Yu dɔn ɛva fil lɛk se di wayt dɛn na yu yay ɛn yu skin de tɔn yɔlɔ smɔl? I kin mek pɔsin fred smɔl fɔ si dat, nɔto so? Yu kin tink se na sɔm kayn liva sik. Wan tin we kin mek dis apin na wan sik we dɛn kɔl Gilbert’s syndrome. Bɔt nɔ fred we yu yɛri di nem, i nɔ denja lɛk aw yu go tink. Infakt, na mɔr pan wan jenɛtik kɔndishɔn pas wan sik.
Fɔ tɔk am simpul wan, wetin na di sik we dɛn kɔl Gilbert’s syndrome?
Gilbert’s syndrome na wan sik wae kin pasmak wae kin de na wi famili, dat na, na frεm dεn kin gεt am. Pɔsin we gɛt dis kin gɛt tumɔs west tin we dɛn kɔl bilirubin na in blɔd.
Naw yu go mɔs de wɔnda wetin na bilirubin. I rili simpul. Di rɛd blɔd sɛl dɛn we de na wi bɔdi kin gɛt layf bak. We da layf de dɔn, dɛn kin brok. Bilirubin na yɔlɔ pigmɛnt ɔ dɔti tin we kin apin we di rɛd blɔd sɛl dɛn brok. Nɔmal wan, wi liva kin tek dis bilirubin, prosɛs am, ɛn pul am kɔmɔt na di bɔdi tru bayl.
Bɔt pan pipul dɛm wae gɛt Gilbert’s syndrome, di liva nɔr de prodyuz inof spɛshal ɛnzaym wae de du dis wok. So dɛn nɔ kin ebul fɔ klin di bilirubin kpatakpata, ɛn sɔm pan am kin de na di blɔd. We di bilirubin lɛvɛl na di blɔd go ɔp, sɔntɛnde di yay ɛn di skin kin tɔn yɔlɔ. Wi kin kɔl dis bak janda .
Di impɔtant tin na dat, di sik we dɛn kɔl Gilbert’s syndrome nɔto wan sik we de mek pɔsin denja. I nɔ nid fɔ gɛt tritmɛnt. I nɔ go mek yu layf pwɛl fɔ lɔng tɛm.
Wetin na di rizin we mek dis kayn tin de apin?
Dis na bikɔs ɔf smɔl difrɛns we de na wi jin dɛn. Jɔs lɛk aw wi kin gɛt tin dɛn lɛk skin kɔlɔ ɛn aw wi ia kin kɔmɔt frɔm wi mama ɛn papa, dis na tru bak.
wan jin de na wi bכdi we dεn kכl UGT1A1 . Dis jin de tɛl wi fɔ mek di liva ɛnzaym we a bin dɔn tɔk bɔt we de klin bilirubin. Di sik we dɛn kɔl Gilbert’s syndrome kin kam bikɔs wan smɔl chenj we de apin na dis jin.
Fɔ mek yu gɛt dis sik, yu nid fɔ gɛt tu kɔpi fɔ di jin we dɔn chenj. Dis min se yu fɔ gɛt di jin frɔm yu mama ɛn yu papa ɔl tu . Bɔt ivin if yu gɛt ɔl tu di jin dɛm, nɔto ɔlman go sho di sayn dɛm fɔ Gilbert’s syndrome. Dɔn bak, dis sik kin bɔku pan man dɛn pas uman dɛn.
Wetin na di sayn dɛm wae de sho se yu gɛt Gilbert’s syndrome?
Infakt, bɔku pipul dɛn we gɛt di sik we dɛn kɔl Gilbert’s syndrome nɔ kin gɛt ɛni sayn atɔl . dεn gεt inof liva εnzym dεm fכ kכntrכl di bilirubin lεvεl dεm na dεn bכdi.
Di men ɛn sɔmtɛm di wangren sayn na we di wayt na di yay ɛn skin kin yɔlɔ, we dɛn kɔl janda. If yu si yu yay yɔlɔ, i impɔtant fɔ go to dɔktɔ fɔ chɛk , bikɔs ɔda tin dɛn kin de we kin mek yu yay.
Sɔm pipul dɛn kin gɛt dɛn sik ya wit dɛn yay we kin yɔlɔ:
- Vɔmit ɛn bɛlɛ at pwɛl
- Bɛlɛ nɔ kin fil fayn
- Fɔ fil taya bad bad wan (fatigue) .
- Dak urine
Wetin mek mi yay kin tɔn yɔlɔ sɔm tɛm nɔmɔ, nɔto ɔltɛm?
Dis na fayn kwɛstyɔn. Sɔm tin dɛn de we kin mek wi bilirubin lɛvɛl go ɔp. Dis na di tɛm we wi kin si di yay dɛn we de yɔlɔ.
| Kes dεm we di bilirubin lεvεl de inkrεs εn janda kin apin | |
|---|---|
| Strɛs | Bikɔs ɔf ɛgzam, prɔblɛm dɛn na wokples, ɛn ɔda tin dɛn. |
| Di wata we nɔ de na di bɔdi | Nɔ drink inof wata fɔ di bɔdi. |
| Fɔ skip fɔ it | Nɔ it brɛf ɔ lanch. |
| Fɔ ɛksesaiz pasmak | Fɔ du ɛksesaiz we rili strɛs, lɛk fɔ skwatin. |
| Di kɔndishɔn dɛn we kin mek pɔsin gɛt sik | We yu gɛt sik lɛk fiva ɔ kol. |
| Fɔ drink rɔm | Rɔm kin put mɔ lod pan di liva. |
| Sɔm mɛrɛsin dɛn | Fɔ tek sɔm mɛrɛsin dɛn we kin afɛkt di liva. |
| Menstrueshɔn fɔ uman dɛn | Insay di de dɛn we di mɔnt kin de na di mɔnt. |
Aw fɔ no dis sik?
Pan ɔl we Gilbert in sindrom na wan sik we dɛn bɔn wit, dɛn kin no am mɔ pan pipul dɛn we dɔn pas 20 ɔ 30 ia. Dat sɛf kin apin bay chans.
Imajin se yu de du blɔd tɛst fɔ ɔda rizin. Dɔn yu dɔktɔ si se di bilirubin we de na yu blɔd pas smɔl pas aw i kin bi. Dɔn i kin tink se yu gɛt di sik we dɛn kɔl Gilbert’s syndrome.
Dɔn, fɔ mek shɔ se nɔ ɔda denja sik dɛn de na di liva, di dɔktɔ kin du bɔku tɛst dɛn, lɛk:
- Liva Fɔnkshɔn Tɛst (LFT): Dis na kɔmɔn blɔd tɛst.
- Liva Ultrasound: Fɔ chɛk fɔ ɔda liva prɔblɛm dɛn.
- Jin Tεst dεm: Kכnfכm if yu gεt di UGT1A1 jin mכtεshכn.
- Liva Bayopsi: Dɛn nɔ kin du dis.
Tritmɛnt ɛn wetin wi kin du wisɛf
De gud nyus na dat bɔrku pipul dɛm wae gɛt Gilbert’s syndrome nɔr nid ɛni tritmɛnt , ɛn wae yu yay yɔlɔ, nɔr go kɔz yu ɛni prɔblɛm fɔ lɔng tɛm.
So wetin wi nid fɔ du na fɔ de fa as wi ebul frɔm di tin dɛn we a bin dɔn tɔk bɔt we de mek di bilirubin lɛvɛl go ɔp.
- Nɔ skip fɔ it, mɔ we yu de fast.
- Drink bɔku wata ɛn wata. Nɔ mek yu bɔdi nɔ gɛt wata.
- Manej di strɛs. Du sɔntin we go mek yu rilaks lɛk fɔ tink gud wan, fɔ lisin to myuzik, ɔ fɔ du sɔntin we yu lɛk fɔ du.
- Slip fayn fayn wan. Gɛt at le 7-8 awa fɔ slip insay wan de.
- Limit ɔ stɔp fɔ drink rɔm ɔltogɛda .
- Nɔ du ɛksɛsayz we yu de tray tranga wan. Fɔ ɛksesaiz smɔl fayn, bɔt nɔ push yusɛf pas wetin yu ebul fɔ du.
Wetin yu nid fɔ no we yu de tek mɛrɛsin!
Dis rili impɔtant. If yu gɛt Gilbert’s syndrome, yu nid fɔ no bɔt dis bifo yu tek ɛni nyu mɛrɛsin.
Di sem ɛnzaym we de klin bilirubin na wi liva de ɛp bak fɔ brok ɛn pul sɔm mɛrɛsin dɛn na di bɔdi. So, bikɔs yu gɛt di sik we dɛn kɔl Gilbert’s syndrome, di wok we da ɛnzaym de du kin ridyus smɔl. So, if yu tek dɛn kayn mɛrɛsin ya, dɛn kin gɛda na di bɔdi pasmak.Di risk fɔ gɛt di sayd ɛfɛkt dɛn bɔku.
Fɔ ɛgzampul, luk dɛn mɛrɛsin ya:
- Asetaminofɛn - (I gɛt Panadol, Parasɛtamɔl) .
- Irinotecan - na wan mɛrɛsin we dɛn kin yuz fɔ mɛn kansa
- Sɔm mɛrɛsin fɔ HIV ɛn ɛpatitis C (Protease inhibitors) .
So, ilɛk us nyu mɛrɛsin yu tek, mek shɔ se yu tɛl yu dɔktɔ se yu gɛt Gilbert’s syndrome. I kin gi yu wan sef mɛrɛsin we go fayn fɔ yu. Nɔ ɛva tek ɛni mɛrɛsin we dɔktɔ nɔ tɛl yu ɔ tek pas di doz we dɛn se yu fɔ tek.
Mɛsej we dɛn kin kɛr go na os
- Gilbert’s syndrome na wan sik wae kin kam wae pɔrsin kin gɛt, wae nɔr kin de pan denja, ɛn wae pɔrsin kin gɛt frɔm in mama ɛn papa. I nɔto sik we pɔsin fɔ fred.
- di yay dεm εn di skin de tכn yכlכ (jaundice) biכs di bilirubin lεvεl dεm we de na di bכdi de εlevεt. Bɔrku tɛm, dis kin kam bikɔs ɔf strɛs ɔr sik.
- Nɔ patikyula tritmɛnt nɔ nid fɔ dis. Di bɛst tin fɔ du na fɔ avɔyd tin dɛn we de mek di bilirubin lɛvɛl go ɔp.
- Di tin we impɔtant pas ɔl: If yu gɛt di sik we dɛn kɔl Gilbert’s syndrome, mek shɔ se yu tɛl yu dɔktɔ bifo yu tek ɛni nyu mɛrɛsin.
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