Imajin se i nɔ kin izi fɔ yu fɔ grap na chia wantɛm wantɛm, ɔ we yu es yu an fɔ kɔm yu ia, i kin tan lɛk se yu an dɔn swɛ. Na di sem tɛm, smɔl smɔl pepul spat dɛn kin apia rawnd yu yay, na yu nɛk, ɛn na yu chɛst. Dis dɔn apin to yu? Yu kin tink se dis na jɔs nɔmal taya. Bɔt sɔntɛnde, i kin bi sayn fɔ wan sik we rili siriɔs, we nɔ kin apin so ɔltɛm we dɛn kɔl Dɛmatomyositis . Nɔ wɔri, wi go tɔk bɔt ɔltin insay simpul wɔd dɛn.
Wetin na Dɛmatomyosaytis?
Fɔ tɔk am simpul wan, Dɛmatomyositis na wan sik we nɔ kin apin so ɔltɛm we kin mek di mɔsul dɛn na wi bɔdi wik ɛn mek di skin gɛt rɔsh. Na wan pan wan grup fɔ sik dɛm (myopathy) we de afɛkt di mɔsul dɛm. Sɔmtɛm dis sik kin mek yu gɛt siriɔs tin lɛk fɔ blo ɛn fɔ swɛla.
Dɛn sayn ya kin kam smɔl smɔl fɔ sɔm mɔnt fɔ sɔm pipul dɛm. Bɔt fɔ ɔda pipul dɛn, dɛn kin kam wantɛm wantɛm. So if yu gɛt ɛni wan pan dɛn sayn ya, i impɔtant fɔ go to yu dɔktɔ kwik kwik wan. Di kwik we wi bigin fɔ trit, na di mɔ wi go gɛt chans fɔ avɔyd siriɔs prɔblɛm dɛn.
Na smɔl tɛm nɔmɔ, mɔ insay di fɔs ia afta di sik bigin, di sik kin kil pɔsin. I kin mek bak di risk fɔ gɛt sɔm kayn kansa.
Wetin na di difrɛns bitwin Dɛmatomyositis ɛn Lupus?
Yu go dɔn yɛri bɔt wan sik we dɛn kɔl lupus. Dεrmatomyositis na di sem lεk lupus εn כda כtoimyun sik dεm. Bɔt sɔm klia difrɛns de bitwin dɛn tu. Bikɔs dɛn nɔ no yet di rayt tin we kin mek pɔsin gɛt dɛmatomyositis, dɛn nɔ kin put am as ɔtoimyun sik.
Lɛ wi luk dis tebul fɔ mek wi no mɔ bɔt di difrɛns.
| Di kwaliti we pɔsin gɛt | Lupus we gɛt di sik | Dɛmatomyosaytis we gɛt di sik |
|---|---|---|
| Di men sayn dɛn we de sho se i gɛt dis sik | joyn pen, skin sεnsitiviti εn rash, ifekt pan intanεt כgan dεm (bren, lכng, kidni). Di simptom dɛn kin kam ɛn go. | Di mɔsul dɛn we wik ɛn sɔm patikyula skin rash dɛn. Mɔsul dɛn we dɔn pwɛl. |
| Diagnosis we dɛn kin gɛt | Bays pan sɔm patikyula blɔd tɛst ɛn di sayn dɛm. | Blɔd tɛst, skin ɛn mɔsul bayɔpsi, ɛn skan. |
I impɔtant fɔ no ɛn trit dɛn tu sik ya kwik kwik wan. If yu gɛt ɛni nyu sayn, go to dɔktɔ wantɛm wantɛm.
Udat kin gɛt dis sik pas ɔlman?
Ɛnibɔdi kin gɛt dɛmatomyositis, bɔt sɔm grup dɛn kin gɛt mɔ risk.
- Fɔ pikin dɛn we ol bitwin 5 ɛn 15 ia.
- Fɔ big pipul dɛn we ol bitwin 40 ɛn 60 ia.
- Uman dɛn kin si dis sik pas man dɛn.
Bɔt mɛmba se dis na sik we nɔ kin apin so ɔltɛm . Na avrej, na lɛk wan pan ɔl wan ɔndrɛd tawzin pipul dɛn nɔmɔ kin gɛt dis sik ɛvri ia.
Aw dis sik kin afɛkt di bɔdi ɛn di risk fɔ gɛt kansa?
Dɛmatomyositis na wan sik wae kin afɛkt yu fɔ di res ɔf yu layf. If di damej pan yu mɔsul dɛn bad bad wan, yu nɔ go ebul fɔ yuz pat pan yu bɔdi fayn fayn wan, we kin mek yu gɛt sɔm kayn disabled. Dis kin apin fɔ sɔm ia, bɔt fɔ sɔm pipul dɛn, dis mɔsul wikɛd kin apin kwik kwik wan.
Apat frɔm dat , di big tin we kin mek pɔsin gɛt kansa.
Stɔdi dɔn sho se lɛk 15% pan di pipul dɛm wae gɛt dɛmatomyositis gɛt risk fɔ gɛt sɔm kayn kansa leta na dɛn layf.
De kayn kansa wae dɛn kin si wit dis sik na:
- Kansa na ovarian
- Kansa na di lɔng
- Limfoma we dɛn kɔl Limfoma
- Brɔst kansa
- Kansa na di kɔlon
So, if dɛn no se yu gɛt dis sik, i rili impɔtant fɔ tɔk opin wan wit yu dɔktɔ bɔt yu kansa risk ɛn di skrinin dɛm we dɛn fɔ du fɔ am.
Wetin na di sayn dɛm wae de sho se yu gɛt dermatomyositis?
De tu men sayn wae de sho dis sik na wae yu mכsul dεm wik εn yu skin de rεsh.Fɔ sɔm pipul dɛn, dɛn tu sayn ya kin apin di sem tɛm. Fɔ ɔda pipul dɛn, wan sayn kin apin sɔm wik, mɔnt, ɔ ivin sɔm ia afta di ɔda wan.
Lɛ wi luk dɛn tin ya smɔl mɔ.
| Tayp we gɛt kwaliti dɛn | Diskripshɔn ɛn ɛgzampul dɛn |
|---|---|
| Di mɔsul dɛn we wik | Dis wikɛd tin kin mek i nɔ izi fɔ du di wok dɛn we pɔsin kin du ɛvride. Fɔ ɛgzampul:
|
| Skin rash we de kɔmɔt na di skin | Dɛn lɛsin ya kin apin mɔ na say dɛn we di san de shayn. Dɛn gɛt pepul-pink kɔlɔ ɛn dɛn kin swel smɔl. Di say dɛn we dɛn kin du mɔ na:
|
| Ɔda tin dɛn we de apin |
|
Sɔm pikin dɛn kin gɛt dis sik ɛn di sayn dɛm kin dɔn kpatakpata as dɛn de ol. Bɔt pan 80% pan di sik pipul dɛm, na layf-lɔng (krɔnik) kɔndishɔn. Dis min se di sik kin kam bak wan wan tɛm.
Wetin kin mek dis apin?
Infakt, masta sabi pipul dɛn stil nɔ no di rayt tin we kin mek pɔsin gɛt di sik we dɛn kɔl dermatomyositis, bɔt dɛn kin tink se bɔku tin dɛn de we kin mek i gɛt dis sik.
- Jɛnɛtik tin dɛm: Sɔm stɔdi dɔn sho se dis kin bi jɛnɛtik kɔndishɔn we kin pas frɔm jɛnɛreshɔn to jɛnɛreshɔn.
- Awtoimyun ishu dɛm: As wi bin dɔn tɔk, dis tan lɛk awtoimyun sik dɛm. Dis min se di imyun sistɛm we de protɛkt wi bɔdi kin mistek atak wi yon mɔsul ɛn skin sɛl dɛn we gɛt wɛlbɔdi.
- Vayral infεkshכn: Sɔm pruf dεn sho se vayral infεkshכn, wans i dɔn rεsכlv, i kin mek yu gɛt Dεrmatomyositis.
- Di tin dɛn we de apin na di envayrɔmɛnt: Sɔm stɔdi dɛn dɔn sho se fɔ liv na say dɛn we di briz nɔ fayn, dat kin ɛp bak fɔ mek dis sik bigin.
Aw fɔ no di sik?
Afta yu dɔktɔ lisin to yu sayn dɛm, i go ɔda fɔ du sɔm tɛst fɔ no if yu gɛt di sik.
| Di we aw dɛn de du di tɛst | Wetin yu si pan dat? |
|---|---|
| Blɔd tɛst dɛn | dεn de luk fכ inkrεs lεvεl dεm fכ di εnzym dεm we de kכmכt na di bכdi we di mכsul dεm dεn dכn pwεl, εn fכ כ toantibodi dεm we de sho di wok we di imyun sistεm de du. |
| Bayopsi we dɛn kin du | Dɛn kin tek wan rili smɔl tisu frɔm wan say we di skin dɔn ɛn frɔm wan mɔsul ɛn dɛn kin chɛk am wit maykroskɔp. dis kin kכnfכm if inflameshn de insay di mכsul. |
| Test dɛn fɔ tek imej | Dɛn kin du MRI (Magnetic Resonance Imaging) skan ɔ chɛst ɛkstrem rayt fɔ chɛk aw di mɔsul dɛn, di nerv dɛn, di lɔng dɛn, ɛn ɔda pat dɛn de. |
| EMG tɛst we dɛn kin du | Ilɛktromayografi (EMG) na tɛst we de mɛzhɔ di ilɛktrik aktiviti we di mɔsul ɛn nɛv dɛn de du. Dis kin ɛp fɔ no if di sik insɛf ɔ ɔda tin kin mek di mɔsul dɛn wik. |
Wetin na di tritmɛnt dɛm fɔ dɛmatomyositis?
Pan ɔl we dɛn nɔ go ebul fɔ mɛn dɛmatomyositis, bɔku fayn tritmɛnt dɛn de we go ɛp fɔ kɔntrol di sayn dɛm, fɔ ridyus di mɔsul dɛm we de pwɛl, ɛn ɛp yu fɔ liv nɔmal layf. Yu dɔktɔ go pik di tritmɛnt we go fayn fɔ yu bay aw yu gɛt di sik ɛn aw i siriɔs.
- Kɔtikosterɔyd: Dɛn mɛrɛsin ya de ridyus di inflamɛns na di mɔsul dɛm.
- Fizik tritmɛnt: If di mɔsul dɛn dɔn pwɛl, ɛksesaiz ɛn fizik tritmɛnt rili impɔtant fɔ mek dɛn strɔng bak. Di mɔ di mɔsul dɛn strɔng, na di mɔ dɛn nɔ go ebul fɔ pwɛl di sik.
- Immunosuppressant medicines: Dɛn mɛrɛsin ya de stɔp di imyun sistɛm fɔ atak di wɛlbɔdi sɛl dɛn.
- Intravenous immunoglobulin (IVIg): Dis na tritmɛnt we dɛn kin gi immunoglobulin, we na wan pat pan wi yon blɔd, na do na di bɔdi, lɛk salin. Dis kin ɛp fɔ kɔntrol di imyun sistɛm we nɔ de wok fayn.
- Spich therapy: If di mɔsul dɛm na di trot wik ɛn mek i nɔ izi fɔ swɛla, spich therapy kin ɛp fɔ mek dɛn mɔsul dɛm de strɔng.
Aw fɔ kɔntrol di sayn dɛm?
Fɔ liv wit dis sik na fɔ lɔng tɛm, so fɔ kɔntrol di sik dɛn we de sho se yu gɛt dis sik rili impɔtant.
- Nɔ skip fɔ du ɛksɛsayz: Du di ɛgzampul dɛn we yu dɔktɔ ɔ pɔsin we de mɛn yu bɔdi kin gi yu jɔs lɛk aw dɛn tɛl yu. Dis go ɛp fɔ mek yu mɔsul dɛn strɔng.
- Yuz di mɛrɛsin kɔrɛkt wan: Tek di mɛrɛsin we yu dɔktɔ tɛl yu fɔ tek di tɛm we yu tɛl yu fɔ tek.
- Protɛkt yusɛf frɔm di san: Dis rili impɔtant. Di ɔltra vayolɛt (UV) rayt we de na di san kin mek di skin pwɛl. So, nɔ spɛn bɔku tɛm fɔ de na di san. If yu du go na do, .Yuz gud sanskrin wit at least SPF 50+. Ri-aplay ɛvri tu awa.
- Si yu dɔktɔ ɔltɛm: Yu fɔ go to yu dɔktɔ ɔltɛm fɔ wach yu sik ɛn si if yu sik de chenj.
Mɔ tin fɔ no bɔt dis sik
Na nɔmal tin fɔ fil fɔ fred we dɛn no se yu gɛt dɛmatomyositis. E kin shok wae yu no se na sik wae de kam wae yu de liv yu layf, wae kin kil yu. Bɔt mɛmba se, di kwik we dɛn no se yu gɛt di sik ɛn bigin fɔ trit yu, na di mɔ yu go gɛt chans fɔ liv fayn.
Pan ɔl we no mɛrɛsin nɔ de fɔ dis sik, 80% pan pipul dɛn kin stil sik fɔ lɔng tɛm wit di sayn dɛm. Bɔt wit tritmɛnt, lɛk 20% pan pipul dɛn kin ebul fɔ gɛt lɔng tɛm rɛmishɔn we nɔ gɛt ɛni sayn.
Di risk fɔ day kin smɔl lɛk 5%. Bɔt sɔm tin dɛn kin mek dis prɔblɛm bɔku:
- Delay fɔ stat tritmɛnt pas 6 mɔnt.
- Bikɔs i dɔn pas 60 ia.
- Fɔ gɛt siriɔs sik dɛn.
- Sik we de afɛkt di trot, di lɔng, ɔ di at.
- Fɔ gɛt kansa ɔ fɔ gɛt nyu wan.
Ustɛm a fɔ go to dɔktɔ?
If yu gɛt nyu mɔsul dɛn we wik, mɔ if i kam wit di skin we de rɔsh, go to yu dɔktɔ we nɔ de te. As wi bin dɔn tɔk bifo tɛm, di kwik we yu kin gɛt tritmɛnt, na di mɔ yu kin avɔyd siriɔs prɔblɛm dɛn kwik kwik wan.
Nɔ fɔgɛt fɔ aks dɛn kwɛstyɔn ya we yu go si yu dɔktɔ:
- A gɛt Dɛmatomyositis ɔ ɔda sik?
- Us tɛst dɛn a nid fɔ du?
- Us tritmɛnt dɛn a nid ɛn aw lɔng a go nid dɛn fɔ?
- A nid fɔ mek dɛn chɛk mi fɔ si if a gɛt kansa?
Mek wan plan wit yu dɔktɔ bɔt yu tritmɛnt joyn. Dis go mek yu ɔndastand mɔ bɔt wetin fɔ ɛkspɛkt nɛks ɛn wetin fɔ du if yu sik dɛn de wɔs.
Mɛsej we dɛn kin kɛr go na os
- Dɛmatomyosaytis na wan sik we nɔ kin apin so ɔltɛm we kin mek di mɔsul dɛn wik ɛn sɔm patikyula skin lɛsin dɛn.
- I rili impɔtant fɔ go to dɔktɔ kwik kwik wan if yu notis di sayn dɛm. If yu trit yu kwik kwik wan, dat kin mek yu nɔ gɛt siriɔs prɔblɛm dɛn.
- Bikɔs dis kin bi sik we pɔsin kin gɛt fɔ ɔl in layf, i nid fɔ mɛn am fɔ lɔng tɛm.
- I rili impɔtant fɔ tek mɛrɛsin lɛk aw yu dɔktɔ tɛl yu fɔ du, du ɛksesaiz fɔ yu bɔdi, ɛn mɔ fɔ protɛkt yusɛf frɔm di san.
- Dis sik kin mek yu gɛt mɔ kansa, so tɔk to yu dɔktɔ bɔt am ɛn ɛni tɛst we yu nid fɔ du.
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