Yu dɔktɔ dɔn gi yu ɔ yu pikin wan ay drɔp we dɛn kɔl Cysteamine? Bikɔs dis na nyu mɛrɛsin ɔr nɔr kin pasmak, yu kin kɔnfyus ɔ wɔri smɔl bɔt wetin i bi, aw fɔ yuz am, ɛn if i gɛt ɛni bad bad tin. Nɔ wɔri, i rili kɔmɔn. Tide, wi go fɛn simpul, klia ansa to ɔl yu kwɛstyɔn bɔt di ay drɔp we dɛn kɔl Cysteamine.
Us kayn mɛrɛsin na Cysteamine?
Fɔ tɔk am simpul wan, dis na ay mɛrɛsin we dɛn kin gi fɔ wan patikyula sik. Sɔntɛnde, smɔl smɔl kristal dɛn kin gɛda insay wi yay. εspεshali pan pipul dεm we gεt wan sik we nכ kin apin we dεn kכl sistinosis, di kristכl dεm fכ wan amino asid we dεn kכl sistin kin bכku na dεn yay. Dɛn kristal ya kin mek di yay pwɛl, i nɔ kin si fayn, i kin mek di yay fil pen, ɛn i kin mek i fil lɛk layt.
So, wetin dis Cysteamine mεdisin de du na fכ sכlv, brok dכn, εn pul di tin dεm we dεn kכl ‘cystine’ kristכl dεm we dεn kכlכm insay di yay.
De tin wae impɔtant pas ɔl na dat dis nɔr de mɛn dis sik. Bɔt dis mɛrɛsin kin rili ɛp fɔ kɔntrol di damej we di sik kin du to di yay ɛn fɔ ridyus di sayn dɛm.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu yuz di mɛrɛsin
Bifo yu dɔktɔ gi yu dis mɛrɛsin, i nid fɔ gɛt kɔmplit pikchɔ bɔt yu wɛlbɔdi. So, mek shɔ se yu tɛl am bɔt dɛn tin ya:
- Alɛji: If yu gɛt ɛni alɛji, nɔto jɔs to dis Cysteamine mɛrɛsin, bɔt bak to ɛni ɔda mɛrɛsin, it, day, ɔ prɛzɛvɛtiv, duya tɛl wi bɔt am.
- Bɛlɛ: If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ, mek shɔ se yu tɛl yu dɔktɔ.
- If yu na mama we de gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ, yu fɔ tɛl di dɔktɔ bak bɔt am.
- If yu wɛr kɔntakt lens: If yu wɛr kɔntakt lens, tɔk bɔt dat bak, bikɔs sɔntɛnde yu nid fɔ fala spɛshal instrɔkshɔn dɛn bɔt aw fɔ yuz lens we yu de yuz di mɛrɛsin.
Aw ɛksaktɔli yu kin yuz dis mɛrɛsin?
Fɔ mek yu gɛt di bɛst pan yu mɛrɛsin, i impɔtant fɔ yuz am kɔrɛkt wan. Okay, so lɛ wi tek wan step-by-step luk aw fɔ du dis.
1. Wash yu an: Wash yu an gud gud wan wit sop bifo yu put di mɛrɛsin ɛn afta yu dɔn put am.
2. Tilt yu ed bak: Sidɔm na chia, tilt yu ed bak smɔl, ɛn luk ɔp.
3. Pul di lכw aylid dכn: Pul di lכw aylid dכn jכnt wit yu indeks finga, fכm wan sכmכl paus.
4. Put di mɛrɛsin drɔp dɛm: Nɔ tɔch di mɛrɛsin bɔtul (drop) in mɔt to yu yay, finga, ɔ ɛni ɔda say. If yu du dat, dat kin mek di mɛrɛsin dɔti. Naw put di nɔmba fɔ di drɔp dɛn we di dɔktɔ gi yu insay di bag we yu dɔn pripia.
5. Klos yu yay: Afta yu dɔn put di mɛrɛsin, lɔk yu yay smɔl smɔl ɛn lɛ di mɛrɛsin skata fɔ lɛk wan minit so. Nɔ lɔk yu yay tayt wan.
Mɛmba mɔ se:
- Dis na mɛrɛsin fɔ yuz yay nɔmɔ . Nɔ drink ɔ yuz am ɛni ɔda we fɔ ɛni rizin.
- Nɔ yuz am pas di nɔmba ɛn di mɔnt we yu dɔktɔ tɛl yu fɔ yuz, ɔ stɔp fɔ tek am wantɛm wantɛm we yu nɔ advays yu.
- We yu de gi dis mɛrɛsin to yɔŋ pikin dɛn, go to dɔktɔ we de mɛn pikin dɛn ɛn fala in instrɔkshɔn dɛn fayn fayn wan.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, dis wan kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Bɔt nɔto ɔlman kin gɛt dɛn. Lɛ wi sheb dɛn tin ya to tu kategori.
| Tayp fɔ di sayd ɛfɛkt | Sayn dɛn |
|---|---|
| Tin dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm |
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| Tin dɛn fɔ tɛl di dɔktɔ if dɛn kɔntinyu fɔ du am |
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Sɔm ɔda impɔtant pɔynt dɛn
Wetin a go du if a mis wan doz fɔ mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i rili nia yu nɛks doz (fɔ ɛgzampul, i nɔ rich tu awa), skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dabl doz.
Wetin fɔ du if dɛn yuz di mɛrɛsin tumɔs?
If yu tink se yu dɔn tek dis mɛrɛsin tumɔs, nɔ panik ɛn kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Prɔblɛm kin de wit ɔda mɛrɛsin dɛn?
Bɔku tɛm, dis mɛrɛsin nɔ kin mek ɛni big prɔblɛm wit ɔda mɛrɛsin dɛn. Bɔt nɔ yuz ɛni ɔda tin fɔ mek yu yay if yu nɔ go to yu dɔktɔ fɔs. I fayn bak fɔ tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek, lɛk vaytamɛn ɛn ɛbul mɛrɛsin dɛn.
Aw fɔ kip di mɛrɛsin?
Kip dis mɛrɛsin usay smɔl pikin dɛn nɔ go ebul fɔ rich . Dɔn bak, chɛk di mɛrɛsin bɔks ɔ bɔtul fɔ ɛni spɛshal instrɔkshɔn fɔ kip am (e.g., kip am na frij). Fɔ fala dɛn instrɔkshɔn dɛn de.
Mɛsej we dɛn kin kɛr go na os
- Sistiamin na spɛshal mɛrɛsin fɔ di yay we de sɔlv di sistin kristal dɛn we de insay di yay.
- Bifo yu yuz dis mɛrɛsin, tɛl yu dɔktɔ bɔt ɛni alɛji, bɛlɛ, ɛn ɔda sik dɛn we yu gɛt.
- Yuz di mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu, insay di mɔnt we dɛn tɛl yu ɛn fɔ di nɔmba we dɛn tɛl yu fɔ du.
- If yu gɛt siriɔs pen na yu yay, yu de swel, ɔ yu gɛt alɛji, go to dɔktɔ wantɛm wantɛm.
- If yu gɛt ɛni kwɛstyɔn bɔt dis mɛrɛsin, i go fayn fɔ aks di dɔktɔ we gi yu am pas fɔ luk na di intanɛt.
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