As mama ɔ papa, wi ɔl rili bisin bɔt wi pikin in wɛlbɔdi. Sɔntɛnde, ivin wan simpul fiva ɔ pen ɛn pen na pikin kin bi big lod pan wi at. Tide, wi de tɔk bɔt wan kansa we de mek mama ɛn papa dɛn fred, bɔt fɔtunate wan i nɔ kin bɔku, mɔ pan yɔŋ pikin dɛn. Dat na nyuroblastoma. Pan ɔl we di nem kin tan lɛk se yu de mek yu fred, i impɔtant fɔ no bɔt am.
Wetin rili na nyuroblastoma?
Fɔ tɔk am simpul wan, Nyuroblastoma na kansa we kin apin na wan pat pan wi nervɔs sistɛm. Wi gɛt wan nɛtwɔk fɔ di nerv dɛn we de kɛr infɔmeshɔn ɔlsay na wi bɔdi. Tink bɔt am lɛk wi bɔdi in "mɛsej sistɛm." wi kכl dis di `sympathetic nervous system.' Nyuroblastoma kansa de stat na di sεl dεm na dis nεv sεstem.
Di spɛshal tin bɔt dis na dat pas 90% pan di sik pipul dɛn na pikin dɛn we nɔ rich 5 ia yet.I nɔ kin izi fɔ si pikin we dɔn pas 10 ia gɛt dis sik.
Bɔku tɛm, dis kansa kin bigin na tu smɔl smɔl gland dɛn we de mek ɔmon we de ɔp di kidni dɛn. Dɛn kɔl dɛn tin ya di adrenal gland dɛn. Bɔt dis kansa kin bigin ɛnisay na di bɔdi usay dɛn kin fɛn di nerve cells.
Di bɛst tin na dat naw, tritmɛnt dɛn de we rili fayn fɔ dis sik, so pikin dɛn gɛt gud chans fɔ wɛl ɛn liv wɛl layf.
Wetin na di rizin we mek dis kayn tin de apin?
Bɔku tɛm, ɛni kansa kin kam bikɔs sɔm chenj dɛn, ɔ chenj dɛn we kin chenj na sɔm pan di sɛl dɛn na wi bɔdi. Dis kin mek dɛn sɛl dɛn de bigin fɔ gro we dɛn nɔ ebul fɔ kɔntrol ɛn dɛn kin mek tumbu dɛn.
insay nyuroblastoma, dis kin apin to wan kayn nεv sεl we nכ machכ we di pikin stil de na di bεlε. Dɛn kɔl dɛn sɛl dɛn ya we nɔ machɔ nyuroblast. As pikin we gɛt wɛlbɔdi de gro na di bɛlɛ, dɛn nyuroblast ya de divɛlɔp smɔl smɔl fɔ bi machɔ nɛv sɛl dɛn, ɛn di ɔda wan dɛn kin day.
bכt insay pikin in bכdi we gεt Nyuroblastoma, biכs fכ wan jεnεtik mכtεshכn, dεn nyuroblast sεl dεm ya we nכ machכ nכ de day, bכt insted dεn de kכlכm εn gro to kεnsar tכmכro.
Na dis na sɔntin we una as mama ɛn papa fɔ mɛmba: Dis nɔto bikɔs yu de it, ɛksesaiz, di tin dɛn we yu de du na di say we yu de, ɔ ɛni ɔda tin we yu nɔ du. dis na chenj we de apin na di sεl lεvεl na yu pikin in bכdi.
Us sayn dɛn wi fɔ tek tɛm luk fɔ?
De sayn dɛm fɔ dis sik kin difrɛn bad bad wan. Dɛn kin dipen pan usay di kansa gɛt, in saiz, ɛn aw fa i dɔn skata. Sɔm pan de sayn dɛm kin si bak pan kɔmɔn sik dɛm, lɛk kɔmɔn kol ɔr bɛlɛ at, we kin mek i nɔ izi fɔ no di sik smɔl.
"Sɔntɛnde di fɔs sayn dɛm na kɔmɔn tin dɛm lɛk pikin we nɔ de it fayn, fil lɛk se i taya, ɛn i kin gɛt bɔdi pen ɔltɛm. Dɛn kin si dɛn tin ya ivin wit simpul vayral fiva," na so wan dɔktɔ we de mɛn pikin dɛn we gɛt kansa se. So e fayn fɔ no bɔt dɛn sik ya.
| Usay di kansa de | Sɔm sayn dɛn we kin apin |
|---|---|
| Abdominal (bɛlɛ) gɛt fɔ du wit am |
|
| Arawnd di chɛst ɔ di nɛk | |
| We di kansa de go ɔdasay (Metastatic) . |
Tu ɔda spɛshal tin dɛn
- Spɔt dɛn na di skin:insay wan spεshal tכp we de כnli apin pan nyu bכbi dεm, sכm sכm bכmp dεm we lεk bluberi kin apia na di skin. Dis na sayn fɔ sho se di kansa dɔn skata to di skin. Bɔt dɛn kin trit dis sik ɛn bɔku tɛm i kin shɔt ɔ wɛl fɔ insɛf.
- Di tin dɛn we di ɔmon kin du: Sɔm nyuroblastoma tɔŋ dɛn kin pul ɔmon, we kin mek yu gɛt sɔm sayn dɛn lɛk we yu nɔ de taya ɔltɛm, fiva, ay blɔd prɛshɔn, we yu de swet pasmak, ɛn we yu skin de flash.
Aw di dɔktɔ kin no dis sik klia wan?
As wi bin dɔn tɔk, bɔrku pan dɛn sik ya kin fiba kɔmɔn sik, so fɔ no bɔt dis sik kin tranga. So yu dɔktɔ go du bɔku tɛst fɔ no if yu pikin gɛt dis kansa we nɔ kin bɔku.
- Blɔd ɛn urine tɛst: Dɛn tɛst ya de luk fɔ sɔm ɔmon dɛn we nyuroblastoma tɔŋ dɛn we de na di blɔd ɔ urine de mek.
- Imej tɛst: Dɛn tin ya kin ɛp fɔ no usay di kansa de, di sayz, ɛn usay i de skata. Dɛn kin yuz skan lɛk ɔltra saund, ɛkstrem rayt, CT, PET, ɔ MRI fɔ dis.
- Bayopsi: Ɔnda anestezi, dɛn kin tek wan smɔl tisu frɔm di lump ɔ bon mɛro ɛn chɛk am ɔnda maykroskɔp fɔ no if kansa sɛl dɛn de.
- MIBG skan: Dis na spɛshal kayn nyuklia mɛrɛsin skan. dis tεst we dεn kכl ``MIBG skan'' kin sho klia wan usay di Nyuroblastoma sεl dεm de.
Apat frɔm dɛn tɛst ya, dɛn kin chɛk tin dɛn bak lɛk aw di pikin in blɔd sɛl dɛn, di liva, ɛn aw in kidni de wok.
Wetin na di tritmɛnt dɛm fɔ dis?
Di tritmɛnt we pikin kin gɛt kin dipen pan bɔku tin dɛn. Dɛn kin sheb pikin dɛn to tri grup dɛn we gɛt prɔblɛm : di wan dɛn we nɔ gɛt bɔku prɔblɛm, di wan dɛn we gɛt di sik we de bitwin dɛn, ɛn di wan dɛn we gɛt bɔku prɔblɛm, i go dipen pan di pikin in ej, di stej we di kansa gɛt, aw fa i dɔn skata, ɛn di kayn kansa sɛl dɛn. Dɛn kin plan fɔ trit am bay dis risk grup.
Bɔku men we dɛn de fɔ trit pɔsin:
- Observation: Don't be surprised, some low-risk, small lumps will shrink or disappear on their own without any treatment. If na so i bi, dɔktɔ dɛn go de wach di pikin gud gud wan.
- Ɔpreshɔn: Dɛn kin pul di lump kɔmplit wan tru ɔpreshɔn.
- Kimotɛrapi: Fɔ gi pawaful mɛrɛsin dɛn tru wan vein ɔ as pils fɔ kil di kansa sɛl dɛn ɔ fɔ stɔp dɛn fɔ sheb.
- Radieshɔn tɛrapi: Na di we aw dɛn de yuz rayt we gɛt bɔku ɛnaji (lɛk ɛkstrem rayt) fɔ pwɛl di kansa sɛl dɛn.
- Stem sɛl transplant: .Wan tritmɛnt we dɛn kin yuz fɔ pikin dɛn we gɛt ay risk. Insay dis, dɛn kin gɛda di pikin in yon wɛlbɔdi stem sɛl dɛn, dɛn kin yuz ay doz kemotɛrapi fɔ pwɛl di kansa sɛl dɛn, dɔn dɛn kin gi di wɛlbɔdi sɛl dɛn bak na di bɔdi.
- Mɔdan Tritmɛnt: Bɔku nyu tritmɛnt dɛn de tide ɛn we dɔn rili wok fayn.
- Targeted therapy: Fɔ gi drɔgs we de tɔch ɛn blok sɔm patikyula prɔtin ɔ ɛnzaym dɛn we de ɛp di kansa sɛl dɛn fɔ gro.
- Immunotherapy: Fɔ mek di pikin in yon imyun sistɛm no ɛn atak di kansa sɛl dɛn.
Wetin na de chans fɔ wɛl frɔm dis sik?
Dis na di kwɛstyɔn we impɔtant pas ɔl fɔ mama ɛn papa dɛn. di rεt we di pikin de liv fכ nyuroblastoma de dipכnt pan di pikin in ej εn di risk kεtכgrεf.
Pikin dεm we de na di lכw εn mεdiכm risk grup, spεshal yכng pikin dεm, gεt rili hכy chans fכ rεkכv 90% - 95% . Fɔ pikin dɛn we de na di grup we gɛt ay risk, dis nɔmba na lɛk 60% . We teknɔlɔji de go bifo, dɛn pasɛnt ya de go ɔp ɛvride.
So, if yu notis ɛni sayn we yu nɔ biliv, di bɛst tin fɔ du na fɔ go to yu dɔktɔ wantɛm wantɛm ɛn aks fɔ advays.
Mɛsej we dɛn kin kɛr go na os
- Nyuroblastoma na wan kayn kansa we nɔ kin bɔku ɛn we kin afɛkt pikin dɛn we nɔ rich 5 ia yet.
- dis de kכz fכ wan jεnεtik chenj we de apin na di nεv sεl dεm we nכ machכ (nyuroblast) we di pikin de insay di bεlε. Dis nɔto bikɔs ɔf ɛni fɔlt we di mama ɛn papa gɛt.
- Wach fɔ sɔm sayn dɛm lɛk wan lummp na yu bɛlɛ, we yu nɔr ɛksplen to yu wet, brus rawnd yu yay, ɛn bon pen.
- Dɛn kin no dis kɔrɛkt wan tru skan ɛn bayɔpsi tɛst.
- Bɔku we dɛn de fɔ trit dis tide we dɔn rili wok fayn, lɛk ɔpreshɔn, kemotɛrapi, ɛn redyushɔn tɛrapi.
- Di rεkכvεshכn rεt rili hכy, spεshal fכ pikin dεm we de na di lכw εn mεdiכm risk grup. So, i impɔtant fɔ mek wi go to di rayt tritmɛnt we wi nɔ fɔ fred.
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