Imajin, yu pikin, mɔ wan yɔŋ bɔbɔ, kin bigin fɔ slip wantɛm wantɛm fɔ sɔm dez. Ilɛksɛf yu tray fɔ wek am, i kin jɔs go slip bak. I kin slip ɔltɛm pas fɔ it ɛn go na di bafa. Eni mama o papa go fred if dem si sohmtin lek dis? E tranga fɔ no if dis na mental prɔblɛm ɔr sɔm ɔda sik. Tide wi de tɔk bɔt wan sik wae nɔr kin bɔrku wae kin mek pɔrsin slip pasmak wae kin de fɔ sɔm dez na wan kayn we wae nɔr kin kɔmɔn. Dat na Kleine-Levin Syndrome, ɔ KLS fɔ shɔt tɛm.
Wetin rili na Kleine-Levin Syndrome (KLS)?
Fɔ tɔk am simpul wan, Kleine-Levin Syndrome (KLS) na wan sik wae nɔr kin bɔrku fɔ slip. Dɛn kin si am mɔ pan yɔŋ bɔy pikin dɛn . 70% pan di wan dɛm wae gɛt dis sik kin fɔdɔm insay dis kategori.
Di men sayn fɔ dis sik na wae pɔrsin kin slip pasmak wan wan tɛm. Insay dɛn tɛm ya, di pɔsin kin tan lɛk se i gɛt wɛlbɔdi ɛn i nɔmal. Dat min se, witout eni symptom.
Dɛn sayn ya gɛt fɔ du wit wan rili impɔtant pat na wi bren. Dat na di haypothalamus . Dis smɔl pat de kɔntrol bɔku tin dɛn lɛk wi slip, angri, tɔsti, apɛtit, ɛn di we aw wi want fɔ du mami ɛn dadi biznɛs. Dɛn biliv se insay di kes fɔ KLS, di wok we dis haypothalamus de du kin pwɛl fɔ sɔm tɛm.
Fɔ mɛn pipul dɛn, dɛn kin kɔl KLS as wan sik we dɛn kɔl hypersomnia, we min se pɔsin kin slip pasmak. Bɔt bikɔs sɔm pan in sayn dɛm kin fiba mɛntɛl sik, sɔmtɛm dɛn kin mistek no se na sik lɛk pwɛl hat.
Di gud nyus na dat, dɛn sayn ya kin go dɔŋ smɔl smɔl we pɔsin de ol. I nɔ kin izi fɔ si KLS simptom pan pɔsin we dɔn pas 50 ia.
Wan patikyula kɔz de fɔ KLS?
Di wan dɛn we de stɔdi bɔt dis nɔ ebul fɔ tɔk fɔ tru yet wetin na di tin we kin mek i apin, bɔt dɛn kin tink se sɔm tin dɛn de apin.
Bɔrku tɛm, wan episod fɔ dis sik kin kam bifo wan ɔndalayn mɛdikal kɔndishɔn, lɛk kol, flu, ɔ ɔda vayral infɛkshɔn .
Apat frɔm dat, sɔm pipul dɛn we de stɔdi bɔt dis biliv se na in ed wund, infɛkshɔn, ɔ wan sik we de ambɔg in bɔdi kin mek i gɛt di sik. Bɔt, i nɔto sik we pɔsin kin gɛt frɔm in mama ɛn papa. I nɔ kin izi fɔ mek sɔm pipul dɛn na di sem famili gɛt dis sik.
Wetin na di sayn dɛm fɔ KLS sik?
As wi bin dɔn tɔk, pan dis sik, di sayn dɛm kin apia lɛk ‘sɔdɛn’ ɛpisod. Wan ɛpisod kin las frɔm wan wik to tu mɔnt . Na avrej, i kin bi bitwin 2 ɛn 12 dis kayn episɔd dɛn insay wan ia.
Insay dis tɛm, yu kin si bɔku big chenj dɛn na di pɔsin in bihayvya ɛn bɔdi. Apat frɔm we pɔsin kin slip pasmak, bɔku ɔda sayn dɛn kin apin.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Slip pasmak | Slip fɔ lɛk 20 awa so insay di de, nɔ wek pas fɔ impɔtant tin dɛn lɛk fɔ it ɔ fɔ go na di bafa. |
| Di we aw pipul dɛn de biev kin chenj | Fɔ vɛks fɔ natin, fɔ vɛks, nɔ bisin bɔt ɔda pipul dɛn, fɔ gɛt pwɛl hat, ɛn fɔ wɔri. |
| Fɔ want fɔ it pasmak | Fɔ it bɔku mɔ pas aw yu kin it. Sɔntɛnde, yu kin ivin want fɔ it tin dɛn we yu nɔ kɔmɔn. |
| Di we aw pɔsin kin du mami ɛn dadi biznɛs pasmak | I nɔ kin izi fɔ mek pɔsin want fɔ du mami ɛn dadi biznɛs ɛn fɔ tɔk ɔ biev bɔt am ɔltɛm. |
| Kɔnfyushɔn ɛn rɔnawe frɔm rial tin | Fɔ fil se yu nɔ de du natin, yu kɔnfyus, ɛn yu de fil lɛk drim ivin we yu wek. Sɔmtɛm, yu kin ivin si tin dɛm wae nɔr de (hallucinations). |
| Mɛmori ɛn atɛnshɔn | Fɔgɛt bɔt tin dɛn we apin, we yu nɔ ebul fɔ pe atɛnshɔn pan sɔntin. |
Bikɔs dɛn episɔd ya kin bigin wantɛm wantɛm, witout ɛni wɔnin , bɔku pipul dɛn we gɛt KLS kin wɛr sɔntin lɛk mɛdikal jɔyri we de tɔk mɔ bɔt dɛn kɔndishɔn.
Aw fɔ no bɔt dis sik? (Diagnosis) .
Fɔ no dis kin tranga smɔl bikɔs nɔto patikyula blɔd tɛst ɔ skan fɔ am. So dɔktɔ dɛn kin tray fɔ pul ɔda sik dɛn we gɛt di sem sayn dɛn. Wi de kɔl dis ‘ruling out’.
Bɔku tɛm, KLS sik kin gɛt fɔ du wit dɛn tin ya:
- Pwɛl hat ɔr Bipolar Disorder
- Narkolepsi, we na wan ɔda prɔblɛm we kin mek pɔsin slip
- Epilepsy we pɔsin kin gɛt
- Mɔltipɛl Sklɛrosis
- Tumɔs dɛn na di bren
- Maygren we kin kam
- Di sayd ɛfɛkt dɛm fɔ sɔm mɛrɛsin dɛm (e.g., Benzodiazepines) ɔ drɔgs
So, yu dɔktɔ go kam fɔ no di kɔrɛkt tin bay we i nɔ go jɔs tɔk to yu, bɔt i go tɔk to yu mama ɛn papa ɛn yu fambul dɛn we dɔn gɛt dis sik.
Wetin na di tritmɛnt dɛm fɔ KLS?
No mɛrɛsin nɔ de fɔ KLS yet. Bɔt sɔm tritmɛnt dɛn de wae kin ɛp fɔ kɔntrol de sik ɛn ɛkstɛnd di tɛm bitwin di episod dɛm. Di men gol fɔ tritmɛnt na fɔ ridyus di sayn dɛm.
Fɔ kɔntrol di slip we pɔsin kin slip pasmak, dɔktɔ dɛn kin gi am tin dɛn we de mek pɔsin slip fayn. Fɔ ɛgzampul:
- Amfɛtamin dɛn
- Methylphenidate we gɛt di sik
- Modafinil we dɛn kɔl Modafinil
Apat frɔm dat, dɛn kin yuz di drɔg we dɛn kɔl lithium fayn fayn wan fɔ kɔntrol di sik dɛn ɛn fɔ mek di tɛm bitwin di episɔd dɛn lɔng. Litiɔm na mɛrɛsin bak we dɛn kin yuz fɔ mɛn pipul dɛn we gɛt maynd sik. Dɛn biliv se dis mɛrɛsin kin wok fayn bikɔs KLS ɛn sɔm mental sik dɛn fiba.
Bɔt dis na sɔntin we yu fɔ mɛmba . I nɔ fayn fɔ yuz ɛni wan pan dɛn mɛrɛsin ya if yu dɔktɔ nɔ advays yu. Na dɔktɔ nɔmɔ go ebul fɔ no di sik kɔrɛkt wan ɛn gi am di rayt mɛrɛsin di rayt we.
Mɛsej we dɛn kin kɛr go na os
- Kleine-Levin Syndrome (KLS) na wan sik wae nɔr kin bɔrku wae kin mɔna yɔŋ bɔy pikin dɛm ɛn kin mek dɛn slip pasmak ɛn kin te fɔ sɔm dez.
- Di sayn dɛm nɔr kin jɔs lɛk fɔ slip pasmak, bɔt fɔ chenj in bihayvya, fɔ it pasmak, ɛn fɔ kɔnfyus.
- Dis nɔto mental sik, bɔt na nyurolɔjik kɔndishɔn we involv di haypothalamus na di bren.
- Fɔ no di sik na kɔmpleks ɛn i nid fɔ pul ɔda sik dɛn we gɛt di sem kayn sayn.
- If yu ɔ pɔsin we yu sabi notis dɛn sik ya, nɔ panik ɛn go to dɔktɔ we sabi du di wok kwik kwik wan.
- Di mɛrɛsin dɛn de we go ɛp fɔ kɔntrol di sik dɛn, bɔt dɛn fɔ jɔs tek dɛn we dɔktɔ tɛl dɛn.
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