapaʻau.
Pehea e mālama ai i ka lāʻau lapaʻau? Pehea e wehe ai?
- Ka mālama ʻana: E mālama i kēia lāʻau lapaʻau mai ka hiki ʻana aku o nā keiki a me nā holoholona . ʻOi aku ka maikaʻi o ka mālama ʻana ma ka mahana o ka lumi (ma waena o 20 a me 25 degere Celsius). Mai hoʻohana i ka lāʻau lapaʻau i pau ka lā.
- Ke Hoʻolei ʻana: I ka wā e hoʻolei aku ai i nā lāʻau lapaʻau i pau ka lā a i ʻole nā lāʻau lapaʻau ʻaʻole pono hou, he mea nui e hana palekana. E nānā i nā kuhikuhi ma ka pūʻolo lāʻau. Inā ʻōlelo ʻia he palekana ke hoʻolei i loko o ka ʻōpala, e lawe i ka lāʻau lapaʻau mai loko mai o ka pahu a kāwili iā ia me kahi mea e like me ka ʻōpala pōpoki, ka lepo, a i ʻole nā mea i hoʻohana ʻia no ke kope. A laila, e kau i ka hui ʻana i loko o kahi ʻeke i hoʻopaʻa paʻa ʻia a hoʻolei i loko o ka ʻōpala. Inā ʻaʻole ʻoe maopopo, e noi i kāu kauka no ka ʻōlelo aʻo.
Leka Lawe-Home
- ʻAʻole ho'ōla kēia lāʻau lapaʻau (Sodium Phenylbutyrate; Taurursodiol) i ka ALS, akā kōkua ia i ka hoʻolohi ʻana i ka wikiwiki o ka ʻino ʻana o nā hōʻailona.
- E lawe mau i kāu lāʻau lapaʻau me ka ʻai, e like me ke kauoha a kāu kauka.
- E hoʻomaopopo i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei a me nā maʻi ʻē aʻe āu e loaʻa nei (ʻoiai ke akepaʻa, nā puʻupaʻa, a i ʻole ka maʻi puʻuwai).
- Inā loaʻa nā hōʻailona o kahi hopena maʻi (ʻili ʻulaʻula, pehu), e ʻimi koke i ke kōkua lapaʻau.
- Inā ʻoe e lawe nui i ka lāʻau lapaʻau, e hele koke i ka National Poisons Information Center a i ʻole ka Emergency Department (ETU) kokoke loa.
- Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me nā poʻe ʻē aʻe.
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