Sɔntɛnde, sɔm sik dɛn we wi pikin dɛn kin gɛt nɔ kin bɔku. Ɛn di tritmɛnt dɛn fɔ dɛn bak rili spɛshal. Tide wi go tɔk bɔt wan spɛshal vaysin we dɛn kin gi fɔ dɛn kayn sik ya we nɔ kin apin so ɔltɛm ɛn we kin rili siriɔs. I nem na Pegademase Bovine. Sɔntɛm yu dɔktɔ dɔn tɛl yu bɔt dis mɛrɛsin. So, lɛ wi pul di fred ɛn dawt bɔt dis ɛn jɔs ɔndastand dɛn tin ya.
Wetin na dis mɛrɛsin we dɛn kɔl Pegademase Bovine?
Fɔ tɔk am simpul wan, Pegademase Bovine na ɛksternal administreshɔn fɔ wan ɛnzaym we dɛn kin mek na wi bɔdi na wi bɔdi, bɔt i nɔ de na sɔm pipul dɛn. Tink bɔt wi bɔdi lɛk big faktri. Dis faktri nid difrɛn kayn wokman dɛn (ɛnzaym) fɔ mek i wok fayn fayn wan. Sɔntɛnde, bikɔs ɔf di jɛnɛtik rizin, wan pan dɛn wokman ya nɔ kin de we dɛn bɔn am.
Wetin nɔ de ya na wan ɛnzaym we dɛn kɔl Adenosine Deaminase (ADA) . Dis ɛnzaym impɔtant fɔ mek wi imyun sistɛm wok fayn fayn wan. We i nɔ de, di imyun sistɛm kin wik bad bad wan. Dɛn kɔl dis sik Siriɔs Kɔmbayn Imyunodefisiɛns Disease (SCID) .
So wetin dis Pegademase Bovine vaysin de du na fɔ gi di bɔdi da ADA ɛnzaym de we nɔ de. Dis na modifyed vεshכn fכ wan εnzym we dεn tek frכm kaw.
I rili impɔtant: Dis nɔto mɛrɛsin fɔ di sik. Bɔt i kin ɛp fɔ kɔntrol di sayn dɛm, ɛp di imyun sistɛm fɔ du in wok, ɛn alaw yu fɔ liv nɔmal layf.
Tin dɛm fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
Bifo yu bigin dis tritmɛnt, i impɔtant fɔ gi di dɔktɔ kɔmplit diskripshɔn bɔt yu ɔ yu pikin in wɛlbɔdi prɔblɛm. Mek shɔ se yu tɛl dɛn mɔ bɔt dɛn tin ya.
| Infɔmeshɔn we dɛn fɔ ripɔt | Fɔ tɔk am simpul wan... |
|---|---|
| Prɔblɛm dɛn we gɛt fɔ du wit blɔd | If yu brus izi wan, ɔ if blɔd nɔ stɔp ivin frɔm smɔl wund. |
| Di blɔd pletlɛt dɛn we de go dɔŋ | If yu blɔd tɛst sho se di pletlɛt dɛn nɔ bɔku. |
| Infɛkshɔn dɛn we de naw | If yu gɛt ɛni infekshɔn naw lɛk fiva, kɔf, ɔ kol. |
| Alɛji dɛn we pɔsin kin gɛt | If yu gɛt alɛji fɔ dis Pegademase Bovine mɛrɛsin, ɔda mɛrɛsin, it, prɛzɛvɛtiv, ɔ day. |
| Bεlε εn we i de gi pikin in bεlε | If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu de gi pikin in bɛlɛ. |
Aw dɛn kin yuz dis vaysin?
Dis na injɛkshɔn insay wan mɔsul . Bɔku tɛm, na pɔsin we de kia fɔ wɛlbɔdi biznɛs na ɔspitul ɔ klinik kin gi dis. Bɔt sɔm tɛm dɛn de, dɛn go tɛl yu fɔ gi yusɛf dis injɛkshɔn na os. If na so, fala di instrɔkshɔn dɛn jɔs lɛk aw dɛn tɛl yu, ɛn nɔ chenj wan lɛta . I rili impɔtant fɔ tek di mɛrɛsin jɔs di tɛm we dɛn tɛl yu fɔ tek am.
Speshal ɔwe bɔt nidul ɛn sirinj
If yu de gi di vaysin na os, yu nid fɔ tek tɛm bad bad wan wit di nidul ɛn sirinj dɛm we yu de yuz.
- Nɔ ɛva trowe nidul dɛn we yu dɔn yuz na di dɔti.
- Wan spɛshal shap kɔntena de usay dɛn kin trowe dɛn tin ya.
- If yu nɔ gɛt wan, tɔk to yu dɔktɔ ɛn aks aw fɔ gɛt wan.
We dɛn gi am to pikin dɛn?
Sɔm tɛm dɛn de we dɛn kin gi dis mɛrɛsin ivin to pikin dɛn we dɛn jɔs bɔn. Bɔt dɛn fɔ tek tɛm spɛshal we dɛn de gi dis to pikin dɛn. So, tek tɛm tɔk to yu dɔktɔ we de mɛn pikin dɛn bɔt aw fɔ gi yu pikin dis tritmɛnt ɛn ɛksplen ɔltin.
Wetin a go du if a tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek dis mɛrɛsin tumɔs, go na di ɔspitul we de nia yu Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm . Ɔ, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital .
Us sayd ɛfɛkt yu fɔ no bɔt?
Lɛk ɛni mɛrɛsin, dis wan kin gɛt sayd ɛfɛkt. Sɔm pan dɛn fɔ ripɔt wantɛm wantɛm, ɛn ɔda wan dɛn nɔmal. Mek wi tek wan luk pan dem.
| Klasifikɛshɔn fɔ di sayd ɛfɛkt dɛn | |
|---|---|
| Tin dɛn fɔ tɛl yu dɔktɔ wantɛm wantɛm | |
| Alɛji Riakshɔn dɛn | Skin rash , it, ayv, swel na di fes, lip, ɔ tong. |
| I nɔ kin izi fɔ yu fɔ blo | Fɔ fil lɛk se i at fɔ blo. |
| Diziz ɛn nɔ kin no natin | Diziz, blu yay, fɔdɔm, ɔ fɔdɔm. |
| Wiknɛs we nɔ kɔmɔn | Fɔ fil taya pasmak ɔ wik fɔ natin. |
| Tin dɛm wae nɔr kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Ed de at | Wan ed we kin at we bɔku pipul dɛn kin at. |
| Pen na di say we dɛn injɛkshɔn | Pen ɔ rɛdnɛs na di say we dɛn injekt. |
If yu notis ɛnitin we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, tɔk to yu dɔktɔ bɔt am bak.
Sɔm ɔda impɔtant pɔynt dɛn
- Wetin a go du if a mis wan doz? I rili impɔtant fɔ mek yu nɔ mis wan doz fɔ dis mɛrɛsin. If yu de go na klinik fɔ tek yu mɛrɛsin, kɔl yu dɔktɔ bifo tɛm if yu nɔ ebul fɔ go. If yu de tek yu mɛrɛsin na os, kɔl yu dɔktɔ wantɛm if yu mis wan doz. Nɔ ɛva tek dabl doz wan tɛm.
- Intarakshɔn wit ɔda mɛrɛsin dɛm: Sɔm mɛrɛsin dɛm, lɛk Vidarabine , kin intarakt wit dis vaysin. So, tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (inklud vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn). Dɔn bak, tɛl yu dɔktɔ if yu de smok ɔ drink rɔm.
- Fɔ kip am: If yu de kip dis mɛrɛsin na os, kip am na frij we di tɛmpracha de bitwin 2 ɛn 8 digri sɛlshiɔs . Nɔ ɛva put am na friza. Dɔn bak, kip am usay pikin dɛn nɔ go ebul fɔ rich. Trowe ɛni mɛrɛsin we dɔn pas.
Insay di tɛm we dɛn de du dis tritmɛnt, i rili impɔtant fɔ go chɛk-ap di de dɛn we dɛn dɔn plan fɔ du lɛk aw di dɔktɔ advays yu. Yu go nid bak fɔ du blɔd tɛst ɔltɛm fɔ chɛk aw yu imyun sistɛm de wok.
Mɛsej we dɛn kin kɛr go na os
- Pegademase Bovine na enzym riplesmεnt tεrapi fכ wan rare imyun sik we dεn kכl SCID. I nɔto mɛrɛsin, bɔt na kɔntrol.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt yu kɔmplit wɛlbɔdi istri, ɔda mɛrɛsin dɛn we yu de tek, ɛn ɛni alɛji we yu go gɛt.
- Nɔ skip di doz dɛn. If yu mis wan doz, kɔl yu dɔktɔ wantɛm wantɛm. Nɔ ɛva tek dabl doz.
- If yu gɛt siriɔs sayd ɛfɛkt lɛk fɔ mek yu nɔ ebul fɔ blo ɔ yu fes de swel, go to dɔktɔ wantɛm wantɛm.
- Stɔr di mɛrɛsin fayn fayn wan na frij. Nɔ put am na friza.
- Trowe di nidul ɛn sirinj dɛn we yu dɔn yuz fayn fayn wan insay spɛshal kɔntena.
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