We dɔktɔ tɛl yu ɔ yu pikin se yu gɛt kansa we dɛn kɔl "Ependymoma," na nɔmal tin fɔ mek yu fil bad ɛn wɔri. As yu yɛri dis wɔd so, kwɛstyɔn dɛn kin kam na yu maynd. "Us kain sik dis? Wetin mek i kam? Wetin a de du nau?" Na nɔmal tin fɔ mek dɛn kayn tin ya kam na wi maynd. So tide, lɛ wi tɔk bɔt dis sloslo, di we we yu go ɔndastand, ɛn simpul wan.
Wetin na Ɛpɛndimɔma?
Fɔ tɔk am simpul wan, ependymoma na kansa tumbu we kin kam ɛnisay na yu bren ɔ yu spɛnal kɔd. fכs dεn de divεlכp insay wan spεshal tכp sεl (εpεndymal sεl dεm) we de layn di chεmba dεm we fulכp wit wata (vεntrikul) insay yu bren εn di midul pan yu spεnal kכd.
Di gud nyus na dat, i nɔ kin tan lɛk ɔda kayn kansa, i nɔ kin go ɔda pat na di bɔdi (lɛk di liva ɔ di lɔng). Bɔt dɛn tumbu ya kin go na bɔku say dɛn lɛk di bren ɛn di spɛnal kɔd. Ɛspɛshali pan yɔŋ pikin dɛm , dis sik kin mek di chans fɔ kam bak smɔl afta dɛn dɔn trit am.
Fɔ kɔntrol de strɛs ɛn pwɛl hat wae yu kin fil wae yu lan bɔt dis sik lɛk dis impɔtant lɛk aw yu de trit yu. So tɔk to yu fambul ɛn padi dɛn bɔt dis. Dɛn sɔpɔt go bi big trɛnk fɔ yu dis tɛm.
Wetin na di sayn dɛm fɔ dis?
Bɔku tɛm, dɛn tumbu ya kin bigin smɔl ɛn gro smɔl smɔl fɔ lɔng tɛm. So, nɔr kin gɛt ɛni sayn fɔs. We di sayn dɛn kin sho, dɛn kin dipen pan usay di tumbu de.
| Di say we di tumbu de | Fɔ afɛkt di sayn dɛm |
|---|---|
| Insay di Bren |
|
| Na di Spine |
If pikin gɛt dis sik, wan pan di fɔs sayn dɛn we mama kin notis na we di pikin in ed big pas aw i kin bi .
Wetin kin mek pɔsin gɛt ependymoma?
Dɔktɔ dɛn nɔ no di rayt tin we kin mek dis apin, bɔt if yu gɛt wan sik we dɛn kɔl nyurofibromatosis tayp 2, yu kin gɛt dɛn tumbu ya smɔl.
Dis sik kin ambɔg man ɛn uman ikwal wan. Na big pipul dɛm, i kin bɔku pan pipul dɛm wae ol bitwin 40 ɛn 60. Na pikin dɛm, 30% pan di wan dɛm wae dɛn kin ripɔt bɔt dis sik na pikin dɛm wae nɔr rich 3 ia.
Yu tink se kayn tin dɛn de we kin apin to dis?
Yɛs, di dɔktɔ go tɛl yu bɔt di kayn tumbu. Dis na men wan we dɛn kin klas akɔdin to "grɛd". Fɔ tɔk am simpul wan, di mɔ di gred de ay, na di mɔ di tumbu de gro kwik kwik wan.
- Gret I: Dɛn kayn tin ya kin gro sloslo, we nɔ kin gɛt bɔku prɔblɛm. dεn kin divεlכp nia di vεntrikl dεm na di bren כ na di lכw pat pan di spεnal kכd.
- Gret II: Dis na di kayn ependymoma we kin kכmכn pas כl. Bɔku tɛm, i kin apin na di bren.
- Gret III (Anaplastic Ependymoma): Dis na di tכmכro dεm we de gro fast fast, we gεt hεy risk. Bɔrku tɛm dɛn kin divɛlɔp na di bren ɔr skel.
Aw fɔ no dis sik kɔrɛkt wan?
Di dɔktɔ go du sɔm tɛst fɔ no if yu gɛt Ependymoma.
| Tɛst | Wetin yu de du wit am? |
|---|---|
| Fyzikal ɛn nyurolɔjik ɛgzamin | Di dɔktɔ go chɛk yu bɔdi, aks yu bɔt yu wɛlbɔdi istri, ɛn tɛst yu bren ɛn yu nervɔs sistɛm fɔ wok (we de waka, balans). |
| MRI skan we dɛn kin du | dis kin tek rili klia pikchכ dεm fכ di bren εn spεnal kכd. Sɔntɛnde dɛn kin du dis bay we dɛn injekt spɛshal wata (day). Dis kin mek di say dɛn we di kansa sɛl dɛn kin si klia wan na di pikchɔ dɛn. |
| Tap we de na di spaynal | Dɛn go tɔn yu na yu sayd ɛn dɛn go yuz smɔl nidul fɔ tek sɔm drop wata frɔm yu spɛnal kɔd. Dɛn go tɛst dis wata fɔ si if ɛni kansa sɛl de. |
| Bayopsi we dɛn kin du | dis na di onli we fכ bi 100% sכri se tכmכro na Ependymoma. We dɛn de du ɔpreshɔn, dɛn kin tek wan smɔl pat pan di tumbu ɛn chɛk am wit maykroskɔp. dis na aw dεn kin no di kayn tכmכro εn di grεd we di tכmכro de. |
Wetin na di tritmɛnt dɛn?
We dɛn de trit yu, wan tim we gɛt dɔktɔ dɛn go disayd fɔ du di bɛst tin. Dis kin inklud ɔnkɔlɔjis, nyurosɔjɔn, ɛn nyurolɔjis. Di tin dɛn we yu go disayd fɔ du fɔ di tritmɛnt go tek bɔku tin dɛn lɛk yu ej, usay ɛn di kayn tumbu we yu gɛt, ɛn di bad tin dɛn we go apin to yu.
- Wach: If di tumbu de gro sloslo ɛn nɔ gɛt ɛni sayn, yu dɔktɔ nɔ go bigin fɔ trit am wantɛm wantɛm. Bifo dat, dɛn go wach yu kɔndishɔn ɛn du MRI skan lɛk wan tɛm insay di ia.
- Ɔpreshɔn: If di tumbu big ɔ i de mek pɔsin gɛt sɔm sayn dɛn, ɔpreshɔn na di men tritmɛnt fɔ pul bɔku pan di tumbu as i pɔsibul. Afta dɛn dɔn du di ɔpreshɔn, dɛn kin du MRI fɔ mek shɔ se dɛn pul di tumbu ɔlsay. Sɔntɛnde, dɛn kin nid fɔ du ɔda ɔpreshɔn fɔ pul ɛni pat we lɛf.
- Redyushɔn ɔ kemotɛrapi: Dɛn kin yuz dɛn tritmɛnt ya fɔ pwɛl ɛni kansa sɛl we kin lɛf afta dɛn dɔn du di ɔpreshɔn. Bɔt, redyushɔn tɛrapi kin gɛt smɔl risk fɔ pikin dɛn we nɔ rich 3 ia bikɔs i kin afɛkt dɛn growth ɛn di bren divɛlɔpmɛnt. So, tɔk to yu dɔktɔ bɔt di bɛst tin fɔ yu smɔl pikin.
- Targeted Drug Therapy: Dis na nyu tritmɛnt dɛm. Dɛn drɔgs ya de tɔch di kansa sɛl dɛn pan ɔl we dɛn nɔ de pwɛl di sɛl dɛn we gɛt wɛlbɔdi.
Wetin kin apin afta dɛn dɔn trit am?
Sɔm lɔng tɛm sayd ɛfɛkt kin apin afta dɛn dɔn trit am. Dɛn tin ya kin bi wae yu de fil lɛk yu ed wae yu de fil ɛn yu taya, ɛn yu kin gɛt prɔblɛm wit yu maynd lɛk wae yu gɛt pwɛl hat sik. Pikin dɛn kin gɛt prɔblɛm wit dɛn lanin ɔ dɛn kin gɛt prɔblɛm wit dɛn divɛlɔpmɛnt.
Bɔt di 5 ia sɔvayv rɛt fɔ pipul dɛm we dɛn dɔn trit fɔ Ependymoma rili ay. Dis rεt de sכmtεm sכmtεm fכ pikin dεm.
Di impɔtant tin na dat dɛn tumbu ya kin gro bak afta dɛn dɔn trit am, mɔ pan pikin dɛn. If dɛn du dat, bɔku tɛm dɛn kin gro bak na di sem ples we dɛn bin de bifo. So, i impɔtant fɔ go to yu dɔktɔ di tɛm we dɛn dɔn sɛtul ɛn du tɛst fɔ mek shɔ se di kansa nɔ kam bak.
Mɛsej we dɛn kin kɛr go na os
- Ependymoma na kansa wae de kam na di bren ɔr spɛshal kɔd. Bɔku tɛm, i nɔ kin skata to ɔda pat dɛn na di bɔdi.
- di simptom dεm dipכnt pan usay di tכmכro de. Di sayn dɛm kin bi ed we de at if i de na di bren, ɛn bak pen if i de na di spayna.
- MRI ɛn bayɔpsi tɛst impɔtant fɔ kɔnfɔm di sik.
- Na wan tim we gɛt dɔktɔ dɛn kin disayd aw fɔ trit am. Ɔpreshɔn na di men tritmɛnt. Apat frɔm dat, dɛn kin yuz redyushɔn ɛn kemotɛrapi bak.
- Di sɔpɔt we yu fambul ɛn dɔktɔ dɛn kin gi yu ɛn yu pikin na in maynd rili impɔtant fɔ yu ɛn yu pikin we yu de travul.
- I impɔtant fɔ mek dɛn gɛt fɔl-ɔp di tɛm we dɛn dɔn sɛtul, bikɔs dis sik kin kam bak.
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