Yu kin fil bak se yu an ɛn yu leg trɛnk de go dɔŋ smɔl smɔl afta yu dɔn rich 50 ia? Sɔntɛm i kin at fɔ ol kɔp fayn, bɔt yu shirt, ɔ yu de trip mɔ ɛn mɔ we yu de waka? Pan ɔl we bɔku tɛm wi kin tink bɔt dɛn tin ya as nɔmal ol, sɔm tɛm dɛn kin gɛt wan sik we dɛn kɔl Inclusion Body Myositis (IBM) biɛn dis. Tide, wi go tɔk bɔt dis simpul wan, di we we yu go ɔndastand.
Fɔ tɔk am simpul wan, wetin na Inklushɔn Bɔdi Mayosaytis (IBM)?
Inklushɔn Bɔdi Mayosaytis (IBM) na wan sik we de mek yu mɔsul dɛn wik smɔl smɔl . Di tin we impɔtant pas ɔl na dat i nɔ de mek pɔsin fil pen. Bɔrku tɛm, de sik kin bigin afta yu dɔn ol 50. Tink bɔt am lɛk aw di batri na mobayl fon kin drayn smɔl smɔl, ɛn i kin lɛf fɔ gɛt trɛnk smɔl smɔl.
Dis sik kin go bifo smɔl smɔl fɔ lɔng tɛm. I nɔr de sik wae de mek yu layf de pan denja, wae min se e nɔr go kil yu. Bɔt as tɛm de go, i kin mek i nɔ izi fɔ du tin dɛn we pɔsin kin du ɛvride. Sɔntɛnde, wan say na di bɔdi kin afɛkt pas di ɔda say. Na lɛk af pan pipul dɛm wae gɛt dis sik kin gɛt prɔblɛm bak fɔ swɛla as tɛm de go .
Pan ɔl we nɔr patikyula mɛrɛsin nɔr de yet fɔ dis, fizik tritmɛnt kin ɛp yu fɔ kɔntinyu fɔ gɛt yu mɔsul trɛnk fɔ lɔng tɛm.
Wetin na di men sayn dɛm fɔ dis sik?
di mכsul dεm we de wik na IBM nכ de apin wan tεm. I kin apin smɔl smɔl, as tɛm de go. Sɔm pipul dɛn kin fil am fɔs na dɛn leg. Ɔda pipul dɛn kin fil am na dɛn an, an, ɔ finga. Sɔm pipul dɛn kin bigin fɔ fil se i nɔ kin izi fɔ du tin dɛn we nɔ izi fɔ du lɛk fɔ bɔtin shirt ɔ fɔ rayt wit pen. Ɔda wan dɛn kin bigin fɔ fɔdɔm bɔku tɛm we dɛn de waka.
As de sik de go bifo, yu kin gɛt tin lɛk dis. Lɛ wi luk dis na tebul fɔ ɔndastand am klia wan.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen |
|---|---|
| Wik na di an, leg, sholda, ɛn hip | I kin at fɔ grap na chia, klaym stej, ɔ es ebi ebi tin. Di tin dɛn we yu pik kin fɔdɔm na grɔn. |
| I nɔ kin izi fɔ swɛla ɛn di nɛk kin wik | I kin tan lɛk se it dɔn stɔp we yu de swɛla. I at fɔ mek yu ed stret, lɛk se yu ed tilt fɔ go bifo. |
| Mɔsul Atrofi | Di mɔsul dɛn we wik kin smɔl. Dis min se i tan lɛk se di mɔsul dɛn na di an ɛn leg dɛn de west. |
| Sɔm pen (Myalgia) . | Pan ɔl we nɔr kin gɛt siriɔs pen, sɔm pipul dɛn kin gɛt smɔl pen na dɛn mɔsul dɛm wae dɛn kin fil ɔltɛm. |
Wetin mek dis kayn sik kin apin? Wetin na di kɔz?
Infakt, dɔktɔ dɛn nɔ dɔn fɛn wan patikyula kɔz yet fɔ IBM. Wi kin kɔl dɛn kayn sik ya ``idiopathic``.
Bɔt risach bɔt dis dɔn fɛn bɔku tin dɛn:
- Inflameshɔn: Lɛk ɔda kayn mayosayt, dis wan kin gɛt fɔ du bak fɔ mek di mɔsul dɛn inflamɛns ɔ inflamɛns fɔ lɔng tɛm. Dis na wetin kin mek di mɔsul dɛn wik. Bɔt dɛn nɔ no yet wetin mek dis inflamɛns kin apin. Dɛn kin sɔprayz se i kin bi wan sik we de mek wi nɔ ebul fɔ fɛt di sik, we wi yon imyun sistɛm kin atak wi yon bɔdi.
- Inklushɔn Bɔdi dɛm: Na dis say di sik gɛt in nem. abnכmal protin kכlכm dεm we dεn kכl "inklushכn bכdi" de fכm insay di mכsul sεl dεm. I tan lɛk se dɔti we nɔ nid de gɛda insay wi sɛl dɛn. dεn biliv se dεn protin kכlכm dεm ya de ambɔg di nכmal fכnshכn fכ di sεl dεm.
Aw dɔktɔ kin no bɔt dis?
We yu de tɔk bɔt di sayn dɛm lɛk dis, di fɔs tin we yu dɔktɔ go du na fɔ aks yu gud kwɛstyɔn ɛn chɛk yu mɔsul dɛm, bikɔs ɔda sik dɛn de we gɛt di sem sayn dɛm lɛk IBM, lɛk polymyositis ɛn myasthenia gravis.
So, di dɔktɔ kin pe atɛnshɔn mɔ to tin dɛn lɛk:
- Us mɔsul dɛn wik?
- Yu tink se wan say na di bɔdi kin afɛkt mɔ?
- Yu si se yu mɔsul dɛn dɔn pwɛl?
- Na us ej di sayn dɛm bigin?
Afta dat, dɛn kin du sɔm tɛst dɛm lɛk dis fɔ pul ɔda tin dɛm ɛn kɔnfirm di diagnosis.
| Tɛst | Wetin yu si pan dis? |
|---|---|
| Kriatin kinaz (CK) tɛst | Dis na blɔd tɛst we dɛn kin du fɔ no di lɛvɛl we wan ɛnzaym kin gɛda na di blɔd we di mɔsul dɛn dɔn pwɛl. |
| Ɔda blɔd tɛst dɛn | Chek fɔ vayral infɛkshɔn ɔ ɔda ɔtoimyun sik dɛn. |
| Ilɛktrɔmayogram (EMG) . | di ilektrikal aktiviti na di mכsul dεm dεn de mכsu. |
| Nεv kכndukshכn stכdi (NCS) . | I de mɛzhɔ di spid we ilɛktrik signal dɛn de travul tru di nɛv dɛn we de kɔntrol di mɔsul dɛn. |
| Di tɛst we kin rili klia: Mɔsul Bayɔpsi | |
| Dis na di bɛst ɛn difinitiv we fɔ kɔnfɔm IBM. Wetin yu de du ya na fɔ tek wan rili smɔl pat pan di mɔsul we afɛkt ɔnda anestezi ɛn chɛk am ɔnda maykroskɔp. afta dat yu kin si εksakכt if dεn abnכmal protin kכlכmp dεm (inklushכn bכdi dεm) we wi bin dכn tכk bכt de insay dεn sεl dεm de. | |
Wetin na di tritmɛnt dɛm fɔ dis?
Dis na di say we wi nid fɔ ɔnɛs. No mɛrɛsin nɔ de fɔ IBM yet. Kɔtikosterɔyd ɔ immunosuppressant drɔgs we dɛn kin yuz fɔ ɔda inflammatory kɔndishɔn nɔ kin wok fayn fɔ dis sik.
Bɔt dat nɔ min se natin nɔ de we wi go ebul fɔ du. Bɔrku tin de wae wi kin du fɔ kɔntrol dis sik ɛn mek layf izi as wi ebul.
- Fizik Tɛrapi: Dis na impɔtant tin. Di rayt ɛgzampul ɛn tɛknik dɛn go ɛp yu fɔ mek yu mɔsul dɛn kɔntinyu fɔ gɛt trɛnk fɔ lɔng tɛm.
- Occupational Therapy: We yu sik de mek i nɔ izi fɔ du di wok dɛn we yu de du ɛvride, lɛk fɔ drɛs ɔ it, dɛn go tich yu ɔda we dɛn ɛn tin dɛn we go mek dɛn wok dɛn de izi.
- Speech-Language Pathology: If i nɔ izi fɔ yu fɔ swɛla, pɔsin we de mɛn yu we de tɔk kin advays yu bɔt aw fɔ it fayn fayn wan.
As tɛm de go, sɔm pipul dɛn kin nid sɔntin we go ɛp dɛn, lɛk wilchia.
Wetin a go du fɔ liv fayn wit dis sik?
IBM na wan sik we de go bifo. So, yu gɛt bɔku tɛm fɔ ajɔst to di chenj dɛn we gɛt fɔ apin. I bɛtɛ fɔ mek yu plan fɔ lɔng tɛm fɔ mek yu gɛt wɛlbɔdi na yu bɔdi ɛn yu maynd.
Na sɔm tin dɛn we yu kin du:
- Kɔntinyu fɔ du ɛksɛsayz program: Ilɛksɛf na wit pɔsin we de mɛn yu bɔdi ɔ yu de du ɛksɛsayz na os, if yu kɔntinyu fɔ du am as yu abit, dat go ɛp fɔ mek yu mɔsul dɛn kɔntinyu fɔ gɛt trɛnk.
- Yu fɔ liv fayn layf: It fayn it, slip fayn, nɔ strɛs, ɛn kɔntinyu fɔ gɛt gud padi biznɛs wit di wan dɛn we yu lɛk. Ɔl dɛn tin ya go gi yu trɛnk.
- Join Sɔpɔt Grup dɛm: Tɔk to pipul dɛm wae dɔn gɛt di sem kayn ɛkspiriɛns lɛk aw yu kin gi yu big saykilɔjik rilif ɛn prɛktikal advays.
- Mek chenj na os ɛn na wokples: Plɛnti gadget ɛn we dɛn de na di wɔl we go mek yu wok dɛn we yu de du ɛvride izi. Ɛksplɔrɔ dɛn.
- Si yu dɔktɔ ɔltɛm: Kɔntakt yu dɔktɔ ɔltɛm. If yu gɛt ɛni nyu sayn, lɛk fɔ at fɔ swɛla, mek dɛn no wantɛm wantɛm.
- Yu fɔ no bɔt klinik trial: Risach pipul dɛn de tɛst nyu tritmɛnt fɔ IBM ɔltɛm. Yu kin gɛt di chans fɔ tek pat pan wan pan dɛn tray ya.
Inklushɔn Bɔdi Mayosaytis na sik we kin apin wantɛm wantɛm na di sɛkɔn pat pan layf, we nɔ gɛt ɛni kɔz we i kam pan. I nɔto sɔntin we ɛnibɔdi de op fɔ. Bɔt bikɔs na rili lɔng waka, yu gɛt bɔku tɛm fɔ plan fɔ di chenj dɛn we gɛt fɔ apin. If yu tink gud wan ɛn tray fɔ mek yu gɛt wɛlbɔdi, yu go ebul fɔ liv gladi at fɔ bɔku ia.
Mɛsej we dɛn kin kɛr go na os
- Inklushɔn Bɔdi Mayosaytis (IBM) na sik we de mek di mɔsul dɛn wik smɔl smɔl as wi de ol. I nɔ de mek pɔsin in layf de pan denja.
- Pan ɔl we no patikyula mɛrɛsin nɔ de fɔ dis, i rili impɔtant fɔ mek di mɔsul dɛn kɔntinyu fɔ gɛt trɛnk tru fizik tritmɛnt ɛn ɛksesaiz.
- We yu de liv wit dis sik, yu kin ebul fɔ liv yu layf fayn fayn wan bay wae yu lan nyu we fɔ du ɛvride woke ɛn yuse tin dɛm wae de ɛp yu fɔ mek i izi.
- If yu gɛt ɛni nyu sayn, lɛk we i nɔ izi fɔ swɛla, tɛl yu dɔktɔ wantɛm wantɛm.
- If yu gɛt fayn abit ɛn de manej yu fayn fayn wan, yu kin liv fayn wit dis sik.
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