Koj lub cev puas qhuav dej? Tej zaum yuav yog Sjögren's Syndrome!

Puas muaj tej lub sij hawm koj xav tias koj ob lub qhov muag qhuav thiab koj lub qhov ncauj qhuav? Tej zaum tsuas yog tias koj tsuas yog nkees thiab muaj cov no tas li, nws tsis yog ib txwm muaj. Hnub no peb yuav tham txog ib qho mob hu ua 'Sjögren's Syndrome', uas muaj lub npe txawv txawv, tab sis nws cuam tshuam rau qee tus neeg. Tej zaum koj yuav tsis paub lub npe no, tab sis nws cov tsos mob tej zaum yuav paub rau koj.

Kab mob 'Sjögren's Syndrome' yog dab tsi?

Hais yooj yim xwb, 'Sjogren's Syndrome' yog ib yam kab mob autoimmune uas cuam tshuam rau cov qog uas tsim cov dej noo hauv peb lub cev. Tam sim no koj yuav xav paub tias 'autoimmune' no txhais li cas. Xav txog, peb lub cev muaj ib lub cev uas tiv thaiv peb ntawm cov kab mob, nws hu ua lub cev tiv thaiv kab mob. Nws zoo li ib pab tub rog uas tiv thaiv peb lub teb chaws. Tab sis hauv tus kab mob 'autoimmune' no, qhov tshwm sim yog tias peb tus kheej cov neeg tiv thaiv, uas yog, lub cev tiv thaiv kab mob, ua yuam kev tawm tsam peb cov hlwb zoo, hauv qhov no cov qog uas tsim cov dej noo. Qhov no zoo li tus neeg saib xyuas kev ruaj ntseg hauv peb lub tsev xav tias peb yog tub sab thiab tawm tsam peb.

Yog li ntawd, koj lub cev cov qog tsim dej tsis ua haujlwm zoo. Qhov no feem ntau cuam tshuam rau:

• Lub cev kua muag: Qhov no ua rau ob lub qhov muag qhuav.
• Cov qog salivary hauv qhov ncauj: Qhov no ua rau qhov ncauj qhuav.
• Qhov Ntswg: Lub qhov ntswg yuav qhuav.
• Caj pas: Caj pas yuav qhuav thiab ua rau hnoos.
• Lub cev zom zaub mov kuj tseem yuav raug cuam tshuam rau qee qhov.
• Rau cov poj niam lub qhov chaw mos: Lub qhov chaw mos yuav qhuav.

Lub npe no hu ua "Shaw-Granz syndrome." Yog tias koj muaj cov tsos mob tshiab ntawm qhov muag qhuav lossis qhov ncauj qhuav, tshwj xeeb tshaj yog tias lawv muaj lwm cov tsos mob (xws li mob), nws yog ib qho tseem ceeb heev uas yuav tsum mus ntsib kws kho mob.

Puas muaj hom mob Sjögren's Syndrome?

Yog, cov kws kho mob faib qhov no ua ob hom tseem ceeb:

1. Kab mob Sjögren thawj zaug: Qhov no tsis yog los ntawm lwm yam mob. Yog li ntawd, nws tshwm sim ntawm nws tus kheej.

2. Kab mob Sjögren thib ob: Qhov no yog tshwm sim los ntawm lwm yam mob lossis teeb meem. Uas yog, lwm yam kab mob yog qhov ua rau mob.

Tus mob no feem ntau tshwm sim li cas?

Muaj xov xwm tshaj tawm tias muaj neeg coob heev thoob plaws ntiaj teb muaj tus mob no hu ua 'Sjögren's Syndrome'. Lawv hais tias muaj li ntawm 2 lab tus tib neeg hauv lub tebchaws zoo li Asmeskas raug tus mob no. Tej zaum yuav muaj cov neeg uas muaj tus mob no hauv peb lub tebchaws thiab.

Cov tsos mob ntawm Sjögren's Syndrome yog dab tsi?

Cov tsos mob tseem ceeb thiab feem ntau ntawm qhov no yog qhov qhuav tsis zoo hauv qee qhov ntawm lub cev.

• Qhov muag qhuav los yog khaus: Nws yuav zoo li xuab zeb nyob hauv koj lub qhov muag. Qee zaum koj lub qhov muag kuj yuav liab.
• Qhov ncauj qhuav (xerostomia): Qhov ncauj tuaj yeem qhuav heev uas ua rau nws nyuaj rau hais lus lossis nqos zaub mov. Cov qhov ncauj tuaj yeem tshwm sim. Cov qaub ncaug kuj tseem yuav tuab.
• Qhov chaw mos qhuav rau cov poj niam: Qhov no tuaj yeem ua rau mob thaum sib deev.
• Tawv nqaij qhuav: Tawv nqaij yuav qhuav thiab khaus.
• Qhov ntswg qhuav thiab ntshav ntswg ntau zaus.
• Caj pas qhuav: Tej zaum koj yuav hnoos qhuav tas li.

Ntxiv rau qhov qhuav no, Sjögren's syndrome tuaj yeem ua rau muaj lwm cov tsos mob:

• Mob pob qij txha: Zoo li mob pob qij txha.
• Mob nqaij los yog qaug zog.
• Cov qog ntshav o.
• Qaug zog: Ib qho kev xav tias qaug zog tas li uas tsis ploj mus txawm tias koj pw tsaug zog npaum li cas los xij.
• Nyuaj nqos (dysphagia) lossis nyuaj hais lus.
• Lub hlwb tsis meej: Muaj teeb meem xav tau meej thiab xav tias koj tsis tuaj yeem tsom ntsoov tau.
• Poob saj.
• Hniav lwj los yog hniav poob: Thaum cov qaub ncaug hauv qhov ncauj txo qis, kev tiv thaiv ntawm cov hniav kuj txo qis.
• Cov tawv nqaij ua pob khaus.
• Neuropathy: Tej yam zoo li loog thiab tingling hauv ob txhais ceg.
• Mob plab lossis lwm yam teeb meem zom zaub mov.
• Kev rhiab heev rau lub teeb: Qhov muag zoo li tig xiav thaum koj mus sab nraud.

Dab tsi yog cov ua rau muaj tus kab mob Sjögren's Syndrome?

Peb twb hais lawm tias qhov no yog ib yam kab mob 'autoimmune' . Qhov ntawd txhais tau tias peb lub cev tiv thaiv kab mob tawm tsam peb cov qog. Txawm li cas los xij, cov kws kho mob tseem tsis tau paub meej tias vim li cas qhov no thiaj tshwm sim.

• Tsis muaj qhov ua rau mob Sjögren's syndrome thawj zaug .
• Kab mob Sjögren theem ob yog tshwm sim los ntawm lwm yam mob, tshwj xeeb tshaj yog lwm yam kab mob autoimmune thiab qee yam kab mob viral.

Muaj ntau yam kab mob viral uas ua rau muaj tus kab mob Sjögren's syndrome theem ob xws li:

• Kab mob siab C
• Kab mob Cytomegalovirus (CMV)
• Tus kab mob Epstein-Barr
• `Tus kab mob T-lymphotropic virus 1 (HTLV)`
• COVID-19

Qee cov kab mob autoimmune uas cuam tshuam nrog Sjögren's syndrome yog:

• Mob pob qij txha caj qaum
• Mob pob qij txha psoriasis
• Lupus

Tseem Ceeb:Tsis yog txhua tus neeg uas muaj cov mob no yuav muaj tus kab mob Sjögren's syndrome. Thiab tsis muaj kev lees paub tias ib tus neeg uas muaj tus kab mob Sjögren's syndrome kuj yuav muaj cov mob no thiab. Txawm li cas los xij, kev tshawb fawb qhia tau tias muaj kev sib txuas.

Leej twg muaj feem yuav mob Sjögren's Syndrome ntau dua?

Txawm hais tias leej twg los xij tuaj yeem muaj tus mob no, qee pawg neeg muaj kev pheej hmoo siab dua:

• Cov Poj Niam: Ntau tshaj 90% ntawm cov neeg uas muaj tus kab mob Sjögren's syndrome yog poj niam. Cov txiv neej kuj tuaj yeem muaj tus kab mob no, tab sis nws tsis tshua muaj.
• Cov neeg uas muaj lwm yam kab mob autoimmune: Kwv yees li ib nrab ntawm cov neeg uas muaj Sjögren's syndrome muaj tsawg kawg yog ib yam kab mob autoimmune.
• Cov neeg hnub nyoog ntawm 45 thiab 55: Txawm hais tias nws tuaj yeem tshwm sim rau cov menyuam yaus, cov tub ntxhais hluas, thiab cov neeg hnub nyoog tshaj 55 xyoo, feem ntau nws yog nyob rau hauv pawg hnub nyoog no uas nws tshwm sim ntau tshaj plaws.
• Cov neeg uas muaj keeb kwm tsev neeg mob Sjögren's syndrome: Kwv yees li 10% ntawm cov neeg uas muaj Sjögren's syndrome muaj ib tug txheeb ze ze (niam txiv lossis kwv tij neej tsa) uas muaj tus mob no.

Yuav ua li cas thiaj paub tseeb tias koj muaj tus kab mob Sjögren's Syndrome? (Kev kuaj mob)

Tus kws kho mob yuav kuaj koj lub cev thiab ua qee yam kev kuaj mob kom paub tseeb tias koj puas muaj tus kab mob Sjögren's syndrome. Tus kws kho mob yuav kuaj koj thiab nug txog koj cov tsos mob. Qhia rau tus kws kho mob thaum twg koj pom cov kev hloov pauv no thawj zaug, thiab seb koj cov tsos mob puas hnyav dua rau qee lub sijhawm ntawm hnub lossis thaum lub sijhawm ua ub ua no.

Kev kuaj mob Sjögren's syndrome feem ntau yog ib feem ntawm cov txheej txheem hu ua kev kuaj mob sib txawv . Qhov no txhais tau tias ua ntej koj tus kws kho mob tuaj yeem lees paub tias koj muaj Sjögren's syndrome, lawv yuav ua ntau qhov kev kuaj mob kom tshem tawm lwm yam mob uas yuav ua rau koj cov tsos mob. Qee qhov kev kuaj mob uas koj yuav muaj yog:

• Kev kuaj ntshav: Tshwj xeeb, los xyuas qee hom tshuaj tiv thaiv kab mob.
• Kev kuaj qhov muag: Muaj cov kev kuaj tshwj xeeb los xyuas seb qhov muag puas muaj dej noo.
• Kev kuaj xyuas hniav: Koj tuaj yeem pom kev ua haujlwm ntawm cov qog salivary hauv qhov ncauj.
• Kev kuaj zis.
• Kev kuaj nqaij: Qee zaum yuav muab ib daim nqaij me me, xws li los ntawm sab hauv ntawm daim di ncauj, coj mus kuaj xyuas seb puas muaj kev hloov pauv hauv cov qog qaub ncaug.
• X-rays: Tej zaum koj yuav raug hais kom thaij duab X-ray hauv siab kom pom seb puas muaj kev cuam tshuam rau koj lub ntsws.

Tej zaum koj yuav tau mus ntsib ntau tus kws tshwj xeeb:

• Kws Kho Mob Pob Qij Txha: Ib tug kws kho mob uas tshwj xeeb hauv cov kab mob pob qij txha thiab cov kab mob autoimmune.
• Cov kws kho mob qhov muag.
• Kws kho hniav.
• Tus kws kho mob pob ntseg (otolaryngologist) (ENT specialist) yog tus kws kho mob uas tshwj xeeb hauv pob ntseg, qhov ntswg, thiab caj pas.

Cov teeb meem dab tsi uas yuav tshwm sim ntawm Sjögren's Syndrome?

Kab mob Sjögren's syndrome ua rau muaj teeb meem. Tab sis tsis txhob txhawj , feem ntau cov neeg tsis muaj teeb meem loj.

• Kev pheej hmoo ntawm kev kis kab mob hauv qhov ncauj thiab qhov muag ntau ntxiv: Vim yog qhov av noo qis, cov kab mob tuaj yeem ua rau muaj kev kis kab mob yooj yim.
• Kev ua haujlwm ntawm lub siab lossis lub raum tsis zoo.
• Lymphomas: Ib hom mob qog nqaij hlav uas tshwm sim hauv cov qog ntshav. Qhov kev pheej hmoo ntawm qhov no tshwm sim tsawg heev, tab sis nws tsis yog ib yam dab tsi uas yuav tsum tsis quav ntsej.
• Teeb meem ntsws: Qee zaum nws tuaj yeem yuam kev rau mob ntsws.
• Teeb meem ntawm lub paj hlwb: Tej yam xws li qaug zog, loog.

Feem ntau cov neeg uas muaj tus kab mob Sjögren's syndrome no tsis muaj teeb meem loj. Yog tias koj muaj tus kab mob Sjögren's syndrome theem ob, qhov mob hauv qab no yuav ua rau koj muaj feem yuav muaj teeb meem ntau dua. Tham nrog koj tus kws kho mob txog qhov no.

Yuav kho tus mob Sjögren's Syndrome li cas?

Koj tus kws kho mob yuav pom zoo cov kev kho mob los pab tswj koj cov tsos mob. Tam sim no tsis muaj kev kho rau Sjögren's syndrome. Txawm li cas los xij, koj tus kws kho mob tuaj yeem pab koj nrhiav txoj kev npaj kho mob uas yuav txo qhov cuam tshuam uas nws muaj rau koj lub neej txhua hnub thiab lub neej zoo.

Kev kho mob uas koj xav tau yuav nyob ntawm seb qhov twg ntawm koj lub cev raug cuam tshuam los ntawm Sjögren's syndrome.

Qee cov kev kho mob rau qhov muag qhuav, qhov ncauj, lossis qhov chaw mos muaj xws li:

• Kua muag dag: Koj tus kws kho qhov muag yuav pom zoo kom siv cov tshuaj qhov muag uas yuav tsis tas yuav muaj daim ntawv yuav tshuaj (OTC), cov tshuaj uas yuav tsum tau muaj daim ntawv yuav tshuaj, lossis cov roj nplua nyeem uas ua rau lub qhov muag ntub.
• Kev phais rau qhov muag qhuav (punctal plugs): Tus kws phais qhov muag (ophthalmologist) tuaj yeem ntsaws qee lossis tag nrho koj cov kav dej kua muag. Qhov no pab kom koj cov kua muag ntuj nyob hauv koj lub qhov muag ntev dua.
• Cov neeg tsim cov qaub ncaug: Koj tus kws kho hniav yuav pom zoo kom koj noj cov tshuaj ntxiv rau cov qaub ncaug uas yuav tsis tas yuav muaj daim ntawv yuav tshuaj lossis cov tshuaj uas pab koj lub cev tsim cov qaub ncaug ntau dua. Kev zom cov khoom qab zib, haus dej, thiab haus cov dej khov thoob plaws hnub tuaj yeem pab kom koj lub qhov ncauj noo.
• Cov tshuaj ntxuav qhov ncauj tshwj xeeb lossis cov khoom siv kho hniav: Cov neeg uas muaj tus kab mob Sjögren's syndrome muaj feem yuav muaj teeb meem hniav ntau dua. Yog li ntawd, yuav tsum tau ntxuav hniav tas li, siv cov tshuaj fluoride tshwj xeeb, lossis siv cov tshuaj txhuam hniav thiab cov tshuaj ntxuav qhov ncauj uas kws kho mob sau ntawv kom yuav.
• Cov tshuaj pleev kom noo noo lossis cov roj nplua nyeem rau qhov chaw mos:Tus kws kho mob yuav pom zoo kom siv cov roj nplua nyeem uas yuav tsis tas yuav muaj ntawv yuav tshuaj los yog cov roj nplua nyeem uas yuav tsum tau muaj ntawv yuav tshuaj uas siv tau txhua hnub los yog thaum sib deev.
• Kev Kho Mob Hormone: Qee tus neeg yuav xav tau kev kho mob hormone, xws li estrogen, los kho qhov chaw mos qhuav uas tshwm sim los ntawm kev tsis sib npaug ntawm cov tshuaj hormones.

Kev kho mob rau qhov mob thiab lwm yam tsos mob:

• Cov tshuaj loog mob uas yuav tsis tas yuav muaj daim ntawv yuav tshuaj: Cov tshuaj xws li 'NSAIDs (cov tshuaj nonsteroidal anti-inflammatory drugs)' (piv txwv li ibuprofen) lossis 'acetaminophen' (piv txwv li Panadol) tuaj yeem pab txo qhov mob thiab o. Tsis txhob noj cov tshuaj no ntau tshaj 10 hnub ib zaug yam tsis tau kev qhia los ntawm kws kho mob.
• Corticosteroids: Cov no yog cov tshuaj uas txo qhov o thiab muab ua cov tshuaj ntsiav lossis cov tshuaj txhaj uas tus kws kho mob tau sau tseg.
• Cov tshuaj tiv thaiv kab mob: Cov tshuaj no ua rau koj lub cev tiv thaiv kab mob tsis txhob ua haujlwm ntau dhau thiab txo nws txoj haujlwm. Koj tus kws kho mob yuav muab cov tshuaj xws li DMARDs (cov tshuaj kho mob rheumatic uas hloov kho kab mob).

Ib tug neeg uas muaj tus kab mob Sjögren's Syndrome yuav xav tau kev paub zoo li cas?

Koj yuav tsum tswj koj cov tsos mob ntev heev, tej zaum yuav tas koj lub neej. Txawm li cas los xij, thaum koj pom txoj kev kho mob zoo rau koj, qhov hnyav ntawm koj cov tsos mob yuav tsum txo qis. Cov neeg uas muaj tus kab mob Sjögren feem ntau kawm tswj lawv cov tsos mob, yog li qhov hnyav ntawm lawv cov tsos mob yuav txo qis raws sijhawm.

Puas tiv thaiv tau tus kab mob Sjögren's Syndrome?

Vim tias tsis paub meej tias yog vim li cas thiaj ua rau muaj tus mob Sjögren's syndrome no, tsis muaj ib txoj hauv kev los tiv thaiv tau tus mob no. Kuj tsis yooj yim sua kom paub tias leej twg yuav muaj tus mob no lossis thaum twg.

Thaum twg koj yuav tsum mus ntsib kws kho mob?

Mus ntsib kws kho mob yog tias koj muaj cov tsos mob tshiab, lossis yog tias koj cov tsos mob hnyav zuj zus. Khaws koj cov tsos mob thiab sau tseg txhua yam kev hloov pauv.

Koj tus kws kho mob yuav qhia rau koj tias koj yuav tsum tuaj ntsib kws kho mob ntau npaum li cas rau kev teem caij rov qab, kev kuaj mob, lossis lwm yam kev kuaj mob. Yog tias koj xav tias kev kho mob tsis ua haujlwm lossis tsis ua haujlwm zoo li yav dhau los, tsis txhob ncua sijhawm mus ntsib koj tus kws kho mob. Cov tsos mob ntawm Sjögren's syndrome qee zaum yuav tsis pom tseeb. Koj yog tib tug neeg uas paub thaum muaj qee yam tsis raug.

Xwm Ceev: Yog tias koj xav tias koj ua tsis taus pa lossis nqos, mus rau tsev kho mob tam sim ntawd lossis hu rau 1990 (kev pabcuam tsheb thauj neeg mob thaum muaj xwm ceev).

Koj yuav tsum nug koj tus kws kho mob li cas?

Tsis txhob hnov ​​qab nug cov lus nug no thaum koj mus ntsib kws kho mob:

• Kuv muaj hom mob Sjögren's syndrome twg? (Thawj zaug lossis thib ob?)
• Kuv yuav tsum tau ua cov kev ntsuam xyuas twg?
• Kuv puas yuav tsum tau mus ntsib lwm tus kws tshwj xeeb?
• Kuv xav tau kev kho mob dab tsi?
• Kuv yuav tsum tau saib xyuas seb puas muaj kev hloov pauv lossis cov tsos mob dab tsi?

Kev tswj tus kab mob Sjögren's syndrome tej zaum yuav ua rau koj chim siab. Tej zaum yuav ua rau koj ob lub qhov muag qhuav, qhov ncauj qhuav, lossis qhov chaw mos qhuav uas ua rau koj sib deev mob. Tiam sis qhov xov xwm zoo yog tias feem ntau cov neeg uas muaj tus kab mob Sjögren's syndrome no yeej tswj tau lawv cov tsos mob zoo thaum lawv nrhiav tau kev kho mob uas ua haujlwm rau lawv.

Thaum kawg, tej yam yuav tsum nco ntsoov (Cov Lus Coj Mus Tsev)

Sjögren's syndrome yog ib yam mob uas yuav ua rau tsis xis nyob me ntsis, tab sis tuaj yeem tswj tau nrog kev tswj hwm kom zoo .

• Koj tsis yog tib leeg xwb: muaj lwm tus neeg uas nyob nrog cov mob no.
• Kev kho mob zoo yog qhov tseem ceeb: Tham nrog koj tus kws kho mob kom nrhiav tau txoj kev kho mob zoo rau koj. Tej zaum koj yuav tau sim ntau yam kev kho mob sib txawv.
• Qhia rau koj tus kws kho mob yog tias koj cov tsos mob hloov pauv: Yog tias koj cov tsos mob hloov pauv, hnyav zuj zus, lossis zoo li cuam tshuam rau koj cov dej num txhua hnub ntau dhau, qhia rau koj tus kws kho mob.
• Kev kuaj mob tsis tu ncua: Nug koj tus kws kho mob seb koj yuav tsum tau kuaj qhov muag thiab kuaj hniav ntau npaum li cas. Kev kuaj mob tsis tu ncua zoo li no tuaj yeem pab tiv thaiv cov teeb meem.

Vam tias cov ntaub ntawv no yuav pab tau koj. Yog koj muaj lus nug dab tsi, tsis txhob yig nug kws kho mob.

Sjögren 's Syndrome, qhov muag qhuav, qhov ncauj qhuav, kab mob autoimmune, lub cev tiv thaiv kab mob, mob pob qij txha