Oh, na nɔmal tin fɔ fil smɔl wɔri we wi de tink bɔt wi smɔl pikin dɛn, de wɔnda if ɔltin fayn. Sɔntɛnde, dɛn nɔ kin ivin no bɔt am, ɛn wi nɔ kin ivin si am frɔm do. Wan pan dɛn tin dɛn de na Spina Bifida Occulta . Ivin as di nem soun laik big tin, no wori, plenti taims e no bi so serious. Lɛ wi tɔk bɔt dis smɔl mɔ, nɔto so?
Wetin na Spina Bifida Ɔkulta?
fכ simpul wan, Spina Bifida Occulta na difεkt we dεn bכn pikin we de apin we di spayna nכ de divεlכp fayn fayn wan di tεm we di pikin de fכm, we di pikin stil de na di bεlε.
Di wɔd "occulta" min "ayd." dis na di rizin we mek dεn kin kכl am bak "hidden spina bifida." dis na biכs di say we opin na di spayna de kכba wit wan tin we de na di skin, so di כda wכld nכ de si am. Dis min se no difrɛns nɔ de we pɔsin kin si wit in yay. Dis na di kayn spina bifida we nɔ kin izi ɛn we kin kɔmɔn pas ɔl .
Udat de pan ay risk fɔ gɛt Spina Bifida Occulta?
Dis sik kin afɛkt ɛnibɔdi. Bɔt sɔm pipul dɛn kin gɛt smɔl smɔl risk fɔ bɔn pikin wit Spina Bifida Occulta. Lɛ wi tek wan luk pan wetin i bi:
- di fכlet we di mama nכ gεt we i bεlε: fכlet na wan kayn vaytam in B9. I de insay bɔku it dɛn, lɛk grɛn vɛjitebul, ligɛm, nɛt, ɛn ɔl gren. If mama we gɛt bɛlɛ nɔ gɛt dis fɔlet ɔ fɔlik asid inof, i de pan denja.
- Famili histri fɔ spina bifida (jɛnɛtik inflɔɛns): If sɔmbɔdi na yu famili dɔn gɛt dis sik bifo, dat min se smɔl jenɛtik kɔnekshɔn kin de.
- Dayabitis ɔ Fat pan di Mama we gɛt bɛlɛ: If di mama gɛt dayabitis we i nɔ ebul fɔ kɔntrol ɔ i fat, i kin afɛkt di pikin bak.
- di pikin gεt כda jεnεtik kכndyushכn dεm: sכmtεm dis risk kin bכku if di pikin gεt כda jεnεtik kכndyushכn, lεk Down syndrome, Edwards syndrome, כ Patau’s syndrome .
- Sɔm mɛrɛsin dɛn we di mama kin tek fɔ sik dɛn lɛk ɛpilepshɔn: Fɔ ɛgzampul, if i de tek mɛrɛsin dɛn we de mek i nɔ gɛt ɛpilepshɔn lɛk valproate ɔ carbamazepine , dat kin gɛt ɛfɛkt bak.
If yu de plan fɔ gɛt bɛlɛ, i rili impɔtant fɔ tɔk to dɔktɔ bɔt ɛni mɛrɛsin we yu de tek naw ɛn yu famili in jenɛtik histri.
Aw dis sik kin kɔmɔn?
Spina Bifida Occulta na di kayn spina bifida we kin kכmכn pas ɔl . Dɛn se bitwin 10% ɛn 20% pan di pipul dɛm na Amɛrika gɛt dis sik. Dis min se i nɔ kin bɔku lɛk aw yu go tink.
Aw Spina Bifida Occulta de afɛkt mi bɔdi?
Dis na di kayn we we nɔ kin izi fɔ gɛt spina bifida, so i nɔ kin gɛt bɔku siriɔs ifɛkt pan di bɔdi lɛk ɔda kayn bad bad tin dɛn. Di sayn dɛm wae kin afɛkt tin dɛm lɛk fɔ waka nɔr kin bɔrku, mɔr lɛk wae dɛn smɔl. Na lɛk 1 pan ɛvri 1000 pipul dɛm wae gɛt spina bifida occulta kin gɛt dis sik . i kin apin di tεm we di growth spurt we i yכng we dεn de pul di spεnal kכd . Dis kin gɛt smɔl impak pan tin dɛm lɛk di mɔsul trɛnk ɛn kɔntrol di bɔdi ɛn blad. Bɔt ivin da tɛm de, dɛn kin ridyus di sayn dɛm if dɛn tek di rayt tritmɛnt.
Wetin na di sayn dɛm fɔ Spina Bifida Occulta?
As wi bin dɔn tɔk, dis na wan kayn we we nɔ kin rili at fɔ gɛt Spina Bifida, so bɔku tɛm nɔr kin gɛt ɛni sayn . כltu, sכm pikin dεm we gεt Spina Bifida Occulta kin gεt skin tag na dεn lכw bכk we dεn bכn. Dis kin bi:
- Lɛk wan smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl .
- Wan rɛd ɔ pepul spat (hemangioma) .
- Wan dak mak we dɛn bɔn am .
- Wan dimple na di skin.
Bɔt dɛn sayn ya nɔ de sho pan ɛvri pikin.
Na smɔl tɛm nɔmɔ, sɔm sayn dɛn kin apin bikɔs ɔf di nerve damej (nyurolɔjik dɛfisit). Dɛn tin ya na:
- Bɔwel ɛn/ɔ urinary prɔblɛm (e.g. kɔnstipɛshɔn, inkɔntinɛns).
- Bak pen .
- We di mɔsul dɛn na di leg wik .
- Skɔliosis we dɛn kɔl .
Yu kin si di sayn dɛm wae yu dɔn big?
Di sayn dɛm kin apin pan lɛk wan pan ɔl tawzin pipul dɛm, bɔku tɛm we dɛn de yɔŋ, we di spɛnal kɔd kin strɛch we di pikin de gro wantɛm wantɛm. Bɔrku pikin dɛm wae gɛt spina bifida occulta nɔr kin gɛt ɛni sayn. Bɔt dɛn sayn ya we nɔ kin apin so ɔltɛm kin bɔku as di spɛshal kɔd de kɔntinyu fɔ strɛch we i de let fɔ yɔŋ ɔ we i big.
Wetin na di tin dɛn we kin mek pɔsin gɛt Spina Bifida Occulta?
Wi nɔ no yet di rayt tin we kin mek pɔsin gɛt Spina Bifida Occulta , bɔt risach dɔn sho se i kin bi bikɔs ɔf tin dɛn we gɛt fɔ du wit di jɛnɛtiks, di tin dɛn we pɔsin kin it, ɛn di tin dɛn we de apin na di say we i de. Dɛn tin ya na:
- di fכlet (vitamin B9) we di mama de dכn we i bεlε.
- Famili histri bɔt dis sik (jɛnɛtik) .
- Di mama we gɛt bɛlɛ gɛt dayabitis we i nɔ ebul fɔ kɔntrol .
- Fat pasmak na di mama we gɛt bɛlɛ.
- Wan rεspכns to mεdikeshכn lεk valproate כ carbamazepine, wae dεn kin yuse fכ trit kכndyushכn lεk epilepsy.
So if yu de plan fɔ gɛt bɛlɛ, i impɔtant fɔ tɔk to yu dɔktɔ fɔ ɔndastand di risk fɔ mek yu pikin gɛt wan sik lɛk Spina Bifida Occulta. I kin advays yu if yu nid fɔ ad folate ɔ fɔlik asid to yu it, ɔ if ɛni mɛrɛsin we yu de tek naw kin mek yu pikin in wɛlbɔdi de pan denja.
Aw dɛn kin no se pɔsin gɛt Spina Bifida Occulta?
Dɛn kin no di Spina Bifida we uman gɛt bɛlɛ wit ɔltra saund skan . כltu, biכs Spina Bifida Occulta na wan sik we rili mild, "hidden" kכndyushכn, bכku tεm dεn nכ kin no am כ dεn kin כnli no am we i big . Dis na bikɔs de sik nɔr kin gɛt sɔm kayn sik.
Bɔku tɛm dɛn kin no bɔt Spina Bifida Occulta we dɛn du ɛkstrem rayt na di spayna fɔ ɔda aksidɛnt ɔ injuri .
Dɛn kin no bɔt Spina Bifida Occulta tru imej tɛst lɛk ɛkstrem rayt, MRI skan, ɔ CT skan . dis tεst dεm kin gi klia pikchכ fכ di bon dεm na di spayna we nכ fכm fayn fayn wan di tεm we di pikin de fכm.
Aw dɛn kin trit Spina Bifida Occulta?
Di gud nyus na dat bɔku pan di kes dɛm we gɛt Spina Bifida Occulta nɔ nid ɛni tritmɛnt .
Bɔt pan di rare kes dɛm we di sayn dɛm kin apin, di tritmɛnt kin aim fɔ ridyus di prɛshɔn pan di spaynal kɔd. Di tritmɛnt dɛn kin bi:
- כpεraysh כn fכ kכloz di gap bitwin di vεrbra dεm na di spayna.
- Fizik tɛrapi ɔ ɔkupeshɔn tɛrapi fɔ mek di mɔsul dɛn strɔng.
- Yuz tin dɛn we go ɛp yu lɛk bak bres, pɔsin we de waka, ɔ wilchia.
- Gi mɛrɛsin fɔ prɔblɛm wit yu bɔdi ɔ yu urinary.
Wetin na di mɛrɛsin dɛm we dɛn kin gi fɔ Spina Bifida Occulta?
If di sayn dɛm apin, dɛn kin nid mɛrɛsin lɛk dis fɔ trit dɛm:
- Painkillers fɔ bak pen.
- Fɔ prɔblɛm dɛn we gɛt fɔ du wit bɔdi lɛk kɔnstipɛshɔnLaksative, suppositories, ɛn/ɔ inemas.
- Antibayɔtik fɔ mek yu nɔ gɛt infɛkshɔn afta dɛn dɔn du di ɔpreshɔn.
- Spɛshal mɛrɛsin fɔ rilaks di blad ɛn fɔ trit prɔblɛm dɛn we gɛt fɔ du wit yu urinary.
Aw fɔ ridyus di risk fɔ gɛt Spina Bifida Occulta?
Bikɔs wi nɔ no di rayt tin we kin mek i gɛt dis sik, no we nɔ de fɔ mek dɛn nɔ gɛt dis sik kpatakpata. Bɔt if yu de plan fɔ gɛt bɛlɛ, yu kin du dɛn tin ya fɔ ridyus di risk fɔ bɔn pikin wit Spina Bifida Occulta:
- Fɔ tek Fɔlik Asid: Di US CDC (Centers for Disease Control and Prevention) se yu fɔ tek 400 maykrogram (400 mcg) fɔlik asid ɛvride. dis kin ridyus di risk fכ bכn pikin wit Spina Bifida bay lεk 75%!
- Fɔ tɔk to yu dɔktɔ: Tɔk to yu dɔktɔ bɔt ɛni mɛrɛsin, vaytamɛn, ɛn sɔpɔtmɛnt we yu de tek naw. Sɔm mɛrɛsin dɛm, mɔ di wan dɛm fɔ ɛpilepshi, kin ɛp fɔ mek yu gɛt spina bifida occulta.
- Fɔ mɛn di sik dɛn we bin dɔn de bifo: If yu gɛt sik dɛn we bin dɔn de bifo lɛk dayabitis ɔ fɔ fat, wok wit yu dɔktɔ fɔ manej dɛn sik dɛn de bifo yu gɛt bɛlɛ.
- Jɛnɛtik tɛst: If sɔmbɔdi na yu famili dɔn gɛt jenɛtik kɔndishɔn, tɔk to yu dɔktɔ bɔt jenɛtik tɛst fɔ ɔndastand yu risk fɔ gɛt pikin we gɛt jɛnɛtik kɔndishɔn.
Wetin kin apin if a gɛt Spina Bifida Occulta?
No mɛrɛsin nɔ de fɔ Spina Bifida Occulta. Bɔt ilɛksɛf yu gɛt dis sik, yu nɔ go ivin no am bikɔs di sayn dɛn nɔ kin apin so ɔltɛm ɛn i nɔ kin izi fɔ yu. Spina Bifida Occulta kin afɛkt ɔlman difrɛn we. If yu gɛt ɛni diskɔmfɔt ɔ simptom bikɔs ɔf di kɔmpreshɔn na di spɛshal kɔd, tritmɛnt kin ɛp fɔ pul dɛn.
Aw a kin kia fɔ misɛf?
Ɛvri diagnosis fɔ Spina Bifida Occulta difrɛn. Bɔku tɛm, i nɔ kin afɛkt yu ɛvride layf ɔ wok . If yu gɛt di sik, fala di tritmɛnt plan we yu dɔktɔ gi yu.
Ustɛm a fɔ go to dɔktɔ?
Si dɔktɔ if yu gɛt sɔm sayn dɛn fɔ spina bifida occulta, mɔ di wan dɛn we de afɛkt yu muvmɛnt . If yu sik so bad dat yu nɔr ebul fɔ du yu ɛvride woke, go skul, ɔr woke bikɔs yu de fil pen ɔr yu nɔr ebul fɔ kɔntrol yusɛf, go to dɔktɔ fɔ tritmɛnt.
Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?
- A de pan denja fɔ gɛt ɔda pikin wit Spina Bifida Occulta?
- Aw a go gɛt wɛlbɔdi we a gɛt bɛlɛ?
- Wetin na di risk dɛm fɔ du ɔpreshɔn fɔ trit Spina Bifida Occulta?
- Ɛni bad tin de we kin apin to di tritmɛnt dɛn we yu bin dɔn tɔk bɔt?
Wetin na di difrɛns bitwin Spina Bifida Occulta ɛn Spina Bifida Cystica?
Fɔ tɔk am simpul wan, Spina Bifida Occulta na di kayn Spina Bifida we nɔ gɛt bɛtɛ ɛn we kɔmɔn pas ɔl . Bɔrku pipul dɛm wae gɛt dis sik nɔr kin gɛt ɛni sayn ɔr simptom wae de si wae kin afɛkt muvmɛnt.
Spina Bifida Cystica na wan we we rili siriɔs . i de sho se wan sak we fulכp wit wata (cyst) we de kכmכt na di pikin in lכw bכk. dis sak na wan sayn fכ di kכndyushכn dεm we dεn kכl spina bifida mεningosel εn myelomeningocele.
pan tap di pikin dεm we gεt Spina Bifida Occulta gεt gap bitwin di vεrbra dεm na dεn spayna, di sak we fulכp wit wata (cyst) we de kכmכt nכ de si na di כdasay na di spayna.
Bɔrku kes dɛm wae gɛt Spina Bifida Occulta nɔr kin no, ɛn ivin if dɛn no se dɛn gɛt tritmɛnt, dɛn nɔr nid tritmɛnt bikɔs dɛn nɔr gɛt ɛni sayn.
Fɔ dɔn, a fɔ se... (Tek-Home Message)
So, yu go dɔn ɔndastand naw se Spina Bifida Occulta nɔto sɔntin fɔ fred. Bɔku pipul dɛn kin gɛt am, bɔt dɛn nɔ kin ivin no am, ɛn i nɔ kin kɔz ɛni prɔblɛm na dɛn layf.
di tin we impɔtant pas ɔl na dat ɛvri mama we de bɔn pikin fɔ tek inof fɔlik asid bifo ɛn we i gɛt bɛlɛ . I rili impɔtant bak fɔ tɔk opin wan wit yu dɔktɔ bɔt yu wɛlbɔdi, di mɛrɛsin dɛn we yu de tek, ɛn yu famili in wɛlbɔdi istri. Dɔn yu go gɛt bɛtɛ chans fɔ bɔn pikin we gɛt wɛlbɔdi.
If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis, nɔ shek fɔ aks yu dɔktɔ. Na dɛn go ebul fɔ gi yu di bɛst advays.
` Spina bifida occulta, spayna, bכn difεkt, fכlik asid, bεlε, bak pen, hiden spina bifida
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