Edaravone Suspension: Wi go tɔk bɔt dis mɛrɛsin fɔ ALS?

If yu ɔr pɔrsin wae yu lɛk gɛt Amyotrophic Lateral Sclerosis (ALS), wi no aw e kin tranga. Fɔ liv wit am as yu bɔdi in mɔsul dɛn de wik smɔl smɔl de go bifo nɔ kin izi. Insay dis kayn tranga waka, i rili impɔtant fɔ no bɔt tritmɛnt dɛn we kin mek di sik nɔ go bifo ɛn briŋ op. Edaravone na wan pan dɛn tritmɛnt dɛn de. Sɔntɛm yu dɔktɔ dɔn tɛl yu bɔt dis mɛrɛsin, ɔ yu go dɔn yɛri bɔt am sɔnsay. So tide, wi go tɔk insay wan rili simpul we, insay wan we we yu go ɔndastand, ɔltin bɔt dis drɔg we dɛn kɔl Edaravone.

Fɔ tɔk am simpul wan, wetin na Ɛdaravon?

Edaravone na wan mɛrɛsin we dɛn kin yuz fɔ mɛn wan sik we dɛn kɔl Amyotrophic Lateral Sclerosis (ALS) . I kin kam as ɔral suspension. Na Sri Lanka, yu kin fɛn am ɔnda di brand nem Radicava ORS. Naw lɛ wi si aw i de wok. Imajin se ALS na sik we de pwɛl di nɛv sɛl dɛn we de kɔntrol di mɔsul dɛn na wi bɔdi smɔl smɔl. Dis damej de mek i nɔ izi fɔ tɔk, waka, ɛn swɛla. Edaravone de wok bay we i de protɛkt dɛn nerve cells ya frɔm damej. Dat min se i de wok lɛk shild we de protɛkt rawnd dɛn sɛl dɛn de ɛn i de kɔntrol ɔ delay di rit we di sik dɛn de wɔs.

Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin

Bifo yu dɔktɔ gi yu Edaravone, i rili impɔtant fɔ mek yu gi am kɔmplit diskripshɔn bɔt yu wɛlbɔdi kɔndishɔn. Bikɔs da infɔmeshɔn de go sho if dis mɛrɛsin fayn fɔ yu ɔ nɔ fayn fɔ yu. Mek shɔ se yu tɛl am dɛn tin ya mɔ.

• If yu gɛt asma : Pipul dɛn we gɛt prɔblɛm wit di we aw dɛn de blo lɛk asma kin gɛt alɛji fɔ sɔm pan di tin dɛn we de insay dis mɛrɛsin, lɛk sɔlfayt . So, i impɔtant fɔ no dis bifo tɛm.
• If yu gɛt ɔda alɛji : Mek shɔ se yu tɛl yu dɔktɔ if yu gɛt ɛni alɛji to Edaravone, sulfites, ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
• If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ:Dɛn nɔ dɔn no gud gud wan yet fɔ se dis mɛrɛsin sef we uman gɛt bɛlɛ , so i impɔtant fɔ tɔk to yu dɔktɔ bɔt dis.
• If yu na mama we de gi pikin in mama in bɛlɛ: I nɔ klia if dis mɛrɛsin de pas insay mama in milk . So if yu de tek dis mɛrɛsin we yu de gi yu mama in bɛlɛ, tɔk bɔt dis wit yu dɔktɔ.

Aw fɔ yuz di mɛrɛsin kɔrɛkt wan?

Fɔ mek yu gɛt di bɛst pan dis mɛrɛsin, i rili impɔtant fɔ yuz am kɔrɛkt wan. Ivin smɔl mistek kin afɛkt di tin dɛn we i kin du.

Instrɔkshɔn dɛn we dɛn kin gi stɛp bay stɛp

1. Tek am di rayt tɛm: Mek am yu abit fɔ tek yu mɛrɛsin di sem tɛm ɛvride. Dis na wata we yu kin tek wit yu mɔt. 2. Tek am ɛmti bɛlɛ: Fɔ mek yu gɛt di bɛst rizɔlt, tek dis mɛrɛsin na ɛmti bɛlɛ. Bɔku tɛm, dɛn kin se yu fɔ tek am 8 awa afta yu dɔn it dina ɛn 1 awa afta yu dɔn tek yu mɔnin mɛrɛsin. Bɔt fala di instrɔkshɔn dɛn we yu dɔktɔ gi yu. 3. Shek gud gud wan: Bifo yu tek di mɛrɛsin, shek di bɔtul fayn fayn wan fɔ lɛk 30 sɛkɔn. 4. Tek di kɔrɛkt we: Mekɔp di mɛrɛsin yuz di spɛshal sirinj (oral sirinj) nɔmɔ we de kam wit am. Nɔ ɛva yuz ti spɔnj ɔ tebul spɔnj we yu gɛt na os. Dɛn nɔ kin ebul fɔ yuz dɛn fɔ mɛzhɔ kɔrɛkt wan, so di doz kin rɔng. 5. Ɔndastand di ‘saykl’ sistɛm: Na dis say bɔku pipul dɛn kin kɔnfyus smɔl. Edaravone nɔto mɛrɛsin we yu kin tek ɔltɛm ɛvride. Dɛn kin yuz am as ‘saykl’ .

• Dat min se: de de we yu kin tek di mɛrɛsin, ɛn de we yu nɔ kin tek am.
• Fɔ ɛgzampul, insay di fɔs saykl, yu kin tek di pil fɔ 14 dez stret, dɔn yu nɔ kin tek di pil fɔ di nɛks 14 dez (wan tɛm fɔ rɛst). Insay di saykl dɛm we de kam afta dat, yu kin tek di pil fɔ 10 dez pan 14 dez, dɔn yu nɔ kin tek di pil fɔ 14 dez.
• Yu dɔktɔ go mek dis schedule fɔ yu patikyula kɔndishɔn. I rili impɔtant fɔ fala dɛn instrɔkshɔn dɛn ya di rayt we. Sɛt sɔntin fɔ mɛmba na yu kalenda ɔ fon ɛn stik to am.

Lɛ wi no bak bɔt di bad tin dɛn we kin apin to wi.

Lɛk ɛni mɛrɛsin, Edaravone kin mek sɔm sayd ɛfɛkt dɛn. If yu no dɛn tin ya bifo tɛm, dat go ɛp yu fɔ du sɔntin kwik kwik wan if prɔblɛm kam. Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu gɛt ɛni sayn we nɔ kɔmɔn, duya tɛl yu dɔktɔ.

Wetin a go du if a mis wan doz ɔ inkrisayz di doz?

If yu mis di dedlayn...

Wit di bizi na layf, sɔmtɛm yu kin mis wan doz fɔ mɛrɛsin. If dat apin, nɔ wɔri.

• Tek da tɛm de jɔs lɛk aw yu mɛmba.
• Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn jɔs tek yu nɛks doz di tɛm we yu dɔn sɛtul.
• Nɔ tek tu dos wan tɛm fɔ ɛni rizin.

If di doz inkris...

If yu tink se yu dɔn tek mɔ mɛrɛsin pas aw dɛn tɛl yu fɔ tek am, nɔ tek am layt.

• Di tin we yu fɔ du wantɛm wantɛm na fɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital .
• If nɔto dat, go na di ɔspitul we de nia yu in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm.

Aw yu kin kip ɛn trowe di mɛrɛsin?

Di kwaliti fɔ wan mɛrɛsin dipen pan aw dɛn kip am fayn fayn wan.

• Usay fɔ kip:
• Kip fa frɔm pikin ɛn animal dɛn we yu de mɛn.
• Stɔr am na rum tɛmpracha (bitwin 20 ɛn 25 digri sɛlshiɔs). Protɛkt frɔm ɔt pasmak ɛn kol pasmak.
• Protɛkt frɔm dairekt san layt.
• Di tin we impɔtant pas ɔl: Yu fɔ trowe ɛni mɛrɛsin we lɛf afta 15 dez we yu opin di bɔtul, ɔ afta di de we di bɔtul dɔn pas . Ilɛk uswan kam fɔs na in yu fɔ tink bɔt.

• Trowe:
• Di bɛst we fɔ trowe mɛrɛsin dɛn we dɔn pas, we dɛn nɔ yuz yet na fɔ gi dɛn to ‘medication take-back program’ we de na gɔvmɛnt ɔspitul ɔ sɔm famasi dɛn.
• If dat nɔ pɔsibul, chɛk di instrɔkshɔn dɛn we de na di mɛrɛsin bɔtul. If i se i nɔ bad fɔ trowe di dɔti, put di mɛrɛsin insay wan ɔda kɔntena, miks am wit kɔfi grɔn we dɛn dɔn yuz, dɔti, ɔ pusi dɔti, ɛn put am insay bag we dɛn tayt tayt ɛn trowe am na di dɔti. Nɔ ɛva tɔn di mɛrɛsin dairekt na di sink ɔ tɔylɛt.

Fɔ dɔn, Edaravone na impɔtant tritmɛnt fɔ di wan dɛn we de fɛt ALS. If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis mɛrɛsin, nɔ ol ɛnitin, jɔs tɔk to yu dɔktɔ opin wan. I go ɛksplen ɔltin to yu. Edaravone Suspension, Edaravone Sinhala, Radicava ORS, ALS na Sri Lanka, ALS mɛrɛsin, Nyurolɔjik sik dɛn, Edaravone sayd ifɛkt, Amyotrophic Lateral Sclerosis