Sɔntɛnde, i nɔ kin izi fɔ yu fɔ grap na chia, klaym stej, ɔ ivin du simpul wok dɛn lɛk fɔ kɔm yu ia? Yu mɔsul dɛn jɔs de fil wik ɛn nɔ gɛt layf? Di tin wae kin mek dis sik kin bi wan sik wae dɛn kɔl myopathy. Dis nem kin bi nyu tin to yu. Bɔt nɔ wɔri, wi go tɔk bɔt ɔltin simpul we we yu go ɔndastand.
Wetin rili na Mayopati?
Fɔ tɔk am simpul wan, mayopati na wan jɔnaral wɔd fɔ wikɛd wi skel mɔsul dɛm , di mɔsul dɛm we de kɔnɛkt to wi bon dɛm ɛn muv wi. Tink bɔt wi bɔdi lɛk motoka. Dis motoka gɛt wan injin we dɛn kɔl mɔsul. Mayopati na wan sik we di mɔsul fayv dɛn na dɛn mɔsul ya kin pwɛl, ɛn dis kin mek da injin de nɔ gɛt pawa igen. Dis nɔto wan sik, bɔt na wan grup fɔ sik.
Yu tink se men kayn mayopathy de?
Yɛs, dɛn kin sheb mayopati to tu men kayn. I tan lɛk sɔm prɔblɛm dɛn we wi kin gɛt frɔm we dɛn bɔn wi ɛn sɔm prɔblɛm dɛn we kin kam as wi de liv.
| Mayopati Tayp | Fɔ tɔk am simpul wan... |
|---|---|
| Mayopathies we dɛn kin gɛt frɔm dɛn mama ɛn papa | Dis na tin dɛn we pɔsin kin gɛt we i gɛt prɔblɛm wit in jɛnɛtiks. Dat min se sik dɛn we wan jin we nɔ fayn we dɛn gɛt frɔm di mama ɔ di papa kin kam wit. |
| Mayopathies we dɛn dɔn gɛt | Dɛn tin ya kin kam bikɔs ɔf ɔda mɛrɛsin, infɛkshɔn, mɛrɛsin we dɛn tek, ɔ ɔda tin we kɔmɔt na do we i de liv. |
Naw lɛ wi luk dɛn kayn ya smɔl mɔ.
Mayopathies we dɛn kin gɛt frɔm dɛn mama ɛn papa
Dɛn tin ya kin apin bikɔs ɔf di jɛnɛtiks, so bɔku tɛm dɛn kin kɔmɔt frɔm wi gret gret granpa dɛn.
- Mayopati dɛn we dɛn kin bɔn wit:Dis na tin dεm we de apin we dεn bכn am. Sɔm pikin dɛn kin sho di sik wantɛm wantɛm. Bɔt fɔ sɔm pipul dɛn, di sayn dɛn kin kam leta we dɛn dɔn day ɔ ivin leta. Wetin kin spɛshal bɔt dis sik na dat di wikɛd tin kin afɛkt ɔlmost ɔl di mɔsul dɛm na di bɔdi, ɛn i kin wɔs as tɛm de go.
- Maytochondrial Myopathies: Fɔ tɔk am simpul wan, mitochondria na di batri dɛm we de gi pawa to wi sɛl dɛm. We dɛn batri ya nɔ de wok fayn, di mɔsul dɛn nɔ kin gɛt di ɛnaji we dɛn nid, ɛn dɛn kin wik. Dis kכndyushכn nכ kin afekt nכto di mכsul dεm nכmכ, bכt כda כgan dεm we nid bכku εnεji, lεk di at, bren, εn digεstiv sistεm.
- Metabolic Myopathies: Wi mכsul dεm nid spεshal kεmikכl dεm we dεn kכl εnzym fכ wok fayn fayn wan. dis kכndyushכn de kכz fכ difεkt na di jin dεm we de mek dεn εnzym dεm ya. If na so i bi, i kin gɛt bad bad pen ɛn di mɔsul dɛn kin twitch, mɔ na say dɛn lɛk di sholda ɛn di shɔl, we yu de du ɛksɛsayz. sכmtεm, wan siriכs kכndyushכn we dεn kכl ``Rhabdomyolysis``, we di mכsul fayb dεm de brok dכn, kin apin.
- Muscular Dystrophies: Yu go dɔn yɛri dis nem bifo. dis na kכndishכn we di mכsul dεm de atrofi sכmtεm εn wik biכs fכ di dεfisit fכ di protin dεm we nid fכ kip di strכkchכ fכ di mכsul dεm strכng. Dis kin afɛkt di mɔsul dɛn na di an, di leg, ɛn sɔntɛnde di fes ɛn yay.
Mayopathies we dɛn dɔn gɛt
Dis nɔto tin dɛn we dɛn bɔn yu wit. Na tin wae kin kam bikɔs ɔf difrɛn rizin dɛn wae pɔrsin de liv.
| Mek | Ɛgzampul dɛn & Ditiɛl dɛn |
|---|---|
| Prɔblɛm dɛn we de na di imyun sistɛm (Autoimmune/Inflammatory) . | di kכndishכn dεm we kin apin we wi bכdi in difεns sistεm (imyun sistεm) mistek atak in כwn tisu dεm. |
| Pɔyzin ɔ drɔgs (Toxic Myopathy) . | Sɔm tin dɛn kin pwɛl di mɔsul dɛn. Sɔm ɛgzampul dɛn na fɔ drink pasmak, fɔ blo di smok we de kɔmɔt frɔm sɔm kayn pent, ɛn sɔm mɛrɛsin dɛn (e.g., sɔm mɛrɛsin dɛn we de mek pɔsin nɔ gɛt bɔku kɔlɔstrel (statin), stɛroyd (kɔtikosterɔyd), ɛn sɔm mɛrɛsin dɛn we dɛn kin yuz fɔ mɛn HIV). |
| Prɔblɛm dɛn we gɛt fɔ du wit ɔmon dɛn (Endocrine Myopathies) . | di mכsul dεm we de wik kin bi fכ di כmon dεm we nכ de balans na di bכdi. Sɔm ɛgzampul dɛn na di tayroyd we nɔ de wok fayn (haypothyroidism) ɔ di tayroyd we de wok pasmak (hyperthyroidism), prɔblɛm wit di paratayroyd ɔmon, ɛn sik dɛn we de na di adrenal gland. |
| Infεkshכn (Infεkshכn Mayopathies) . | Difrɛn infɛkshɔn kin afɛkt di mɔsul dɛn. Sɔm ɛgzampul dɛn na: HIV, vayrɔs lɛk influenza, baktriyal infɛkshɔn, ɛn parasayt infɛkshɔn. |
| Ilɛktrolayt Imbalans | di dכn כ inkrεs lεvεl dεm fכ di imכtant ilektrolayt dεm lεk potashכm εn magnεsium na di bכdi de afekt di mכsul dεm fכ wok. |
| Kritikal Ilnɛs Mayopati we pɔsin kin gɛt | Mɔsul wik bikɔs ɔf siriɔs sik na ples lɛk intensiv kia yunit (ICU), fɔ de na bed fɔ lɔng tɛm, ɛn sɔm pan di pawaful mɛrɛsin dɛn we dɛn bin de gi da tɛm de. |
Wetin na di sayn dɛm wae de sho se pɔrsin gɛt mayopathy?
Pan ɔl we bɔku kayn mayopathy de, sɔm kɔmɔn sayn dɛn de we yu kin si pan ɔlmost ɔl dɛn.
- di mכsul dεm we wik: Wik, spεshal wan na di mכsul dεm we de nia di midsekshכn na di bכdi (sכlda dεm, כp an dεm, hip dεm, εn di tכŋ dεm).
- Mɔsul dɛn de twitch, stif, ɛn pen.
- Fɔ fil taya pasmak ivin afta yu dɔn du smɔl wok.
- Lak fɔ gɛt ɛnaji.
Dis wikɛd tin kin afɛkt ɔl tu di say dɛn na di bɔdi ikwal wan, we min se di lɛft an kin fil wik lɛk di rayt an.
Aw yu fil bɔt dis wikɛd tin?
Dis we aw di mɔsul dɛn wik kin mek i nɔ izi fɔ du di wok dɛn we pɔsin kin du ɛvride. Jɔs tink bɔt...
- Ivin simpul wok dɛn lɛk fɔ kɔm yu ia, fɔ wɛr klos, ɛn fɔ shawa kin fil tranga wan.
- I at fɔ grap na sidɔm chia.
- Fɔ klaym stej kin rili taya.
- I at fɔ es yu an fɔ gɛt sɔntin frɔm wan shelf we de ɔp yu ed.
- We a taya smɔl, a kin fil lɛk se a gɛt prɔblɛm fɔ blo.
apat frכm dis, dεn kin si כda spεshal simptom dεm bak dipכnt pan di kayn mayopati. Fɔ ɛgzampul, sɔm pikin dɛn kin let fɔ bigin waka ɛn jomp. Sɔntɛm dɛn nɔ go ebul fɔ rɔn ɔ jomp we dɛn de ple wit dɛn kɔmpin dɛn. Sɔm pipul dɛn kin gɛt prɔblɛm bak fɔ swɛla ɛn swɛ dɛn wɔd dɛn we dɛn de tɔk.
Aw a go no if a gɛt dis sik?
If yu gɛt dɛn sik ya, di tin we impɔtant pas ɔl na fɔ go to yu famili dɔktɔ. I go tek wan gud histri bɔt yu sik, yu famili mɛdikal histri, ɛn ɛni mɛrɛsin we yu de tek. Dɔn dɛn go du yu bɔdi ɛgzam ɛn if nid de, dɛn go sɛn yu to spɛshal dɔktɔ, lɛk dɔktɔ we de mɛn yu nyuro ɔ dɔktɔ we de mɛn yu bɔdi.
Dɛn kin du sɔm tɛst fɔ no if pɔsin gɛt di sik.
| Tɛst | Wetin dis de chɛk? (Wetin i de chɛk?) |
|---|---|
| Tɛst fɔ Blɔd | di εnzym dεm we de kכmכt na di bכdi we di mכsul dεm dεn dכn pwεl (e.g., Creatine Kinase (CK)), dεn de chεk di saliva lεvεl, di כmon lεvεl, εn mak dεm fכ di imyun sistεm prכblεm. |
| EMG tɛst (Ɛlektromayografi) . | Wan spɛshal tɛst we de sɛn ilɛktrik signal dɛn we nɔ klia to di mɔsul ɛn nerv dɛn fɔ no aw dɛn de wok ɛn aw dɛn dɔn pwɛl. |
| MRI skan (Magnetik Rizɔnans Imej) . | di strכkchכ fכ di mכsul dεm εn di chenj dεm we dεn dכn apin insay dεm yu kin si klia wan. |
| Jɛnɛtik Tɛst dɛn | If dɛn tink se pɔsin gɛt mayopathy we dɛn bɔn wit, dɛn kin du dis tɛst fɔ no if ɛni jɛnɛtik difrɛns de we gɛt fɔ du wit am. |
| Mɔsul Bayɔpsi | Dɛn kin ɔpreshɔn wan rili smɔl pat pan wan swɛlin we dɛn kin tink se de na di bɔdi ɛn chɛk am ɔnda maykroskɔp fɔ no di sik kɔrɛkt wan. |
Wetin na di tritmɛnt dɛm fɔ mayopathy?
Di tritmɛnt dipen pan di kayn mayopathy we yu gɛt. No wan saiz tritmɛnt nɔ de fɔ ɔlman.
- Jɛnɛral Tritmɛnt: Fizik tɛrapi ɛn ɔkupeshɔn tɛrapi impɔtant fɔ bɔku mayopatik kɔndishɔn dɛm. Dɛn tin ya kin ɛp fɔ mek yu mɔsul dɛn gɛt trɛnk ɛn ebul fɔ chenj ɛn ɛp yu fɔ du tin dɛn we yu kin du ɛvride izi wan.
- Fɔ prɔblɛm dɛn we gɛt fɔ du wit di imyun sistɛm: Dɛn kin gi di mɛrɛsin dɛn we de stɔp di imyun sistɛm, lɛk di immunosuppressants ɛn kɔtikosterɔyd.
- Fɔ congenital myopathies: Nɔr stil nɔr gɛt difinitiv mɛrɛsin fɔ bɔrku pan dɛn sik ya. Bɔt dɛn kin kɔntrol di sayn dɛm ɛn kwaliti fɔ liv bɛtɛ. Nyu drɔgs de naw fɔ sɔm spɛshal kɔndishɔn dɛn (e.g., Duchenne muscular dystrophy, Pompe disease).
- Fɔ ɔda sɛkɔndari mayopathies: Dɛn kin gi di tritmɛnt fɔ di ɔndalayn kɔz fɔ di myopathy. Fɔ ɛgzampul, if na ɔmon prɔblɛm, dɛn kin kɔrɛkt am, if na infekshɔn, dɛn kin gi am antibayɔtik, ɔ if na mɛrɛsin mek am, dɛn kin stɔp di mɛrɛsin.
Aw a fɔ kia fɔ misɛf?
Pan ɔl we mayopathy na wan sik we kin de fɔ lɔng tɛm, yu kin kɔntrol di sik ɛn liv fayn layf bay we yu chenj yu layf ɛn manej am fayn fayn wan.
- It gud it we gɛt fayn fayn tin dɛn fɔ it. Fɔ it tin dɛn we go mek yu it bɔku bɔku vɛjitebul ɛn frut dɛn rili impɔtant.
- Stay aktif. Ɛnjɔy fɔ du layt ɛksesaiz. Bɔt mɛmba se bifo yu bigin ɛni ɛksesaiz program, yu fɔ rili tɔk to yu dɔktɔ ɛn aks us ɛksesaiz dɛn we fit fɔ yu sik.
- Mek yu bɔdi gɛt di rayt wet.
- If i nɔ izi fɔ yu fɔ swɛla, it tin dɛn we saf ɛn we gɛt wata. Mash di it fayn fayn wan ɛn it.
- Tek di mɛrɛsin we di dɔktɔ gi yu di rayt tɛm.
- Pe atɛnshɔn to di chenj dɛn we de apin na yu bɔdi. If yu notis ɛni chenj ɔ inkris pan di sayn dɛm, tɛl yu dɔktɔ wantɛm wantɛm.
Mɛsej we dɛn kin kɛr go na os
- Mayopati na wan jenɛral nem fɔ bɔku tin dɛn we kin mek di mɔsul dɛn wik.
- dis kin bi we dεn bכn pikin (jεnεtik) כ kin divεlכp we dεn de liv fכ כda rizin dεm.
- Mɔsul dɛn wik, stif, ɛn taya pasmak wit ivin smɔl smɔl tin dɛn na di men sayn dɛm.
- If yu gɛt dɛn kayn sik ya, i rili impɔtant fɔ go to dɔktɔ ɛn nɔ de te.
- Di tritmɛnt we dɛn kin pik kin difrɛn difrɛn wan fɔ di tin we kin mek pɔsin gɛt di sik. If dɛn de manej ɛn trit dɛn fayn fayn wan, dɛn kin kɔntrol bɔku tin dɛn fayn fayn wan ɛn liv nɔmal layf.
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