Sɔntɛm yu ɔ pɔsin we yu sabi dɔn tɛl yu fɔ gi yu wan vaysin we dɛn kɔl Ravulizumab. Yu go dɔn tink se di nem strenj smɔl, ɛn yu de wɔnda, "Us kayn mɛrɛsin dis?" Nɔ wɔri. I rili impɔtant fɔ mek yu no ɔltin bɔt ɛni mɛrɛsin bifo yu bigin am. So tide, lɛ wi tɔk jɔs bɔt dis mɛrɛsin we dɛn kɔl Ravulizumab, wetin i de du, ɛn us tin dɛn wi nid fɔ pe atɛnshɔn to.
Wetin na Ravulizumab rili?
Fɔ tɔk am simpul wan, Ravulizumab na spɛshal vaysin we de kɔntrol di wok we wi bɔdi in imyun sistɛm de du. i de pan wan klas dεm we dεn kכl ``monoclonal antibodies.'' Imajin se wi imyun sistεm we lεk wi bכdi in difεns sistεm, sכmtεm de tu aktif sכmtεm εn bigin fכ atak wi כwn gud sεl dεm. Dɛn kayn tɛm ya, dis mɛrɛsin kin ɛp fɔ kɔntrol da ɔva-aktiviti de.
Dɛn kin yuz dis mɛrɛsin mɔ fɔ mɛn sɔm sik dɛn we gɛt fɔ du wit blɔd.
- Atypical Hemolytic Uremic Syndrome (aHUS): Dis na wan sik wae de mek di rεd bכdi sεl dεm de brok dכn εn kכlכt, we de mek di bכdi nכ de kכmכt na di bכdi εn כda kכmplikεshכn dεm.
- Paroxysmal Nocturnal Hemoglobinuria (PNH): Insay dis kכndishכn, di rεd bכdi sεl dεm dεn tu de brok dכn.
- Myasthenia Gravis: Insay dis kכndyushכn, di imyun sistεm de ambɔg di kכmyunikeshn bitwin di nεv dεm εn di mכsul dεm, we de mek di mכsul dεm wik εn taya kwik kwik wan.
Dis mɛrɛsin de wok bay we i de kɔntrol di imyun sistɛm we de wok pasmak, i de mek di rɛd blɔd sɛl dɛn nɔ brok, ɛn i de mek di pletlɛt dɛn nɔ gɛda togɛda we nɔ nid ɛn blok di blɔd vesel dɛn.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
Bifo yu bigin dis tritmɛnt, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt yu kɔmplit wɛlbɔdi kɔndishɔn. Mek shɔ se yu tɔk mɔ bɔt dɛn tin ya.
- If yu gɛt ɛni infekshɔn: Tɛl wi bɔt ɛni infɛkshɔn we yu gɛt, lɛk fiva, kɔf, ɔ kol. Dis mɛrɛsin de stɔp yu imyun sistɛm, we kin mek di infɛkshɔn we dɔn de, wɔs.
- If yu gɛt alɛji: Tɛl wi if yu gɛt ɛni alɛji, nɔto jɔs to Ravulizumab, bɔt to ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ: Mek shɔ se yu tɔk to yu dɔktɔ bɔt dis.
- If yu na mama we de gi pikin in bɛlɛ: Yu fɔ tɛl yu dɔktɔ bak bɔt dis.
Aw dɛn kin gi dis mɛrɛsin?
Dis nɔto mɛrɛsin we yu kin kɛr go na os. Dɛn kin injekt ravulizumab insay wan vein.Dɛn kin gi am to di bɔdi. Dɛn kin du am na ɔspitul ɔ klinik, na dɔktɔ ɔ wan nɔs we dɛn dɔn tren. Dat min se yu fɔ go na ɔspitul fɔ am.
Bifo ɛni tritmɛnt sɛshɔn, dɛn go gi yu wan spɛshal infɔmeshɔn liflet (MedGuide) bɔt dis mɛrɛsin. I rili impɔtant fɔ tek tɛm rid ɛn ɔndastand am ɛvri tɛm.
Dɛn kin gi dis mɛrɛsin bak to pikin dɛn, ɔnda sɔm spɛshal tin dɛn. Dɛn kin gi am ivin frɔm we i ol wan mɔnt. Bɔt spɛshal tin dɛn de fɔ tek tɛm wit we gɛt fɔ du wit am. Yu dɔktɔ go ɛksplen dis to yu.
Wetin fɔ du if di mɛrɛsin doz go ɔp?
Dɛn kin gi dis na ɔspitul, so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se sɔntin dɔn apin to yu, yu fɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta wantɛm wantɛm na di Kɔlɔmbɔ Nashɔnal Ospital , ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) we de nia yu.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
Dis na tritmɛnt we dɛn dɔn plan fɔ du. So, i rili impɔtant fɔ mek yu nɔ mis di de dɛn we yu dɔktɔ gi yu. If fɔ sɔm rizin yu nɔ ebul fɔ atɛnd yu apɔntinmɛnt we yu dɔn sɛtul, kɔl yu dɔktɔ ɔ klinik wantɛm wantɛm ɛn mek dɛn no.
Yu fɔ no bɔt dɛn tin ya we yu de yuz di mɛrɛsin.
Yu dɔktɔ go de wach yu wɛlbɔdi ɔltɛm we yu de tek dis mɛrɛsin. If yu sik nɔr de bɛtɛ ɔr de wɔs, tɛl yu dɔktɔ wantɛm wantɛm.
Bikɔs yu imyun sistɛm kin wik smɔl we yu tek dis mɛrɛsin, yu kin gɛt infɛkshɔn. So yu nid fɔ rili tek tɛm.
If yu gɛt fiva, kol, trot we de at, kɔf, ɔ ɔda tin dɛn we de sho se yu gɛt kol, nɔ fɔ mɛn yusɛf. Kɔl yu dɔktɔ wantɛm wantɛm fɔ advays. Dɔn bak, nɔ fɔ go na say dɛn we pipul dɛn we sik de as mɔ as yu ebul insay dis tɛm. Yu go nid bak fɔ gɛt blɔd wok ɔltɛm.
I kin miks wit ɔda mɛrɛsin dɛn?
Yɛs, sɔm mɛrɛsin dɛn kin miks wit dis. fכ egzampl, mεdikeshכn dεm lεk `(Efgartigimod)` εn `(Immune globulin)`.
So, tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (mɛrɛsin fɔ ɔda sik, vaytamɛn, tradishɔnal mɛrɛsin, sɔpɔtmɛnt) . Nɔto dat nɔmɔ, bɔt if yu de smok, drink rɔm, ɔ yuz ɔda tin dɛn we nɔ rayt, i rili impɔtant bak fɔ yu yon sef fɔ tɛl dɛn ɛn nɔ ayd am.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, dis wan kin gɛt sɔm bad bad tin dɛn. Nɔto ɔlman kin gɛt dɛn. Bɔt i impɔtant fɔ no bɔt dɛn. Lɛ wi sheb dɛn to tu kategori.
| Tayp fɔ di sayd ɛfɛkt | Sayn dɛn |
|---|---|
| Tin dɛm fɔ ripɔt to yu dɔktɔ ɔr tritmɛnt yunit kwik kwik wan | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Sik we de prɛd | Fiva, kol, kɔf, trot we de at, wund we nɔ de wɛl, pen we yu de pis, ɛn bɔdi nɔ de fil fayn. |
| Riakshɔn dɛn we pɔsin kin du wit infushɔn | Chɛst pen, i nɔ kin izi fɔ blo, yu kin fɔdɔm, yu kin fil lɛk yu ed de tɔn. |
| Lɔw blɔd prɛshɔn | Diziz, faint, blurred vishɔn. |
| Tin dɛm fɔ tɛl yu dɔktɔ if dɛn kɔntinyu ɔr de mɔna yu | |
| Kɔmɔn sayd ɛfɛkt dɛn | Daya, fiva, ed pen, nɔs, vɔmit, pen, rɛd, ɔ swel na di say we dɛn injekt. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu notis ɛnitin we nɔ kɔmɔn ɔ we difrɛn, nɔ fred fɔ tɔk to yu dɔktɔ bɔt am.
Mɛsej we dɛn kin kɛr go na os
- Ravulizumab na spɛshal vaysin we de kɔntrol di ɔva aktiviti fɔ di imyun sistɛm ɛn trit kɔndishɔn dɛn lɛk aHUS, PNH, ɛn Myasthenia Gravis.
- Dɛn kin gi dis mɛrɛsin tru wan vein na ɔspitul ɔ klinik.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt ɛni ɔda sik, infɛkshɔn, alɛji, ɛn ɔl di mɛrɛsin dɛn we yu de tek.
- Risk de fɔ gɛt infɛkshɔn we yu de tek dis mɛrɛsin. If yu gɛt sɔm sayn dɛn lɛk fiva ɛn kɔf, go to dɔktɔ wantɛm wantɛm.
- Tek tɛm bad bad wan bɔt di bad bad sayn dɛm lɛk alɛji ɛn i nɔ izi fɔ blo we yu de gi di mɛrɛsin.
- Tɔk opin wan wit yu dɔktɔ bɔt ɛni kwɛstyɔn ɔ tin we de mɔna yu. Nɔ fred ɔ ayd infɔmeshɔn.
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