Yu de gɛt rɛd, sɔntɛnde sɛkɔla spat na yu nɛk, chɛst, bak, ɔ yu an? Dɛn kin skel, dɛn kin skel, ɛn dɛn kin dray? Bɔrku pipul kin wɔri bɔt dis sik. Na nɔmal tin fɔ de wɔnda if na jɔs wan kɔmɔn tin we de apin na yu skin ɔ sɔntin we rili siriɔs. Tide, wi go tɔk bɔt Subacute Cutaneous Lupus Erythematosus, ɔ SCLE fɔ shɔt, wan kayn lupus we de afɛkt di skin nɔmɔ. Wae yu dɔn no dis gud gud wan, i go izi fɔ yu fɔ dil wit dis sik.
Fɔ tɔk am simpul wan, wetin na SCLE?
Okay, mek wi put dis simpul wan. SCLE na wan sik we de pan wan grup fɔ sik dɛn we dɛn kɔl lupus, ɛn i kin afɛkt di skin mɔ. Lupus na sik wae de kam bikɔs ɔf prɔblɛm wit wi bɔdi in imyun sistɛm. Nɔmal wan, wi imyun sistɛm kin fɛt di jem dɛn we kin mek wi gɛt sik. Bɔt pan kɔndishɔn lɛk lupus, dis sistɛm kin mistek bigin fɔ atak wi yon wɛlbɔdi sɛl dɛn.
SCLE na wan kayn lupus we de afɛkt di skin. Dɔktɔ dɛn kɔl am Cutaneous Lupus Erythematosus (CLE). di wod "Subacute" de tכk bכt di kayn inflameshn we dεn kin si na di skin bayopsi, we na sכm sכm pat pan di skin we dεn tek εn egzamin.
Impɔtant tin na dat, lɛk af pan pipul dɛm wae gɛt SCLE gɛt di mɔr kɔmɔn lupus kɔndishɔn, Systemic Lupus Erythematosus, ɔ SLE . SLE na wan sik we nɔ kin afɛkt di skin nɔmɔ, bɔt i kin afɛkt di insay pat dɛn lɛk di kidni, at, ɛn bren. So i impɔtant fɔ tɔk to dɔktɔ if yu gɛt sayn dɛn fɔ SCLE.
Di we aw dis sik kin afɛkt ɔlman kin difrɛn, so i kin at fɔ no smɔl. Di tin we impɔtant pas ɔl na fɔ fɛn dɔktɔ we go lisin to yu ɛn fɛn di rayt tritmɛnt fɔ yu.
Wetin na di men kayn SCLE?
Yu kin si SCLE insay tu men we dɛn. Dɛn tu tin ya luk difrɛn smɔl. Lɛ wi si wetin dɛn bi.
| SCLE tayp | Di we aw i tan ɛn di kwaliti dɛn we i gɛt |
|---|---|
| Anular SCLE we dɛn kɔl | Dis kayn sik kin mek di skin gɛt rɛd, skel, rawnd, ɔ ring-shaped pat (pleks) na di skin. Dɛn pat ya kin apin mɔ na say dɛn we di san de shayn. Afta dɛn pat dɛn ya dɔn wɛl, di skin we de na dɛn say dɛn de kin gɛt smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl. Dɔktɔ dɛn kɔl dis hypopigmentation . |
| Papulosquamous SCLE we gɛt di sik | Dis kayn skin rash de sho se i gɛt smɔl smɔl papul dɛn ɛn i tan lɛk skel. Fɔs, i kin tan lɛk ɛkzema ɔ psoriasis. Dis kayn tin kin mɔna bak we di san de shayn . |
Wetin na di sayn dɛm fɔ SCLE?
Di men sayn fɔ SCLE na we yu skin de rɔsh. Dɛn kin si dɛn tin ya mɔ pan di pat dɛn na yu bɔdi we kin de na di san, lɛk yu nɛk, yu chɛst, yu bak, ɛn yu an.
Dis damej kin tan lɛk dis:
- Rɛd, we tan lɛk ring, ɔval spat dɛn. Sɔntɛnde, dɛn ring ya kin kɔnɛkt to dɛnsɛf ɛn tan lɛk big pɔtn.
- Rɛd, skel, dray, skel skin. Bɔku tɛm dis kin tan lɛk psoriasis.
Di bɛst pat na dat, dɛn spat ya nɔ kin it ɔ lɛf skata . Bɔt di kɔlɔ kin chenj na di skin afta di spat dɛn dɔn wɛl.
Wetin na di tin dɛm we de ɛp fɔ mek SCLE divɛlɔp?
I at fɔ pinpoint wan singl kɔz fɔ SCLE. Na wan kɔmpleks prɔblɛm. Risach pipul dɛn biliv se bɔku tin dɛn kin kam togɛda fɔ mek i gɛt am.
- Di tin dɛn we kin mek pɔsin gɛt jɛnɛtiks: Dis min se i kin gɛt sɔntin fɔ du wit di jɛnɛtiks. If pɔsin na yu famili gɛt lupus, yu kin de pan denja bak.
- Di tin dɛn we de apin na di envayrɔmɛnt: Di tin we impɔtant pas ɔl na di ɔltra vayolɛt raytin , we na di san layt. Apat frɔm dat, dɛn biliv se tin dɛn lɛk fɔ yuz tabak ɛn fɔ yuz peshɛnt sayd kin gɛt impak bak.
- Sɔm mɛrɛsin dɛm: Na lɛk wan pat pan tri pipul dɛm wae gɛt SCLE kin gɛt dis sik afta dɛn dɔn tek sɔm mɛrɛsin dɛm. Dɛn kɔl dis "Drug-induced SCLE."
| Sɔm mɛrɛsin dɛm wae kin mek yu gɛt SCLE |
|---|
| Medikeshɔn dɛn we de mek pɔsin nɔ gɛt fɛns |
| Sɔm mɛrɛsin dɛn we de mek pɔsin nɔ gɛt sik |
| Sɔm blɔd prɛshɔn mɛrɛsin dɛn, fɔ ɛgzampul ACE inhibitors |
| Di mɛrɛsin dɛn we dɛn kin yuz fɔ kimotɛrapi |
| Sɔm mɛrɛsin dɛn we dɛn kin yuz fɔ mɛn gastritis (Proton pump inhibitors - PPIs) . |
| Sɔm mɛrɛsin dɛn we dɛn kin yuz fɔ mɛn sik dɛn lɛk at at sik (tumor necrosis factor inhibitors) . |
Udat de pan ay risk fɔ gɛt SCLE?
- I kin apin mɔ pan uman dɛn pas man dɛn.
- Dɛn kin si am mɔ pan pipul dɛm wae ol bitwin 40 ɛn 60 ia .
- Pan ɔl we i kin bɔku pan wayt pipul dɛn, dis sik kin apin to pipul dɛn we kɔmɔt na ɛni trayb.
Diagnosis ɛn tritmɛnt fɔ di sik
If yu gɛt dɛn sik ya, di fɔs tin we yu fɔ du na fɔ go to dɔktɔ. Dɛn kin sɛn yu to dɔktɔ we de mɛn yu bɔdi ɔ dɔktɔ we de mɛn yu bɔdi.
Aw fɔ no di sik?
Di dɔktɔ go chɛk yu skin ɛn aks yu bɔt yu sik dɛn. Dɔn dɛn kin du dɛn tɛst ya fɔ no if dɛn dɔn no di sik:
- Skin biopsy: Dis na fɔ tek wan rili smɔl sampul pan di skin frɔm wan mol na yu skin ɔnda anestezi ɛn chɛk am ɔnda maykroskɔp. Dis kin ɛp fɔ no if di mol na SCLE ɔ ɔda sik we de na di skin.
- Blɔd tɛst: Dɛn kin du bɔku blɔd tɛst.
- Kɔmplit blɔd kɔnt (CBC) .
- Sed rεt (ESR) εn C-riaktiv protin (CRP) - dεn ya de chεk fכ inflameshn na di bכdi.
- Antinyukliar antibodi (ANA) tεst: Dis na rili imכtant tεst fכ no lupus.
- Kidni ɛn Liva fɔ wok tɛst
- Urinalysis we dɛn kin du
Aw dɛn kin trit SCLE?
Di tin we impɔtant pas ɔl ɛn nɔmba wan tin fɔ trit SCLE na fɔ protɛkt yusɛf frɔm di san , bikɔs di san layt na di men tin we de mek dis sik wɔs.
Apat frɔm dat, yu dɔktɔ kin tɛl yu fɔ tek krim we yu kin put pan yu bɔdi ɔ fɔ tek mɛrɛsin we yu de it, i go bi se yu gɛt di sik.
| Di kayn tritmɛnt we dɛn kin gi | Ɛgzampul dɛn (na di mɛrɛsin prɛskrishɔn nɔmɔ) . |
|---|---|
| Sterɔyd dɛn we dɛn kin put pan pɔsin in bɔdi | Haydrokɔtizɔn, Triamsinɔlɔn, Klɔbɛtasol |
| Ɔda krim dɛn we dɛn kin put pan di skin (Topical calcineurin inhibitors) . | Takrɔlimus, Pimɛkrɔlimus |
| Di mɛrɛsin dɛn we dɛn kin yuz fɔ mɛn malaria | Haydroksiklɔrokin, Klɔrokin |
| Oral immunosuppressive drɔgs dɛn we dɛn kin yuz | Mɛtɔtreksɛt, Azatioprin |
| Ɔda kayn drɔgs dɛn | Dapsone, Retinoids, Mɔnoklɔnal antibodi dɛn (IVIG, Rituximab) . |
Wonin: Nɔ yuz ɛni wan pan dɛn mɛrɛsin ya if yu nɔ gɛt dɔktɔ advays. Na yu dɔktɔ nɔmɔ go ebul fɔ no di bɛst tritmɛnt fɔ yu.
Aw fɔ liv wit SCLE?
SCLE na sik we de te yu layf (we nɔ de mɛn). Dis min se di sik kin bɔku sɔm tɛm ɛn i kin go dɔŋ sɔm tɛm. Bɔt, yu kin kɔntrol am fayn ɛn yu kin liv nɔmal layf.
San protɛkshɔn na nɔmba wan!
Dis na di tin we impɔtant pas ɔl we yu go ebul fɔ du.
- Yuz wan brayt-spɛktrum sanskrin we gɛt SPF 50 ɔ pas dat ɛvride we yu de go na do na di san . Dis na sɔntin we yu fɔ du, ivin pan de dɛn we klawd kin kam.
- Nɔ gɛt di strɔng san bitwin 10 oklɔk mɔnin ɛn 4 oklɔk na nɛt.
- We yu de go na do na di san, wɛr klos we go protɛkt yu frɔm di san, lɛk hat we gɛt wayd brim ɛn klos we gɛt lɔng sliv.
- Stɔp fɔ yuz tanning bed dɛn ɔltogɛda.
Fɔ kia fɔ yusɛf gud gud wan na mɛrɛsin bak!
- Ɔndastand de sik: Rid bɔt dis sik frɔm say dɛm wae yu kin abop pan ɛn tich yusɛf. Dis go mek yu ɔndastand gud gud wan bɔt wetin de apin na yu bɔdi.
- Fɛn dɔktɔ we yu biliv: Yu go nid fɔ go to dɔktɔ ɔltɛm, so kɔntinyu fɔ go to dɔktɔ we de lisin to yu ɛn ɔndastand yu.
- Bil sɔpɔt sistɛm: If yu tɔk to pipul dɛm wae gɛt dis kayn tin ɛn tɛl yu bɔt yu ɛkspiriɛns go gi yu big trɛnk na yu maynd.
- Tek kia ɔf yusɛf: It fayn, ɛksesaiz, slip fayn, ɛn kɔntrol strɛs. Dɛn tin ya go go fa fɔ ɛp yu fɔ kɔntrol di sik.
Bikɔs yu gɛt SCLE ɛn yu nid fɔ protɛkt yusɛf frɔm di san bɔku bɔku wan, yu kin gɛt wan vaytamɛn D we nɔ de . I fayn fɔ tɔk to yu dɔktɔ bɔt dis ɛn tek vaytamɛn D sɔpɔtmɛnt if nid de.
Mɛsej we dɛn kin kɛr go na os
- SCLE na wan sik we de apin to yu layf we de afɛkt di skin na lupus.
- Di men sayn na we yu gɛt rɛd, ring-shaped, ɔ skel pat pan di skin we de na di san.
- Fɔ protɛkt yusɛf frɔm di san na di impɔtant tin ɛn nɔmba wan tin fɔ kɔntrol dis sik.
- Bɔku tɛm, dɛn spat ya nɔ kin it ɔ mek yu gɛt skata, bɔt dɛn kin lɛf biɛn di kɔlɔ we di skin kin chenj.
- If yu gɛt dɛn sik ya, nɔr panik ɛn go to dɔktɔ kwik kwik wan. If yu gɛt di rayt tritmɛnt ɛn manejmɛnt, yu kin liv nɔmal layf.
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