Yog koj tus me nyuam muaj mob siab hu ua PFIC (Progressive Familial Intrahepatic Cholestasis), koj yuav tsum tau pom tias nws pheej khawb nws lub cev. Qee zaum nws tsis tuaj yeem pw tsaug zog, thiab nws khawb nws lub cev kom txog thaum nws daim tawv nqaij tev tawm. Qhov no yog qhov mob heev thiab nyuaj siab rau tus menyuam thiab rau koj ua niam txiv. Yog li, ib yam tshuaj tshwj xeeb uas cov kws kho mob pom zoo kom tswj tau qhov khaus ntawm daim tawv nqaij no yog Odevixibat (lub npe lag luam Bylvay). Hnub no, peb yuav tham txog cov tshuaj no, yuav muab rau koj tus menyuam li cas, thiab yam uas yuav tsum ceev faj txog.
Odevixibat yog hom tshuaj dab tsi?
Hais yooj yim xwb, Odevixibat yog ib yam tshuaj uas yog ib hom tshuaj hu ua Ileal Bile Acid Transporter (IBAT) Inhibitors . Xav txog nws li no: cov kua qaub ntawm cov kua tsib, cov kua dej uas peb lub siab tsim tawm uas pab zom zaub mov, raug nqus rov qab rau hauv peb txoj hnyuv. Hauv cov xwm txheej zoo li PFIC, cov kua qaub no sib sau ua ke hauv lub cev, ua rau khaus tsis taus.
Yog li ntawd, qhov tshuaj Odevixibat no ua yog tiv thaiv cov kua tsib kom tsis txhob rov nqus mus rau hauv lub cev los ntawm cov hnyuv. Tom qab ntawd cov kua tsib ntxiv hauv lub cev raug tso tawm nrog cov quav. Vim yog cov txheej txheem no, qhov khaus ntawm daim tawv nqaij uas tsis tuaj yeem ua tau (pruritus) uas los nrog tus kab mob PFIC raug txo qis heev, ua rau tus menyuam zoo siab heev.
Cov lus qhia tseem ceeb tshaj plaws rau koj tus kws kho mob ua ntej pib noj tshuaj
Ua ntej muab Odevixibat rau koj tus menyuam, nws yog ib qho tseem ceeb uas yuav tsum qhia rau koj tus kws kho mob cov ntaub ntawv no. Qhov no tseem ceeb heev rau kev nyab xeeb ntawm koj tus menyuam.
| Cov ntaub ntawv koj yuav tsum muab | Vim li cas nws thiaj tseem ceeb? |
|---|---|
| Yog tias muaj cov vitamins A, D, E, lossis K tsawg, ces nrhiav kev kho mob tam sim ntawd. | Cov tshuaj no yuav txo qhov kev nqus ntawm cov vitamins uas yaj hauv roj rau qee qhov. Yog li ntawd, yog tias koj twb tsis muaj vitamin txaus, koj tus kws kho mob yuav tsum paub txog qhov no. |
| Yog tias koj muaj kev tsis haum rau Odevixibat lossis lwm yam tshuaj lossis khoom noj. | Qhov no yog qhov tseem ceeb rau kev ntsuam xyuas qhov kev pheej hmoo ntawm kev ua xua rau cov tshuaj thiab kho nws kom muaj kev nyab xeeb. |
| Yog tias koj cev xeeb tub, tab tom sim xeeb tub, lossis pub niam mis. | Hauv cov rooj plaub no, nws yog ib qho tseem ceeb uas yuav tsum tham txog kev nyab xeeb ntawm cov tshuaj nrog tus kws kho mob thiab txiav txim siab raws li nws cov lus qhia. |
Koj muab cov tshuaj no rau ib tug me nyuam li cas?
Qhov no yog ib feem tseem ceeb heev. To taub meej tias yuav muab tshuaj li cas.
- Cov tshuaj no muaj nyob rau hauv daim ntawv ntawm ib lub tshuaj ntsiav, tab sis nws tsis yog yuav tsum tau nqos tag nrho .
- Nco ntsoov noj koj cov tshuaj tib lub sijhawm txhua hnub , raws li koj tus kws kho mob tau hais. Feem ntau, nws raug pom zoo kom noj nws thaum sawv ntxov nrog zaub mov.
- Kauj Ruam 1: Ua tib zoo qhib lub tshuaj ntsiav. Muab cov pellets tso rau hauv ib lossis ob diav khoom noj mos. Piv txwv li, koj tuaj yeem siv mis nyuj yogurt, txiv tsawb mashed, lossis kua txiv applesauce.
- Kauj Ruam 2: Thaum cov tshuaj thiab cov khoom noj sib xyaw ua ke lawm, cia tus me nyuam nqos. Tsis txhob cia tus me nyuam tom cov ntsiav tshuaj lossis cov khoom noj uas lawv sib xyaw nrog.
- Kauj Ruam 3: Tsis txhob muab cov tshuaj no sib xyaw nrog cov kua dej, xws li dej, mis nyuj, lossis dej haus, rau txhua qhov laj thawj.
- Tseem Ceeb: Yog tias koj tus menyuam noj lwm yam tshuaj (bile acid binding resins) xws li Cholestyramine lossis Colesevelam, Odevixibat yuav tsum tau muab 4 teev ua ntej lossis 4 teev tom qab lawv. Nug koj tus kws kho mob kom paub cov lus qhia tshwj xeeb.
- Tsis txhob tsum noj tshuaj kom txog thaum koj tus kws kho mob hais kom koj tsum. Cov tshuaj no tsuas yog sau rau koj xwb, tsis txhob muab rau lwm tus.
Yog koj tsis nco qab noj ib koob tshuaj, tsis txhob txhawj. Noj cov tshuaj uas koj tsis nco qab sai li sai tau thaum koj nco qab. Txawm li cas los xij, yog tias yuav luag txog lub sijhawm rau koj cov tshuaj tom ntej, hla cov tshuaj uas koj tsis nco qab thiab noj cov tshuaj tom ntej raws sijhawm teem tseg. Tsis txhob noj ob zaug tshuaj.
Tej yam yuav tsum ceev faj thaum noj tshuaj
- Mus ntsib kws kho mob tsis tu ncua: Koj yuav tsum mus ntsib kws kho mob raws li hnub teem tseg kom paub seb koj tus menyuam zoo li cas thiab seb cov tshuaj puas ua haujlwm.
- Kev Kuaj Ntshav: Thaum noj cov tshuaj no, koj tus menyuam yuav tsum tau kuaj ntshav kom paub tseeb tias lawv lub siab ua haujlwm li cas thiab cov vitamin ntau npaum li cas.
- Cov Vitamins thiab Kev Noj Haus: Nws yog ib qho tseem ceeb kom paub tseeb tias koj tus menyuam tau txais cov vitamins uas lawv xav tau (tshwj xeeb tshaj yog A, D, E, thiab K). Tham nrog koj tus menyuam tus kws kho mob txog koj tus menyuam cov zaub mov noj thiab lwm yam vitamins ntxiv.
Yuav ua li cas yog tias koj noj tshuaj ntau dhau? (Overdose)
Yog tias koj muaj kev xav me ntsis tias koj tus menyuam tau txais tshuaj ntau dua li koj xav, tsis txhob nkim sijhawm thiab hu rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Tsev Kho Mob Colombo National tam sim ntawd. Los yog, coj koj tus menyuam mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ntawm tsev kho mob ze tshaj plaws.
Tej yam tshwm sim tsis zoo li cas?
Ib yam li txhua yam tshuaj, cov tshuaj no muaj tej yam tshwm sim tsis zoo. Tsis yog txhua tus neeg yuav muaj tej yam tshwm sim tsis zoo, tiam sis nws tseem ceeb heev uas yuav tsum paub txog tej yam tshwm sim tsis zoo ntawd.
| Cov teebmeem sab nraud | Kev piav qhia |
|---|---|
| Cov kev mob tshwm sim uas koj yuav tsum qhia rau koj tus kws kho mob tam sim ntawd | |
| Kev Ua Xua | Tawv nqaij ua pob khaus, khaus, o ntawm daim di ncauj, lub ntsej muag lossis tus nplaig, ua pa nyuaj. |
| Cov tsos mob ntawm kev raug mob siab | Qhov muag lossis daim tawv nqaij daj, zis daj/xim av tsaus, mob hauv plab sab xis saum toj, tsis xav noj mov, qaug zog heev. |
| Mob raws plab hnyav (Rain) | Cov quav xoob ntau zaus. |
| Yog tias nws tseem mob lossis ua rau koj tsis xis nyob, qhia rau koj tus kws kho mob. | |
| Mob plab | Mob plab ib txwm. |
| Ntuav | Ntuav. |
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Odevixibat yog ib yam tshuaj tshwj xeeb uas siv los tswj kev khaus tawv nqaij hnyav uas tshwm sim los ntawm tus kab mob PFIC.
- Tsis txhob nqos, zom, lossis muab cov tshuaj no tsoo. Qhib lub tshuaj ntsiav, sib tov cov tshuaj hauv nrog cov khoom noj mos mos, thiab nqos yam tsis tau zom.
- Nco ntsoov qhia rau kws kho mob yog tias koj tus menyuam muaj lwm yam kab mob, ua xua, lossis noj lwm yam tshuaj.
- Yog tias koj pom muaj cov cim qhia tias koj lub siab puas lawm (qhov muag/tawv nqaij daj, zis tsaus), raws plab hnyav, lossis ua xua, mus ntsib koj tus kws kho mob tam sim ntawd.
- Yog koj muaj lus nug txog cov tshuaj no, tsis txhob ntshai tham nrog koj tus kws kho mob. Tsis txhob kho raws li kev kwv yees xwb.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus