Yu kin gɛt ed pen bad bad wan ɛn yu yay kin at? I kin bi wan sik we dɛn kɔl Tolosa-Hunt Syndrome!

Yu dɔn gɛt bad bad ed we yu de muf yu yay wantɛm wantɛm? Ɔ yu kin fil lɛk se yu nɔ ebul fɔ kɔntrol yu yay fayn fayn wan? If yu gɛt sɔm kayn sik lɛk dis, e kin bi bikɔs ɔf wan sik wae nɔr kin bɔrku wae dɛn kɔl Tolosa-Hunt Syndrome, wae wi go tɔk bɔt tide. Nɔ wɔri, wi go tɔk bɔt ɔltin simpul we we yu go ɔndastand.

Wetin na di sik we dɛn kɔl Tolosa-Hunt Syndrome?

Fɔ tɔk am simpul wan, di sik we dɛn kɔl Tolosa-Hunt syndrome na wan sik we nɔ kin apin so ɔltɛm. I kin mek yu ed pen wantɛm wantɛm, bad bad wan ɛn yu kin fil pen we yu de muv yu yay, ɔ yu nɔ kin ebul fɔ muv yu yay igen. Dɛn sayn ya kin kam ɛn go ɔlsay na yu layf. I tan lɛk se yu gɛt pɔsin we yu nɔ invayt na yu os. Dɛn kin ambɔg yu de ɛn mek yu nɔ fil fayn. Bɔt laki laki, dɛn gɔst ya nɔ kin kam rawnd bɔku tɛm.

Risach dɔn sho se di tin we kin mek dis sik kin bi we i de swel biɛn di yay, we na di tin we de kɔmɔt frɔm wi bɔdi in imyun sistɛm (inflammation).

Yu go dɔn yɛri yu dɔktɔ kɔl dis sik wit ɔda nem. Fɔ ɛgzampul:

• `(Oftalmoplejia)`
• `(Rɛkɔrɛnt Ɔftalmoplejia)` (Dat min se i kin kam bak)
• `(Oftalmoplejia Sindrom)`

I nɔ mata us nem dɛn kɔl am, bɔku tɛm i kin min di sem tin: Tolosa-Hunt syndrome.

Aw kɔmɔn tin dis kin apin?

Dis na rili tin we nɔ kin apin so ɔltɛm . If yu luk pan sɔm statystik ɔlsay na di wɔl, stɔdi dɔn sho se lɛk wan pan ɛvri milyɔn pipul dɛn kin gɛt Tolosa-Hunt syndrome. So dis nɔto sik we de ambɔg ɔlman.

Wetin na di sayn dɛm wae de sho se yu gɛt Tolosa-Hunt syndrome?

Dɛn sayn ya kin apin wantɛm wantɛm. De men sayn wae yu kin si na:

• Siriv ed pen: Dis nɔ tan lɛk ed we de at ɔltɛm. dis pen de fil na di כp pat pan di fes, spεshal wan arawnd di yay (a `periorbital headache`). Sɔm pipul dɛn kin fil am lɛk shap pen, lɛk we pɔsin de chuk am wit nɛf. Ɔda pipul dɛn kin fil am lɛk se i nɔ gɛt wan prɔblɛm ɔ i kin fil lɛk se i nɔ gɛt wan prɔblɛm.
• Dabl vishɔn: We yu luk wan tin, i de apia lɛk tu difrɛn tin dɛn. I tan lɛk se dɛn tu yay dɛn nɔ de pe atɛnshɔn fayn. Dis na sayn we kin rili mɔna yu.
• Wik ɔ nɔ ebul fɔ muv di mɔsul dɛn we de rawnd di yay ɛn fes: I kin at fɔ muv di yay, sɔm tɛm dɛn kin ivin go na wan say. Di mɔsul dɛn na di fes kin afɛkt bak.
• Taya we nɔ de dɔn: Yu kin fil taya ɔl di de, lɛk se yu nɔ go ebul fɔ pul di taya ilɛksɛf yu slip bɔku.

Apat frɔm dɛn men tin ya, yu kin si sɔm ɔda tin dɛn bak:

• di yay dεm we de kכmכt (proptosis): i kin tan lεk se wan כ tu yay dεm de kכmכt sכmtεm fכ go bifo.
• Di ɔpa aylid we de drɔp (ptosis):Di ɔp aylid na wan ɔ ɔl tu di yay dɛn nɔ kin ebul fɔ rayz fayn ɛn i kin tan lɛk se i de drɔp.
• Yu nɔ de si fayn: Sɔm pipul dɛn kin gɛt smɔl smɔl tin bak we dɛn nɔ kin si fayn.

Bɔku tɛm, dɛn sayn ya kin afɛkt wan say nɔmɔ na di fes. Dɛn kin apia bak wantɛm wantɛm ɛn dɔn fɔ dɛnsɛf insay sɔm dez (spontaneous remission). Bɔt, dɛn kin kam bak.

Wetin kin mek pɔsin gɛt di sik we dɛn kɔl Tolosa-Hunt?

Fɔ tɔk tru, wi stil nɔ no di rayt tin we kin mek i apin . Bɔt tu men tin dɛn de we dɔktɔ dɛn ɛn pipul dɛn we de stɔdi bɔt dis tink se i pɔsibul:

1. abnכmal כtoimyun rεspכns: Dis na we wi imyun sistεm – di sistεm we de protεkt wi frכm sik – de mistek atak wi כwn hεlty tisu dεm. Insay di sik we dɛn kɔl Tolosa-Hunt syndrome, dis atak kin apin na tu say dɛn we rili sɛnsitiv biɛn di yay. wan na di ``Cavernous Sinus`` , we na wan eria we lεk kכva we gεt imכtant vein dεm εn nεv dεm we de gi bכdi to di bren. di כda wan na di ``Orbital Fissure`` , we na wan opin we di nεv dεm εn bכdi vεsul dεm we de kכnekt to di yay de pas. Wi yon imyun sistɛm kin atak dɛn say dɛn ya, ɛn dis kin mek wi swel de.

.

Dɛn tu pɔynt ya stil de na di risach stej, so i at fɔ tɔk wan patikyula rizin.

Wetin na di risk factor dɛm fɔ dis?

Sɔm tin kin mek yu gɛt mɔr sik wae de mɛk yu gɛt dis sik wae de mɛk yu gɛt Tolosa-Hunt syndrome. Dɛn kɔl dɛn tin ya `trig`. Dɛn tin ya na:

• Fɔ gɛt vayral infɛkshɔn .
• Wan bad bad injuri na in bren .
• Fɔ gɛt tumbu ɛnisay na di bɔdi, mɔ na di ed eria.
• Wan kכndyushכn lεk we di bכdi de dilayshכn כ bulge (aneurysm) .

Nɔto ɔlman go gɛt dis sik jɔs bikɔs dɛn gɛt dɛn tin ya, bɔt de risk kin go ɔp smɔl.

Us prɔblɛm dɛn dis kin mek?

Bɔku tɛm, di sik we dɛn kɔl Tolosa-Hunt syndrome nɔto wan sik we kin mek pɔsin in layf de pan denja. Bɔt, pan sɔm kayn bad bad tin dɛn, i kin afɛkt di we aw yu de si tin. dis kin apin we di swel na di ``Cavernous Sinus'' εn ``Orbital Fissure'' bihayn di yay de spre to di ``Optic Nerve'', di men nεv we de gi wi vishכn. If dis apin, i kin mek i nɔ de si fayn ɔ ɔda tin dɛn we kin mek i nɔ ebul fɔ si fayn. So, e fayn fɔ go to tritmɛnt jɔs lɛk aw di sik dɔn sho.

Aw dɛn kin no dis?

Dɔktɔ go no dis afta i tek tɛm lisin to yu sik, chɛk yu, ɛn tek yu kɔmplit mɛdikal histri. Dis na sɔm kayn tin wae kin kɔmplikt, bikɔs dɛn kin si dɛn sik ya bak pan ɔda mɛdikal kɔndishɔn dɛm.

So, dεn kin du blɔd tεst εn imej tεst fכ kכnfכm di diagnosis εn fכ pul כda kכndyushכn dεm we gεt di sem kayn simptom (fכ egzampl, bren tכmכro כ infεkshכn). Di tu men imej tɛst dɛm we dɛn kin yuz fɔ dis na:

• Computed Tomography (CT) scan: Dis kin yuz X-ray ɛn kɔmpyuta fɔ mek tri-dimɛnshɔnal (3D) pikchɔ fɔ di sɔft tisu ɛn bon dɛn we de insay yu bɔdi. dis kin εp fכ luk fכ tin dεm lεk swεla na di kכva sayn εria.
• Magnetic Resonance Imaging (MRI): Dis kin yuz big magnet, redio wev, ɛn kɔmpyuta fɔ mek pikchɔ dɛn we rili klia bɔt di insay pat na yu bɔdi, mɔ di say dɛn we yu bren ɛn yu yay de. I de tɔk mɔ bɔt am pas CT skan.

di dכkta dεm de yuz dεn skan dεm ya fכ spεshal luk fכ swel na di εria dεm bihayn di yay we dεn kכl ``Cavernous Sinus`` εn ``Orbital Fissure.`` dεn tεst ya de εp bak fכ kכnfכm se nכ כda kכz de.

Ustɛm dɛn kin no se di sik we dɛn kɔl Tolosa-Hunt syndrome?

Pan ɔl we dis sik kin afɛkt pipul dɛn we gɛt ɛni ej, bɔku tɛm dɛn kin no am arawnd 40 ia .

Aw dɛn kin trit dis?

Dɛn kin trit dis wit shɔt tɛm `(Steroid)` kayn mɛrɛsin. Na patikyula, dɛn kin yuz `(Corticosteroids)` kayn mɛrɛsin. Wetin dɛn mɛrɛsin ya de du na fɔ ridyus da swɛlin de (`inflammation`). Bikɔs, di men tin we kin mek yu gɛt dis sik na dis swel biɛn yu yay.

We yu tek dis mεrεsin wae dεn kכl ``Kכtikostεroyd,'' di swεla de dכn, di prεshכn pan di nεv dεm de sכmtεm, εn yu simptom dεm de bכku kwik kwik wan.

Ɛni bad tin de we di tritmɛnt kin du?

Yes, lɛk ɛni mɛrɛsin, `(Corticosteroids)` kin gɛt sɔm sayd ɛfɛkt. So, yu fɔ tɔk bɔt dis wit yu dɔktɔ bifo yu bigin dis mɛrɛsin. Dɔn yu kin ɔndastand am klia wan. Sɔm pan di bad tin dɛn we kin apin to pɔsin na:

• Leg we de swel
• I de mek pɔsin want fɔ it mɔ ɛn mɔ
• Di we aw pɔsin de fil kin chenj
• I izi fɔ mek pɔsin brus
• Di vishɔn we nɔ klia smɔl

Dɛn tin ya nɔ kin apin to ɔlman, ɛn bɔku tɛm dɛn kin stɔp wans dɛn dɔn stɔp di mɛrɛsin.

Aw kwik a go wɛl afta dɛn dɔn trit mi?

Dis na di bɛst nyus. Afta yu dɔn tek di sterɔyd mɛrɛsin lɛk aw dɛn tɛl yu, yu kin bigin fɔ fil fayn fayn wan insay shɔt tɛm, lɛk wan ɔ tri dez. Di pen kin ridyus, i kin izi fɔ muv yu yay, ɛn dɛn sayn dɛn de we kin mek yu vɛks kin dɔn smɔl smɔl.

Jɔs tink bɔt, if yu nɔr gɛt tritmɛnt, de sik kin stɔp fɔ dɛnsɛf insay 15 to 20 dez. Bɔt, yu nɔ want fɔ sɔfa fɔ da lɔng tɛm de. Dɔn bak, ivin afta di sayn dɛn dɔn dɔn, dɛn kin kam bak we yu nɔ bin de tink. So, i bɛtɛ fɔ mek yu gɛt tritmɛnt.

Yu tink se dis na siriɔs tin?

Tolosa-Hunt syndrome nɔto wan sik we de mek pɔsin in layf de pan denja. Bɔt we di sayn dɛn kin apin, i kin tranga fɔ du nɔmal tin dɛn we pɔsin kin du ɛvride, mɔ wit di bad bad ed we de at ɛn di yay prɔblɛm.

Bɔt wit tritmɛnt, di prɔgnosis kin rili fayn. Bikɔs stɛroyd de ridyus di sik dɛn insay 24 to 72 awa, yu go fil fayn jisnɔ ɛn yu go ebul fɔ bigin yu nɔmal tin dɛn bak.

Yu tink se dɛn kin mɛn di sik we dɛn kɔl Tolosa-Hunt syndrome ɔltogɛda?

Bɔt i sɔri fɔ no se, no mɛrɛsin nɔ de fɔ dis sik. Di tritmɛnt na fɔ kɔntrol di sik dɛn ɛn fɔ ridyus dɛn kwik kwik wan. Di sayn dɛn kin kam bak, so dɛn kin nid fɔ gɛt tritmɛnt.

Yu tink se dɛn go ebul fɔ stɔp dis?

Naw, dɛn nɔr no aw fɔ protɛkt dis sik. Bikɔs, as wi bin dɔn tɔk, wi nɔ no di rayt tin we mek i apin, i nɔ kin izi fɔ tɔk aw fɔ mek i nɔ apin.

Ustɛm yu fɔ go to dɔktɔ?

If yu tink se yu gɛt sɔm sayn dɛm fɔ Tolosa-Hunt syndrome – lɛk ed we de at wantɛm wantɛm, we yu de fil pen rawnd yu yay, we yu de si tu tɛm, ɛn we i nɔ izi fɔ muv yu yay – mek shɔ se yu go to dɔktɔ wantɛm wantɛm. Nɔ delay.

Dɔn di dɔktɔ go gi yu stɛroyd fɔ shɔt tɛm fɔ trit yu sik dɛn. Bikɔs dɛn tin ya kin wok kwik, yu go fil fayn jisnɔ ɛn yu kin go bak to yu nɔmal layf.

Us kwɛstyɔn dɛn yu fɔ aks yu dɔktɔ?

We yu go to dɔktɔ, i go fayn fɔ aks sɔm kwɛstyɔn dɛn lɛk dɛn wan ya:

• Yu tink se di sik we dɛn kɔl Tolosa-Hunt syndrome kin afɛkt mi yay?
• A rili nid fɔ tek stɛroyd as tritmɛnt fɔ dis?
• Aw a kin tek `(Steroid)` mɛrɛsin? Aw lɔng a fɔ tek am?
• Wetin na di bad tin dɛn we dɛn tritmɛnt ya kin du? Wetin a fɔ du fɔ protɛkt misɛf frɔm dɛn?
• Wetin a fɔ du if di sik kam bak?

We yu aks kwɛstyɔn dɛn lɛk dis, yu go ɔndastand di sik ɛn aw fɔ trit am fayn fayn wan.

Fɔ dɔn, mɛmba dis (Take-Home Message) .

Tolosa-Hunt Syndrome na wan sik wae kin kam wan wan ɛn kin mek yu gɛt sayn dɛm wae nɔr kin fayn fɔ yu. If yu ed de at bad bad wan, dat kin mek i nɔ izi fɔ du di tin dɛn we yu de du ɛvride. I kin afɛkt bak di we aw pɔsin de si tin. Dɛn sayn ya kin kam ɛn go ɔlsay na yu layf.

Bɔt mɛmba se dis nɔ de mek pɔsin in layf de pan denja, ɛn tritmɛnt dɛn de.If yu yuz stɛroyd fɔ shɔt tɛm, dat kin mek yu nɔ gɛt di sik insay wan to tri dez. So, if yu go to dɔktɔ jɔs lɛk aw di sik dɔn sho ɛn gɛt tritmɛnt, yu kin wɛl kwik ɛn bigin fɔ du di tin dɛn we yu lɛk bak. Nɔ fred, tɔk to yu dɔktɔ bɔt ɛnitin.

` Tolosa-Hunt Syndrome, Hɛd-ak, Ay Pen, Dabl Vishɔn, Stɛroyd, MRI, CT skan, Ɔftalmoplejia, Kavnɔs Saynɔs