Bi pawa fɔ liv wit PBC (Primary Biliary Cholangitis)... Lɛ wi tɔk bɔt dis!

We yu dɔktɔ tɛl yu se yu gɛt wan sik we dɛn kɔl PBC (Primary Biliary Cholangitis), yu go mɔs gɛt wan tawzin kwɛstyɔn dɛn we de rɔn na yu maynd. Na nɔmal tin fɔ wɔnda, "Us kayn sik dis? Wetin go apin to mi layf? Wetin a de du naw?" Na nɔmal tin fɔ mek yu fred ɛn wɔri we yu kam fɔ no se dis na sik we yu nɔ go ebul fɔ mɛn, ɛn we kin de fɔ lɔng tɛm. Bɔt nɔ wɔri, yu nɔ nid fɔ go tru dis waka yu wan. If yu ɔndastand dis sik fayn fayn wan ɛn bil sɔpɔt sistɛm wae go ɛp yu, yu kin rili liv strɔng ɛn gladi layf wit dis sik. Lɛ wi si aw fɔ fɛn di trɛnk ɛn no we yu nid fɔ dis waka.

Yu fɔs ɛn bɛst gayd: Yu dɔktɔ

We yu no bɔt dis sik, di pɔsin we go ebul fɔ ansa yu kwɛstyɔn dɛn fayn fayn wan na yu dɔktɔ. So, i rili impɔtant fɔ mek yu gɛt gud, strɔng padi biznɛs wit yu mɛdikal tim.

Tink bɔt am, ɔmɔs kwɛstyɔn yu gɛt bɔt dis sik, aw i tan, aw i kin afɛkt yu layf, di mɛrɛsin dɛn we yu nid fɔ tek, di it we yu de it, di ɛksesaiz? Tɔk to yu dɔktɔ bɔt ɔl dɛn tin ya witout fred ɛn opin wan. Nɔ dismis dɛn as smɔl prɔblɛm. Lisin to ɔl wetin de na yu maynd.

I go izi fɔ yu if yu du dɛn tin ya:

• Rayt yu kwɛstyɔn dɛn: Bifo yu go to dɔktɔ, rayt ɔl di kwɛstyɔn dɛn we yu want fɔ aks na buk. Sɔntɛnde, we wi go to dɔktɔ, wi kin fɔgɛt wetin wi bin want fɔ aks. We yu rayt dɛn lɛk dis, yu nɔ go mis ɛni wan pan dɛn kwɛstyɔn dɛn de.
• Tek not: Rayt ɔl wetin di dɔktɔ se, lɛk di instrɔkshɔn dɛn we i gi yu, di ditel dɛn bɔt di mɛrɛsin, ɛn di tɛst dɛn we yu nid fɔ du. I go ɛp yu fɔ rivyu am we yu rich na os.
• Tɔk: If yu nɔ ɔndastand sɔntin, nɔ fred fɔ aks igen. "Dɔkta, a nɔ ɔndastand wetin yu tɔk. Yu kin ɛksplen am bak insay wan simpul we?"

If yu tek pat tranga wan pan yu tritmɛnt prɔses dis kayn we, yu go ebul fɔ dil wit dis sik wit mɔ kɔntrol , witout frayd wae nɔr nid.

Tek tɛm bad bad wan we yu de luk fɔ infɔmeshɔn na di Intanɛt!

Nawde, di fes ples we wi de ton to wen wi de luk fo infomeshon abaut enitin na intanet. Di intanɛt kin bi fayn ples fɔ fɛn infɔmeshɔn bɔt PBC. Bɔt, i tan lɛk sɔd we gɛt tu ɛj. Nɔto ɔl di tin dɛn we de na di intanɛt na di rayt tin. Sɔntɛnde, infɔmeshɔn we nɔ kɔrɛkt ɛn we de mek pipul dɛn nɔ no di tru kin mek yu kɔnfyus ɛn ambɔg yu wɛlbɔdi.

Sɔm wɛbsayt dɛn kin pul lay lay advatayzmɛnt lɛk "Dis mɛrɛsin go mɛn yu sik insay sɛvin dez." Ɔ, dɛn kin ful yu wit difrɛn tritmɛnt dɛn we sayɛns nɔ dɔn pruv. Nɔ mek dɛn tin ya ful yu.

So, aw wi go fɛn wɛbsayt we pɔsin kin abop pan?

Fɔ fɛn gud infɔmeshɔn we pɔsin kin abop pan, yu fɔ chɛk wɛbsayt dɛn we gɔvmɛnt wɛlbɔdi ɛjɛnshi dɛn, ɔspitul dɛn we gɛt gud nem, ɛn yunivasiti mɛdikal skul dɛn de rul. Bɔku valyu tin dɛn de bak na di wɛbsayt dɛn fɔ di intanashɔnal grup dɛn we de sɔpɔt di wan dɛn we sik. Fɔ ɛgzampul, wi kin tɔk bɔt ɔganayzeshɔn dɛn lɛk di American Liver Foundation ɛn di PBCers Organization.

We yu de luk fɔ infɔmeshɔn na wɛbsayt, aks yusɛf dɛn kwɛstyɔn ya fɔ si if yu go abop pan am.

Fɔ tɛl yu famili ɛn padi dɛn bak na big trɛnk.

We yu de liv wit sik lɛk dis fɔ lɔng tɛm, di sɔpɔt we yu famili ɛn yu tayt padi dɛn de gi yu na di tin we go mek yu gɛt mɔ trɛnk. Bɔt fɔ mek dɛn go ebul fɔ ɛp yu, dɛn nid fɔ no bak bɔt dis sik.

Tɔk wit dɛn opin wan bɔt yu sik ɛn aw yu de fil. Ɛksplen to dɛm se PBC nɔr kin pas ɛn aw e kin afɛkt yu layf. I go izi fɔ dɛn fɔ ɛp yu we dɛn ɔndastand se yu kin fil taya sɔm dez ɔ yu nɔ kin ebul fɔ it sɔm it dɛn. I fayn bak fɔ kam wit yu man, wɛf, ɔ pɔsin we de nia yu fambul we yu de go to dɔktɔ.

Nɔ fɔgɛt bɔt mɛntɛl hεlth pan dis joyn.

Na nɔmal tin fɔ fil bad, wɔri, ɛn sɔmtɛm yu kin ivin vɛks we yu kam fɔ no se yu gɛt wan sik lɛk PBC. Nɔ tray fɔ dil wit dɛn filin ya yu wan. We yu tɔk to pɔsin we yu biliv bɔt aw yu de fil, dat kin rili kɔrej yu. Dis kin bi yu patna, yu tayt padi, ɔ yu fambul.

If yu fil se i nɔ izi fɔ yu fɔ kɔntrol yu wɔri ɛn strɛs, tɔk to yu dɔktɔ bɔt dat. If nid de, i go rifer yu to sayɛnsman fɔ ɛp yu. No rizin nɔ de fɔ mek wi shem ɔ fred am.