Di kayn MS wae kin pasmak: Lɛ wi tɔk bɔt RRMS (Relapsing-Remitting Multiple Sclerosis) .

Sɔm dez, i kin rili fil bad, yu vishɔn kin wɔs, yu bɔdi kin fil wik... Bɔt afta sɔm tɛm, ɔl dis kin bɛtɛ. Afta sɔm tɛm, dɛn sayn ya kin kam bak. Yu dɔn gɛt dis ɛkspiriɛns? Dis na di kayn we aw pɔsin kin gɛt RRMS, we na di kayn sik we dɛn kin kɔl Multiple Sclerosis (MS). Bikɔs ɔf di kayn sik wae dɛn kin gɛt, na nɔrmal tin fɔ fil bɔrku wɔri ɛn frayd sɔmtɛm. Lɛ wi tɔk bɔt dis simpul wan, di we we yu go ɔndastand.

Wetin na RRMS simpul wan?

RRMS tinap fכ `(Rilaps-Rεmitin mכltipכl Sklεrosis)`. Dis na di kayn we we dɛn kin kɔl `(Multiple Sclerosis)` ɔ MS. Na lɛk 80 to 85 pan 100 pipul dɛm wae gɛt MS gɛt dis sik.

Dis gɛt minin insay in nem.

• Rilaps: Dis kin min wae nyu sayn dɛm kin kam wantɛm wantɛm ɔr de sik wae dɔn de de wɔs. Dis kin las frɔm sɔm dez to sɔm wiks. Dɛn kin kɔl dis bak ``flare-up`` ɔ ``exacerbation``.
• Rimit: Dis na we di sayn dɛm fɔ di sik we bin dɔn wɔs kin dɔn smɔl smɔl ɔ kin stɔp kpatakpata as tɛm de go. Insay dis tɛm, yu kin liv nɔrmal layf ɛn nɔr gɛt ɛni sayn.

Dɛn kin put dis sik na dis kayn we fɔ ɛp yu ɛn yu dɔktɔ fɔ ɔndastand aw de sik de go ɛn pik di tritmɛnt we go fayn fɔ yu.

Wetin na di kɔmɔn sayn dɛm wae dɛn kin si pan RRMS?

Di sayn dɛm fɔ RRMS kin difrɛn bad bad wan frɔm wan pɔrsin to ɔda pɔrsin, bɔt sɔm kayn sayn dɛm de wae kin kam pan pɔrsin. Lɛ wi tek wan luk pan wetin dɛn bi.

We pɔsin de flay, sɔm pan dɛn sik ya kin apin togɛda. Fɔ sɔm pipul dɛm, dɛn sik ya kin dɔn kpatakpata wae dɛn de rεmishכn. Fɔ ɔda pipul dɛn, sɔm sayn dɛn kin kɔntinyu fɔ de. Bɔt nɔ wɔri , tritmɛnt dɛn de fɔ mɛn dɛn sik ya we nɔ de dɔn.

Us tin dɛn kin mek dɛn sik ya kin bɔku?

Sɔmtɛm yu kin si se sɔm tin dɛn kin mek yu sik dɛn wɔs. Wi kin kɔl dɛn tin ya ``Triggers.'' Bɔt mɛmba se, wetin kin afɛkt wan pɔsin nɔ kin afɛkt ɔda pɔsin.

• Stress: De sayn kin sho wae yu gɛt bɔrku strɛs.
• Tɛmpratura: If yu wam pasmak, ɛn sɔntɛnde ivin kol pasmak, dat kin mek yu gɛt mɔ sayn dɛn.
• Infεkshכn: Ivin sכm sכm infεkshכn, lεk kol כ urinary tract infεkshכn, kin mek ol MS simptom dεm de sho bak.
• Smok: We pɔsin de yuz tin dɛn we dɛn kin yuz fɔ smok, dat kin mek di sik wɔs.
• Vitamin D we nɔ de: If yu nɔ gɛt bɛtɛ vaytamɛn D na di bɔdi, dat kin afɛkt bak.

Wetin mek MS kin kam? Wetin na di kɔz?

Dɛn nɔ no yet di rayt tin we kin mek pɔsin gɛt MS, bɔt dɛn kin tek am se na ɔtoimyun kɔndishɔn .

Fɔ tɔk am simpul wan, wi bɔdi in difɛns sistɛm (immune system) kin mistek atak di pat dɛn we gɛt wɛlbɔdi na wi yon bɔdi. insay MS, dis atak de dכn to wi sεntri nεv sεstem (bren εn spεnal kכd).

Fɔ tɔk di kɔrɛkt tin, di kɔva we de protɛkt rawnd di nɛv dɛn na di bren ɛn di spɛnal kɔd kin pwɛl. Wi de kol dis ``Myelin''. I tan lɛk di plastic sheath we de rawnd ilɛktrik waya. we dis sεf dεn dכn pwεl, di nεv mεsej dεm nכ de travul fayn fayn wan. Na da tɛm de de sayn dɛm wae wi bin dɔn de tɔk bɔt kin apia.

Risach dɔn sho se dis kin bi bikɔs ɔf wan jɛnɛtik prɛdispɔzishɔn ɛn di tin dɛn we de apin na di envayrɔmɛnt lɛk di Epstein-Barr vayrɔs.

Aw dɛn kin no RRMS?

Fɔ no MS kin tranga bikɔs nɔr wan tɛst nɔr de we go mek yu no if yu gɛt MS. Yu dɔktɔ go yuz yu sayn dɛm, yu mɛdikal histri, ɛn di rizɔlt fɔ sɔm tɛst dɛm fɔ kam fɔ no.

• MRI skan: dis kin luk fכ εria dεm we dεn dכn pwεl (injuri/ska) na di nεv sεt (myelin) na di bren εn spεnal kכd.
• lכmba pankshכn: dis involv fכ tek spεnal fכluid εn fכ luk fכ sayn dεm fכ MS lεk oligoklonal bכnd dεm. dis kin gi sכm aidia fכ if inflameshn de na di bren/spεnal kכd.
• Blɔd tɛst: Dɛn tin ya kin ɛp fɔ pul ɔda sik dɛn we gɛt di sem sayn lɛk MS.
• OCT scan (Optical Coherence Tomography): Dis na tεst we nכ de mek yu fil pen we de skan di nεv dεm na di bak pat pan di yay (di rεtina). I kin chεk fכ damej pan di optik nεv dεm bikoz fכ MS.

Wetin na di tritmɛnt dɛm fɔ RRMS?

Pan ɔl we dɛn nɔ dɔn fɛn ɛni mɛrɛsin yet we go mɛn MS ɔltogɛda, .Tritmɛnt dɛn de tide we rili fayn fɔ kɔntrol di sik ɛn chenj aw di sik de go.

Di men gol dɛm fɔ dɛn tritmɛnt ya na:

• Fɔ ridyus di nɔmba fɔ di wan dɛn we kin gɛt di sik bak.
• Fɔ ridyus nyu damej to di nervɔs sistɛm.
• Fɔ slo di rεt wae de sik kin wɔs.

Dɛn mɛrɛsin ya kin gɛt difrɛn we dɛn, lɛk injɛkshɔn, mɛrɛsin we dɛn kin tek bay mɔt, ɛn we dɛn kin put insay in bɛlɛ lɛk salin.

Dɛn kin kɔl dɛn mɛrɛsin ya ``Disease-Modifying Agents'' (DMTs). Dɛn kin woke bay wae dɛn kin chenj di kayn sik ɛn nɔr kin pwɛl di nervɔs sistɛm tumara bambay. So , e fayn fɔ bigin tritmɛnt kwik kwik wan.

Aw layf go tan lɛk wit dis sik?

Na nɔmal tin fɔ mek yu fred ɛn wɔri we yu kam fɔ no se yu gɛt sik we nɔ de mɛn lɛk dis. Bɔt di tru tin na dat, ivin wit MS, yu kin liv lɔng, gladi, ɛn sakrifays.

Bɔku tin dɔn de we dɛn dɔn du fɔ mɛn MS insay di las sɔm ia, ɛn dis dɔn mek i izi fɔ kɔntrol aw di sik de go.

Afta sɔm pipul dɛn dɔn gɛt RRMS fɔ sɔm tɛm, dɛn kin gɛt wan sik we de sho se di sik kin bɔku smɔl smɔl, bɔt di nɔmba fɔ di wan dɛn we kin kam bak kin go dɔŋ. dis dεn kכl am ``Sεkכndεri Prכgrεsiv Mכltipכl Sklεrosis (SPMS)``. Bɔt if dɛn trit dis sik kwik ɛn fayn, dɛn kin ebul fɔ avɔyd dis sik ɔr kin te.

Ustɛm yu fɔ go to yu dɔktɔ?

• If yu gɛt nyu sik ɔr if yu sik de wɔs.
• If di tritmɛnt kɔz sayd ɛfɛkt.
• If yu gɛt ɛni kwɛstyɔn ɔr wɔri bɔt dis sik.