Yu kin taya ɔltɛm? Yu de fil se yu nɔ de du natin? I kin bi Myalgic Encephalomyelitis/Kronik Fatigue Sindrom (ME/CFS)!

Yu kin fil bak fɔ taya pasmak ɛn taya bɔku pan di de? Sɔntɛnde, yu kin fil se yu wik pasmak fɔ grap na bed? Ivin if yu slip fayn ɛn rɛst ɔl di de, dis taya nɔ de stɔp? Dɔn dis na sɔntin we go impɔtant to yu. Tide wi go tɔk bɔt wan kɔndishɔn we dɛn kɔl `Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), we sɔm pipul dɛn kin kɔl bak jɔs `Chronic Fatigue Syndrome (CFS).`

Wetin na dis `ME/CFS`? Fɔ tɔk am simpul wan...

Fɔ tɔk am simpul wan, ME/CFS na wan sik we yu kin fil taya pasmak ɛn taya, te i kin mek yu nɔ ebul fɔ du yu ɛvride wok, sɔm tɛm dɛn kin ivin grap na bed fɔ du smɔl smɔl wok dɛn. De impɔtant tin na dat dis taya nɔr de go ilɛksɛf yu rɛst ɔr slip. Dɔn bak, dis taya kin wɔs if yu du ivin smɔl smɔl tin, ɔ if yu gɛt strɛs na yu maynd (fɔ ɛgzampul, if yu tink bɔku bɔt sɔntin). Dɛn sayn ya kin te fɔ siks mɔnt ɔr mɔr.

Sɔntɛnde, dɔktɔ dɛn kin gi dis sik ɔda nem dɛn, we na:

• ``Myaljik Ɛnsɛfalomaylaytis (ME)''.
• ``Sistemik Eksayz Intolerans Disiz (SEID)''.

Nɔ wɔri if yu yɛri dis, dis na bɔt di sem tin.

Aw kכmכn dεn kכl dis kכndyushכn `ME/CFS`?

Dis na rili wan sik wae kin pasmak pas aw yu kin tink. Bɔku bɔku pipul dɛn ɔlsay na di wɔl de sɔfa wit dis sik. Bɔt di sɔri tin na dat, bɔku pipul dɛn kin sɔfa wit dis sik, bɔt dɛn nɔ kin no am fayn. Wan rizin na bikɔs pipul dɛn nɔ no bɔt am. Wan ɔda tin na di prɔblɛm we sɔm pipul dɛn kin gɛt fɔ go na di say dɛn we dɛn de mɛn pipul dɛn.

Wetin na di sayn dɛm fɔ `ME/CFS`? Si if yu get dis tu...

Di men sayn fɔ ME/CFS na fɔ taya pasmak, we nɔ de dɔn . Dat min se, taya we kin las fɔ pas siks mɔnt ɛn we nɔ kin lɛf am we i rɛst ɔ slip.

Apat frɔm dat, yu kin si bak sɔm sayn dɛn lɛk:

• Prɔblɛm fɔ slip: Nɔ kin ebul fɔ slip fayn, fɔ wek ivin we yu de wek, ɔ fɔ fil taya ilɛksɛf yu slip bɔku.
• Ɛd we de at: I kin at bɔku tɛm, sɔntɛnde i kin at bad bad wan.
• Jɔyn pen: Pen na di jɔyn dɛn na di bɔdi.
• Mɔsul pen: Mɔsul de at, bɔdi de at.
• I nɔ kin izi fɔ tink: I nɔ kin izi fɔ tink klia wan, i nɔ kin izi fɔ pe atɛnshɔn pan sɔntin, i nɔ kin ebul fɔ mɛmba tin. Sɔm pipul dɛn kin kɔl dis bak "bren fɔg."

Apat frɔm dɛn tin ya, ɔda sayn dɛn kin de:

• Prɔblɛm dɛn we pɔsin kin gɛt we i de si.
• Fɔ fil kol, sɔntɛm yu kin swet na nɛt.
• Di limf no dɛm we dɔn swel.
• Bɛlɛ nɔ kin fil fayn: Na di sayn dɛm we fiba Irritable Bowel Syndrome (IBS), lɛk fɔ blo, fil ful, bɛlɛ kramp, kɔnstipɛshɔn ɔ dayarɛa.
• Pwɛl hat, vɛks, frayd, ɛn wɔri.
• Numbness in di limbs, numbness in di mout.
• Diziz, layt ed, ɛn sɔntɛnde i kin fɔdɔm.

Imajin, wetin yu go du if yu bin gɛt di sem pen ɛn pen we yu kin fil we yu gɛt fiva ɛn afta dat yu kin taya fɔ sɔm mɔnt, sɔntɛm ivin fɔ lɔng tɛm? Na so pɔsin we gɛt ME/CFS kin fil.

De impɔtant tin na dat, dɛn sayn ya kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Sɔm pipul kin gɛt smɔl smɔl, sɔm pipul kin gɛt bɔku mɔ. Dɔn bak, dɛn sayn ya kin smɔl pan sɔm dez ɛn mɔr ɔda de.

Fɔ patikyula notis na wan kɔndishɔn we dɛn kɔl `Post-Exertional Malaise (PEM).` Dis min se if yu du ivin smɔl fyzikal aktiviti (e.g., waka shɔt distans, du smɔl os wok) ɔr yu maynd ɛksɛsayz (e.g., stɔdi fɔ ɛgzam, mek impɔtant disizhɔn), yu simptom dɛm (especially taya) kin rili bad fɔ sɔm awa, ɔ ivin dez, afta dat. Dis na wan impɔtant tin we `ME/CFS` gɛt.

Wetin mek dis `ME/CFS` de divɛlɔp? Wetin na di kɔz?

Dɔktɔ dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt ME/CFS. Bɔt, risach dɔn sho sɔm tin dɛn we kin mek i apin:

• Lɔw blɔd prɛshɔn .
• Strɛs .
• afta yu gεt infεkshכn (e.g. wan vayral infεkshכn).
• Imyun sistεm chenj : Dis na chenj dεm na di sistεm we de protεkt wi bכdi frכm sik εn strεs.
• Di chenj dɛn we de apin na di we aw wi bɔdi de mek ɛn yuz ɛnaji .

Dis na di men tin dɛn we pipul dɛn de tink bɔt naw, bɔt dɛn de du mɔ risach.

Udat de pan ay risk fɔ gɛt ME/CFS?

Pan ɔl we dis sik kin kam pan ɛnibɔdi, sɔm pipul dɛn kin gɛt bɔku prɔblɛm:

• Uman dɛn kin si dis sik pas man dɛn.
• Pan ɔl we i kin kam pan pikin dɛn ɛn yɔŋ pipul dɛn, i kin bɔku pan big pipul dɛn we ol bitwin 40 ɛn 60 ia .
• Dɛn dɔn kam fɔ no se sɔntɛm sɔntin de we gɛt fɔ du wit di jɛnɛtiks . Dis min se if pɔrsin na yu famili gɛt dis sik, yu kin gɛt bɔrku chans bak fɔ gɛt dis sik. Bɔt dɛn nɔ dɔn no di rayt jin dɛn we de afɛkt am yet.

Us ɔda kɔmplikeshɔn dɛn kin apin bikɔs ɔf ME/CFS?

Di taya pasmak wae dis sik kin kam wit kin mek i nɔr kin izi fɔ sɔm pipul dɛm, if nɔr kin izi fɔ du dɛn woke wae dɛn kin du ɛvride. Risach dɔn sho se lɛk af pan pipul dɛm wae gɛt ME/CFS nɔr kin ebul fɔ ol dɛn ful-taym ɔ pat-taym wok.

Imajin, aw layf go tranga if yu nɔ ivin ebul fɔ grap na mɔnin ɛn mek wan kɔp ti, if yu nɔ ebul fɔ kia fɔ yu pikin dɛn, if yu nɔ ebul fɔ go wok?

Dɔn bak, pwɛl hat bikɔs ɔf ME/CFSPwɛl hat kin apin. Na nɔmal tin fɔ mek yu fil bad we yu taya ɔltɛm, yu de fil pen, ɛn yu nɔ ebul fɔ du di tin dɛn we yu want. If yu de fil bad, tɔk to yu dɔktɔ bɔt dat. Gud tritmɛnt dɛn de fɔ am.

Aw dɔktɔ dɛn kin no dis sik we dɛn kɔl `ME/CFS`?

No patikyula tɛst nɔ de fɔ no if pɔsin gɛt ME/CFS. Dɔktɔ go no di sik bay we i go chɛk yu, tek tɛm lisin to yu sayn dɛn, ɛn chɛk yu maynd wɛlbɔdi.

Di dɔktɔ kin du blɔd tɛst ɛn urine tɛst bak fɔ mek shɔ se nɔ ɔda tin nɔ de we kin mek pɔsin gɛt di sem kayn sik.

Bɔku impɔtant tin dɛn de we dɔktɔ dɛn kin luk fɔ we dɛn sɔprayz se yu gɛt ME/CFS (diagnostic criteria). Dɛn na:

• I fɔ taya bad bad wan we dɔn te fɔ at le 6 mɔnt .
• Dis taya nɔ kin stɔp ivin afta yu dɔn rɛst ɔ slip .
• I nɔ kin izi fɔ mek yu slip fayn ɛn rɛst .
• Taya de go ɔp wit yu bɔdi ɔ maynd ɛksɛsayz (dis na di `Post-Exertional Malaise - PEM` we wi bin dɔn tɔk bɔt bifo tɛm).
• Sɔmtɛm, i kin gɛt diskɔmfɔt we yu tinap ɔ sidɔm (`orthostatic intolerance`) ɛn/ɔ prɔblɛm wit aw yu de tink ɛn mɛmba (`cognitive function`).

Na afta yu dɔn tink bɔt ɔl dɛn tin ya, na in dɔktɔ disayd if yu gɛt ME/CFS ɔ yu nɔ gɛt am.

Wetin na di tritmɛnt dɛm fɔ ME/CFS?

Di men gol fɔ trit ME/CFS na fɔ ridyus yu simptom dɛm ɛn ɛp yu fɔ liv as nɔmal as yu ebul. Sɔm pipul dɛn nɔr kin ebul fɔ kam bak to dɛn ful wɛl bɔdi bifo dɛn gɛt dis sik. Bɔt, tritmɛnt kin gi bɔku rilif.

Bɔku men we dɛn de fɔ trit pɔsin:

1. Chenj di abit fɔ slip (`Slip rutin chenj`)

2. Di mɛrɛsin dɛn we dɛn kin yuz

3. Aktiviti manejmɛnt (dɛn kin kɔl am bak ‘pacing’) .

Lɛ wi tɔk bɔt ɛni wan pan dɛn tin ya smɔl mɔ .

1. Fɔ chenj di we aw yu de slip (fɔ yus to gud slip - `Sleep Hygiene`) .

Bifo yu dɔktɔ gi yu mɛrɛsin, dɛn kin advays yu fɔ du sɔm simpul tin dɛn we go ɛp yu fɔ slip fayn, lɛk:

• Go slip na wan set tɛm, wek na wan sɛt tɛm. If yu du dis di sem tɛm ɛvride, dat go ɛp yu bɔdi klok fɔ bigin fɔ wok fayn fayn wan.
• If yu de slip insay di de, nɔ slip fɔ pas 30 minit. If yu slip fɔ lɔng tɛm insay di de, dat kin mek i nɔ izi fɔ lɛ yu slip na nɛt.
• Yuz yu bed ɛn bedrum fɔ slip ɛn du mami ɛn dadi biznɛs nɔmɔ. Nɔ wach TV, yuz yu fon, ɔ wok we yu sidɔm na bed. I fayn fɔ pul ilɛktronik tin dɛn na di bedrum.
• Nɔ it bɔku it bifo yu go slip.Dɔn bak, nɔ drink rɔm ɛn kafin (we de insay ti ɛn kɔfi) bifo yu go slip.

Dis na wetin wi kin kɔl `slip hygiene` ɔ `gud slip habit`.

2. Di mɛrɛsin dɛn we dɛn kin yuz

Dipen pan yu sik, yu dɔktɔ kin tɛl yu fɔ tek dɛn mɛrɛsin ya:

• Fɔ pen: Dɛn kin mɛn pen lɛk `Nɔnsterɔyd anti-inflammatory drugs (NSAIDs)`.
• Fɔ slip, pen, ɛn taya: Sɔm mɛrɛsin wae de mek pɔrsin fil bad, lɛk mɛrɛsin wae de mek pɔrsin fil bad (tricyclics).
• Fɔ diprɛshɔn ɛn pen rilif: Mɛrɛsin lɛk `Sɛlektiv sɛrotonin riuptek inhibito (SSRI)` ɛn `Serotonin-norepinephrine riuptek inhibito (SNRI)`.
• If infekshɔn de: Antivayrɔs.
• impruv di imyun sistεm fכ wok fayn: Intravenous immunoglobulin (IVIG).
• Fɔ taya: `Kɔtikosterɔyd` (dɛn fɔ yuz dɛn wit big kia ɛn na pan dɔktɔ advays nɔmɔ).

Nɔto ɔl dɛn mɛrɛsin ya kin wok fɔ ɔlman. Yu dɔktɔ go disayd us mɛrɛsin go fayn fɔ yu. Dɛn de du risach bak bɔt nyu mɛrɛsin dɛn.

3. Aktiviti manejmɛnt (`Aktiviti manejmɛnt` - 'pacing') .

As wi bin dɔn tɔk, di ME/CFS simptom dɛn kin wɔs we yu de tray tranga wan na yu bɔdi ɔ yu maynd (Post-Exertional Malaise - PEM). As tritmɛnt fɔ dis, dɔktɔ dɛn kin tich wan we we dɛn kɔl "pacing." "Pacing" jכs min fכ balans yu rεst εn aktiviti lεvεl dεm.

As yu de praktis "pacing," yu de lan wetin na yu "limitations". Tink bɔt dɛn tin ya we yu nɔ ebul fɔ du lɛk fɛns. Yu fɔ tray fɔ de insay di say we sef we yu bɔdi go ebul fɔ du. If yu step ausayd dis boundaries, dat min se if yu push yusɛf pas yu limit, yu bɔdi nɔ go ebul fɔ handle am igen. Dis kin mek yu sik dɛn wɔs.

Yu dɔktɔ kin ɛp yu fɔ no wetin na yu bɔdi ɛn maynd limit. I kin fayn fɔ rayt wan dayari ɔ jɔnal fɔ di tin dɛn we yu de du ɛn aw yu de fil afta dɛn. We yu dɔn no wetin yu ebul fɔ du, yu kin plan di tin dɛn we yu go du fɔ mek yu nɔ ebul fɔ du wetin yu ebul fɔ du.

Fɔ ɛgzampul, if yu si se yu taya afta yu dɔn waka fɔ 15 minit, yu fɔ tray fɔ waka fɔ 10 minit nɔmɔ di nɛks de ɛn blo. di ki fכ "pacing" na fכ lisin to yu bכdi sכmtεm εn no yu limits.

If yu du ɛksɛsayz we yu de du bad bad tin, lɛk fɔ du ɛksɛsayz we yu de yuz aerobik, i kin mek di ME/CFS simptom dɛn wɔs. So, tɔk to yu dɔktɔ bɔt us ɛgzampul dɛn we nɔ bad ɛn we fayn fɔ yu.

Yu tink se dɛn kin mek dɛn nɔ gɛt ME/CFS?

I sɔri fɔ no se naw, no we nɔ de we dɛn no fɔ mek dɛn nɔ gɛt ME/CFS.

Wetin pɔsin we gɛt ME/CFS fɔ ɛkspɛkt?

No mɛrɛsin nɔ de fɔ ME/CFS. Bɔt dɛn kin ebul fɔ kɔntrol di sik dɛn wit di chenj we dɛn de chenj di slip, we dɛn de kɔntrol di tin dɛn we dɛn de du (pacing), ɛn we dɛn de tek mɛrɛsin. Di gol fɔ tritmɛnt na fɔ ɛp fɔ ridyus di sik dɛn as mɔ as i pɔsibul ɛn fɔ mek yu gɛt bɛtɛ layf.

Dɛn dɔn sho se di Kɔgnitiv Biɛvhɔral Tɛrapi (CBT) kin ɛp fɔ bɔku pipul dɛn we gɛt ME/CFS. E kin ɛp dɛm fɔ dil wit dɛn sik ɛn de tink ɛn bihayvya wae kin mek dɛn gɛt dis sik.

Yu nid fɔ rili tek tɛm mek yu nɔ wok pas yu ɛnaji lɛvɛl. We yu taya pan yu bɔdi ɛn yu maynd, "pacing" - dat na fɔ tek brek bitwin, fɔ chenj yu bɔdi wok ɛn yu maynd wok - kin ɛp yu bad bad wan.

Yu dɔktɔ kin tɛl yu bak fɔ jɔyn sɔpɔt grup wit ɔda pipul dɛn we gɛt ME/CFS. Dɛn grup ya kin gi yu bɔrku ɛnkɔrejmɛnt, infɔmeshɔn, ɛn chans fɔ sheb ɛkspiriɛns ɛn ɛkspiriɛns wit yu kɔndishɔn.

Wetin na di lukin-grɔn fɔ ME/CFS?

Wit tritmɛnt, bɔku pan di ME/CFS simptom dɛm kin impɔtant to sɔm mak. Bɔt sɔm pipul dɛn nɔ kin ɛva go bak to dɛn wɛlbɔdi bifo dɛn gɛt di sik. Di we aw dis sik kin afɛkt ɛnibɔdi difrɛn. I bɛtɛ fɔ tɔk to yu dɔktɔ bɔt yu sik ɛn aw yu go si am.

Ustɛm yu fɔ go to dɔktɔ?

If yu gɛt sayn dɛm fɔ ME/CFS (especially taya we de te fɔ pas siks mɔnt), mek shɔ se yu go to dɔktɔ. Yu dɔktɔ go chɛk yu sik ɛn mek wan tritmɛnt plan fɔ ɛp yu fɔ gɛt rilif.

Sɔntɛnde, we yu taya pasmak fɔ grap na bed, fɔ go to dɔktɔ kin bi big tin. If na so i bi, nɔr shem fɔ ɛksplen to yu dɔktɔ na fon aw yu sik de afɛkt yu. Yu dɔktɔ kin ivin ebul fɔ gi yu ‘virtual appointment’ so dat yu go kɔnɛkt frɔm di kɔmfɔt na yu yon os.

If yu no dis sik kwik kwik wan ɛn bigin fɔ trit yu, yu kin gɛt fridɔm kwik kwik wan.

Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?

We yu go si dɔktɔ, yu kin aks kwɛstyɔn dɛn lɛk dɛn wan ya:

• Us kayn tritmɛnt yu kin kɔmɛnt fɔ mi?
• Ɛni bad tin de we di tritmɛnt kin du?
• Aw a kin fɛn di say dɛn we a nɔ ebul fɔ du?
• If a fil fayn, a go ebul fɔ wok pas wetin a ebul fɔ du?
• Aw a go ebul fɔ mek mi slip fayn (`slip hygiene`)?

Aks kwɛstyɔn dɛn lɛk dɛn wan ya ɛn ɔndastand di tin we de apin to yu mɔ.

Faynal Mɛsej fɔ Tek-Hom

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) na wan sik we rili de mek pɔsin in layf de pan denja ɛn i nɔ kin izi fɔ am. Bɔt nɔto yu wangren de.If yu ɔndastand dis sik ɛn manej am fayn fayn wan, yu kin kɔntrol de sik ɛn liv bɛtɛ layf.

• If yu gɛt taya ɔltɛm we nɔ de stɔp we yu rɛst , nɔ ignore am. Go to dɔktɔ fɔ advays yu.
• Lan di tεknik we dεn kכl "pacing" εn yuz yu enεji lεvεl dεm fayn fayn wan.
• Tray fɔ slip fayn .
• If yu nid ɛp, nɔ shem fɔ aks yu fambul, padi dɛn, ɛn dɔktɔ dɛn fɔ ɛp yu .
• Sɔpɔt grup dɛn kin gi yu bɔku trɛnk na yu maynd.

A op se yu si dis infɔmeshɔn yusful. Stay wit wɛlbɔdi!

` Myalgic Encephalomyelitis, Kronik Fatigue Syndrome, ME/CFS, taya, kronik taya, post-exercise syndrome, inshɔmnia, bɔdi pen, Sinhala wɛlbɔdi