Fɔ briŋ pikin we dɛn jɔs bɔn na os na sɔntin we kin mek wan famili gladi. Bɔt sɔntɛnde, dɛn kin bɔn sɔm pikin dɛn wit tin dɛn we nɔ kin apin so ɔltɛm. Na nɔmal tin fɔ mek wi fil bad bad wan ɛn wɔri we wi yɛri bɔt dɛn tin ya. Bɔt tide, bikɔs mɛdikal sayɛns dɔn go bifo bɔku tɛm, naw sɔlv dɛn de fɔ bɔku sik dɛn we nɔ bin gɛt ɛni tritmɛnt bifo. Tide, wi go tɔk bɔt wan spɛshal mɛrɛsin we dɛn kin gi fɔ dis kayn sik we nɔ kin apin so ɔltɛm. Dat na di Fosdenopterin vaysin.
Wetin na dis Fosdenopterin? Wetin i de du?
Fɔ tɔk am simpul wan,
Fosdenopterin (brand nem: Nulibry) na wan mɛrɛsin we dɛn kin yuz fɔ trit wan jɛnɛtik kɔndishɔn we nɔ kin apin so ɔltɛm we dɛn kɔl
Molybdenum cofactor deficiency (MoCD) . Okay, naw mek wi si wetin na MoCD. Imajin se wi bɔdi tan lɛk big faktri. Fɔ mek dis faktri ebul fɔ du ɔltin fayn fayn wan, i nid difrɛn smɔl wokman dɛn we dɛn kɔl ɛnzaym. Fɔ mek dis ɛnzaym wok fayn, i nid ɔda smɔl pat we de ɛp am. Wi kin kɔl am kɔfaktɔ. Molibdenum cofactor na wan pan dɛn impɔtant ɛp dɛn ya. Pɔsin we gɛt MoCD gɛt wan jenɛtik difrɛns na in bɔdi we de mek i nɔ ebul fɔ mek dis Molibdenum kɔfakta. Dɔn, bikɔs ɔf dis ɛp, sɔm ɛnzaym dɛn nɔ de wok. Dis kin mek pɔyzin we de ambɔg di bɔdi kin bigin fɔ gɛda na di bɔdi. Dɛn pɔyzin ya, mɔ di wan dɛn we de mek di bren pwɛl bad bad wan, na dɛn kin apin na MoCD. dis na di say we wan dכg we dεn kכl Fosdenopterin de kam in. Wetin dis dכg de du na fכ gi di Molybdenum cofactor we di bכdi nכ kin prodyuz frכm do. I tan lɛk se yu kam wit wokman we dɔn mis frɔm di faktri. Dɔn dɛn ɛnzaym dɛn de we nɔ de wok kin bigin fɔ wok bak, di pɔyzin dɛn we kin gɛda kin stɔp, ɛn di damej we di bren kin pwɛl kin stɔp.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
Bifo yu gi yu ɔ yu pikin dis mɛrɛsin, i rili impɔtant fɔ tɔk bɔt sɔm tin dɛn wit yu dɔktɔ. Bikɔs di tritmɛnt go bifo ɛn sef, dipen pan da infɔmeshɔn de. Na sɔm tin dɛn we yu fɔ mek shɔ se yu tɔk bɔt:
- Alɛji : Tɛl wi if yu gɛt ɛni alɛji to Fosdenopterin ɔ ɛni ɔda mɛrɛsin, it, day, ɔ tin dɛn we de mek yu nɔ pwɛl.
- Bɛlɛ : If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu tink se yu gɛt bɛlɛ, yu fɔ rili tɛl yu dɔktɔ.
- If yu na mama we de gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ, tɛl di dɔktɔ bɔt dis bak.
If yu tɛl wi dis infɔmeshɔn ɔnɛs wan ɛn nɔ ayd am, i go rili ɛp di mɛdikal tim fɔ gi yu di tritmɛnt we fit ɛn sef.
Aw yu kin yuz dis mɛrɛsin?
Fosdenopterin na injεkshכn we dεn injεkt insay wan vein. Bɔku tɛm, na wan mɛdikal tim we de na ɔspitul ɔ klinik kin gi am. Bɔt sɔm tɛm, dɛn kin gi am na do na ɔspitul, na os. If dis apin, yu nɔ gɛt natin fɔ wɔri bɔt. Di mɛdikal tim go tren yu gud gud wan bɔt aw fɔ pripia ɛn gi dis mɛrɛsin kɔrɛkt wan.
- Fɔ fala di instrɔkshɔn dɛn gud gud wan: I rili impɔtant fɔ tek di mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu, di rayt tɛm, ɛvride. Kɔntinyu fɔ tek am te yu mɛdikal tim tɛl yu fɔ stɔp.
- Nidul ɛn sirinj we dɛn dɔn yuz: Dis na pɔynt we rili impɔtant. Nɔ ɛva trowe nidul ɛn sirinj dɛn we yu dɔn yuz na di dɔti. Wan spɛshal kɔntena de fɔ dɛn (shap kɔntena). If yu nɔr gɛt wan, yu kin aks yu dɔktɔ ɔr mɛdikal tim fɔ wan. Dis go protɛkt yu, yu famili, ɛn di envayrɔmɛnt.
- Instrɔkshɔn fɔ Yuz: Rid di INSTRUKSHƆN FƆ YUZ we de kam wit dis mɛrɛsin fayn fayn wan. If yu gɛt ɛni kwɛstyɔn bɔt wetin de insay, aks yu mɛdikal tim fɔ mek dɛn klarify yu.
Bikɔs dɛn kin gi dis mɛrɛsin ivin to pikin dɛn we dɛn jɔs bɔn, dɛn fɔ tek tɛm wit spɛshal tin dɛn we dɛn de yuz am fɔ pikin dɛn. Yu dɔktɔ go ɛksplen dis to yu.
Wetin fɔ du if yu mis wan doz?
Dis kin difrɛn smɔl dipen pan usay dɛn kin gɛt di mɛrɛsin.
- If yu de tek yu mɛrɛsin na ɔspitul ɔ klinik: If yu nɔ ebul fɔ atɛnd yu apɔntinmɛnt we yu dɔn sɛtul, kɔl yu mɛdikal tim kwik kwik wan. I rili impɔtant fɔ mek yu nɔ mis di apɔntinmɛnt we yu bin dɔn plan fɔ mek.
- If yu de tek yu mɛrɛsin na os: If yu mis wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt we yu tek yu nɛks doz, wet fɔ at le 6 awa bifo yu tek di doz we yu mis. Nɔ ɛva tek dabl doz ɔ ɛkstra doz. If yu nɔ shɔ, tɔk to yu wɛlbɔdi tim fɔ advays.
Wetin fɔ du if yu tek di mɛrɛsin pasmak?
If yu tink se yu dɔn tek bɔku mɛrɛsin,
kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta wantɛm wantɛm na di Nashɔnal Ospital na Kɔlɔmbɔ, ɔ go na di Imejɛnsi Dipatmɛnt (ETU) na di ɔspitul we de nia yu. Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɛni ɔda pɔsin.
Tin dɛn we yu fɔ tek tɛm wit we yu de yuz di mɛrɛsin
- Ɔda mɛrɛsin dɛn: Dɛn nɔ kin tink se dis mɛrɛsin go miks wit ɔda mɛrɛsin dɛn. Bɔt i go fayn fɔ tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek (inklud vaytamɛn , ɛbul mɛrɛsin, ɛn sɔpɔtmɛnt dɛn). Dɔn bak, tɛl yu dɔktɔ if yu de smok ɔ drink rɔm .
- Protɛkt yusɛf frɔm di san: Dis rili impɔtant. Yu skin kin rili sɛnsitiv to di san we yu de tek dis mɛrɛsin. So, nɔ go na do na di san as yu ebul. If yu fɔ go na do, wɛr klos we kɔba yu skin fayn ɛn yuz gud tin fɔ protɛkt yusɛf frɔm di san. Nɔ yuz san lamp ɔ tanning bed.
- Fɔ chɛk-ap ɔltɛm: Mek shɔ se yu go na yu dɔktɔ in apɔntinmɛnt. Yu fɔ de chɛk ɔltɛm aw yu tritmɛnt de go. If yu sik nɔr de bɛtɛ ɔr tan lɛk se yu de wɔs, mek yu mɛdikal tim no.
Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?
Lɛk ɛni mɛrɛsin, Fosdenopterin kin mek sɔm sayd ɛfɛkt. Bɔt, nɔto ɔlman kin gɛt dɛn. Sɔm pan dɛn tin ya siriɔs, ɛn ɔda wan dɛn kin kɔmɔn. Di tin we impɔtant pas ɔl na fɔ no bɔt dɛn.
Sayd Ɛfɛkt: Sayd ɛfɛkt we dɛn fɔ ripɔt to di mɛdikal tim wantɛm wantɛm. Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt
to di dɔktɔ if dɛn kɔntinyu fɔ de.
| Alɛji we pɔsin kin gɛt | Skin rash, it, ayv, swel na di fes, lip, tong ɔ trot. Dɛn tin ya kin rili siriɔs, so ripɔt dɛn wantɛm wantɛm. |
| Di we aw di skin kin biev | Rɛd, blista, ɔ ɔda tin dɛn we nɔ de apin na di say dɛn we di skin de na di san. |
| Kɔf | Wan kɔf we de kɔntinyu fɔ kɔf. |
| Rɔnbɛlɛ | Fɔ mek yu bɔdi wam. |
| Bɛlɛ de pen | Bɛlɛ de at ɔ i nɔ de fil fayn. |
| Fɔ vɔmit | Fɔ vɔmit. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu gɛt ɛni ɔda sayn we nɔ kɔmɔn, tɔk to yu dɔktɔ fɔ mek i gi yu dɔktɔ advays.
Aw fɔ kip di mɛrɛsin?
I rili impɔtant fɔ kip dis mɛrɛsin fayn fayn wan. If dɛn nɔ kip di mɛrɛsin di rayt we, i nɔ go ebul fɔ wok igen.
- Kip am usay pikin dɛn nɔ go ebul fɔ rich: Kip am usay pikin dɛn ɛn animal dɛn we dɛn kin mɛn na os nɔ go ebul fɔ rich.
- Vayl dɛn we nɔ opin: Dɛn fɔ kip dɛn tin ya na friza we di tɛmpracha de bitwin -25 ɛn -10 digri sɛlshiɔs . Kip insay di ɔrijinal katon te yu yuz am. Protekt bak frɔm layt. Rimov am na di katon lɛk 30 minit bifo yu yuz am.
- Afta yu dɔn miks am: Afta yu dɔn miks di mɛrɛsin, yu kin kip am na rum tɛmpracha ɔ na frij we di tɛmpracha bitwin 2 ɛn 8 digri sɛlshiɔs . Bɔt yu fɔ yuz am insay 4 awa afta yu miks am .
- Di mɛrɛsin we dɔn pas: Trowe di mɛrɛsin we dɔn pas.
Aks yu mɛdikal tim fɔ advays bɔt aw fɔ trowe di mɛrɛsin dɛn we yu nɔ yuz ɛn we dɔn pas, fayn fayn wan.
Mɛsej we dɛn kin kɛr go na os
- Fosdenopterin na impɔtant, layf-sev drɔg fɔ di rare jenɛtik sik we dɛn kɔl Molybdenum cofactor deficiency (MoCD).
- Bifo yu tek dis mɛrɛsin, tɛl yu dɔktɔ bɔt ɔl yu alɛji ɛn if yu gɛt bɛlɛ ɔ yu de gi pikin bɔbi.
- Tek di mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu, di rayt tɛm, ɛn di rayt doz. If yu mis wan doz, aks fɔ advays frɔm yu mɛdikal tim.
- Nɔ ɛva trowe nidul ɛn sirinj dɛn we yu dɔn yuz na di dɔti. Yuz spɛshal ‘shap kɔntena’ ɔltɛm.
- Yu skin kin fil lɛk di san we yu de tek dis mɛrɛsin. So protɛkt yusɛf frɔm di san.
- If yu gɛt ɛni alɛji (di fes we de swel, i nɔ izi fɔ blo), go to dɔktɔ wantɛm wantɛm.
- If yu gɛt ɛni kwɛstyɔn ɔr dawt bɔt dis mɛrɛsin, nɔr shem fɔ aks yu dɔktɔ ɔr mɛdikal tim.
Fosdenopterin, Nulibry, Molybdenum cofactor deficiency, MoCD, jenɛtik sik, pikin sik, vaksin, sayd ɛfɛkt, mɛrɛsin, Sri Lanka
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