Inā ʻoe a i ʻole kekahi āu i ʻike ai he cystic fibrosis, ua kuhikuhi paha kāu kauka i kēia lāʻau i kapa ʻia ʻo Tezacaftor; Ivacaftor. ʻO Symdeko ka inoa inoa o kēia lāʻau. ʻOiai he lāʻau lapaʻau kūikawā kēia a hou, he mea nui loa ia e ʻike pono e pili ana iā ia a hoʻohana pololei. No laila i kēia lā, e kamaʻilio maʻalahi kākou e pili ana i kēia lāʻau, pehea e hana ai, pehea e lawe ai, a me nā mea āpau āu e pono ai e makaʻala.
He aha ʻo Tezacaftor; ʻo Ivacaftor?
I ka ʻōlelo maʻalahi, he pila kēia i hoʻohana ʻia e mālama i kahi maʻi i kapa ʻia ʻo Cystic Fibrosis (CF). Eia naʻe, ʻaʻole ia e hāʻawi ʻia i nā poʻe maʻi CF āpau. Hana wale kēia lāʻau lapaʻau no ka poʻe i loaʻa kekahi mau mutations i loko o kā lākou mau genes. E hana kāu kauka i nā hoʻokolohua e pono ai e hoʻoholo inā kūpono kēia lāʻau lapaʻau iā ʻoe. Kōkua ia i ka hoʻoponopono ʻana i kahi pilikia me nā protein i loko o kou kino i hoʻokumu ʻia e CF. Hiki i kāu kauka ke kuhikuhi iā ia no nā kumu ʻē aʻe. No laila, inā he mau nīnau kāu, e nīnau i kāu kauka.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau
Ma mua o ke kau ʻana o kāu kauka i kēia lāʻau lapaʻau, pono ʻo ia e ʻike i kou mōʻaukala olakino piha. No laila, inā loaʻa iā ʻoe kekahi o kēia mau kūlana, e hōʻoia e haʻi i kāu kauka .
- Inā he maʻi puʻupaʻa kou.
- Inā he maʻi kou akepaʻa.
- Inā ua loaʻa iā ʻoe kahi hopena maʻi ʻē aʻe i nā mea hoʻohui Tezacaftor, Ivacaftor, a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻomalu paha.
- Inā ʻoe e hāpai ana, a i ʻole ke manaʻo nei e hāpai koke.
- Inā he makuahine hānai waiū ʻoe.
He mea nui loa ia no kou palekana ponoʻī e haʻi i ke kauka me ka hūnā ʻole i kēia ʻike.
Pehea pololei kaʻu e hoʻohana ai i kēia lāʻau lapaʻau?
I mea e loaʻa ai ka hopena maikaʻi loa mai kēia lāʻau lapaʻau, pono ʻoe e lawe e like me ke kauoha.
- E lawe me ka ʻai momona: Pono e lawe mau ʻia kēia lāʻau lapaʻau me ka ʻai momona . No ka laʻana, ʻo nā hua manu, ka tīhi, ka pata pīnati, ka ʻāpala, a pēlā aku e kōkua i ke kino e omo maikaʻi i ka lāʻau lapaʻau.
- E ale holoʻokoʻa i ka papa: Mai uhaʻi, kuʻi, a nau paha i ka papa. E ale holoʻokoʻa me kahi aniani wai.
- Mai lawe pū me ka wai Grapefruit: He mea nui loa kēia. E pale i ka ʻai ʻana a inu ʻana paha i nā hua waina a i ʻole ka wai grapefruit i ka wā e lawe ana i kēia lāʻau.Hiki paha ke hoʻopilikia i ka pono o ka lāʻau lapaʻau.
- E lawe i ka manawa kūpono: E lawe i kāu lāʻau lapaʻau i ka manawa a kāu kauka i kuhikuhi ai, ma nā manawa kūpono. Inā hoʻokahi manawa i ka lā, e hoʻāʻo e lawe i ka manawa like i kēlā me kēia lā.
- Mai ho'ōki i ka lawe ʻana i kāu lāʻau lapaʻau me ka ʻole o ke aʻo ʻana a kāu kauka: Mai ho'ōki i ka lawe ʻana i kāu lāʻau lapaʻau me ka ʻole o ka nīnau mua ʻana i kāu kauka, inā paha no kou manaʻo ua maikaʻi a i ʻole no kekahi kumu ʻē aʻe.
Inā hāʻawi ʻoe i kēia lāʻau lapaʻau i nā keiki ...
I kekahi manawa, ʻōlelo ʻia kēia lāʻau lapaʻau no nā keiki ma luna o 6 mau makahiki. Eia nō naʻe, he hoʻoholo kēia na kāu kauka lapaʻau. E hahai pono i kāna mau kuhikuhi.
He aha kāu e hana ai inā lawe ʻoe i ka nui o ka lāʻau lapaʻau (overdose)?
Inā kānalua ʻoe ua lawe ʻoe i kahi overdose, mai hopohopo a kāhea koke aku i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo . A i ʻole, inā hiki , e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa i ka hikiwawe loa.
He aha inā e hala iaʻu kahi mahele o ka lāʻau lapaʻau?
Inā poina iā ʻoe ke lawe i kahi lāʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Akā inā ʻaʻole i hala ma mua o 6 mau hola a hiki i kāu lāʻau aʻe, e kāpae i ka lāʻau i hala ʻole. E lawe wale i ka lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi e hoʻopiha ai i kahi lāʻau i poina.
Nā lāʻau ʻē aʻe e launa pū me kēia lāʻau (Nā Hana Lāʻau)
Hiki i kēia lāʻau lapaʻau ke launa pū me kekahi mau lāʻau lapaʻau ʻē aʻe. No laila, he mea nui e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei (me nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui). Hōʻike hou aku ka papa ma lalo nei i kēia.
| ʻAno lāʻau lapaʻau | Wehewehena / Nā Laʻana |
|---|---|
| E pale i ka lawe pū ʻana i kēia mau mea. | |
| ʻO kekahi mau lāʻau lapaʻau i hāʻawi ʻia no ke olakino | ʻO Carbamazepine, Phenobarbital, Phenytoin |
| Lāʻau lapaʻau no ka maʻi puʻupuʻu | Rifampin, Rifabutin |
| He lau nahele | ʻO ka Wort o St. John |
| He mea inu | Wai ʻāpala |
| Hiki i kēia mau mea ke launa pū (e hoʻohana wale ma lalo o ke aʻo lapaʻau) | |
| Kekahi mau lāʻau antibiotic | ʻO Clarithromycin, ʻErythromycin, Telithromycin |
| Nā lāʻau antifungal | ʻO Fluconazole, Itraconazole, Ketoconazole, Posaconazole, Voriconazole |
| Nā lāʻau lapaʻau i hāʻawi ʻia ma hope o nā transplants | ʻO Cyclosporine, Everolimus, Sirolimus, Tacrolimus |
| He lāʻau lapaʻau no ka maʻi puʻuwai | ʻO Digoxin |
Nā hopena ʻaoʻao hiki ke loaʻa i ka wā e lawe ai i ka lāʻau lapaʻau
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke hana i nā hopena ʻaoʻao i kekahi poʻe. He koʻikoʻi kekahi, he akahai kekahi.
| ʻAno o ka hopena ʻaoʻao | Nā hōʻailona |
|---|---|
| Nā hopena ʻaoʻao koʻikoʻi e pono e hōʻike koke ʻia i ke kauka | |
| Nā hopena maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, lehelehe a i ʻole ke alelo, paʻakikī ke hanu. |
| Nā loli o ka ʻike | ʻIke pōwehiwehi, nā loli i nā keʻokeʻo o nā maka (cataracts). |
| Nā Hōʻailona o ka ʻeha o ke akepaʻa | Mimi melemele ʻeleʻele a ʻeleʻele paha, melemele o nā maka a i ʻole ka ʻili (jaundice), nalowale o ka makemake e ʻai, nausea, ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, nā ʻōpala keʻokeʻo, luhi ʻē. |
| Nā hopena ʻaoʻao maʻamau e pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| ʻEha poʻo | ʻEha poʻo laulā. |
| Pōʻino | Manaʻo puni. E pale i ka hoʻokele kaʻa. |
| Ka luaʻi | Manaʻo e luaʻi ana. |
| Nā pilikia sinus | Paʻa ka ihu, ka huʻa. |
Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē aʻe i ʻōlelo ʻole ʻia ma kēia papa inoa, e haʻi i kāu kauka e pili ana iā lākou.
Leka Lawe-Home
- ʻO Tezacaftor; ʻO Ivacaftor (Symdeko) kahi lāʻau lapaʻau kūikawā i hāʻawi ʻia no kekahi mau kūlana genetic o Cystic Fibrosis.
- Pono e lawe mau ʻia kēia lāʻau me ka ʻai momona .
- E hōʻalo i ka inu ʻana i ka wai huaʻai a pau i ka wā e lawe ana i kēia lāʻau.
- E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- Inā ʻike ʻoe i kekahi mau hōʻailona o ka hōʻino ʻia o ke akepaʻa, e like me nā loli o ka ʻike a i ʻole ka melemele ʻana o ka ʻili , e ʻimi koke i ke kōkua lapaʻau.
- Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me kekahi.
- Mai kānalua e nīnau i kāu kauka e pili ana i kekahi mau pilikia.
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