Ɛni mama ɔ papa kin sɔprayz we i kam fɔ no se dɛn pikin gɛt wan sik we nɔ kin apin so ɔltɛm. Na filin we rili nɔ ebul fɔ du natin. Bɔt we di mɛrɛsin dɛn we dɛn de yuz tide dɔn go bifo, tritmɛnt dɛn de tide fɔ sɔm sik dɛn we dɛn bin de tink se dɛn nɔ go ebul fɔ mɛn. Tide wi go tɔk bɔt wan spɛshal vaysin we dɛn kɔl Fosdenopterin, we dɛn kin yuz fɔ wan pan dɛn kayn tin ya we nɔ kin apin so bɔt we kin rili bad, we na ‘Molybdenum Cofactor Deficiency Type A’.
Fɔ tɔk am simpul wan, wetin na Molibdɛnɛm Kɔfakta Dɛfisiɛns Tayp A?
Dis na smɔl kɔmplikɛt nem, bɔt lɛ wi kip am simpul. Imajin se wi bɔdi na big faktri. Dis faktri gɛt smɔl smɔl mashin dɛn (ɛnzaym dɛn) we de du difrɛn wok dɛn. Fɔ mek dɛn mashin dɛn ya wok fayn, dɛn nid spɛshal aksesɔri (wan kɔfakta). Molibdenum cofactor na wan pan dɛn kayn impɔtant aksesɔri dɛn de.
Pikin dεm we gεt wan jεnεtik kכndyushכn we dεn kכl Molybdenum Cofactor Deficiency Type A nכ kin prodyuz dis kכmכpכnt. Dɔn di mashin dɛn we de na da faktri de kin stɔp fɔ wok. Dis kin mek sɔm kayn kemikal dɛn we de ambɔg ɛn we gɛt pɔyzin (fɔ ɛgzampul, sɔlfayt) kin bigin fɔ gɛda na di bren ɛn bɔdi. Dis kin mek di pikin gɛt siriɔs nyurolɔjik prɔblɛm, i kin gɛt sik we i de fil, ɛn ivin day.
Wetin kin apin wit di Fosdenopterin vaysin?
Dis na di say we di drɔg Fosdenopterin (brand nem: Nulibry) de kam fɔ ɛp wi. I nɔ de mɛn ɔltin fɔ di sik, bɔt i de du sɔntin we rili impɔtant.
Fɔ tɔk am simpul wan, dis vaksin de gi wan impɔtant tin we di pikin in bɔdi nɔ ebul fɔ mek, we dɛn kɔl saykli pyranopterin monophosphate (cPMP) .
we dεn gi dis, di inaktiv mashin dεm (εnzym dεm) na di bכdi kin bigin fכ wok bak. Dɔn di pɔyzin kemikal dɛn we de gɛda kin stɔp, ɛn dɛn kin bigin fɔ pul dɛn kɔmɔt na di bɔdi. So, i kin ɛp bɔku fɔ ridyus di risk fɔ day bikɔs ɔf di sik. So, dis tan lek gift of laif fo pikin laik dis.
Mek shɔ se yu tɛl yu dɔktɔ dɛn tin ya bifo yu bigin fɔ trit yu.
Bifo yu gi yu pikin dis mɛrɛsin, i rili impɔtant fɔ mek di mɛdikal tim no bɔt sɔm tin dɛn. Tɔk bɔt dɛn tin ya klia wan wit yu dɔktɔ.
| Matter fɔ mek dɛn no bɔt am | Wetin mek dat impɔtant? |
|---|---|
| Alɛji dɛn we pɔsin kin gɛt | If yu pikin gɛt alɛji fɔ fosdenopterin ɔ ɛni ɔda mɛrɛsin, it, ɔ day, mek shɔ se yu tɛl dɛn bɔt am. |
| Bɛlɛ ɔ we yu de op fɔ bɔn pikin | Pan ɔl we dis na mɛrɛsin we dɛn kin gi pikin dɛn we dɛn jɔs bɔn, dɛn fɔ tɛl di dɔktɔ if di pɔsin we de tek di tritmɛnt gɛt bɛlɛ ɔ i de tray fɔ gɛt bɛlɛ. |
| Fɔ gi pikin in mama in bɛlɛ | If mama we de du tritmɛnt de gi in mama in bɛlɛ, i rili impɔtant fɔ tɔk bɔt dis wit di dɔktɔ. |
Aw yu kin yuz dis mɛrɛsin?
Fosdenopterin na injεkshכn we dεn kin gi insay wan vein . Bɔku tɛm, na ɔspitul ɔ klinik kin gi am na di dɔktɔ dɛn we dɔn tren. Bɔt sɔntɛnde, yu dɔktɔ kin tɛl yu fɔ gi di injɛkshɔn na os.
- Gi am di rayt tɛm: I rili impɔtant fɔ gi dis vaysin di sem tɛm ɛvride, jɔs lɛk aw yu dɔktɔ tɛl yu. Kɔntinyu fɔ trit yu te yu dɔktɔ tɛl yu fɔ stɔp.
- If dɛn de gi yu dis na os: If dɛn de tren yu fɔ gi dis na os, rid ɛn ɔndastand di instrɔkshɔn dɛn gud gud wan. If yu gɛt ɛni kwɛstyɔn, aks yu dɔktɔ ɔ nɔs bak ɛn bak.
Fɔ trowe nidul ɛn sirinj dɛn sef wan
Nɔ ɛva trowe nidul ɛn sirinj dɛn we yu dɔn yuz na di dɔti. Dɛn fɔ put dɛn insay kɔntena we dɛn mek spɛshal wan (shap kɔntena) . If yu nɔ gɛt wan, yu dɔktɔ kin gɛt wan. Dis rili impɔtant fɔ mek yu pikin ɛn ɔlman na di famili sef.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
- If na ɔspitul/klinik: Nɔ mis di de we dɛn gi yu pikin di mɛrɛsin. If yu nɔ ebul fɔ go di de we dɛn dɔn plan fɔ go, kɔl yu dɔktɔ wantɛm wantɛm ɛn mek dɛn no.
- If yu de gi am na os: If yu mis wan doz, tek am jɔs lɛk aw yu mɛmba. Dɔn, wet fɔ at le 6 awa afta di mis doz te yu nɛks scheduled doz.Gi am. Nɔ ɛva gi am dɛbul doz. If yu gɛt dawt, tɔk to yu dɔktɔ.
Sayd ɛfɛkt ɛn tin dɛn we wi fɔ wach fɔ
Lɛk ɛni mɛrɛsin, dis wan kin gɛt sɔm bad bad tin dɛn. I impɔtant fɔ no bɔt dɛn tin ya ɛn tek akshɔn kwik if nid de.
| Sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
|---|---|
| Siriɔs alɛji dɛn | Skin rash, it, swel na yu fes, lip ɔ tong, i nɔ izi fɔ blo. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, kɔf, trot we de at, pen we yu de pis. |
| Prɔblɛm dɛn we de na di say we dɛn de injɛkshɔn | I kin fil bad bad wan, i kin rɛd, ɔ i kin swel na di say we dɛn injekt am. |
| Sayd ɛfɛkt dɛm wae nɔr kin bi natin fɔ wɔri bɔt, bɔt yu fɔ ripɔt to yu dɔktɔ if dɛn kɔntinyu | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Dayarɛa, bɛlɛ pen, vɔmit. |
Impɔtant: Dis list nɔ gɛt ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu notis ɛnitin we nɔ kɔmɔn pan yu pikin, kɔl yu dɔktɔ wantɛm wantɛm.
Tek tɛm wit di san!
yu pikin in skin kin fil mכr fכ di san (photosensitive) we i de tek dis mεdisin. So, nɔ put yu pikin pan strɔng san. If yu go na do, wɛr klos we go protɛkt yu ɛn yuz fayn tin fɔ protɛkt yusɛf frɔm di san, lɛk aw yu dɔktɔ tɛl yu.
Prɔblɛm kin de wit ɔda mɛrɛsin dɛn?
Bays pan di infɔmeshɔn we de naw, dɛn nɔ ripɔt se fosdenopterin kin mek ɛni patikyula intarakshɔn wit ɔda mɛrɛsin dɛn. Bɔt i rili impɔtant fɔ gi yu dɔktɔ wan kɔmplit list fɔ ɛni ɔda mɛrɛsin, vaytamɛn, ɛbul mɛrɛsin (lɛk dɛkɔkshɔn, arishta), ɔ it we yu pikin de tek.
Aw yu kin kip di mɛrɛsin? (Dis rili impɔtant)
Di we aw dis mɛrɛsin go wok fayn, dipen pan aw dɛn fɔ kip am fayn, so fala dɛn instrɔkshɔn ya gud gud wan.
- Vayl dɛn we nɔ opin: Dɛn fɔ kip dɛn tin ya na friza we di tɛmpracha de bitwin -25 ɛn -10 digri sɛlshiɔs. Kip insay di ɔrijinal bɔks te yu yuz am, ɛn protɛkt am frɔm layt. Rimov am na friza 30 minit bifo yu yuz am.
- Afta yu miks: Afta yu miks di mɛrɛsin paoda wit di wata, yu kin kip am na rum tɛmpracha (15-25 sɛlshiɔs) ɔ na frij (2-8 sɛlshiɔs). Bɔt dɛn fɔ gi di pikin am insay 4 awa afta dɛn miks am .
- Trowe di mɛrɛsin dɛn we dɔn pas ɔ we lɛf. Aks yu dɔktɔ fɔ advays bɔt aw fɔ trowe dɛn fayn fayn wan.
Mɛsej we dɛn kin kɛr go na os
- Fosdenopterin na tritmɛnt fɔ wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl Molybdenum Cofactor Deficiency Type A. Pan ɔl we i nɔ kin mɛn di sik ɔltogɛda, i kin ɛp fɔ ridyus di risk fɔ day.
- I impɔtant fɔ gi dis vaysin di sem tɛm ɛvride, lɛk aw yu dɔktɔ tɛl yu. If yu mis wan doz, go to yu dɔktɔ wantɛm wantɛm.
- Tek tɛm bad bad wan bɔt ɛni alɛji, sayn dɛm fɔ infekshɔn, ɛn pen/swɛlin na di say we dɛn injekt. If yu notis ɛnitin we nɔ kɔmɔn, tɛl di dɔktɔ wantɛm wantɛm.
- Fɔ fala di instrɔkshɔn dɛn fɔ kip di mɛrɛsin (espɛshali fɔ friz) fayn fayn wan. Dis impɔtant fɔ mek di mɛrɛsin wok.
- Nɔto yu wan de. Tɔk opin wan wit yu mɛdikal tim bɔt di tin dɛn we de mɔna yu ɛn di tin dɛn we yu de fred we yu de gɛt dis kayn sik we nɔ kin apin so ɔltɛm. Dɛn go gi yu di sɔpɔt we yu nid.
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