Yu dɔn ɛva yɛri bɔt Mɛdulloblastoma? Sɔntɛm nɔto so. Na wan kayn bren kansa wae kin pasmak pan yɔŋ pikin dɛm, mɔr di wan dɛm wae nɔr rich 16. Bɔt nɔr wɔri, lɛ wi tɔk klia wan bɔt dis. Bikɔs i rili impɔtant fɔ no bɔt dis sik.
So, wetin na medulloblastoma?
Fɔ tɔk am simpul wan, mɛduloblastoma na wan kansa tɔŋ we de divɛlɔp na yu sɛntral nɛvɔ sistɛm (CNS) , we na yu bren ɛn spɛnal kɔd. I kin de na di pat pan yu bren we dɛn kɔl di sɛribɛl, we de na di bak pat na yu bren. Yu no se dis smɔl bren de kɔntrol bɔku tin dɛn na yu bɔdi, lɛk fɔ balans, fɔ waka, ɛn fɔ muv yu an ɛn fut?
Dis sik kin ambɔg pikin ɛn yɔŋ pipul dɛn we nɔ rich 16 ia yet. Bɔt i kin apin bak to big pipul dɛn, pan ɔl we i nɔ kin apin so ɔltɛm. If i apin pan big pipul, dɛn kin si am bitwin 20 ɛn 45 ia.
Dis na rili wan kayn kansa we nɔ kin bɔku. Bɔt na di kayn kansa we kin kam pan pikin dɛn na dɛn bren . Bɔku tɛm dɛn kin no am pan pikin dɛn we ol bitwin 5 ɛn 9 ia.
di mεduloblastoma tכmכro dεm de gro fast fast εn i kin spre to כda pat dεm na di bren εn spεnal kכd tru di sεribrospεnal fכluid – di klia wata we de rawnd wi bren εn spεnal kכd.
Wetin na di sayn dɛm fɔ dis? Aw yu no am?
Di sayn dɛm fɔ mɛduloblastoma kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Dɛn kin dipen pan tin dɛn lɛk yu ej, di saiz fɔ di tumbu, ɛn aw fa i dɔn gro. Sɔm sayn dɛm kin bi bikɔs ɔf di say we di tumbu de ɔ di prɛshɔn we de go ɔp insay di skel. I fayn fɔ mek yu wach dɛn tin ya:
- Ed kin at ɔltɛm: Dis kin difrɛn frɔm nɔmal ed pen, ɛn i kin tranga pasmak na mɔnin.
- Nɔs ɛn vɔmit: Yu kin si dis sik mɔ na mɔnin.
- Balance issues: Fɔ fil se yu nɔ de stedi we yu de waka, nɔ ebul fɔ tinap stret.
- I nɔ izi fɔ waka: Nɔ ebul fɔ tinap pan yu fut fayn, i nɔ kin izi fɔ klaym ɛn kam dɔŋ di stej.
- Diziz: Na fɔ fil se tin de spin rawnd yu.
- Vishɔn chenj: Wantɛm we yu de si blɔk, yu de si tu tɛm.
- Taya: Fɔ fil lɛk se yu nɔ de taya ilɛksɛf yu slip bɔku.
- Bak pen: Sɔntɛnde, bak pen kin apin if di kansa spre to di spaynal kɔd.
- Nɔ ebul fɔ kɔntrol di urine ɛn stɔl:Ivin if yu bin gɛt gud kɔntrol bifo, if prɔblɛm dɛn lɛk dis kam wantɛm wantɛm, yu fɔ wɔri. Insay di kes fɔ yɔŋ pikin dɛn, di frɛkuɛns we ‘aksidɛnt’ kin apin kin bɔku.
Nɔr frayd fɔ mɛduloblastoma jɔs bikɔs yu gɛt wan ɔ tu pan dɛn sik ya. Bɔt if yu gɛt bɔku pan dɛn sayn dɛn ya wan afta di ɔda, mɔ pan smɔl pikin, i go fayn fɔ mek yu go to dɔktɔ fɔ advays yu.
Wetin mek di mɛduloblastoma kin kam? Wetin na di tin dɛn we kin mek i apin?
Dɔktɔ dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt mɛduloblastoma. Bɔt dɛn dɔn si se sɔm kayn sik dɛn we pɔsin kin gɛt na in jɛnɛtiks kin mek i gɛt mɔ prɔblɛm. Dis min se sɔm chenj dɛn we de apin na di jɛnɛtiks we dɛn kin pas frɔm jɛnɛreshɔn dɛn kin gɛt ɛfɛkt.
Na sɔm tin dɛn we kin mek pɔsin gɛt dis kayn prɔblɛm:
- BRCA1 jin mכtεshכn: yu go probabli yεri bכt di BRCA1 εn BRCA2 jin dεm. di protin dεm we dεn mek na dεn de mek wi DNA rεpair we i dכn pwεl. Pipul dεm we gεt sכm vεryכnt dεm fכ dεn jin dεm ya kin gεt bכku risk fכ gεt sεvεra kayn kεnsar.
- `Nevoid basal cell carcinoma syndrome (NBCCS): dεn kכl dis bak `Gorlin syndrome.` Dis na hεridishכn kכndyushכn bak. Pipul wae gɛt dis kin gɛt bɔrku risk fɔ gɛt basal sɛl skin kansa. dεn gεt 5% chans bak fכ gεt mεduloblastoma.
- Turcot syndrome: Pipul wae gɛt dis sik kin gɛt wan sɛntral nervous system tumor, lɛk mɛdulloblastoma ɔ pituitary adenoma, wit kɔlon kansa.
- Li-Fraumeni syndrome: Pipul wae gɛt dis sik kin gɛt mɔr risk fɔ gɛt sarkoma, brɔst kansa, ɔda kayn bren kansa (gliomas, choroid plexus carcinomas), adrenal gland kansa, ɛn lukimiya.
Dɛn jenɛtik kɔndishɔn ya rili kɔmpleks. If yu want fɔ no mɔ bɔt dis, i go fayn fɔ mek yu tɔk to dɔktɔ.
Aw dɔktɔ dɛn kin no bɔt dis?
If yu ɔ yu pikin gɛt ɛni wan pan di sik dɛn we wi dɔn tɔk bɔt, yu dɔktɔ go tɔk to yu fɔs bɔt yu sik dɛn ɛn tek tɛm luk yu famili mɛdikal istri. Dɔn, if dɛn sɔprayz se dɛn gɛt mɛduloblastoma, dɛn go ɔda fɔ du sɔm tɛst fɔ kɔnfirm se dɛn dɔn no di sik.
Us tɛst dɛn kin du?
- Nyurolɔjik ɛgzam: Insay dis, di dɔktɔ go chɛk aw yu de yɛri, aw yu de si, aw yu de wok togɛda, ɛn aw yu de tink. Dis kin mek yu no us pat pan di bren de afɛkt.
- `Tɛst dɛn fɔ imej`: .Dis inklud MRI (Magnetic Resonance Imaging) skan ɔ CT (Computed Tomography) skan. Dɛn skan ya kin si klia wan if tumbu de insay di bren, aw i big, ɛn usay i de.
- Bayopsi: Sɔntɛnde, dɔktɔ dɛn go nid fɔ tek smɔl smɔl tisu frɔm di tumbu ɛn sɛn am to wan dɔktɔ we de mɛn sik dɛn, we na dɔktɔ we spɛshal fɔ chɛk di tisu. Bɔku tɛm dɛn kin du bayɔpsi if dɛn nɔ kin ebul fɔ kɔnfɔm di diagnosis wit skan nɔmɔ.
- Spinal tap (Lumbar Puncture): Insay dis prosidur, wan ɔspitul kin tek wan smɔl sampul pan di sɛribrospinal fluid ɛn chɛk am fɔ si if i gɛt kansa sɛl dɛn. Dɛn kin du dis tɛst afta dɛn dɔn pul di tumbu ɔ dɛn dɔn kɔntrol di prɛshɔn we de insay di bren.
Wetin na di tritmɛnt fɔ Medulloblastoma?
Di tritmɛnt we dɛn kin pik kin dipen pan bɔku tin dɛn, lɛk yu ej, ɔl yu wɛlbɔdi, ɛn di sayz we di tumbu gɛt. Bɔku tɛm, di men tritmɛnt fɔ mɛduloblastoma na ɔpreshɔn fɔ pul di tɔŋ. Afta dis kin bi kemotɛrapi, redyushɔn tɛrapi, ɔ ɔl tu.
- `Sɔjɛri`: Na wan `Nyurosɔjɛn` de du dis ɔpreshɔn. Dis kin mek di prɛshɔn we de insay di bren nɔ bɔku ɔ i kin pul di tumbu kɔmɔt kpatakpata. Bɔt sɔntɛnde if di tumbu de dip insay di bren, na say dɛn we pɔsin kin fil, i kin at fɔ pul am kɔmɔt kpatakpata.
- Radiation therapy: Dɛn kin yuz dis tritmɛnt fɔ pwɛl ɛni kansa sɛl we kin lɛf afta dɛn dɔn du di ɔpreshɔn. Sɔntɛnde, dɛn kin gi am togɛda wit kemotɛrapi.
- Kimotɛrapi: Na wan dɔktɔ we de mɛn kansa kin gi dis tritmɛnt. Dɛn kin gi dɛn mɛrɛsin ya afta dɛn dɔn du dɛn ɔpreshɔn, afta dɛn dɔn gi dɛn redyushɔn, ɔ dɛn kin gi dɛn togɛda wit redyushɔn tɛrapi. Sɔntɛnde, dɛn kin gi stem sɛl transplant afta dɛn dɔn tek kimotɛrapi.
Mɛmba se na wan tim we gɛt dɔktɔ dɛn kin disayd ɔl dɛn tritmɛnt ya, ɛn dɛn kin mek am fɔ di patikyula tin we yu de du.
Aw lɔng i kin tek fɔ mek i wɛl? (Tɛm fɔ Rikɔva)
De lɔng tɛm fɔ tritmɛnt ɛn di tɛm fɔ wɛl kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. If dɛn du ɔpreshɔn pan yu bren, bɔku tɛm i kin tek lɛk 4 to et wiks fɔ mek yu wɛl . If yu gɛt kemotɛrapi ɔ redyushɔn tɛrapi, i kin tek sɔm wik ɔ ivin sɔm mɔnt. I dipen pan di kayn sik we i gɛt. Fɔ no ustɛm i go tek fɔ yu ɔ yu pikin, i go fayn fɔ mek yu tɔk to yu dɔktɔ.
Ustɛm a fɔ go to dɔktɔ?
If yu ɔ yu pikin gɛt ɛni wan pan di sayn dɛn we wi dɔn tɔk bɔt (lɛk ed we de at, nɔs, kɔnfyushɔn, chenj we yu de si), go to dɔktɔ wantɛm wantɛm . Dɔn bak, if dɛn dɔn ɔlrɛdi gɛt tritmɛnt fɔ medulloblastoma, tɛl yu dɔktɔ bɔt ɛni sayd ɛfɛkt we yu de gɛt. Dɛn kin ɛp fɔ kɔntrol yu sayn dɛm ɛn ridyus yu diskɔmfɔt.
Wetin pɔsin we gɛt mɛduloblastoma kin ɛkspɛkt?
Big mɛdikal tim de fɔ ɛp yu pan dis kayn tin. Sɔm pan dɛn tin ya na:
- `Mɛdikal ɔnkɔlɔjis dɛn`
- `Nyurosɔjɔn dɛn`
- `Pathɔlɔjis dɛn`
- `Fizik tɛrapist dɛn`
- `Radɔlɔjis dɛn`
- `Rɛdieshɔn ɔnkɔlɔjis dɛn`
- Pipul dεm lεk `Neuropsychologists` kin de insay.
Tugɛda, dɛn kin mek wan pɔrsin in tritmɛnt plan we fit yu nid.
Yu tink se dɛn kin mɛn Mɛduloblastoma?
Yɛs, bɔku tɛm. Pan ɔl we mɛduloblastoma na wan sik we kin skata ɔlsay na di nervɔs sistɛm, bɔku pipul dɛn kin mɛn. Ɛspɛshali if di kansa nɔ dɔn spre to ɔda pat dɛn na di bren ɛn spɛshal kɔd, di chans fɔ mek i nɔ day kin bɔku.
Wetin na di prɔgnosis fɔ dis?
di fayv ia sכ vayv rεt fכ mεdulloblastoma de pas 80% . Dis min se pas 80% pan di pipul dɛm we dɛn no se gɛt mɛduloblastoma stil de alayv afta fayv ia. Dɛn statystik ya de bays pan de autkam fɔ pipul dɛm wae dɔn gɛt dis sik trade.
Bɔt mɛmba se dɛn statystik ya nɔ go ebul fɔ tɛl yu di rayt tin we go apin to yu sik. Fɔ no gud gud wan bɔt yu sik ɛn aw yu de wɛl, i bɛtɛ fɔ tɔk to yu dɔktɔ.
We yu yɛri bɔt bren tumbu kin mek yu bɔdi, yu maynd, ɛn yu at pwɛl. Ɛspɛshali if i afɛkt yu pikin, i kin tranga yu. Bɔt, tritmɛnt dɛn de we go wok fayn, so op de . Aks yu dɔktɔ bɔt nyu tritmɛnt dɛn, lɛk klinik trial. Dɔn bak, tɔk to yu dɔktɔ bɔt tin dɛn ɛn sɔpɔt grup dɛn we go ɛp yu. Insay dis tranga tɛm, i kin rili mek yu gɛt trɛnk ɛn kɔrej yu fɔ de nia pipul dɛn we dɔn pas di sem tin dɛn we yu dɔn du.
Fɔ tɔk smɔl, tin dɛn fɔ mɛmba
Okay, so lɛ wi mɛmba yu bɔt sɔm pan di impɔtant tin dɛm we wi dɔn tɔk bɔt bɔt mɛdulloblastoma:
- Medulloblastoma na bren kansa we kin apin mɔ pan pikin dɛn., bɔt big pipul dɛnsɛf kin gɛt am.
- Yu fɔ no bɔt di sayn dɛm lɛk ed we de at, vɔmit, ɛn we yu nɔ de balans.
- Pan ɔl we wi nɔ no di rayt tin we kin mek i apin , sɔm tin dɛn we kin apin to pɔsin in jɛnɛtiks kin ɛp fɔ du dat.
- Dɛn kin no di sik bay we dɛn de du tɛst lɛk MRI, CT skan, ɛn bayɔpsi.
- Sɔm tritmɛnt dɛn de lɛk ɔpreshɔn, kemotɛrapi, ɛn redyushɔn tɛrapi.
- Di chans fɔ wɛl kin bɔku , mɔ if dɛn no bɔt am ɛn trit am kwik kwik wan.
- If yu gɛt ɛni sayn , nɔ fred fɔ go to dɔktɔ .
A op se dis infɔmeshɔn go ɛp yu. Mɛmba se nɔto yu wangren de. If yu gɛt ɛni kwɛstyɔn, nɔ shem fɔ tɔk to dɔktɔ.
👩🏽 ⚕️ Ɔda kwɛstyɔn dɛn (FAQ dɛn)
💬 Medulloblastoma na kɔmɔn bren kansa?
Nɔ, dis na kansa we rili denja ɛn we de gro kwik kwik wan we kin apin mɔ pan pikin dɛn pas big pipul dɛn (20% pan ɔl di kansa dɛn we kin gɛt na dɛn bren we pikin dɛn kin gɛt). I de divεlכp na di pat na di bren we dεn kכl sεribεl, we de na di bak pat na di bren εn de kכntrכl wi bεlε.
💬 Aw mama ɛn papa go no if dɛn pikin gɛt dis?
biכs dis tכmכro de gro כnda di bren, i de blכk di tכb dεm we de kכri di sεribrospεnal fכluid (CSF) insay di bren. Dɔn di bren kin ful-ɔp wit wata ɛn mek bɔku prɛshɔn (Hydrocephalus). So, if di pikin vɔmit bɔku we i wek na mɔnin (if i se na mɔnin nɔmɔ in ed de at), if i fɔdɔm we i nɔ balans we i de waka, ɛn if in yay krɔs wantɛm wantɛm (Krɔs yay / bikɔs ɔf prɛshɔn pan di bren veins), den dɛn fɔ du MRI skan fɔ di bren wantɛm wantɛm.
💬 Dɛn nɔ go ebul fɔ sev dis sikman bay we dɛn du ɔpreshɔn?
If dɛn kech am kwik, i kin mɛn! Di fɔs tin we yu fɔ du na fɔ du ɔpreshɔn fɔ pul bɔku pan di tumbu as yu ebul. afta dat, dεn kin du rεdyushכn εn kεmothεrapi to di כl bren εn spayna (kraniospinal rεdyushכn) fכ kil εni kεnsar sεl dεm we rεst (especially biכs dis kin spre dכn di spεnal kכd).
` Medulloblastoma, bren kansa, pikin kansa, nervous system, kansa simptom, kansa tritment, jenetik sik
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