Yu dɔn ɛva si, ɔ ɛkspiriɛns, wan say na yu fes we swel wantɛm wantɛm, lip we swel, wan say na yu fes de swɛla, ɔ ivin strenj krak na yu tɔŋ? Sɔntɛm dɛn tin ya nɔto jɔs ɛni ɔdinari tin we kin apin. Dɛn kin bi sayn fɔ wan sik wae nɔr kin bɔrku wae wi de kam tɔk bɔt.
Wetin na di sik we dɛn kɔl Melkersson-Rosenthal Syndrome?
Okay, so lɛ wi tek wan luk pan wetin na Melkersson-Rosenthal Syndrome, ɔ MRS fɔ shɔt. Fɔ tɔk am simpul wan, na wan kayn nyurolɔjik kɔndishɔn we nɔ kin apin so ɔltɛm. Dat min se, i kin mɔs afɛkt di nervɔs sistɛm na wi fes. Di men sayn dɛm fɔ dis sik na we yu fes de swel, strenj krak krak na di tɔŋ (lɛk dip grov dɛm), ɛn fes paralayz, we na we yu nɔ de wok fayn na wan ɔ ɔl tu di say dɛm na di fes. Imajin, wantɛm wantɛm, dɛn pul di kɔna na di mɔt dɔŋ ɛn yu nɔ ebul fɔ lɔk yu yay fayn.
dis `MRS` kכndyushכn kin bi sayn fכ wan fכs kכndyushכn sכmtεm, lεk Crohn in sik (wan krεse inflammatory kכndishכn na di intestines) כ sarcoidosis (wan sik we de mek sכm sכm swεla swεla na difrεn pat dεm na di bכdi). Sɔntɛnde, dɔktɔ dɛn kin kɔl dis sik ``Orofacial Granulomatosis`` . Na wan sik we de mek smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl.
Udat kin divɛlɔp dis `MRS` kɔndishɔn? Aw i kɔmɔn?
Naw yu kin de tink se, "Udat go ebul fɔ gɛt dis?" fכ tru, dis kכndyushכn we dεn kכl `MRS` kin divεlכp pan εni ej. Bɔt i kin mɔs bi pan yɔŋ pipul dɛm, bɔrku tɛm wae dɛn kin dɔn pas 20 ia, wae de sik kin bigin fɔ sho.
Bɔt we i kam pan aw i kɔmɔn, MRS na wan sik we nɔ kin apin so ɔltɛm . Dɛn se i kin afɛkt wan rili smɔl pasɛnt pan di pipul dɛn, we na lɛk 0.08%. Bɔt sayɛnsman dɛn biliv se bikɔs di sayn dɛn we pɔsin kin gɛt kin tan lɛk ɔda sik dɛn, i kin bi se bɔku ɔda pipul dɛn de we dɛn nɔ no se i gɛt dis sik. Dis min se kin gɛt bɔrku pipul dɛm wae de sɔfa wit dis sik pas dis nɔmba. So if yu gɛt sɔm kayn sik lɛk dis, nɔr giv ɔp fɔ tink se, "Dis kin apin to smɔl pipul dɛm, no we nɔr de fɔ mek a gɛt am." Di tin we impɔtant pas ɔl na fɔ go to dɔktɔ.
Wetin na di tin dɛm we de mek `MRS`?
Okay, naw lɛ wi si wetin de mek dis `MRS` kɔndishɔn. Fɔ tɔk tru, sayɛnsman dɛn stil nɔ ebul fɔ fɛn di rayt rizin . Bɔt sɔm tin dɛn de we dɛn kin tink se kin mek pɔsin gɛt dis sik:
- Crohn’s disease: As a bin dɔn tɔk, dis na wan sik we de mek di intestin dɛn kin wam ɔltɛm. Dɛn dɔn si se pipul dɛm wae gɛt dis sik kin gɛt mɔr risk fɔ gɛt MRS.
- Jɛnɛtik inhɛritɛshɔn: Dis min se i kin pas frɔm jɛnɛreshɔn to jɛnɛreshɔn. If pɔsin na di famili dɔn gɛt dis sik, dat kin bi rizin bak. Bɔt dɛn nɔ pruv dis yet.
- Hypersensitivity reaction: Dis na we wi bɔdi in imyun sistɛm de ɔva riak to sɔntin (we wi kɔl ‘antigen’ ɔ ‘allergen’ - we min se i kin bi sɔntin we de mek alɛji). I tan lɛk alɛji, bɔt i kɔmpleks smɔl.
- Sarkoidosis: Dis na sik bak we kin mek smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl. Dɛn kin tink bak se dis sik gɛt fɔ du wit MRS.
- Vayrɔs ɔ baktri infɛkshɔn: Sɔm pipul dɛn de tink se dis sik kin apin sɔm tɛm afta infɛkshɔn we vayrɔs ɔ baktri dɔn mek.
`MRS` na `(Otoimyun sik)`?
Naw sɔm pipul kin de wɔnda, "Dis na `(Autoimmune disease)'?" Dat min se na sik we wi bɔdi in yon imyun sistɛm de atak wi yon wɛlbɔdi sɛl dɛn? fכ tru, dεn nכ de kכnsidr `MRS` as `(Autoimmune disease)'.
Dɛn kin kɔl dis sik we dɛn kɔl nyurolɔjik disɔda . Dat min se na prɔblɛm wit di bren ɔ di nervɔs sistɛm. Dɛn kin kɔl am bak granulomatous disorder . Dat min se na krεse, swεla, lumpy kכndishכn (granuloma) we de fכm insay di bכdi in tisu dεm. Dɔn gɛt am? So i nɔ de fɔdɔm dairekt insay di kategori fɔ "ɔtoimyun."
Wetin na di sayn dɛm fɔ `MRS`?
Okay, so lɛ wi luk naw di simptom dɛm fɔ dis `MRS` kɔndishɔn, ɔ di `(Orofacial Granulomatosis)` kɔndishɔn we a bin dɔn tɔk bɔt. Tri men sayn dεm de wae dεn kin si pan dis. Dɛn kɔl dɛn tin ya di `klasik triad ɔf simptom dɛm' .
1. Facial palsy: Dis na sik wae de wik ɔr de swɛt na wan say na di fes, sɔmtɛm na ɔl tu di say dɛm. dis kin nכ de insay di fכs stej dεm, bכt i kin apin leta. As di sik de go bifo, di tɛm we dis paralayz de tek kin go ɔp. Imajin, wantɛm wantɛm yu nɔ ebul fɔ muv wan say na yu mɔt, i nɔ izi fɔ yu fɔ lɔk yu yay, ɔ yu gɛt wan kɔna na yu mɔt we de drib kɔmɔt we yu de drink wata.
2. Facial swelling: Pipul wae gɛt MRS kin gɛt fes swel (Orofacial edema). Lip swel (Cheilitis granulomatosis) na tin we kin apin mɔ. Bɔku tɛm di ɔp lip kin swel bifo di ɔda lip we de dɔŋ. Di lip dɛn kin dray, krak krak, sɔri, ɛn i kin ivin bi rɛd-brawn. Na sɔm pipul dɛn, di lip kin at lɛk rɔk. Nɔto di lip nɔmɔ, bɔt di chɛst, di yaylid, ɛn sɔntɛnde ivin di skel kin swel. Dis swɛlin kin kam tranga ɛn i kin te we di sik de kam bak.
3. Tɔng we gɛt fɔl: .Dis kin mek dip krak krak dɛn we tan lɛk grov kin fɔm na di tap pat pan di tɔŋ. Dɔktɔ dɛn kin kɔl dis bak ``Skrotal tong'' ɔ ``Lingua plicata''. Dis nɔ kin at, bɔt sɔm pipul dɛn kin gɛt swel, it, ɛn bɔn na dɛn tɔŋ. I kin mek bak yu nɔ de te ɛn mek yu gɛt infɛkshɔn na yu mɔt.
Di impɔtant tin na dat nɔto ɔlman gɛt ɔl dɛn tri tin ya. Sɔm pipul dɛn kin gɛt wan ɔ tu pan dɛn tri kwaliti ya nɔmɔ. Ɔda wan dɛn kin gɛt ɔl tri.
Dɛn sayn ya nɔ kin de ɔltɛm. Dɛn kin kam ɛn go. Di fɔs tɛm, dɛn kin jɔs las fɔ sɔm awa. Bɔt we dɛn kam bak leta, dɛn kin tranga mɔ ɛn dɛn kin las fɔ lɔng tɛm.
Ɔda sayn dɛn we de sho se yu gɛt dis sik
Apat frɔm dɛn men sayn ya, sɔm ɔda sayn dɛn kin de:
- Diziz we pɔsin kin gɛt
- Maygren ed we de at
- Ring na yu yes (tinnitus) ɔ yu nɔ de yɛri fayn
- Afta di sik dɔn bad ɛn dɔn wɛl, sɔntɛnde skata kin kɔmɔt na di fes .
- I nɔ izi fɔ swɛla
- Prɔblɛm fɔ si: Di yay dray, yu nɔ de si fayn, ɛn yu yay de inflamɛns (uveitis).
Aw dɛn kin no se pɔsin gɛt MRS?
Naw yu kin de wɔnda, "Aw a go no fɔ tru se dis na `MRS`?" Akchuali, `MRS` na smɔl tin we at fɔ no. Bikɔs dɛn kin kɔnfyus in sayn dɛm wit ɔda sik dɛm. fכ egzampl, in simptom dεm kin lεk `Allergic reactions` כ `Bell's palsy`, כda kכndyushכn we kin mek yu fes paralayz.
Dɔktɔ kin no MRS bay we i luk yu histri if yu gɛt at le tu pan di tri klas simptom dɛm we a bin dɔn tɔk bɔt. Sɔntɛnde, fɔ kɔnfɔm di diagnosis ɛn ruul ɔut ɔda kɔndishɔn, dɛn kin tek smɔl pat pan yu lip fɔ tɛst (bayopsi). Dis go luk fɔ di prɛzɛns fɔ granulomas.
Dɔn bak, di dɔktɔ kin rifer yu to sɔm ɔda spɛshal pipul dɛn, bikɔs dis kin afɛkt bɔku bɔku sistɛm dɛn. Dɛn tin ya na:
- Wan dɔktɔ we de mɛn pipul dɛn we gɛt alɛji
- Dɔktɔ we de mɛn pipul dɛn we gɛt skin
- Gastroenterologist - Luk tin dɛm lɛk Crohn in sik.
- Imyunɔlɔjis
- Wan dɔktɔ we de mɛn pipul dɛn we gɛt yay
Yu tink se mɛrɛsin de fɔ `MRS`? Wetin na di tritmɛnt dɛn?
Okay, di big kweshon we plenti pipul get rait nau na, "E get komplit cure fo dis `MRS` kondishon?" I sɔri fɔ no se, no difinitiv mɛrɛsin nɔ de fɔ `MRS` yet.
Sɔmtɛm de sik kin go wae yu nɔr gɛt ɛni tritmɛnt, bɔt dɛn kin kam bak.
So, aw yu de trit am? If di sayn dɛn de kam bak ɛn i de mɔna yu, sɔm tritmɛnt dɛn de we go ɛp fɔ mek yu nɔ fil pen, fɔ mek yu nɔ gɛt di sik, ɛn fɔ mek yu luk fayn. Dɛn na:
- Antibayɔtik: If baktri infekshɔn de.
- Antihistamines: I de ridyus di simptom dɛm we tan lɛk alɛji ɛn swel.
- Kɔtikosterɔyd: Dɛn wan ya na pawaful mɛrɛsin dɛn we de ridyus di inflamɛns ɛn swel. Dɛn kin gi dɛn as injɛkshɔn dairekt na di say we di inflamɛns, ɔ as pils.
- Immunosuppressants: Dɛn wan ya de ɛp fɔ ridyus di inflamɛns bay we dɛn de kɔntrol di wok we di imyun sistɛm de du smɔl.
- Methotrexate: Dis na drɔg bak we de kɔntrol di imyuniti ɛn ridyus inflamɛns.
- Nɔnsterɔyd anti-inflammatory drɔgs (NSAID): Ridyus pen ɛn swel (e.g., Ibuprofen, Diclofenac).
- Ɔpreshɔn: Sɔntɛnde, dɛn kin du ɔpreshɔn fɔ ridyus di swɛlin na di lip dɛn we dɔn swel bad bad wan ɔ fɔ mek di prɛshɔn we de pan di fes nerv dɛn nɔ bɔku. Bɔt, dɛn nɔ kin du dis.
- TNF-alpha inhibitors: Dis na spɛshal kayn mɛrɛsin bak we de ɛp fɔ stɔp inflamɛns. Dɛn kin gi dɛn if ɔda tritmɛnt nɔr woke.
Dɛn mek dɛn tritmɛnt ya fɔ kɔntrol di sayn dɛm ɛn fɔ mek i nɔ fil fayn. Yu dɔktɔ go disayd di tritmɛnt we go fayn fɔ yu.
Yu tink se dɛn kin ebul fɔ stɔp di `MRS` kɔndishɔn?
Yu tink se dɛn kin ebul fɔ stɔp dis `MRS` kɔndishɔn? Infakt, bikɔs sayɛnsman dɛn stil nɔ ɔndastand gud gud wan wetin de mek dis apin, no we stil de we dɛn dɔn pruv fɔ mek dɛn nɔ du dis. So, wi nid fɔ pe atɛnshɔn fɔ no di sayn dɛn kwik kwik wan ɛn fɔ fɛn di rayt tritmɛnt.
Aw `MRS` go bi? Yu tink se i go wɛl?
Wetin go apin to pɔsin we gɛt MRS tumara bambay? Dis kin rili difrɛn frɔm wan pɔsin to ɔda pɔsin. Sɔm pipul dɛn kin gɛt sɔm kayn sik wae nɔr kin pasmak, lɛk wan tɛm ɛvri sɔm ia, ɛn dɛn kin go fɔ dɛnsɛf. Fɔ ɔda pipul dɛm, de sik kin apun bɔrku bɔrku, lɛk ɛvri sɔm dez, ɛn kin wɔs ɛvri tɛm.
Dis sik kin de fɔ ɔl yu layf, ɛn de swel kin de fɔ ɔltɛm. Bɔt sayɛnsman dɛn nɔ tink se dis sik de afɛkt di layf we pɔsin de liv. Dat min se yu kin liv nɔrmal layf wit am, bɔt yu fɔ liv wit de sik. So, fɔ kɔntinyu fɔ gɛt strɔng maynd bak rili impɔtant.
Kwɛstyɔn dɛn we yu fɔ aks yu dɔktɔ
If yu gɛt Melkersson-Rosenthal Syndrome, ɔ yu tink se yu gɛt am, i go fayn fɔ aks yu dɔktɔ dɛn kwɛstyɔn ya:
- Aw yu go se fɔ tru se dis na Melkersson-Rosenthal Syndrome? Yu nɔ tink se i go bi ɔda tin?
- Us ɔda spɛshal pipul dɛn a fɔ si? (e.g., dɔktɔ we de mɛn di bɔdi, dɔktɔ we de mɛn nyuro, ɛn ɔda tin dɛn)
- If di sik kam bak, ustɛm a fɔ go to dɔktɔ? Us sayn dɛn we a fɔ wɔri bɔt mɔ?
- Yu tink se dɛn fɔ tɛst mi fɔ si if a gɛt Crohn’s disease ɔ sarcoidosis?
- Wetin a fɔ du fɔ mek a nɔ gɛt di sik, fɔ mek a nɔ swel sote go, ɛn fɔ mek a nɔ gɛt skata?
- Yu kin se yu fɔ tɛst yu jɛnɛtiks? Wetin i go tɛl yu?
- Yu no ɛni sɔpɔt grup wae de ɛp pipul dɛm wae gɛt dis sik? Yu tink se ɛni bɛnifit go de we a jɔyn dɛn?
So, wetin na di impɔtant tin dɛn we wi fɔ kɛr go na os frɔm dis stori?
Melkersson-Rosenthal Syndrome (MRS) na wan sik we nɔ kin apin so ɔltɛm we kin afɛkt di fes nerv dɛm. If yu fes swel wantɛm wantɛm, yu fes paralayz, ɔ strenj krak krak na yu tɔŋ, yu fɔ rili go to dɔktɔ.
Pan ɔl we no patikyula mɛrɛsin nɔ de fɔ dis, fayn tritmɛnt dɛn de fɔ kɔntrol di sik dɛn, fɔ ridyus di prɔblɛm dɛn we pɔsin kin gɛt, ɛn fɔ mek i nɔ gɛt prɔblɛm dɛn. So nɔ wɔri. If yu no kwik kwik wan ɛn trit yu fayn fayn wan, yu kin liv fayn wit dis sik. Nɔto yu wan de, ɛn yu dɔktɔ dɛn ɛn di wan dɛn we yu lɛk kin ɛp yu.
` Melkersson-Rosenthal syndrome, MRS, fes swel, fes paralayz, cleft tong, nyuropathy, orofacial granulomatosis
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