Yu de wɔri bak bɔt dɛn sik ya we de kɔntinyu fɔ de na yu nos? Lɛ wi tɔk bɔt Esthesioneuroblastoma.

Yu kin gɛt nos bak we kin stɔp ɔltɛm? Ɔ yu jɔs de gɛt blɔd na yu nos? Sɔntɛnde yu kin fil lɛk se yu nɔ kin ebul fɔ smɛl? Dɛn tin ya kin apin wit kɔmɔn kol ɔr sayn prɔblɛm. Bɔt if dɛn sik ya kɔntinyu, dat min se sɔntɛm na sɔntin we wi fɔ wɔri bɔt smɔl. If dis kayn tin apin, i rili impɔtant fɔ no bɔt dis sik we dɛn kɔl Esthesioneuroblastoma, we wi go tɔk bɔt.

Wetin na Ɛstishinyuroblastoma?

Fɔ tɔk am simpul wan, esthesioneuroblastoma na wan kayn kansa we nɔ kin bɔku . Na wan kayn kansa we kin apin na di ed ɛn nɛk. sכmtεm dכkta dεn kin kכl am ``olfactory neuroblastoma.'' Insay dis kayn kεnsar, kεnsar tכmכro dεm de divεlכp na di ``nasal cavities'', di spεs dεm we de insay yu nos. Dɛn tumbu ya kin pwɛl di nerv ɛn tisu dɛn we de ɛp yu fɔ smɛl.

Pan ɔl we dis sik kin afɛkt big pipul dɛn mɔ, sɔntɛnde i kin afɛkt pikin dɛn ɛn yɔŋ pipul dɛn (tinja dɛn). Di tritmɛnt kin gɛt fɔ du wit ɔpreshɔn fɔ pul di tumbu, dɔn dɛn kin yuz redyushɔn tɛrapi. Bɔt bikɔs sɔntɛnde, estesioneuroblastoma kin kam bak, dɔktɔ dɛn kin se yu fɔ chɛk am ɔltɛm fɔ mek shɔ se i nɔ kam bak.

Aw kɔmɔn tin dis kin apin?

Dis na rili sik we nɔ kin apin so ɔltɛm . Ɔlsay na di wɔl, i kin ambɔg lɛk wan pan ɛvri 2.5 milyɔn pipul dɛn ɛvri ia. Bɔrku pipul dɛn kin gɛt dis sik bitwin 50 ɛn 70. Bɔt lɛk aw a bin dɔn tɔk, i kin apin bak pan pikin ɛn yɔŋ pipul dɛm. Infakt, di kayn kansa we kin kam pan pikin ɛn yɔŋ pipul dɛn na di nos na Esthesioneuroblastoma.

Wetin na di sayn dɛm fɔ Esthesioneuroblastoma?

Wae yu gɛt dis sik, e kin fil lɛk yu gɛt sayn infεkshɔn ɔr ɔda sayn prɔblɛm. Di men sayn dɛm wae de sho se yu gɛt dis sik na:

• Yu nɔ go ebul fɔ smɛl igen (anosmia): Yu nɔ go ebul fɔ smɛl wantɛm wantɛm, ɔ yu nɔ go ebul fɔ smɛl bad bad wan.
• Nasal congestion : Na filin ɔltɛm fɔ stɔp na yu nos, we de mek i nɔ izi fɔ blo.
• blɔd we de kɔmɔt na di nos bak (`recurrent epistaxis`): Blɔd we de kɔmɔt na di nos, we yu nɔ bin want ɔ fɔ smɔl rizin. Dis blɔd kin at fɔ stɔp.

If yu dɔn gɛt wan ɔ mɔ pan dɛn sik ya fɔ lɔng tɛm, i go mɔs bi se yu go to dɔktɔ fɔ advays.

Wetin kin mek pɔsin gɛt estesioneuroblastoma?

Fɔ tɔk tru, dis sik naDɛn nɔ dɔn fɛn di rayt rizin yet. Masta sabi bukman dɛn stil de du risach bɔt dis. dεn biliv se jεnεtik chenj dεm (`kromozom chenj dεm`) כ mכtεshכn (`mכtεshכn`) kin involv. Bɔt dɛn nɔ dɔn rich ɛni strɔng kɔnklushɔn yet.

Wetin na de prɔblɛm wae kin kam wit dis sik?

Esthesioneuroblastoma na wan kansa we kɔmpleks smɔl.

• Rikɔrɛshɔn: I rili kɔmɔn fɔ mek dis kansa kam bak ivin afta dɛn dɔn trit am. Sɔntɛnde, e kin kam bak sɔm ia afta dɛn dɔn trit am. We i du dat, i kin kam bak na di sem ples we i bin de bifo, ɔ i kin skata to di tisu dɛn we de nia am. Na smɔl tɛm nɔmɔ, i kin go na di say dɛn we de fa fawe na di bɔdi.
• Spread to oda ples (metastasize): If yu nɔ trit dis kansa, i kin spre to di bren ɔ ɔda pat na di bɔdi. Stɔdi dɔn sho se dis kansa kin pas bɔku tɛm na di sayn dɛm. Bɔt i kin go bak to di limf no dɛm na di nɛk, di lɔng, ɛn bon dɛm.

Dis na di rizin we mek i rili impɔtant fɔ no dis sik kwik kwik wan, gɛt di rayt tritmɛnt, ɛn afta dat dɛn go du dɔktɔ chɛk-ap ɔltɛm.

Aw dɛn kin no se pɔsin gɛt Esthesioneuroblastoma?

Dɔktɔ dɛn kin yuz difrɛn tɛst dɛn fɔ no if pɔsin gɛt dis sik. Dɛn tin ya kin bi:

• CT scan: Dis kin tek ditayli pikchɔ dɛn fɔ di insay pat na di bɔdi, jɔs lɛk spɛshal ɛkstrem rayt.
• MRI skan: Dis kin mek bak klia pikchɔ dɛn bɔt di tisu ɛn ɔgan dɛn we de insay di bɔdi.
• Nasal endoscopy: Dis na fɔ put wan tin tiub wit smɔl kamɛra insay di nos fɔ chɛk di insay pat na di nos ɛn di sayn dɛn we de na di sayn.
• PET skan: Dɛn kin yuz dis fɔ si if kansa sɛl dɛn de ɛnisay na di bɔdi.

Afta dɛn tɛst ya, if di dɔktɔ gɛt ɛni dawt, dɛn go tek wan pat pan di tisu ɛn chɛk am fɔ no fɔ tru if na kansa. Dɛn kɔl dis bayɔpsi .

Wetin na di stej dɛm fɔ Esthesioneuroblastoma?

Kansa stej na wan we fɔ no aw fa di kansa dɔn skata ɛn wetin i tan. Dɛn kin yuse dis stej fɔ plan tritmɛnt ɛn prɛdikt di fiuja kɔs fɔ di sik (prognosis). fכ men stej dεm de fכ εstisinyuroblastoma:

• Stej A: di kansa sεl dεm dכn gro to tכmכro insay di nos kכva.
• Stej B: Di kansa dɔn spre dairekt frɔm di nos kaviti to di nos sayn dɛm.
• Stej C: .Di kansa dɔn skata frɔm di nos ɛn sayn to di yay ɔ di bren.
• Stej D: Tεst dεn sho se di kansa dכn spre to כda pat dεm na di bכdi, fכ egzampl, di limf no dεm na di nεk, di bon mכro, כ di lכng dεm.

Wetin na di tritmɛnt fɔ Esthesioneuroblastoma?

Bɔku tɛm, dɔktɔ dɛn kin du ɔpreshɔn fɔ pul dɛn kansa tumbu ya. Bɔku difrɛn we dɛn de fɔ du ɔpreshɔn:

• εndoskopik כpεrayshכn: Dis na fכ pas sכmכl kεmεra εn instrכmεnt dεm tru di nos fכ pul di tכmכro we dεn nכ mek εksternal insishכn.
• Kraniofacial ɔpreshɔn: Dis na sɔm kɔmpleks ɔpreshɔn. I gɛt fɔ du wit di pat dɛn na di fes ɛn di skel.
• Kraniɔtomi: Dis kin min fɔ pul wan pat pan di skel ɛn pul di tɔŋ dɛn we de rawnd di bren.

Apat frɔm dɛn ɔpreshɔn ya, ɔda tritmɛnt dɛn de:

• Radiation therapy: Dɛn kin yuz dis tritmɛnt fɔ pwɛl ɛni kansa sɛl we kin lɛf afta dɛn dɔn du di ɔpreshɔn.
• Kimotɛrapi: Dɛn kin yuz dis tritmɛnt we dɛn nɔ kin ebul fɔ pul di tumbu dɛn fayn fayn wan bay we dɛn du ɔpreshɔn.

Aw lɔng i kin tek fɔ mek pɔsin wɛl afta dɛn dɔn du am ɔpreshɔn?

I dipen pan di kayn ɔpreshɔn we yu dɔn du. Bɔt bɔku tɛm yu go gɛt fɔ de na ɔspitul fɔ tu to fayv dez. Afta dat, yu go go na os ɛn kɔntinyu fɔ wɛl. I kin tek wan ɔ tu mɔnt fɔ mek dɛn bigin fɔ yuz redyushɔn tɛrapi.

Wetin na di sayd ɛfɛkt dɛm we di tritmɛnt dɛm kin gɛt?

Ɔpreshɔn, redyushɔn tɛrapi, ɛn kemotɛrapi ɔl kin gɛt difrɛn bad bad tin dɛn.

• Di bad tin dɛn we kin apin we dɛn du ɔpreshɔn: I kin mek pɔsin fil pen, in nos kin rɔtin, ɛn i kin mek i fil lɛk se dɛn dɔn anestez am.
• Di kɔmɔn sayd ɛfɛkt dɛm we kemotɛrapi ɛn redyushɔn tɛrapi kin gɛt na fɔ taya, dayarɛa, nɔs, ɛn vɔmit.

Dɛn sayd ɛfɛkt ya nɔ kin apin to ɔlman di sem we. Sɔm pipul dɛn kin gɛt dɛn bad bad wan, ɛn ɔda pipul dɛn nɔ kin gɛt dɛn so bad.

Wetin na di prɔblɛm dɛn we kin apin we pɔsin gɛt tritmɛnt?

Sɔntɛnde, tritmɛnt kin mek yu gɛt prɔblɛm, mɔ we dɛn du ɔpreshɔn, lɛk:

• Sik we de prɛd.
• Blɔd we de kɔmɔt pasmak.
• I nɔ go ebul fɔ smɛl ɔltɛm. Yu no, big kɔnekshɔn de bitwin wi sɛns fɔ smɛl ɛn wi sɛns fɔ teist. So if yu nɔ ebul fɔ smɛl igen, yusɛf nɔ go ebul fɔ te.
• Sεribrospεnal fכluid (CSF) de lik. dis na we di wata we de protεkt we de rawnd di bren εn di spεnal kכd de lik kכmכt na di nos.
• di wata we de kɔmɔt na yu nos kin fil se i dray ɛn i kin krɔs.

If sɔntin lɛk dis apin, yu fɔ tɛl di dɔktɔ wantɛm wantɛm.

Wetin na di prɔgnosis fɔ Esthesioneuroblastoma pan big pipul dɛm?

De prognosis fɔ wan sik na wae dɔktɔ kin tɔk bɔt aw de sik go afɛkt yu afta yu dɔn trit yu. Dis nɔto di sem tin fɔ ɔlman. I dipen pan bɔku tin dɛn. Fɔ ɛgzampul:

• Usay di kansa de na di bɔdi?
• If di kansa dɔn skata to ɔda pat dɛn na di bɔdi.
• Aw bɔku pan di tumbu dɛn bin pul we dɛn bin de du di ɔpreshɔn.
• di kכntribyushכn dεm fכ di kεnsar sεl dεm we dεn si na labכtכri ripot dεm.

If yu gɛt kwɛstyɔn bɔt aw yu go si yu sik, tɔk to yu dɔktɔ ɛn di ɔda wan dɛn we de na yu mɛdikal tim. Dɛn no yu ɛn yu kɔndishɔn pas ɔlman.

Wetin na di luk fɔ Esthesioneuroblastoma pan pikin dɛm?

Jɔs lɛk big pipul dɛn, di we aw pikin dɛn go si am kin dipen pan di patikyula kɔndishɔn we dɛn gɛt, lɛk usay di tumbu de, di kayn we aw di kansa sɛl dɛn de, if di kansa dɔn skata, ɛn ɔmɔs dɛn pul am we dɛn de du di ɔpreshɔn.

Wetin na di rεt fכ sכvayv fכ εsthεsioneuroblastoma?

Dɔktɔ dɛn kin kɔl dɛn rit ya bay di ɛkspiriɛns we pipul dɛn we gɛt dis sik dɔn gɛt. Insay di kes fɔ dis sik, dɛn se bitwin 50% ɛn 90% pan di sik pipul dɛn kin alayv fayv ia afta dɛn dɔn no se dɛn gɛt am.

Bɔt nɔ mek yu fred ɔ kɔnfyus wit dɛn `survival rate` figa ya. Dis na jɔs ɛstimat. Dat min se, dɛn de bay wetin ɔda pipul dɛn dɔn ɛkspiriɛns. Wetin bin tru fɔ dɛn nɔ go bi tru fɔ yu. If yu gɛt ɛni kwɛstyɔn bɔt dis, nɔ fred fɔ tɔk to yu dɔktɔ. I go ɛksplen dɛn ɛstimat ya to yu ɛn aw dɛn de apin to yu sityueshɔn.

Yu tink se Esthesioneuroblastoma kin kil pɔsin?

Yɛs, i kin kil pɔsin . Esthesioneuroblastoma kin spre to di lכng dεm כ כda pat dεm na di bכdi. I kin kam bak bak afta dɛn dɔn trit am ɛn gro na ɔda say dɛn. Esthesioneuroblastoma we dɔn skata (mɛtastatik) ɔ we dɔn kam bak (we de kam bak) kin mek pɔsin in layf de pan denja if dɛn nɔ no am kwik. Na dat mek i rili impɔtant fɔ mek yu de chɛk yu ɔltɛm. Dis kin mek yu dɔktɔ ebul fɔ du tɛst ɛn no di kansa kwik kwik wan.

Ustɛm a fɔ go to mi dɔktɔ?

Bikɔs estesioneuroblastoma kin kam bak, yu fɔ plan fɔ si yu mɛdikal tim wan tɛm insay di ia fɔ di res ɔf yu layf. Dɛn go chɛk yu ɔl yu wɛlbɔdi. Dɛn kin du imej tɛst bak fɔ si if di kansa dɔn kam bak.

Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?

Bikɔs estesioneuroblastoma na sik we nɔ kin bɔku, yu nɔ go no bɔku tin bɔt am. Na sɔm kwɛstyɔn dɛn we yu kin aks yu dɔktɔ:

• Aw big di tumbu de na mi nos?
• Yu tink se a go nid ɔpreshɔn?
• Us kayn ɔpreshɔn a go gɛt fɔ du?
• If dɛn du mi ɔpreshɔn, a go gɛt di sɛns fɔ smɛl bak?
• Wetin na di ɔda we dɛn we pɔsin kin du pas ɔpreshɔn?
• Aw lɔng afta tritmɛnt a nid fɔ kam fɔ mek dɛn chɛk mi na dɔktɔ?

Esthesioneuroblastoma na wan kansa we nɔ kin apin so ɔltɛm we kin kam insay di nos. I kin divɛlɔp as tɛm de go. Sɔmtɛm pipul dɛn kin tink se sɔm kayn sik lɛk wae yu nɔs de rɔtin, yu nos de blɔd, ɛn yu nɔr de smɛl pasmak nɔr kin siriɔs fɔ tɔk to dɔktɔ bɔt.

Fɔ tru, sɔntɛnde, blɔd we de kɔmɔt na in nos kin jɔs bi blɔd na in nos. Bɔt if yu nos de kɔntinyu fɔ blɔd, i tan lɛk se yu nos we dɔn stɔp nɔ de ɛva bɛtɛ, ɔ yu fil lɛk se yu nɔ ebul fɔ smɛl igen, yu fɔ rili tɔk to dɔktɔ. I kin chɛk yu sik ɛn tɛl yu bɔt di nɛks tin dɛn we yu fɔ du.

Di tin dɛn we impɔtant pas ɔl we yu fɔ mɛmba (Take-Home Message) .

Okay, so a op se yu naw geht sohm andastan boht wetin wi bin de tok boht, Esthesioneuroblastoma. Di tin we impɔtant pas ɔl we wi fɔ mɛmba na dɛn tin ya:

• Dis na kansa wae nɔr kin bɔrku: so nɔr frayd wae yu yɛri dis nem.
• Yu fɔ no bɔt di sayn dɛm: Nɔ dismis tin dɛm lɛk wae yu nɔs de swɛt ɔltɛm, yu de blɔd ɔltɛm, ɛn yu nɔr de smɛl fayn lɛk aw i fɔ smɛl lɛk aw i nɔmal, mɔ if dɛn de kɔntinyu fɔ de.
• I impɔtant fɔ no am kwik kwik wan: Jɔs lɛk ɛni sik, if yu no am kwik, dat kin mek yu gɛt mɔ chans fɔ gɛt di tritmɛnt we go wok fayn.
• Yu fɔ chɛk yu ɔltɛm to dɔktɔ: Ivin afta yu dɔn gɛt tritmɛnt, i impɔtant fɔ mek yu de chɛk yu ɔltɛm lɛk aw yu dɔktɔ se, bikɔs dis kansa kin kam bak.
• Trɔst yu dɔktɔ: Tɔk to yu dɔktɔ bɔt ɛni kwɛstyɔn ɔ tin we de mɔna yu. Na dɛn go ebul fɔ gi yu di bɛst advays.

Mɛmba se na yu fɔ bisin mɔ bɔt yu wɛlbɔdi biznɛs. If yu fil ɛnitin we nɔ kɔmɔn, ivin if yu fil smɔl, i nɔ kin ɛva let fɔ go to dɔktɔ.

` Esthesioneuroblastoma, Esthesioneuroblastoma, Nasal kansa, Nɔ de smɛl, Nɔs blɔd, Hɛd ɛn nɛk kansa, Kansa tritmɛnt