Wetin yu nid fɔ no bɔt Migalastat tablɛt (fɔ Fabry Disease) .

Yu dɔktɔ dɔn tɛl yu ɔ pɔsin we yu sabi fɔ tek mɛrɛsin we dɛn kɔl Migalastat ? Dis nɔto wan mɛrɛsin we kɔmɔn pasmak na wi kɔntri. So yu kin gɛt bɔku kwɛstyɔn bɔt dis mɛrɛsin. Na nɔmal tin fɔ tink tin lɛk "Wetin go apin wit dis?", "Aw a fɔ tek am?", "Ɛni anɔyntin sayd ɛfɛkt go de ?" Nɔ wɔri, lɛ wi tɔk bɔt ɔl dis simpul ɛn klia wan.

Fɔ tɔk am simpul wan, wetin na Migalastat?

Migalastat na spɛshal mɛrɛsin wae dɛn kin gi pipul dɛm wae gɛt Fabry Disease. Naw yu kin de wɔnda, "Wetin na Fabry Disease?"

Tink bɔt wi bɔdi lɛk big faktri. Insay dis faktri, bɔku smɔl wokman dɛn de we de ɛp ɔltin fɔ wok fayn. Wi kin kɔl dɛn ɛnzaym dɛn . Insay pɔsin we gɛt Fabry sik in bɔdi, wan patikyula ɛnzaym nɔ de mek kɔrɛkt wan , ɔ i nɔ de wok fayn. di men wok we dis εnzym de du na fכ brok dכn wan kayn fεt sכbstans (lipid) insay wi sεl dεm.

Naw, wetin kin apin we dis ɛnzaym nɔ de wok? Dɛn fat tin dɛn de kin bigin fɔ gɛda smɔl smɔl na impɔtant pat dɛn lɛk di yay, di kidni , ɛn di at . I tan lɛk dɔti we de stɔp na paip. As tɛm de go, dis kin mek wi gɛt difrɛn wɛlbɔdi prɔblɛm dɛn.

Na dis Migalastat pils de du: Dɛn de ɛp da ɛnzaym de we nɔ de wok fayn. I tan lɛk se yu gi smɔl bɔst to wokman we taya ɛn tɛl am se, "Okay, naw du yu wok fayn fayn wan." Di drɔg de tɔn da ɛnzaym de bak ɛn bigin fɔ brok di fat we dɛn dɔn kip. Dis kin mek di sik nɔ bɔku ɛn i nɔ kin gɛt siriɔs wɛlbɔdi prɔblɛm.

Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin

Bifo yu bigin fɔ yuz Migalastat, i rili impɔtant fɔ tɔk to yu dɔktɔ opin wan. Di mɔ dɛn no bɔt yu wɛlbɔdi, na di mɔ dɛn go ebul fɔ trit yu sef. Mek shɔ se yu tɛl dɛn bɔt dɛn tin ya mɔ.

• Kidni sik : If yu gɛt ɛni sik we gɛt fɔ du wit kidni, duya tɛl wi bɔt am.
• Alɛji : Yu gɛt alɛji to Migalastat ɔ ɛni ɔda mɛrɛsin, it, ɔ day.) If i de, fɔ tru fɔ se na so i bi.
• Bɛlɛ : If yu gɛt bɛlɛ ɔ yu de plan fɔ gɛt bɛlɛ, duya tɛl wi bɔt am.
• If yu na mama we de gi pikin in bɛlɛ: Tɛl di dɔktɔ bak if yu na mama we de gi pikin in bɛlɛ.

Wetin na di bɛst we fɔ yuz di mɛrɛsin?

Fɔ mek yu gɛt di bɛst pan dis mɛrɛsin, i rili impɔtant fɔ yuz am kɔrɛkt wan. Duya mɛmba dɛn instrɔkshɔn ya gud gud wan.

• Drink wit wata: Swɛla dis tablɛt ɔl wit wan glas wata.
• Nɔ brok, krɔs, ɔ chew: Yu fɔ swɛla di tablɛt ɔl. Nɔ ɛva brok am, krɔs am, ɔ chew am bifo yu tek am.
• Tek ɛmti bɛlɛ: Dis na di tin we impɔtant pas ɔl. Yu fɔ tek dis mɛrɛsin wit ɛmti bɛlɛ. Dat min se yu fɔ tek di mɛrɛsin 2 awa bifo ɔ 2 awa afta yu it.
• Wan simpul ɛgzampul: Imajin se yu de tek yu mɛrɛsin na 8 oklɔk mɔnin. Dɔn yu fɔ jɔs it te 6 oklɔk mɔnin. Afta yu tek yu mɛrɛsin, yu kin it bak afta 10 oklɔk mɔnin. Dat min se yu bɛlɛ fɔ ɛmti fɔ at le 4 awa bitwin we yu tek yu mɛrɛsin.
• Wetin yu kin drink: I nɔ bad fɔ drink wata (plɛn, flawa, ɔ swit), frut jus we yu nɔ ad shuga, ɛn drink we nɔ gɛt kafin we gɛt kabon insay dis tɛm.
• Nɔ stɔp te yu dɔktɔ tɛl yu fɔ: Kɔntinyu fɔ yuz dis mɛrɛsin te yu dɔktɔ tɛl yu fɔ stɔp.

Wetin yu go du if yu gi am to pikin dɛn?

Dis mɛrɛsin kin nid spɛshal kia we dɛn gi am to pikin dɛn. So, tɔk to yu dɔktɔ bɔt am ɛn fala wetin i tɛl yu fɔ du.

Wetin a go du if a tek bɔku mɛrɛsin?

If yu tink se yu dɔn tek mɔ mɛrɛsin pas aw yu tink, go na di ɔspitul Imejɛnsi Dipatmɛnt (ETU) we de nia yu wantɛm wantɛm. Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.

Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?

Sɔntɛnde, yu kin fɔgɛt fɔ tek yu mɛrɛsin. If dat apin, nɔ wɔri.

• Mek di tɛm we yu mis jɔs lɛk aw yu mɛmba.
• Bɔt if i tu let fɔ tek di doz we yu mis ɛn i nɔ rich 12 awa te di nɛks doz, skip di doz we yu mis.
• Tek yu nɛks doz di tɛm we yu kin tek am. Nɔ ɛva tek tu doz wan tɛm fɔ mek di doz we yu mis.

Ɛnitin de we nɔ gri wit dis mɛrɛsin?

Na smɔl tin dɛn de we kin intarakt wit Migalastat, bɔt wan men wan de.

• Kafin: Kafin, we de insay kɔfi, ti, ɛn sɔm sɔft drink dɛn, kin mek dis mɛrɛsin nɔ wok fayn. I bεst fɔ avɔyd ɛnitin we gɛt kafin fɔ di 4 awa we yu nid fɔ de pan ɛmti bɛlɛ.

Sɔntɛm dis list nɔ go kɔmplit. So, tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn, ɔyl dɛn, vaytamɛn dɛn, ɛn sɔpɔtmɛnt dɛn we yu de tek. Tɛl yu dɔktɔ bak if yu de smok ɔ drink rɔm.

Sayd ɛfɛkt dɛn we kin apin bikɔs ɔf mɛrɛsin

Lɛk ɛni mɛrɛsin, Migalastat kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Bɔt, nɔto ɔlman kin gɛt dɛn. Lɛ wi tek wan luk pan wetin na dɛn sayd ɛfɛkt ya ɛn wetin fɔ du if dɛn apin.

Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. Apat frɔm dat, if yu gɛt ɛnitin we nɔ kɔmɔn, tɔk to yu dɔktɔ bɔt dat.

Aw yu kin kip yu mɛrɛsin sef?

Fɔ mek di mɛrɛsin kɔntinyu fɔ gɛt di kwaliti, dɛn fɔ kip am di rayt we.

• Kip fa frɔm pikin ɛn animal dɛn we yu de mɛn.
• Stɔr am na rum tɛmpracha (bitwin 20 ɛn 25 digri sɛlshiɔs). Protɛkt frɔm ɔt ɔ kol pasmak.
• Kip di mɛrɛsin insay in pak te i rich di tɛm fɔ tek am. Protɛkt am frɔm wet.
• Nɔ yuz mɛrɛsin we dɔn pas.

Aw a go trowe di mɛrɛsin we a nɔ yuz ɔ we dɔn pas?

I nɔ fayn fɔ jɔs trowe di mɛrɛsin dɛn we dɔn pas na di dɔti ɔ flush dɛn dɔŋ di tɔylɛt. Dɛn kin ambɔg di envayrɔmɛnt. Aks yu dɔktɔ ɔ ɔspitul bɔt dis. Sɔntɛnde, ɔspitul dɛn kin gɛt program fɔ tek dɛn tin ya bak.

If no kayn we nɔ de ɛn di dɔktɔ se i nɔ bad fɔ trowe am na di dɔti, na wetin fɔ du:

1. Tek di mɛrɛsin kɔmɔt na di paket.

2. Miks dɛn fayn wit sɔntin lɛk kɔfi grɔn we dɛn dɔn yuz, dɔti, ɔ pusi dɔti.

3. Put dis miksɔp insay bag ɔ kɔntena we yu kin sial, dɔn trowe am na di dɔti.