Ma ke ʻano he makuahine a makua kāne paha, mālama nui mākou a pau i ke olakino o kā mākou keiki. I kekahi manawa, ʻoiai he kuni maʻalahi a i ʻole nā ʻehaʻeha i loko o kahi keiki hiki ke lilo i mea kaumaha nui i ko mākou mau naʻau. I kēia lā, ke kamaʻilio nei mākou e pili ana i kahi maʻi ʻaʻai e hoʻoweliweli nei i nā mākua, akā he mea pōmaikaʻi he kakaikahi loa ia, ʻoiai hoʻi i nā keiki ʻōpio. ʻO ia ka neuroblastoma. ʻOiai paha he mea weliweli ke kani o ka inoa, he mea nui e makaʻala iā ia.
He aha maoli ka neuroblastoma?
I ka ʻōlelo maʻalahi, ʻo Neuroblastoma kahi maʻi kanesa e ulu ana ma kahi ʻāpana o kā mākou ʻōnaehana nerve. Loaʻa iā mākou kahi pūnaewele o nā aʻalolo e lawe ana i ka ʻike ma o ko mākou kino. E noʻonoʻo e like me ka "ʻōnaehana leka" o ko mākou kino. Kāhea mākou i kēia ʻo ka 'ʻōnaehana nerve sympathetic.' Hoʻomaka ka maʻi kanesa Neuroblastoma i loko o nā pūnaewele o kēia ʻōnaehana nerve.
ʻO ke ʻano kūikawā o kēia, ʻoi aku ma mua o 90% o nā maʻi he mau keiki ma lalo o 5 mau makahiki. He mea kākaʻikahi loa ka ʻike ʻana i kahi keiki ma luna o 10 mau makahiki e ulu ana i kēia maʻi.
ʻO ka hapa pinepine, hoʻomaka kēia maʻi kanesa i loko o ʻelua mau kelepa liʻiliʻi e hana ana i nā hormone ma luna o nā puʻupaʻa. Ua kapa ʻia kēia mau mea ʻo nā kelepa adrenal. Eia nō naʻe, hiki i kēia maʻi kanesa ke hoʻomaka ma nā wahi āpau o ke kino kahi i loaʻa ai nā hunaola nerve.
ʻO ka mea maikaʻi loa, aia nā lāʻau lapaʻau kūpono loa no kēia maʻi, no laila he manawa kūpono ko nā keiki e ho'ōla a ola i nā ola olakino.
He aha ke kumu o kēia kūlana?
ʻO ka maʻamau, hoʻokumu ʻia kekahi maʻi kanesa e kekahi mau loli, a i ʻole nā mutations, i loko o kekahi o nā cell i loko o ko mākou kino. ʻO ka hopena, hoʻomaka kēlā mau cell e ulu me ka hiki ʻole ke kāohi ʻia a hana i nā tumors.
I loko o ka neuroblastoma, hana ʻia kēia i kahi ʻano o nā pūnaewele nerve ʻōpiopio ʻoiai ke pēpē i loko o ka ʻōpū. Ua kapa ʻia kēia mau pūnaewele ʻōpiopio he neuroblasts. I ka ulu ʻana o kahi pēpē olakino i loko o ka ʻōpū, ulu mālie kēia mau neuroblasts i loko o nā pūnaewele nerve makua, a make ke koena.
Akā, i loko o ke kino o kahi keiki me Neuroblastoma, ma muli o kahi hoʻololi hoʻoilina, ʻaʻole e make kēia mau pūnaewele neuroblast ʻōpiopio, akā, e hōʻiliʻili a ulu a lilo i puʻupuʻu maʻi ʻaʻai.
Eia kekahi mea e pono ai ʻoukou ma ke ʻano he mau mākua e hoʻomanaʻo: ʻAʻole kēia i hana ʻia e kāu ʻai, hoʻoikaika kino, nā mana o ke kaiapuni, a i ʻole kekahi mea āu i hana hewa ai. He loli kēia e hana ʻia ana ma ka pae cellular o ke kino o kāu keiki.
He aha nā hōʻailona e pono ai mākou e makaʻala?
Hiki ke ʻokoʻa loa nā hōʻailona o kēia maʻi. Aia lākou i kahi o ka puʻu kanesa, kona nui, a me ka mamao o kona laha ʻana. Hiki ke ʻike ʻia kekahi o nā hōʻailona i nā maʻi maʻamau, e like me ke anu maʻamau a i ʻole ka ʻeha ʻōpū, e paʻakikī iki ai ka ʻike ʻana.
"I kekahi manawa, ʻo nā hōʻailona mua he mau mea maʻamau e like me ke keiki ʻaʻole ʻai pono, ka luhi, a me ka ʻeha pinepine o ke kino. Hiki ke ʻike ʻia kēia mau mea me kahi maʻi viral maʻamau," wahi a kekahi kauka oncology pediatric. No laila he mea nui e makaʻala i kēia mau hōʻailona.
| Kahi o ke kanesa | Nā hōʻailona hiki ke loaʻa |
|---|---|
| Pili i ka ʻōpū |
|
| A puni ka umauma a i ʻole ka ʻāʻī | |
| Ke laha ka maʻi ʻaʻai i nā wahi ʻē aʻe (Metastatic) |
ʻElua mau hiʻohiʻona kūikawā ʻē aʻe
- Nā kiko ʻili:I loko o kahi ʻano kūikawā e kū wale ana i nā pēpē hānau hou, hiki ke ʻike ʻia nā puʻupuʻu liʻiliʻi e like me ka blueberry ma ka ʻili. He hōʻailona kēia ua laha ka maʻi kanesa i ka ʻili. Eia nō naʻe, hiki ke mālama ʻia kēia maʻi a pinepine e emi a hoʻōla paha iā ia iho.
- Nā hopena hormonal: Hoʻopuka kekahi mau maʻi neuroblastoma i nā hormones, hiki ke hana i nā hōʻailona e like me ka maʻi pahū mau, ke kuni, ke koko kiʻekiʻe, ka hou nui, a me ka ʻulaʻula o ka ʻili.
Pehea e ʻike pono ai ke kauka i kēia maʻi?
E like me kā mākou i kūkākūkā ai ma mua, ua like ka nui o kēia mau hōʻailona me nā maʻi maʻamau, no laila hiki ke paʻakikī ke ʻike ʻana i ke kūlana. No laila e hana kāu kauka i kekahi mau hoʻokolohua e hōʻoia inā loaʻa i kāu keiki kēia maʻi kanesa laha ʻole.
- Nā hoʻāʻo koko a me ka mimi: Ke nānā nei kēia mau hoʻāʻo i kekahi mau hormones i hana ʻia e nā tumors neuroblastoma i loko o ke koko a i ʻole ka mimi.
- Nā hoʻāʻo kiʻi: Hiki i kēia ke kōkua i ka hoʻoholo ʻana i kahi, ka nui, a me ka laha ʻana o ke kanesa. Hiki ke hoʻohana ʻia nā scan e like me ka ultrasound, X-ray, CT, PET, a i ʻole MRI no kēia.
- Biopsy: Ma lalo o ka anesthesia, lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka puʻupuʻu a i ʻole ka iwi iwi a nānā ʻia ma lalo o kahi microscope e hoʻoholo ai inā he mau hunaola kanesa.
- MIBG scan: He ʻano kūikawā kēia o ka scan lāʻau lapaʻau nukelea. Hiki i kēia hoʻāʻo, i kapa ʻia ʻo "MIBG scan", ke ʻike maopopo i nā wahi o nā pūnaewele Neuroblastoma.
Me kēia mau hoʻokolohua, e nānā pū ʻia nā mea e like me ka helu koko o ke keiki, ke akepaʻa, a me ka hana puʻupaʻa.
He aha nā lāʻau lapaʻau no kēia?
ʻO ke ʻano o ka lāʻau lapaʻau e loaʻa ana i ke keiki ma muli o kekahi mau kumu. Ua hoʻokaʻawale ʻia nā keiki i ʻekolu mau pūʻulu pilikia : pilikia haʻahaʻa, pilikia waena, a me pilikia kiʻekiʻe, ma muli o ka makahiki o ke keiki, ke kahua o ke kanesa, pehea ka mamao o kona laha ʻana, a me ke ʻano o nā hunaola kanesa. Hoʻolālā ʻia ka lāʻau lapaʻau ma muli o kēia pūʻulu pilikia.
Aia kekahi mau ʻano lapaʻau nui:
- Nānā: Mai kahaha, e emi a nalo paha kekahi mau puʻupuʻu liʻiliʻi me ka ʻole o ka lāʻau lapaʻau. I kēlā mau hihia, e nānā pono nā kauka i ke keiki.
- ʻOki kino: Wehe piha ʻana i ka puʻupuʻu ma o ke ʻoki kino.
- Chemotherapy: Ke hāʻawi ʻana i nā lāʻau ikaika ma o kahi aʻa koko a i ʻole he mau pila e pepehi i nā hunaola kanesa a hoʻōki paha iā lākou mai ka māhele ʻana.
- Lapaʻau radiation: ʻO ka hoʻohana ʻana i nā kukuna ikehu kiʻekiʻe (e like me nā kukuna X) e luku i nā hunaola kanesa.
- Hoʻoili ʻana o nā pūnaewele kumu:He lāʻau lapaʻau i hoʻohana ʻia no nā keiki pilikia kiʻekiʻe. Ma kēia, hōʻiliʻili ʻia nā hunaola kumu olakino ponoʻī o ke keiki, hoʻohana ʻia ka chemotherapy nui e luku i nā hunaola kanesa, a laila hoʻihoʻi ʻia nā hunaola olakino i ke kino.
- Nā Lapaʻau Hou: Nui nā lāʻau lapaʻau hou a holomua loa i loaʻa i kēia lā.
- Lapaʻau i hoʻolālā ʻia: Ke hāʻawi ʻana i nā lāʻau lapaʻau e hoʻolālā a ālai i nā protein a i ʻole nā enzyme kikoʻī e kōkua i ka ulu ʻana o nā hunaola kanesa.
- Immunotherapy: Ke hoʻoulu nei i ka ʻōnaehana pale ponoʻī o ke keiki e ʻike a hoʻouka i nā hunaola kanesa.
He aha nā manawa kūpono e ho'ōla ai mai kēia ma'i?
ʻO kēia ka nīnau koʻikoʻi loa no nā mākua. ʻO ka nui o ke ola no ka neuroblastoma e pili ana i ka makahiki o ke keiki a me ke ʻano pilikia.
ʻO nā keiki ma nā hui pilikia haʻahaʻa a me waena, ʻoi aku hoʻi nā keiki ʻōpio, he kiʻekiʻe loa ka manawa e hoʻōla ai ma waena o 90% - 95% . No nā keiki ma ka hui pilikia kiʻekiʻe, ma kahi o 60% kēia helu. Me ka holomua o ka ʻenehana, ke piʻi nei kēia mau pakeneka i kēlā me kēia lā.
No laila, inā ʻike ʻoe i kekahi mau hōʻailona kānalua, ʻo ka mea maikaʻi loa e hana ai, ʻo ia ke ʻike koke aku i kāu kauka a ʻimi i ka ʻōlelo aʻo.
Leka Lawe-Home
- He ʻano maʻi ʻaʻai laha ʻole ka Neuroblastoma e pili pinepine ana i nā keiki ma lalo o 5 mau makahiki.
- Hoʻokumu ʻia kēia e kahi loli genetic e kū nei i loko o nā hunaola nerve ʻōpiopio (neuroblasts) ʻoiai ke keiki i loko o ka ʻōpū. ʻAʻole kēia ma muli o kekahi hewa o nā mākua.
- E makaʻala i nā hōʻailona e like me ka puʻu i loko o ka ʻōpū, ka pohō kaumaha i wehewehe ʻole ʻia, ka palapū a puni nā maka, a me ka ʻeha o ka iwi.
- Hiki ke ʻike pololei ʻia kēia ma o nā scan a me nā hoʻokolohua biopsy.
- Nui nā ʻano lapaʻau hou i kūleʻa loa no kēia, me ke ʻoki kino, chemotherapy, a me ka radiation therapy.
- Kiʻekiʻe loa ka nui o ka ho'ōla ʻana, ʻoiai no nā keiki ma nā hui pilikia haʻahaʻa a me waena. No laila, he mea nui e ʻimi i ka lāʻau lapaʻau kūpono me ka makaʻu ʻole.
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