Yu ɔ pɔsin we yu sabi dɔn tɛl yu se dɛn gɛt Fabry Disease? Dis na wan sik we nɔ kin apin so ɔltɛm, we pɔsin kin gɛt we i kam pan in jɛnɛtiks. Wan patikyula mɛrɛsin wae dɛn kin yuse fɔ mɛn di sayn dɛm fɔ dis sik na in dɛn kɔl Migalastat. So tide, lɛ wi tɔk bɔt dis mɛrɛsin, di kɔrɛkt we fɔ yuz am, di tin dɛn we fɔ tek tɛm wit, ɛn ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt, insay wan simpul we, lɛk gud padi.
Us kayn mɛrɛsin na Migalastat?
Fɔ tɔk am simpul wan, Migalastat na wan mɛrɛsin we dɛn kin yuz fɔ mɛn Fabry Disease. I de bak na di makit ɔnda di nem Galafold. Na ya yu nid fɔ mɛmba wan pɔynt we rili impɔtant.
Dis nɔto mɛrɛsin fɔ Fabry sik. Bɔt dis mɛrɛsin kin ɛp fɔ kɔntrol di damej we di sik kin mek ɛn kɔntrol di sayn dɛm, we kin mek yu liv fayn ɛn nɔrmal layf.
Dɛn kin yuz dis mɛrɛsin bak fɔ ɔda tin dɛn pas Fabry sik. If yu gɛt ɛni kwɛstyɔn bɔt dis, i go fayn fɔ mek yu tɔk to yu dɔktɔ.
Tin dɛm fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Bifo yu gi yu Migalastat, i impɔtant fɔ mek yu dɔktɔ no gud gud wan bɔt yu wɛlbɔdi kɔndishɔn. So, if ɛni wan pan dɛn tin ya apin to yu, mek shɔ se yu tɛl yu dɔktɔ bɔt am.
- If yu gɛt sik na yu kidni: If yu gɛt ɛni sik we gɛt fɔ du wit yu kidni, i rili impɔtant fɔ mek yu no bɔt am.
- If yu gɛt alɛji to ɛnitin: Tɛl wi if yu gɛt alɛji, nɔto jɔs to Migalastat, bɔt to ɛni ɔda mɛrɛsin, it, it kɔlɔ, ɔ tin we de mek yu nɔ pwɛl.
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ: I impɔtant fɔ tɛl yu dɔktɔ bɔt dis, bikɔs yu fɔ tek tɛm mɔ we yu de yuz ɛni mɛrɛsin insay dɛn tɛm ya.
- If yu na mama we de gi pikin in mama in bɛlɛ: Tɔk bɔt dis wit yu dɔktɔ bikɔs di mɛrɛsin dɛn kin afɛkt yu pikin tru in mama in milk.
Aw dɛn fɔ yuz di mɛrɛsin kɔrɛkt wan?
Fɔ gɛt di maksimam rizɔlt frɔm wan mɛrɛsin, i rili impɔtant fɔ yuz am kɔrɛkt wan lɛk aw dɛn tɛl yu fɔ du am.
- Aw fɔ tek am: Tek dis mɛrɛsin wit yu mɔt wit wan glas wata.
- Fɔ fala di advays we di dɔktɔ gi yu: Fɔ fala di instrɔkshɔn dɛn we yu dɔktɔ gi yu ɔ na di mɛrɛsin paket jɔs lɛk aw dɛn tɛl yu.
- Ɛmpti Bɛlɛ: Dis na pɔynt we rili impɔtant . Dɛn fɔ tek dis mɛrɛsin wit ɛmti bɛlɛ.Na ɛmti bɛlɛ. Fɔ tɔk di kɔrɛkt tin, yu nɔ fɔ it bak fɔ tu awa afta yu dɔn it ɔ fɔ tu awa afta yu dɔn tek di mɛrɛsin. Nɔ prɔblɛm nɔ de fɔ drink klia wata lɛk wata insay dis tɛm. Nɔ ɛva tek dis mɛrɛsin wit it.
- Nɔ brok ɔ krɔs di tablɛt: Nɔ kɔt, krɔs, ɔ chew dis mɛrɛsin kapsul. Swɛla am ɔl.
- Tek di mɛrɛsin di rayt tɛm: Tek di mɛrɛsin di tɛm we dɛn tɛl yu fɔ tek am. Nɔ tek mɔ pas wetin di dɔktɔ tɛl yu.
- Nɔ stɔp fɔ tek di mɛrɛsin we yu nɔ gi yu dɔktɔ advays: Nɔ stɔp fɔ tek di mɛrɛsin if yu dɔktɔ nɔ advays yu.
We yu de gi pikin dɛn
Dɛn fɔ tek tɛm spɛshal we dɛn de gi dis mɛrɛsin to yɔŋ pikin dɛn. So, tɔk to yu dɔktɔ we de mɛn pikin dɛn bɔt am ɛn fala in advays.
Ovadosage
If yu tink se yu dɔn tek di mɛrɛsin tumɔs, nɔ panik ɛn kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm . Ɔda we de fɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu kwik kwik wan.
Wetin a fɔ du if a mis wan doz fɔ mɛrɛsin?
I rili impɔtant fɔ tek dis mɛrɛsin lɛk aw dɛn tɛl yu fɔ tek am, ɛn yu nɔ fɔ skip ɛni doz. Bɔt if yu mis wan doz, nɔ panik. Kɔnsul yu dɔktɔ fɔ advays yu bɔt wetin fɔ du nɛks. Nɔ tek ɛni gɛs wok.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Jɔs lɛk ɛni mɛrɛsin, sɔm pipul dɛn kin gɛt sayd ɛfɛkt we dɛn de tek Migalastat. Pan ɔl we bɔku pan dɛn tin ya nɔ kin siriɔs, sɔm tɛm dɛn de we yu fɔ tek tɛm mɔ.
| Tayp fɔ di sayd ɛfɛkt | Karakta |
|---|---|
| Sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji Riakshɔn dɛn | Di sayn dɛm lɛk wae yu skin de irita, yu de it ɔ yu de rɔsh, yu fes, yu lip ɔ yu tɔng de swel. |
| Sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu ɔ de mɔna am | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Dayarɛa, bɛlɛ pen, nɔs. |
| Ɔda disɔda dɛn we kin apin | Ed de at. |
Impɔtant: Dis list nɔ kin gɛt ɔl di sayd ɛfɛkt dɛn. If yu gɛt ɛni ɔda kayn sik we nɔr kɔmɔn we nɔr de ya, kɔl yu dɔktɔ fɔ gɛt advays.
Aw dɛn fɔ kip di mɛrɛsin?
- Kip am fa frɔm pikin dɛn: Stɔr di mɛrɛsin na say we sef usay smɔl pikin dɛn nɔ go ebul fɔ rich .
- Tɛmpratura: Stɔr am na rum tɛmpracha (bitwin 15 ɛn 30 digri sɛlshiɔs).
- Di mɛrɛsin dɛn we dɔn pas: Trowe di mɛrɛsin dɛn we dɔn pas di de we dɛn dɔn fɔ yuz.
Dis atikul na jɔs sɔm pan di mɛrɛsin we dɛn kɔl Migalastat. If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis, duya tɔk bɔt am opin wan wit yu dɔktɔ ɛn sɔlv ɛnitin we de mɔna yu.
Mɛsej we dɛn kin kɛr go na os
- Migalastat na mɛrɛsin we dɛn kin yuz fɔ kɔntrol Fabry Disease, bɔt i nɔto mɛrɛsin.
- Dis mɛrɛsin fɔ tek am ɛmti bɛlɛ (2 awa bifo ɔ 2 awa afta yu it).
- Bifo yu tek di mɛrɛsin, tɛl yu dɔktɔ bɔt yu kidni sik, alɛji, ɛn ɔl ɔda mɛrɛsin dɛn we yu de tek.
- If yu gɛt ɛni alɛji lɛk we yu gɛt rɔsh ɔ swɛlin na yu skin, go to dɔktɔ wantɛm wantɛm.
- Nɔ stɔp di mɛrɛsin ɔ chenj di doz we yu nɔ gɛt yu dɔktɔ in advays.
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt