Koj puas xav paub txog tus mob no (Pilocytic Astrocytoma) thiab? Cia peb tham!

Auj, koj lossis koj tus menyuam puas muaj mob taub hau uas rov qab los tas li? Los yog koj puas ntuav tas li? Qhov laj thawj rau qhov no tej zaum yuav yog ib yam dab tsi uas koj tsis xav txog. Hnub no peb yuav tham txog ib qho mob uas zoo li loj me ntsis, tab sis feem ntau kho tau zoo heev. Nws yog ib hom qog hauv hlwb hu ua (Pilocytic Astrocytoma) . Lub npe suab me ntsis ntshai, puas yog? Tab sis tsis txhob txhawj, cia peb tham txog nws kom meej.

Qhov no yog dab tsi (Pilocytic Astrocytoma)?

Hais yooj yim xwb, Pilocytic Astrocytoma yog ib qho mob qog uas loj hlob hauv lub hlwb. Peb lub hlwb muaj ib hom cell hu ua astrocytes . Cov no yog cov cell zoo li lub hnub qub. Lawv lub luag haujlwm tseem ceeb yog pab cov cell hlab ntsha hauv peb lub hlwb, cov neurons uas nqa cov lus, kom ua haujlwm tau zoo. Yog li, ib qho mob qog hu ua Pilocytic Astrocytoma loj hlob los ntawm cov astrocytes no.

Lub Koom Haum Kev Noj Qab Haus Huv Ntiaj Teb faib cov qog no ua Qib I , uas txhais tau tias lawv tsis yog qog nqaij hlav . Qib I txhais tau tias thaum saib hauv qab lub tshuab tsom iav, cov hlwb hauv qog zoo li cov hlwb ib txwm muaj, tsis yog cov hlwb qog nqaij hlav. Lawv kuj loj hlob qeeb heev . Lawv feem ntau tsis kis mus rau lwm qhov ntawm lub cev. Txawm li cas los xij, lawv tuaj yeem loj hlob me ntsis. Feem ntau, kev phais kom tshem tawm cov qog tuaj yeem kho tus kab mob.

Qhov teeb meem no feem ntau tshwm sim li cas?

Pilocytic Astrocytoma yog hom mob qog hauv hlwb uas feem ntau tshwm sim rau menyuam yaus . Tsuas yog nyob hauv Tebchaws Meskas xwb, kwv yees tias tus mob no cuam tshuam rau kwv yees li ib tus ntawm 100,000 tus menyuam yaus hnub nyoog qis dua 20 xyoo. Hom no suav txog li 15% ntawm tag nrho cov qog hauv hlwb hauv menyuam yaus. Rau cov neeg laus, nws tsis tshua muaj ntau, suav txog li 5% ntawm tag nrho cov qog hauv hlwb.

Cov tsos mob ntawm Pilocytic Astrocytoma yog dab tsi?

Cov tsos mob ntawm Pilocytic Astrocytoma yuav txawv ntawm ib tus neeg mus rau ib tus neeg. Nws feem ntau nyob ntawm qhov loj ntawm lub qog thiab nws qhov chaw nyob hauv lub hlwb . Qee zaum, lub qog yuav tsis qhia cov tsos mob kom txog thaum nws loj. Txawm li cas los xij, muaj qee cov tsos mob uas pom tau:

• Mob taub hau ntau zaus .
• Qaug zog, los yog tsaug zog tas li (Lethargy) .
• Ntuav .
• Kev hloov pauv ntawm tus cwj pwm, tus cwj pwm, thiab lub siab . Tej zaum koj yuav tawv ncauj thiab npau taws dua li yav dhau los.
• Kev hloov pauv ntawm lub peev xwm xav, kawm, thiab tsom ntsoov .
• Caj dab tawv .
• Pom kev tsis meej, pom ob sab, lossis lub qhov muag txav sai .
• Tsis muaj zog ntawm ob txhais ceg thiab nyuaj rau kev sib koom tes thaum taug kev lossis ua haujlwm .
• Kev laus ua ntej vim yog kev hloov pauv hormonal.

Qaug dab peg tuaj yeem tshwm sim tsis tshua muaj, tab sis lawv tsis tshua muaj.

Cov qog nqaij hlav (Pilocytic Astrocytoma) no tsim nyob qhov twg?

Feem ntau, cov qog no (Pilocytic Astrocytoma) tshwm sim hauv peb lub paj hlwb nruab nrab , uas yog lub hlwb thiab tus txha caj qaum. Feem ntau lawv pom muaj nyob rau hauv ib feem hu ua cerebellum . Lub cerebellum yog ib feem ntawm peb lub hlwb nyob rau sab nraub qaum, hauv qab, qhov twg lub taub hau thiab caj dab sib ntsib.

Sib nrug ntawm qhov ntawd, cov qog no kuj tseem tuaj yeem tsim nyob rau hauv cov chaw hauv qab no, txawm tias tsawg dua:

• Cov hlab ntsha optic - Cov hlab ntsha uas txuas peb lub qhov muag rau peb qhov muag pom kev.
• Hypothalamus - Ib feem tseem ceeb ntawm lub hlwb uas tswj cov tshuaj hormones.
• Brainstem - Qhov uas txuas lub hlwb rau cov hlab ntsha caj qaum.
• Cov hlab ntsha caj qaum .

Dab tsi ua rau qhov no?

Qhov tseeb, peb tseem tsis tau paub meej tias yog dab tsi ua rau cov hlwb astrocyte no loj hlob sai sai thiab tsim ua qog. Txawm li cas los xij, kev tshawb fawb tau pom ntau yam uas yuav ua rau qhov no:

• Kev hloov pauv caj ces : Qee qhov kev hloov pauv hauv cov noob caj ces (BRAF) tau pom tias muaj feem cuam tshuam nrog qhov no.
• Kev raug hluav taws xob ionizing : Thaum tau txais kev kho mob hluav taws xob ua kev kho mob rau lwm hom mob qog noj ntshav, piv txwv li, leukemia lossis lymphoma.

Tsis tas li ntawd xwb, Pilocytic Astrocytoma kuj tseem pom tau nrog qee yam mob caj ces . Piv txwv li:

• (Kab mob Neurofibromatosis Hom 1)
• (Li-Fraumeni syndrome)
• (Tuberous sclerosis)

Qhov no ua rau muaj teeb meem dab tsi?

Muaj tej yam teeb meem uas yuav tshwm sim tau vim yog Pilocytic Astrocytoma. Cov no suav nrog:

• Poob qhov muag pom kev .
• Qhov muag loj .
• Poob phaus los yog nce .

Hauv cov xwm txheej tsis tshua muaj thiab hnyav heev, qhov chaw thiab qhov loj ntawm lub qog tuaj yeem ua rau muaj kev nyuaj siab rau ntawm lub hlwb (brainstem compression) lossis ib qho mob hu ua hydrocephalus, uas tuaj yeem ua rau tuag taus.

Yuav kuaj mob li cas rau tus kab mob no (Pilocytic Astrocytoma)?

Tus kws kho mob yuav xub kuaj mob rau koj lossis koj tus menyuam los ntawm kev kuaj xyuas lawv lub cev, mloog zoo rau koj cov tsos mob, thiab sau koj cov keeb kwm kev kho mob . Tom qab ntawd lawv yuav ua cov kev kuaj mob kom tshem tawm lwm yam mob uas yuav ua rau muaj cov tsos mob zoo sib xws.

Kev Ntsuas (Xaiv Duab) los kuaj mob Pilocytic Astrocytoma

Feem ntau pom muaj qog no thiab kuaj tau lawm.Ib daim duab thaij hu ua (MRI - Magnetic Resonance Imaging). Qee zaum, cov menyuam yaus uas muaj cov tsos mob ntawm cov teeb meem ntawm lub paj hlwb yuav nyuaj rau nyob twj ywm thaum lub sijhawm thaij duab (MRI). Hauv cov xwm txheej zoo li no, cov kws kho mob pom zoo kom ua (CT scan - Computed Tomography scan) . Cov duab thaij no tuaj yeem txiav txim siab qhov loj me, cov duab, thiab qhov chaw tseeb ntawm lub qog. Qhov no pab tau zoo heev rau kev npaj kho mob.

Cov kev kho mob rau Pilocytic Astrocytoma yog dab tsi?

Txoj kev kho mob tseem ceeb uas cov kws kho mob pom zoo rau Pilocytic Astrocytoma yog phais kom tshem tawm cov qog . Feem ntau, yog tias cov qog raug tshem tawm tag nrho li no, tus mob Pilocytic Astrocytoma tuaj yeem kho tau tag nrho.

Txawm li cas los xij, qee zaum qhov loj thiab qhov chaw ntawm lub qog ua rau nws nyuaj rau tshem tawm tag nrho. Yog tias muaj kev pheej hmoo siab ntawm cov teeb meem, tus kws phais yuav tsuas yog tshem tawm ib feem ntawm lub qog thiab saib xyuas qhov loj thiab kev loj hlob ntawm qhov seem dhau sijhawm. Yog tias lub qog rov tshwm sim lossis qhov seem loj hlob dua, lwm qhov kev phais yuav raug ua.

Lwm txoj kev kho mob uas tsis tshua muaj neeg siv yog kev kho mob hluav taws xob . Koj tus kws kho mob yuav xaiv txoj kev kho mob no raws li qhov chaw ntawm lub qog, qhov nyuaj ntawm kev phais, lossis seb koj puas muaj lwm txoj kev xaiv tshuaj chemotherapy. Koj tus kws kho mob yuav txiav txim siab seb txoj kev kho mob twg zoo tshaj plaws rau koj.

Qhov tseem ceeb, nrog rau kev nce qib hauv kev kuaj noob caj noob ces , suav nrog kev kuaj molecular rau Pilocytic Astrocytoma, kev kuaj tom qab phais tuaj yeem txheeb xyuas qee qhov kev hloov pauv uas ua rau muaj cov tsos mob, xws li BRAF v600E. Muaj kev kho mob uas FDA pom zoo rau cov kev hloov pauv no. Koj kuj tseem yuav tsim nyog rau kev kho mob sim lossis kev sim tshuaj . Cov no yuav pab tau rau koj thiab lwm tus. Yog li, tham nrog koj tus kws kho mob txog kev ua cov kev kuaj molecular no rau koj cov nqaij mob tom qab phais.

Puas muaj tej yam tshwm sim ntawm kev kho mob?

Tej zaum yuav muaj qee qhov kev mob tshwm sim tom qab phais kom tshem tawm cov qog Pilocytic Astrocytoma. Piv txwv li:

• Los ntshav .
• Kev kis kab mob .
• Kev o .
• Mob .
• Mob taub hau .
• Hydrocephalus .

Koj tus kws phais yuav tham txog cov kev mob tshwm sim no nrog koj ua ntej pib kho mob, thiab lawv yuav ua tib zoo tiv thaiv cov kev mob tshwm sim lossis teeb meem no kom tsis txhob tshwm sim thaum lub sijhawm phais.

Kev kho mob hluav taws xob kuj tseem tuaj yeem ua rau muaj qee qhov kev mob tshwm sim:

• Nkees .
• Xeev siab thiab ntuav .
• Mob raws plab.
• Mob taub hau .
• Plaub hau poob .
• Kev ua xua rau daim tawv nqaij, liab .
• Khoom noj tsis qab .
• Tso zis ntau zaus los yog xav tau tso zis sai sai .

Kuv yuav zoo sai npaum li cas tom qab kho tas?

(Pilocytic Astrocytoma) Tej zaum yuav siv sijhawm ob peb lub lis piam rau koj lub cev kom zoo tom qab phais kom tshem tawm cov qog. Koj tus kws kho mob yuav muab cov lus qhia rau koj txog kev saib xyuas koj tus kheej lossis koj tus menyuam tom qab phais. Yog tias koj muaj lus nug dab tsi, nug koj tus kws kho mob.

Qhov kev kwv yees rau tus mob no yog dab tsi?

Rau Qib I (Pilocytic Astrocytoma), qhov kev kwv yees yog qhov zoo heev . Qhov no yog vim nws yog ib qho mob qog nqaij hlav uas tsis yog mob qog nqaij hlav thiab feem ntau tsis kis mus rau lwm qhov ntawm lub cev. Qhov sai dua qhov mob qog nqaij hlav raug pom thiab kho, qhov zoo dua qhov muaj feem yuav kho tau . Tsis tas li ntawd, koj txoj kev noj qab haus huv dav dav, hnub nyoog, thiab lwm yam yuav cuam tshuam rau kev kuaj mob. Nyob ntawm koj tus mob, koj tus kws kho mob tuaj yeem muab qhov kev kuaj mob tseeb dua rau koj.

Tus nqi ntawm kev ciaj sia rau (Pilocytic Astrocytoma) yog pes tsawg?

Cov menyuam yaus thiab cov hluas uas kuaj pom tias muaj Pilocytic Astrocytoma ua ntej hnub nyoog 20 xyoo muaj lub neej ntev heev . Ib txoj kev tshawb fawb pom tias tus nqi ciaj sia nyob 10 xyoo yog ntau dua 92%. Tus nqi no yuav nce ntxiv yog tias cov kws phais tuaj yeem tshem tawm cov qog nqaij hlav tag nrho.

Puas tiv thaiv tau Pilocytic Astrocytoma?

Vim tias cov kws tshawb nrhiav tseem tsis tau nkag siab meej txog cov ua rau muaj cov qog no, tam sim no tsis muaj txoj hauv kev los tiv thaiv lawv .

Thaum twg koj yuav tsum mus ntsib kws kho mob?

Yog koj xav tias koj lossis koj tus menyuam muaj cov tsos mob ntawm Pilocytic Astrocytoma, mus ntsib kws kho mob tam sim ntawd. Tshwj xeeb tshaj yog:

• Mob taub hau ntau zaus .
• Kev hloov pauv ntawm kev pom kev .
• Kev hloov pauv tus cwj pwm .
• Tsis muaj peev xwm tswj tau lub cev, nyuaj rau kev sib koom tes .

Tsis tas li ntawd, qhia rau koj tus kws kho mob yog tias koj pom ib qho ntawm cov hauv qab no tom qab phais kom tshem tawm cov qog:

• Mob hnyav heev .
• Kev o .
• Daim tawv nqaij tsis muaj xim ntawm qhov chaw phais .

Yog koj xav tias muaj teeb meem, nrog kws kho mob tham.

Koj yuav tsum nug tus kws kho mob li cas?

Tsis txhob hnov ​​qab nug cov lus nug no thaum koj mus ntsib koj tus kws kho mob:

• Kuv puas xav tau kev phais mob tiag?
• Cov kev mob tshwm sim ntawm kev kho mob yog dab tsi?
• Kuv (lossis kuv tus menyuam) yuav tsum saib xyuas kuv tus kheej li cas tom qab phais mob?
• Kuv yuav tsum ceev faj txog tej teeb meem dab tsi tom qab phais?
• Kuv txoj kev cia siab rov zoo yog dab tsi?
• Puas muaj kev sim tshuaj kho mob uas cuam tshuam rau kuv tus mob?

Thaum kawg, tej yam uas yuav tsum nco ntsoov

Nws yog ib qho ib txwm muaj kev ntshai thiab tu siab thaum koj pom tias koj, koj tus menyuam, lossis ib tus neeg koj hlub muaj qog hauv hlwb. Tab sis Pilocytic Astrocytoma yog ib qho mob uas feem ntau tuaj yeem kho thiab kho tau . Feem ntau nws tsis kis mus rau lwm qhov ntawm lub cev, thiab nws tuaj yeem kho tau tag nrho yog tias qhov qog raug tshem tawm.

Koj pab neeg kho mob yuav pab koj nrhiav txoj kev kho mob uas haum rau koj. Lawv kuj tseem yuav ua qhov zoo tshaj plaws los tiv thaiv cov teeb meem thiab pab koj rov sawv ntsug sai li sai tau. Yog li ntawd, ua siab loj!

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