Yu kin sik ɔltɛm? Ɔ yu kin fil lɛk se yu kin gɛt dis sik pas ɔda pipul dɛn we de arawnd yu? If yu gɛt kol bɔt i kin tek lɔng tɛm fɔ mek yu wɛl, nɔ jɔs dismis am as sɔntin we nɔmal. I kin bi se yu bɔdi in difɛns sistɛm, di imyun sistɛm, wik smɔl. Tide wi go tɔk bɔt wan tɔpik we bɔku pipul dɛn nɔ no bɔt, bɔt i rili impɔtant. Dat na Praymari Imyunodefisiɛns Diziz (PIDD).
Wetin na Praymari Imyunodefisiɛns?
Fɔ tɔk am simpul wan, wi bɔdi in imyun sistɛm tan lɛk ami we de protɛkt wan kɔntri. Di wok we dis ami de du na fɔ protɛkt wi frɔm sik dɛn bay we dɛn de fɛt fɔrina dɛn we de kam insay wi, lɛk baktri ɛn vayrɔs.
Naw imajin, wetin go apin if sɔm pan di sojaman dɛn na dis ami nɔ tren fayn, ɔ if dɛn nɔ gɛt di wɛpɔn dɛn we dɛn nid? I go rili izi fɔ mek ɛnimi dɛn kam insay di kɔntri ɛn mek bad tin apin, nɔto so? Na so i kin bi wit pɔrsin wae gɛt Praymari Imyunodeficiency Syndrome (PIDS). Insay dis kɔndishɔn, sɔm pat dɛn pan yu imyun sistɛm nɔ de wok fayn frɔm we dɛn bɔn yu. Dis min se yu bɔdi in difens dɛn wik smɔl.
Bikɔs ɔf dis, yu kin sik bɔku tɛm pas ɔda pipul dɛn. Dɔn bak, yu kin gɛt mɔ siriɔs sik ɔr prɔblɛm dɛn we kin kam wit sik we nɔ kin izi fɔ yu ɛn we kin mek yu nɔ ebul fɔ du ɛnitin.
Wetin na di men kayn dis?
I pas 400 kayn wae de pan dis praymar immunodeficiency disease. Sɔm kin rili saful ɛn nɔ kin afɛkt yu bɛtɛ. Bɔt sɔm kayn dɛn kin rili siriɔs, ivin kin mek pɔsin in layf de pan denja. Sɔm kayn dɛn kin sho di sayn dɛm we dɛn bɔn yu, ɔda wan dɛn nɔ kin sho di sayn dɛm te yu dɔn big.
Dis dɔŋ ya na sɔm pan di men kɔndishɔn dɛm wae de insay dis kategori. Dɛn nem ya kin tan lɛk se yu strenj smɔl, bɔt i impɔtant fɔ no bɔt dɛn we yu de tɔk to dɔktɔ.
| Di Nem fɔ di Sik | Wan shɔt introdukshɔn |
|---|---|
| Kכmכn vεriεbul imyun dεfisiεns (CVID) . | Wan kɔmɔn kayn we kin mek pɔsin gɛt infɛkshɔn ɔltɛm. |
| Ataxia-telangiectasia we pɔsin kin gɛt | Wan kכndyushכn we nכ de afekt nכto di imyun sistεm nכmכ, bכt di nεv sεstem bak. |
| Di sik we dɛn kɔl kronik granulomatous (CGD) . | Wan kɔndishɔn we di imyun sɛl dɛn nɔ kin ebul fɔ pwɛl sɔm jem dɛn. |
| DiGeorge sindrom we gɛt di sik | wan jεnεtik kכndyushכn we de we dεn bכn kin afekt di imyun sistεm εn di at. |
| Selektiv IgA dɛfisiɛns | wan kכmכn kכndyushכn we wan sכm protin na di imyun sistεm de rεdכks. |
| Sivεr kכmbayn imyun dεfisiεns (SCID) . | Na wan sik we rili siriɔs . I kin kil pɔsin if dɛn nɔ trit am kwik. |
Ɔl di imyun dɛfisiɛns dɛn na tin dɛn we dɛn bɔn wit?
Nɔ, dat na kwɛstyɔn we rili impɔtant. di praymar imyun dεfisiεns we wi bin de tכk bכt te naw na wan we dεn bכn wit, we dεn kכz fכ jεnεtik kכz dεm.
Bɔt ɔda kayn de we dɛn kɔl Sɛkɔndari Immunodeficiency . Dis kin apin afta dɛn bɔn yu, bikɔs ɔf ɔda mɛrɛsin, ɔ bikɔs ɔf mɛrɛsin we yu de tek. Pan ɔl we dis na difrɛn kayn sik, di sayn dɛm kin rili fiba.
di imכtant tin na dat di praymar dεfisit na jεnεtik prכblεm we de we dεn bכn am. Sεkכnd dεfisit na we di imyun sistεm we wik biכs fכ כda kכz we kin apin leta.
Lɛ wi luk wetin kin mek pɔsin gɛt sɛkɔndari imyun dɛfisiɛns.
| Di tin dɛn we kin mek pɔsin gɛt sɛkɔndari imyun dɛfisiɛns | |
|---|---|
| Di kɔndishɔn dɛn we de na di mɛrɛsin | Mɛrɛsin ɛn tritmɛnt dɛn |
| - Dayabitis ɛn ɔda ɔtoimyun sik dɛm - HIV ɛn AIDS - Sɔm kayn kansa - Sirosis na di liva - Malnutrishɔn | - Imyun suprεshכn dεm - Kɔtikosterɔyd dɛn - Kimotɛrapi fɔ kansa - Rɛdieshɔn tɛrapi |
If a saspek se a gɛt dis sik, us sayn dɛn a fɔ luk fɔ?
Okay, naw yu go mɔs de tink se, "O, a nɔ no if a gɛt sɔntin lɛk dis bak." Lɛ wi luk wetin na di men sayn dɛm. Jɔs bikɔs yu gɛt wan ɔ tu pan dɛn sik ya nɔ min se yu gɛt dis sik. Bɔt if yu gɛt bɔku pan dɛn ɔltɛm, i go mɔs bi se yu go to dɔktɔ ɛn gɛt advays.
- Fɔ sik pasmak pas ɔda pipul dɛm: If yu kin gɛt sik kwik pas di wan dɛm wae de arawnd yu.
- Wan sik wae kin tek lɔng tɛm fɔ wɛl: Ivin na kɔmɔn kol wae kin teik sɔm wik.
- Fɔ tek antibayɔtik fɔ lɔng tɛm: Fɔ tek antibayɔtik fɔ sɔm wiks, ivin fɔ baktri infɛkshɔn we kin klin insay sɔm dez.
- Spleen we dɔn big.
- Di limf no dɛm we dɔn swel.
- We i nɔ ebul fɔ ɛksplen in wet ɔ if na pikin, i nɔ de gro fayn.
- Bɛlɛ kin at ɔltɛm ɛn dayarɛa.
- We dɛn gi am layf vaysin, di sayd ɛfɛkt dɛn kin apin pas ɔda wan dɛn.
Bɔrku tɛm, pipul dɛm wae gɛt dis sik kin gɛt dis sik bifo dɛn rich 20. Bɔt dɛn kin apia ɛnitɛm na dɛn layf.
Wetin mek sɔntin lɛk dis kin apin?
As wi bin dɔn tɔk, di men tin we kin mek di praymari imyun dɛfisiɛns na di chenj dɛn we de apin na di jɛnɛtiks. Jɔs lɛk aw smɔl bɔg we de na kɔmpyuta program kin kɔntinyu fɔ de, di chenj dɛn we de apin na di jin dɛn, we na di men tin we wi bɔdi de du, kin mek di imyun sistɛm nɔ de divɛlɔp ɔ wok fayn.
Dis na di rizin we mek di imyun sistɛm:
- May sho low dan normal pefomans.
- Sɔm impɔtant kayn sɛl dɛn kin nɔ de.
- I kin ivin bi se i nɔ de wok atɔl.
Dis nɔto yu fɔlt ɔ ɛnitin we yu nɔ ebul fɔ kɔntrol. Na wan chenj we de apin na di jɛnɛtiks we kin apin bifo dɛn ivin bɔn yu.
Dɛn kayn tin ya kin apin na famili. Dis min se if yu mama ɛn papa ɔ yu brɔda ɛn sista dɛn gɛt dis sik, yusɛf de pan denja fɔ gɛt dis sik. Dɛn tin ya kin apin mɔ pan man dɛn bak.
Aw dɔktɔ kin fɛn dis?
We yu go to dɔktɔ, i go tink bɔt sɔm tin dɛn fɔ no if yu gɛt dis sik.
1. Yu mɛdikal histri: Dɛn go aks yu bɔt ɛni sik we yu dɔn gɛt dis biɛn tɛm ɛn aw ɔltɛm yu kin sik.
2. Fɔ ɛgzamin yu bɔdi: Dɛn go ɛgzamin yu kɔmplit wan.
3. Yu sayn dɛm: Aks bɔt de diskɔmfɔt wae yu de gɛt.
4. Yu famili histri: Aks if ɛnibɔdi na yu famili dɔn gɛt dis sik.
Afta dat, dɛn kin du bɔku tɛst fɔ no if pɔsin gɛt di sik.
| Tɛst | Simply put, dis na wetin yu de du... |
|---|---|
| Blɔd tɛst dɛn | Dɛn kin chɛk fɔ si if ɛni infɛkshɔn de na di bɔdi ɛn aw di nɔmba fɔ di imyun sɛl dɛn tan lɛk. |
| Test fɔ di jenɛtiks | Dɛn de du tɛst fɔ si if chenj dɛn de na di jɛnɛtiks we kin mek i gɛt dis sik. |
| Flɔ saytometri fɔ yuz | Wan spɛshal tɛst we de kɔnt di kayn imyun sɛl dɛn we de na wan sɛmpul na yu blɔd ɛn ɔmɔs pan dɛn de. |
Wetin na di tritmɛnt dɛm fɔ dis?
Di tritmɛnt dipen pan us kayn immunodeficiency yu gɛt. Yu dɔktɔ go tɛl yu di bɛst we fɔ mek yu nɔ gɛt ɛn mɛn yu infɛkshɔn.
Di men tritmɛnt we dɛn kin yuz na:
- Antibayɔtik na mɛrɛsin we dɛn kin gi fɔ mek dɛn nɔ gɛt ɔ trit baktriyal infɛkshɔn.
- Antivayral drɔgs fɔ vayral infɛkshɔn.
- IVIG tritmɛnt: Dis kin min fɔ injɛkt yu bɔdi wit antibodi dɛm frɔm pipul dɛm we gɛt wɛlbɔdi. I tan lɛk se yu ad nyu grup we gɛt trenin sojaman dɛn to yu bɔdi in ami. Dis kin mek yu ebul fɔ fɛt di sik fɔ sɔm tɛm.
- Stem cell transplant: Dis na tritmɛnt fɔ pipul dɛm wae gɛt siriɔs sik. insay dis, dεn kin transplant stεm sεl dεm we dεn tek frכm hεlty pכsin insay di sikman, fכ tray fכ bil nyu, hεlty imyun sistεm.
- Jin tɛrapi: Dis na nyu tritmɛnt we dɛn stil de mek. I kin tray fɔ mek di jin we nɔ fayn ɔ fɔ put wan we gɛt wɛlbɔdi insay in ples.
Ustɛm a fɔ go to dɔktɔ?
Ɔlman kin sik wan wan tɛm. Dat na nɔmal tin. Bɔt udat sabi yu bɔdi pas yu? If yu fil lɛk, "Sɔmtin nɔ rayt, a sik ɔltɛm," nɔ ignore da filin de. Si dɔktɔ wantɛm wantɛm.
Dɔn bak, if dɛn dɔn ɔlrɛdi de trit yu fɔ dis sik, .
- If yu fil se fɔ tek mɛrɛsin nɔ de ɛp
- If yu gɛt fiva ɔ ɔda infekshɔn
Tɛl yu dɔktɔ wantɛm wantɛm. I go gi yu di instrɔkshɔn dɛn we yu nid fɔ mek yu nɔ gɛt prɔblɛm dɛn.
Aw yu de liv wit situeshɔn lɛk dis?
Fɔ liv wit dis sik kin tranga. Yu fɔ tek tɛm wit infɛkshɔn ɔltɛm. Yu kin gɛt fɔ tek mɛrɛsin fɔ di res ɔf yu layf. Bɔt nɔto yu wangren de. Yu dɔktɔ, yu fambul, ɛn padi dɛn kin ɛp yu.
Sɔm simpul tin dɛn de we yu kin du fɔ mek yu nɔ gɛt di sik:
- Wash yu an fayn fayn wan wit sop ɔltɛm. Dis impɔtant mɔ bifo yu it ɛn afta yu dɔn yuz tɔylɛt.
- Gɛt di vaysin dɛn we yu dɔktɔ tɛl yu fɔ gi yu di rayt tɛm.
- Fɔ gɛt bɛtɛ slip .
- Fɔ fala di it we balans ɛn we gɛt wɛlbɔdi .
- Fɔ kɔntinyu fɔ du tin dɛn we yu de du as yu ebul.
Di wan dɛn we yu lɛk kin ɛp bak fɔ protɛkt yu. Tɛl yu fambul ɛn padi dɛn bɔt dis. If dɛn gɛt kol ɔ ɛni ɔda sik, aks dɛn fɔ tɛl yu bifo dɛn kam si yu. Da we de, yu kin mek yusɛf nɔ sik.
Fɔ liv wit dis kayn sik kin tranga sɔm tɛm. Bɔt mɛmba se dis na jɔs wan pat pan yu wɛlbɔdi. I nɔ de sho udat yu bi.
Mɛsej we dɛn kin kɛr go na os
- Praymari imyun dεfisiεns (PIDD) na wan we we dεn bכn wit, jεnεtik wik we di imyun sistεm de wik.
- De men sayn na wae yu kin gɛt infekshɔn ɔltɛm, wae yu kin gɛt siriɔs sik, ɔr kin de fɔ lɔng tɛm.
- If yu ɔ yu pikin gɛt ɛni wan pan dɛn sik ya, i rili impɔtant fɔ go to dɔktɔ pas fɔ dismis dɛn as "jɔs dat."
- If yu no di rayt tin fɔ no bɔt dis sik ɛn yu de mɛn yu fayn fayn wan, yu kin liv gud layf wit dis sik.
- Dis sik na jɔs wan pat pan yu layf, i nɔr de sho udat yu bi.
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