If yu ɔ pɔsin we yu sabi gɛt sistik fibrosis, yu dɔktɔ go dɔn gi yu dis mɛrɛsin we dɛn kɔl Tezacaftor; Ivakaftɔ we de na di wɔl. Di brand nem fɔ dis mɛrɛsin na Symdeko. Bikɔs dis na sɔm spɛshal, mɔdan mɛrɛsin, i rili impɔtant fɔ no gud gud wan bɔt am ɛn yuz am kɔrɛkt wan. So tide, lɛ wi tɔk jɔs bɔt dis mɛrɛsin, aw i de wok, aw fɔ tek am, ɛn ɔl wetin yu nid fɔ tek tɛm wit.
Wetin na Tezacaftor; Ivacaftor na di wɔl?
Fɔ tɔk am simpul wan, dis na wan pil we dɛn kin yuz fɔ mɛn wan sik we dɛn kɔl Sistik Faybrosis (CF). Bɔt dɛn nɔ kin gi am to ɔl di wan dɛn we gɛt CF. Dis mɛrɛsin de wok fɔ pipul dɛn nɔmɔ we gɛt sɔm chenj dɛn na dɛn jin. Yu dɔktɔ go du di tɛst dɛn we yu nid fɔ no if dis mɛrɛsin fayn fɔ yu. I de ɛp fɔ kɔrɛkt wan prɔblɛm wit di prɔtin dɛn na yu bɔdi we CF kin mek. Yu dɔktɔ kin gi yu am bak fɔ ɔda rizin dɛn. So if yu gɛt ɛni kwɛstyɔn, aks yu dɔktɔ.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin dis mɛrɛsin
Bifo yu dɔktɔ gi yu dis mɛrɛsin, i go nid fɔ no yu kɔmplit wɛlbɔdi istri. So, if yu gɛt ɛni wan pan dɛn tin ya, mek shɔ se yu tɛl yu dɔktɔ .
- If yu gɛt sik na yu kidni.
- If yu gɛt liva sik.
- If yu bin dɔn gɛt wan kayn alɛji we nɔ kɔmɔn fɔ di tin dɛn we dɛn kin yuz fɔ mek di it we dɛn kɔl Tezacaftor, Ivacaftor, ɔ ɛni ɔda mɛrɛsin, it, ɔ tin we dɛn kin yuz fɔ mek tin nɔ pwɛl.
- If yu gɛt bɛlɛ, ɔ yu de ɛkspɛkt fɔ gɛt bɛlɛ jisnɔ.
- If yu na mama we de gi pikin in bɛlɛ.
I rili impɔtant fɔ yu yon sef fɔ tɛl di dɔktɔ we yu nɔ ayd dis infɔmeshɔn.
Aw ɛksaktɔli a kin yuz dis mɛrɛsin?
Fɔ mek yu gɛt di bɛst pan dis mɛrɛsin, yu nid fɔ tek am jɔs lɛk aw dɛn tɛl yu fɔ tek am.
- Tek wit it we gɛt fat: Yu fɔ tek dis mɛrɛsin wit it we gɛt fat ɔltɛm . Fɔ ɛgzampul, eg, chiz, pinat bɔta, avokado, ɛn ɔda tin dɛn go ɛp di bɔdi fɔ tek di mɛrɛsin fayn fayn wan.
- Swɛla di tablɛt ɔl: Nɔ brok, krɔs, ɔ chew di tablɛt. Swɛla am ɔl wit wan glas wata.
- Nɔ tek wit Grep Jus: Dis rili impɔtant. Nɔ it ɔ drink greps ɔ grep jus ɔltogɛda we yu de tek dis mɛrɛsin.I kin ambɔg di wok we di mɛrɛsin de du.
- Tek am di rayt tɛm: Tek yu mɛrɛsin di tɛm we yu dɔktɔ tɛl yu fɔ tek am, di rayt tɛm. If na wan tɛm insay di de, tray fɔ tek am di sem tɛm ɛvride.
- Nɔ stɔp fɔ tek yu mɛrɛsin if yu dɔktɔ nɔ advays yu: Nɔ stɔp fɔ tek yu mɛrɛsin we yu nɔ aks yu dɔktɔ fɔs, ilɛksɛf na bikɔs yu fil fayn ɔ fɔ ɛni ɔda rizin.
If yu giv dis mɛrɛsin to pikin dɛn...
Sɔntɛnde dɛn kin gi dis mɛrɛsin fɔ pikin dɛn we dɔn pas 6 ia. Bɔt dis na tin we yu dɔktɔ we de mɛn pikin dɛn go disayd fɔ du. Fɔ fala in instrɔkshɔn dɛn di rayt we.
Wetin fɔ du if yu tek bɔku mɛrɛsin (ɔvados)?
If yu tink se yu dɔn tek ɔvados, nɔ panik ɛn kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta wantɛm wantɛm na di Kɔlɔmbɔ Nashɔnal Ospital . Ɔ, if i pɔsibul , go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu kwik kwik wan.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i nɔ rich 6 awa te yu tek di nɛks doz, skip di doz we yu mis. Jɔs tek di nɛks doz na di tɛm we dɛn dɔn sɛtul. Nɔ ɛva tek tu doz wan tɛm fɔ mek di doz we yu dɔn fɔgɛt.
Ɔda mɛrɛsin dɛm wae kin miks wit dis mɛrɛsin (Drug Interactions) .
Dis mɛrɛsin kin miks wit sɔm ɔda mɛrɛsin dɛn. So, i impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (inklud vaytamɛn, ɛbul mɛrɛsin, ɛn sɔpɔtmɛnt dɛn). Di tebul we de dɔŋ ya de ɛksplen dis mɔ.
| Di kayn drɔg we dɛn kin yuz | Diskripshɔn / Ɛgzampul dɛn |
|---|---|
| Nɔ tek dɛn tin ya togɛda ɔltogɛda. | |
| Sɔm mɛrɛsin dɛn we dɛn kin gi fɔ fit | Kabamazɛpin, Fɛnobarbital, Fɛnitɔyn |
| Mɛrɛsin fɔ TB | Rifampin, Rifabutin, ɛn ɔda pipul dɛn |
| Wan ɔyl we dɛn kɔl herb | Sɛnt Jɔn in Wɔt |
| Wan drink we dɛn kin drink | Grepfruit jus we dɛn kin mek |
| Dɛn tin ya kin miks bak (yuz am ɔnda dɔktɔ advays nɔmɔ) . | |
| Sɔm antibayɔtik dɛn | Klaritromaysin, Ɛritromaysin, Tɛlitromaysin |
| Antifungals dɛn we dɛn kin yuz | Flukonazɔl, Itrakonazɔl, Kɛtokonazɔl, Posakonazɔl, Vɔrikonazɔl |
| Di mɛrɛsin dɛn we dɛn kin gi afta dɛn dɔn transplant dɛn | Sayklɔspɔrin, Ɛvɔrɔlimɔs, Sirolimus, Takrɔlimus |
| Wan mɛrɛsin fɔ at sik | Digoxin we dɛn kin yuz |
Sɔm sayd ɛfɛkt dɛn we pɔsin kin gɛt we yu de tek di mɛrɛsin
Lɛk ɛni mɛrɛsin, dis wan kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Sɔm dɛn siriɔs, sɔm dɛn nɔ at fɔ ɔndastand.
| Tayp fɔ di sayd ɛfɛkt | Sayn dɛn |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
| Alɛji Riakshɔn dɛn | Skin rash, it, swel na yu fes, lip ɔ tong, i nɔ izi fɔ blo. |
| Vishɔn kin chenj | blכr vishכn, chenj dεm na di wayt dεm na di yay (katarakt). |
| Simptom dɛm fɔ Liva Injury | Dak yɔlɔ ɔ brawn urine, yu yay ɔ yu skin de yɔlɔ (jaundice), yu nɔ de want fɔ it, yu nɔ de fil fayn, yu de fil pen na di ɔp rayt say na yu bɛlɛ, yu stɔl we de shayn, yu taya we nɔ kɔmɔn. |
| Kɔmɔn sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Ed de at | Jɛnɛral ed pen. |
| Diziz we pɔsin kin gɛt | Fɔ fil se yu gɛt diziz. Nɔ drayv. |
| Vɔmit | Fɔ fil lɛk se yu de vɔmit. |
| Sayn prɔblɛm dɛn | Nasal kɔnjɛshɔn, mucus. |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, tɛl yu dɔktɔ bɔt dɛn bak.
Mɛsej we dɛn kin kɛr go na os
- Tezakaftɔ we de na di wɔl; Ivacaftor (Symdeko) na spɛshal mɛrɛsin we dɛn kin gi sɔm jenɛtik kɔndishɔn dɛn we gɛt Sistik Faybrosis.
- Dis mɛrɛsin fɔ tek am ɔltɛm wit it we gɛt fat .
- Nɔ drink grep jus ɔltogɛda we yu de tek dis mɛrɛsin.
- Tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek.
- If yu notis ɛni sayn we de sho se yu liva dɔn pwɛl, lɛk we yu de si chenj ɔ yu skin de yɔlɔ , go to dɔktɔ wantɛm wantɛm.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɛni ɔda pɔsin.
- Nɔ shek fɔ aks yu dɔktɔ bɔt ɛni prɔblɛm.
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