Koj tus txha caj qaum puas raug kaw qhov twg? Cia peb kawm txog Tethered Spinal Cord.

Koj lossis koj tus menyuam puas tau pom muaj kev tsis xis nyob, mob, lossis kev hloov pauv ntawm koj nraub qaum lossis kev taug kev? Qee zaum koj yuav tau pom ib lub pob me me lossis lub pob ntawm daim tawv nqaij ntawm qab ntawm koj nraub qaum. Ib qho ua rau muaj cov no tuaj yeem yog ib qho mob hu ua 'tethered spinal cord' . Lub npe yuav suab me ntsis ntshai, tab sis yog tias koj paub txog qhov no, ntau yam teeb meem tuaj yeem daws tau. Hnub no, peb yuav tham txog qhov no hauv txoj hauv kev yooj yim uas koj tuaj yeem nkag siab.

'Tus txha caj qaum uas txuas nrog' yog dab tsi?

Hais yooj yim xwb, peb cov hlab ntsha hauv lub cev , uas yog cov hlab ntsha tseem ceeb uas khiav hla peb lub cev, feem ntau yuav tsum txav mus los hauv lub cev. Ib yam li ib txoj hlua hlau hauv ib lub raj. Txawm li cas los xij, nyob rau hauv qhov xwm txheej 'cov hlab ntsha hauv lub cev' no, cov hlab ntsha hauv lub cev raug txuas nrog phab ntsa sab hauv ntawm lub cev lossis rau lwm cov nqaij.

Xav txog seb, koj khi ib txoj hlua rau ib qho chaw thiab rub nws rau lwm qhov. Ces txoj hlua rub, puas yog? Qhov ntawd yog qhov tshwm sim ntawm no thiab. Thaum cov hlab ntsha caj qaum raug nias li no, thaum peb nce lossis ua peb cov dej num txhua hnub, cov hlab ntsha caj qaum pib rub. Qhov kev rub no tuaj yeem ua rau cov hlab ntsha caj qaum puas tsuaj thiab ua rau cov ntshav ntws mus rau cov hlab ntsha uas khiav hla nws tsis zoo . Qhov no kuj hu ua '(Tethered Cord Syndrome)' lossis '(Tethered Spinal Cord Syndrome)'.

Peb lub cev nqaij daim tawv yog dab tsi?

Yuav kom nkag siab qhov no kom zoo, koj yuav tsum muaj lub tswv yim me ntsis txog cov hlab ntsha hauv lub cev. Cov hlab ntsha hauv lub cev yog ib daim ntaub tuab uas khiav ntawm lub hauv paus ntawm peb lub pob txha taub hau mus rau nruab nrab ntawm peb lub cev. Cov hlab ntsha uas cuam tshuam nrog txhua yam hauv peb lub cev, xws li kev txav mus los thiab kev xav, taug kev hla cov hlab ntsha hauv lub cev no. Hauv lwm lo lus, nws zoo li lub chaw tswj hwm ntawm peb lub cev.

Qhov txawv ntawm 'Tethered Spinal Cord' thiab 'Spina Bifida' yog dab tsi?

Tej zaum koj yuav tau hnov ​​txog ib yam mob hu ua 'Spina Bifida'. Qhov no yog ib yam mob uas muaj thaum yug los. Cov menyuam uas muaj 'Spina Bifida' kuj tseem yuav muaj mob 'Tethered Spinal Cord' thaum yug los.

Myelomeningocele yog ib hom mob hnyav ntawm spina bifida. Qhov no tshwm sim thaum qhov kawg ntawm tus menyuam lub hlwb qaum thiab qhov ntawd ntawm tus txha nqaj qaum tsis loj hlob zoo thaum lub sijhawm cev xeeb tub. Tom qab ntawd, thaum tus menyuam yug los , tus txha nqaj qaum yuav raug nthuav tawm thiab lo rau ntawm daim tawv nqaij.

Kuj tseem muaj cov mob spina bifida uas tsis hnyav heev. Piv txwv li, ib qho mob hu ua "Spina Bifida Occulta". Hauv qhov no, cov hlab ntsha hauv lub hlwb yuav txuas nrog phab ntsa ntawm cov hlab ntsha hauv lub hlwb vim yog cov nqaij rog (lipoma) lossis cov nqaij tuab (band of tissue) ntawm qhov kawg ntawm cov hlab ntsha hauv lub hlwb.

Cov menyuam yaus uas muaj tus kab mob spina bifida feem ntau yuav tsum tau phais thaum lawv tseem hluas kom tshem txoj hlua khi. Txawm li cas los xij, qee zaum cov nqaij caws pliav tuaj yeem tsim nyob rau thaj chaw tom qab phais thiab txoj hlua tuaj yeem rov txuas rau tus txha nqaj qaum.Thaum cov menyuam yaus loj hlob tuaj, qhov no tuaj yeem ua rau cov hlab ntsha caj qaum ncab, ua rau muaj tus mob hu ua 'tethered spinal cord syndrome'.

Qhov tseem ceeb tshaj plaws yog kom nkag siab tias txawm tias tus mob hu ua 'Spina Bifida' tsis pom tseeb los xij, tus mob 'Tethered Spinal Cord' kuj tseem muaj tau.

Leej twg raug kev cuam tshuam ntau tshaj plaws los ntawm qhov xwm txheej no?

Kab mob Tethered Spinal Cord Syndrome yog ib yam mob uas feem ntau pom muaj rau cov neeg uas muaj kab mob spina bifida qhib. Ib txhia kws tshaj lij kwv yees tias kwv yees li ib tug ntawm ob tug menyuam uas muaj myelomeningocele yuav muaj kab mob tethered spinal cord syndrome. Txawm li cas los xij, raws li tau hais ua ntej, nws kuj tuaj yeem tshwm sim yam tsis muaj kab mob spina bifida pom tseeb.

Cov tsos mob ntawm 'tethered spinal cord' yog dab tsi?

Cov tsos mob ntawm tus mob no yuav txawv ntawm ib tus neeg mus rau ib tus neeg. Qee tus menyuam mos muaj cov tsos mob thaum yug los. Feem ntau, cov tsos mob no tshwm sim thaum cov menyuam loj hlob tuaj. Tsis tshua muaj, qee tus neeg yuav tsis muaj cov tsos mob thaum lawv tseem yog menyuam yaus thiab tej zaum yuav muaj cov tsos mob tom qab hauv lub neej, vim lawv tsis tau kuaj pom ua ntej.

Cov menyuam yaus thiab cov neeg laus tuaj yeem muaj cov tsos mob hauv qab no uas cuam tshuam nrog tus mob no:

• Kev nyuaj siab taug kev: Koj yuav tsum txhawj xeeb yog tias tus menyuam taug kev txawv txawv, tshwj xeeb tshaj yog thaum lawv pib taug kev, lossis yog tias muaj kev hloov pauv hauv lawv tus qauv taug kev.
• Kev hloov pauv ntawm daim tawv nqaij ntawm sab nraub qaum qis: Tej zaum koj yuav pom ib lub qhov me me ntawm sab nraub qaum qis, nyob rau saum lub pob tw. Los yog, koj yuav pom cov plaub hau tsis zoo hauv thaj chaw ntawd. Koj kuj tseem yuav pom cov qog nqaij hlav zoo, cov tawv nqaij tsis muaj xim , lossis cov cim yug me nyuam hu ua hemangiomas. Qee zaum, koj kuj tseem yuav pom cov qog me me zoo li mole ntawm daim tawv nqaij (cov cim tawv nqaij / acrochordons) .
• Kev loog lossis tsis hnov ​​​​​​mob hauv ob txhais ceg lossis nraub qaum: Yog tias koj feem ntau hnov ​​​​​​tias koj ob txhais ceg loog, lossis yog tias koj xav tias koj ob txhais ceg tsis hnov ​​​​​​mob lawm, ua tib zoo mloog.
• Mob ceg lossis mob nraub qaum hnyav: Qhov mob no feem ntau tuaj yeem kis mus rau qhov quav lossis thaj chaw ntawm lub cev.
• Scoliosis: Yog tias tus txha nqaj qaum zoo li nkhaus rau ib sab.
• Teeb meem nrog kev tswj cov zis thiab quav: Teeb meem xws li tso zis ntau zaus, nyuaj rau khaws cov zis, lossis nyuaj rau tswj cov quav.
• Cov kua dej puv hauv cov hlab ntsha hauv tus txha caj qaum (Syringomyelia): Qhov no tsuas yog tuaj yeem pom nrog kev ntsuas scan xwb.
• Cov leeg nqaij Atrophy: Tshwj xeeb tshaj yog tias cov leeg nqaij hauv ob txhais ceg zoo li atrophied thiab nyias.

Yog koj muaj ib lossis ntau yam ntawm cov tsos mob no, zoo dua mus nrhiav kev pab kho mob.

Dab tsi yog cov ua rau muaj 'Tethered Spinal Cord Syndrome'?

Tus mob no tuaj yeem yog los ntawm noob neej (muaj thaum yug los) lossis tau txais tom qab hauv lub neej.

Cov ua rau muaj menyuam yaus:

• Qhov ua rau mob feem ntau yog vim cov nqaij ntawm qhov kawg ntawm tus txha caj qaum mus rau pob txha caj qaum (Sacrum) (Filum Terminale) tuab zuj zus .
• Kab mob Spina Bifida.

Cov laj thawj tau txais:

• Cov nqaij caws pliav tom qab kev phais mob ntawm lub cev.
• Kev kis kab mob.
• Kev raug mob hnyav ntawm tus txha caj qaum.
• Cov qog nqaij hlav.

Qee cov kws tshawb fawb ntseeg tias cov yam ntxwv ntawm caj ces kuj tseem yuav ua lub luag haujlwm rau cov mob xws li spina bifida. Txawm hais tias muaj kev sib txuas ntawm myelomeningocele thiab cov noob caj ces, tab sis tseem tsis tau muaj pov thawj tias muaj kev sib txuas meej ntawm tethered cord syndrome thiab cov noob caj ces.

Yuav ua li cas thiaj paub tias muaj 'tethered spinal cord'?

Feem ntau tus kws kho mob hlwb yuav kuaj pom tus mob no. Nws yuav kuaj koj lossis koj tus menyuam thiab nug txog koj cov tsos mob. Tsis tas li ntawd, cov kev kuaj duab hauv qab no feem ntau yuav ua:

• Kev kuaj MRI (Magnetic Resonance Imaging): Qhov no yog qhov kev kuaj mob uas siv ntau tshaj plaws los kuaj mob no. Nws siv cov hlau nplaum thiab cov nthwv dej xov tooj cua kom pom tseeb cov hlab ntsha hauv lub hlwb, cov hlab ntsha, thiab cov nqaij nyob ib puag ncig.
• Myelogram: Hauv qhov no, ib qho xim tshwj xeeb raug txhaj rau hauv lub hnab uas npog lub qaum (lub hnab thecal). Tom qab ntawd yuav raug thaij duab X-ray los saib seb lub qaum puas raug nias los ntawm lub qaum.
• Kev thaij duab CT (Computed Tomography): Siv lub khoos phis tawj tshwj xeeb thiab X-ray los saib sab hauv lub cev. Qee zaum kev thaij duab CT ua tom qab myelogram los saib seb cov xim zas txav mus los li cas ncig lub hlwb qaum.
• Kev ntsuas ultrasound: Qhov no siv cov suab nrov siab los saib sab hauv lub cev. Feem ntau nws yog siv los saib seb cov hlab ntsha hauv lub hlwb txav li cas hauv cov menyuam mos .

Yuav kho tus txha caj qaum uas khi ua ke li cas ?

Kev kho mob tseem ceeb rau tus mob no yog phais. Hom kev phais mob ua nyob ntawm ntau yam, piv txwv li:

• Lub thickness ntawm koj `(Filum Terminale)`.
• Qhov twg cov hlab ntsha qaum raug nias.
• Koj yog ib tug neeg laus los yog ib tug menyuam yaus?

Feem ntau qhov kev phais no yog ua tiavIb tug kws phais hlwb yog ib tug kws kho mob uas tshwj xeeb hauv kev phais lub hlwb thiab tus txha caj qaum. Nws xub ua ib qho kev phais me me rau ntawm nraub qaum qis. Tom qab ntawd, siv cov cuab yeej phais, lawv ua tib zoo tshem cov nqaij caws pliav thiab tso cov hlab ntsha ntawm tus txha caj qaum tawm ntawm tus txha caj qaum.

Tom qab phais mob 'tethered spinal cord' lawm, yuav muaj dab tsi tshwm sim?

Tom qab phais lawm, koj lossis koj tus menyuam tuaj yeem rov ua tej yam me me li qub tau sai sai tom qab ntawd. Txawm li cas los xij, yuav tsum tsis txhob ua tej yam hnyav xws li tsa tej yam hnyav rau rau txog yim lub lis piam, lossis ntev dua, raws li koj tus kws kho mob hais. Koj yuav tsum muab sijhawm rau qhov txhab kom zoo.

Tej zaum yuav muaj ib txhia neeg xav tau kev kho lub cev lossis kev kho mob ua haujlwm tom qab phais kom pab lawv rov qab ua haujlwm tau zoo. Kev phais no yog ua los tiv thaiv kev puas tsuaj ntxiv rau cov hlab ntsha. Txawm li cas los xij, nws yuav tsis tuaj yeem kho qhov puas tsuaj ntawm cov hlab ntsha uas twb tau tshwm sim lawm. Yog li ntawd, qee tus neeg yuav tseem muaj cov leeg nqaij tsis muaj zog lossis muaj teeb meem txav mus los tom qab kho.

Puas tiv thaiv tau qhov teeb meem no?

Tu siab kawg li, tsis muaj ib txoj kev twg los tiv thaiv tau tus kab mob txha caj qaum uas khi ua ke. Txawm li cas los xij, yog tias koj tau txais kev kho mob thaum ntxov, koj tuaj yeem kho cov tsos mob kom rov qab zoo li qub. Yog li, yog tias koj xav tias koj lossis koj tus menyuam muaj cov tsos mob no, mus ntsib kws kho mob tam sim ntawd.

Yuav ua li cas thiaj li pom qhov xwm txheej ntawm 'tethered spinal cord'?

Yog tias koj kho mob, feem ntau cov neeg tuaj yeem ua neej nyob li qub. Qhov ceev uas koj tau txais kev kho mob rau cov hlab ntsha caj qaum uas khi ua ke yuav txiav txim siab seb koj yuav muaj feem rov zoo li cas. Qee cov tsos mob, xws li nyuaj tswj kev txav mus los, loog, lossis tsis muaj zog, yuav tsis ploj mus tag, tshwj xeeb tshaj yog tias phais mob tom qab hauv lub neej.

Puas yog kuv lossis kuv tus menyuam yuav tsum tau phais ntau tshaj ib zaug?

Rau cov neeg feem coob , ib qho kev phais mob xwb twb txaus los kho tus txha caj qaum uas khi lawm. Txawm li cas los xij, kwv yees li ib tug ntawm tsib tus menyuam yuav xav tau ntau dua ib qho kev phais mob. Cov tsos mob ntawm tus txha caj qaum uas khi lawm feem ntau yuav hnyav zuj zus lossis rov tshwm sim dua thaum lub sijhawm loj hlob sai (kev loj hlob sai). Thaum lub sijhawm zoo li no, yuav tsum tau phais mob dua tom qab tus menyuam loj hlob siab dua. Cov menyuam yaus hnub nyoog ntawm 7 thiab 12 xyoos muaj feem yuav xav tau lwm qhov kev phais mob.

Kuv yuav tsum nug kuv tus kws kho mob li cas?

Yog tias koj lossis koj tus menyuam muaj tus mob 'tethered spinal cord', lossis yog tias koj xav tias koj muaj ib qho, nws yog ib lub tswv yim zoo los nug koj tus kws kho mob cov lus nug no:

• Cov tsos mob thaum ntxov ntawm 'tethered spinal cord'Dab tsi?
• Yuav ua li cas thiaj kuaj tau tus mob no?
• Cov kev xaiv kho mob rau qhov no yog dab tsi?
• Yuav muaj feem li cas uas cov tsos mob yuav rov tshwm sim dua tom qab kho mob?

Puas ua tau kom nyob tau lub neej ib txwm nrog tus mob 'tethered spinal cord'?

Yog. Muaj coob tus neeg uas tau txais kev kho mob thaum ntxov rau qhov mob txha caj qaum uas khi ua ke tuaj yeem ua neej nyob li qub thiab muaj lub neej ntev li qub.

Kab mob pob txha caj qaum uas khi ua ke yog ib qho kev txuas tsis zoo ntawm cov pob txha caj qaum rau sab caj qaum. Nws yog ib qho ib txwm muaj uas yuav ntshai thaum koj lossis koj tus menyuam paub tias koj muaj tus mob no, tab sis kev kho mob thaum ntxov tuaj yeem pab txo cov tsos mob thiab kho tau nws. Tus mob no muaj feem cuam tshuam nrog spina bifida, ib qho teeb meem yug los uas cov pob txha caj qaum lossis pob txha caj qaum tsis loj hlob zoo. Tsis tas li ntawd, ntau tus menyuam uas tau phais rau myelomeningocele tom qab ntawd tau tsim cov pob txha caj qaum uas khi ua ke. Yog tias koj lossis koj tus menyuam pom ib qho ntawm cov tsos mob no, nrhiav kev kho mob tam sim ntawd.

Cov lus tseem ceeb tshaj plaws uas koj yuav tsum nco ntsoov (Cov Lus Coj Mus Tsev)

Zoo, yog li cia kuv sau qee cov ntsiab lus tseem ceeb tshaj plaws los ntawm qhov peb tau tham txog:

• Kab mob txha caj qaum uas khi ua ke yog ib qho mob uas cov kab mob txha caj qaum raug kaw thiab ncab hauv tus txha caj qaum.
• Qhov no tuaj yeem tshwm sim thaum yug los lossis loj hlob tom qab hauv lub neej . Cov menyuam yaus uas muaj tus kab mob spina bifida muaj feem yuav muaj mob ntau dua.
• Cov tsos mob sib txawv: mob nraub qaum thiab mob ceg, loog, nyuaj taug kev, tawv nqaij hloov pauv, thiab muaj teeb meem nrog kev tswj lub zais zis/plab hnyuv.
• Kev kuaj MRI yog qhov tseem ceeb rau kev kuaj mob.
• Txoj kev kho mob tseem ceeb yog phais. Qhov no tiv thaiv kev puas tsuaj rau cov hlab ntsha.
• Thaum koj kho mob sai npaum li cas, koj yuav muaj feem zoo dua. Tej zaum yuav muaj tej yam tsos mob uas tseem muaj.
• Tsis txhob txhawj! Yog koj kho tau zoo ces koj yuav ua neej tau li qub.
• Yog koj lossis koj tus menyuam muaj cov tsos mob no, tsis txhob nkim sijhawm thiab mus ntsib kws kho mob.

Vam tias cov ntaub ntawv no yuav pab tau koj. Nyob zoo!

Kab mob pob txha caj qaum, mob pob txha caj qaum, mob pob txha caj qaum, kab mob ntawm lub paj hlwb, phais mob, kev noj qab haus huv ntawm menyuam yaus, mob nraub qaum