We yu dɔktɔ tɛl yu se yu pikin we yu nɔ bɔn yet ɔ we yu jɔs bɔn gɛt lip ɔ in palata skata, yu kin fil fɔ shɔk ɛn fred. "Wetin mek dis apin to mi pikin?", "Dɛn kin fiks dis?", "Aw a go fid mi pikin?", ɛn ɔda tin dɛn. Dis na tin we rili nɔmal. Bɔt nɔ wɔri, nɔto yu wangren de. Lɛ wi rili no bɔt dis kɔndishɔn ɛn fes dis joyn togɛda.
Wetin na cleft lip ɛn cleft palate?
Fɔ tɔk am simpul wan, dis na sik we kin apin di tɛm we dɛn bɔn am. Fɔ tɔk di kɔrɛkt tin, dis na tin we kin apin we pɔsin bɔn wit. Nɔ wɔri, pan ɔl we dɛn kɔl am "difɛkt", dis na sɔntin we dɛn kin kɔrɛkt fayn fayn wan tru ɔpreshɔn.
Tink bɔt am, insay di fɔs wik dɛn we di pikin de gro na di bɛlɛ, di pat dɛn na di pikin in fes kin kam togɛda frɔm ɔl tu di say dɛn ɛn kam togɛda na di midul. dis na aw di כp lip εn di כp palata na di mכt de fכm. if fכ sכm rizin dεn tisu dεm ya nכ de jכyn tכgeda fayn fayn wan, sכm sכm gap, כ sכm sכmtεm de lεf de. Na dat wi kin kɔl cleft lip ɔ cleft palate.
Wetin na lip we klin?
di כp lip de divεlכp bitwin 4 εn 7 wiks we di bεlε de. if di tisu nכ fכs fayn dis tεm, wan klif lip de divεlכp. Dis na gap we de na di ɔp lip. Fɔ sɔm bebi dɛn, dis kin tan lɛk smɔl layn. Fɔ ɔda pipul dɛn, i kin bi big gap we de go ɔlsay te to di nos. Sɔntɛnde, dis cleft kin afɛkt di gam dɛn bak.
So wetin na cleft palata?
di ruf fכ di mכt כ di palata de divεlכp bitwin 6 εn 9 wiks we di bεlε de. if di tisu dεm na di palata nכ fכ fכs fayn fayn wan insay dis tεm, wan cleft palata de apin. dis gap kin de na di had palata na di fכnt כ di sכft palata na di bak.
di imכtant tin na fכ di pikin in klip εn in palata de divεlכp insay tu difrεnt stej dεm. So, wi kin si dɛn kayn tin ya difrɛn we dɛn.
- I pɔsibul fɔ gɛt lip we skata nɔmɔ we nɔ gɛt klif palata.
- I pɔsibul fɔ gɛt cleft palata we nɔ gɛt cleft lip.
- klif lip εn cleft palata kin apin tכgeda (dis na wetin dεn kin si bכku tεm).
Wetin mek dis bin apin to mi pikin? Wetin na di rizin dɛn?
Dis kwɛstyɔn kin de mɔna yu. Fɔ tɔk tru, bɔku tɛm, no wan rizin nɔ de we kin mek i apin . Ɛn natin nɔ de we mama ɛn papa dɛn go du fɔ mek i nɔ apin. So nɔ wɔri bɔt am. Sayɛnsman dɛn biliv se dis sik kin kam bikɔs ɔf ɔl tu di tin dɛn we de na di bɔdi ɛn di tin dɛn we de arawnd wi. Dis min se if pɔsin na di famili gɛt dis sik, smɔl chans de fɔ mek di pikin sɛf gɛt am.
| Tin dɛm wae kin mek yu gɛt mɔr risk | Wan simpul ɛksplen |
|---|---|
| Sɔm mɛrɛsin dɛn we dɛn kin tek we uman gɛt bɛlɛ | Antiseizure mɛrɛsin, Accutane fɔ akni, Methotrexate fɔ kansa ɛn at at sik, ɛn ɔda tin dɛn (If yu gɛt bɛlɛ, nɔ tek ɛni mɛrɛsin we yu nɔ gɛt dɔktɔ advays). |
| Di tin dɛn we nɔ gɛt bɛtɛ tin fɔ it | Ɛspɛshali fɔlik asid we nɔ de. Dis na di rizin we mek i impɔtant fɔ tek fɔlik asid bifo yu gɛt bɛlɛ. |
| Mama in wɛlbɔdi kɔndishɔn | Fat, smok ɔ yuz drɔgs we uman gɛt bɛlɛ. |
| Vayrɔs ɔ kemikal dɛn | We yu gɛt sɔm vayrɔs ɔ kemikal dɛn we yu gɛt bɛlɛ. |
Yu tink se dɛn kin no dis sik kwik kwik wan?
Yɛs, bɔku tɛm i pɔsibul. Dɔktɔ dɛn kin no dis kayn cleft na di pikin in fes wit wan anomaly scan , ɔ ɔltra saund, we dɛn kin du arawnd 20 wiks we i gɛt bɛlɛ. Wan lip we skata de klia wan. Bɔt if na klef palata nɔmɔ de we nɔ gɛt klif lip, i nɔ kin izi fɔ no smɔl wit skan.
Ivin if di skan nɔ kech am, we dɛn de chɛk di pikin jɔs afta dɛn bɔn di pikin, di dɔktɔ go chɛk di pikin in mɔt, in nos, ɛn in palata fɔ no if dis sik de.
Us ɔda prɔblɛm dɛn di pikin kin gɛt?
Dis kray wata kin mek di pikin gɛt bɔku prɔblɛm dɛn. We yu no dɛn tin ya, dat go rili ɛp yu.
- I nɔ izi fɔ it ɛn drink:Bikɔs gap de na di palata, milk kin kam ɔp tru di nos we di pikin de sok. Dɔn bak, bikɔs dɛn nɔ kin ebul fɔ mek di rayt vaykum (sɔkshɔn), i kin at fɔ gi pikin in bɛlɛ ɛn fɔ gi am bɔtul.
- Prɔblɛm fɔ yɛri: Bɔku tɛm, pikin dɛn we gɛt cleft palata kin gɛt wata we kin gɛda na dɛn midul yes. If dɛn nɔ trit dis, dis kin mek i nɔ de yɛri fayn.
- I nɔ kin izi fɔ tɔk: Sɔm pikin dɛn kin gɛt prɔblɛm fɔ kɔl wɔd dɛn klia wan we dɛn de tɔk bikɔs dɛn palata nɔ de wok fayn. Dɛn vɔys kin tan lɛk nos.
- Dɛn tit prɔblɛm: If di fis dɔn afɛkt di gam dɛn bak usay di tit dɛn kin kam insay, di tit dɛn kin mis, dɛn kin lɔs, ɔ dɛn kin kam na di rɔng ples.
Dɛn gɛt fayn tritmɛnt ɛn sɔlv fɔ ɔl dɛn prɔblɛm ya. So nɔ wɔri. Wan big tim de fɔ dɔktɔ dɛn fɔ ɛp yu pikin.
Aw dɛn kin trit am? Yu tink se dɛn go ebul fɔ mɛn dis?
Yɛs, i rili pɔsibul! Di men tritmɛnt na ɔpreshɔn . Dɛn kin du dis ɔpreshɔn ɔnda jenɛral anestezi so dat di pikin nɔ go fil natin.
Klɛft Lip Ripair
dis כpεrayshכn kin bi we di pikin ol bitwin 3 εn 6 mכnt . I min se yu fɔ siŋ di gap we de na di lip we yu lɔk. Sɔntɛnde, dɛn kin yuz simpul we dɛn lɛk fɔ tep di lip fɔ mek di lip dɛn kam togɛda bifo dɛn du di ɔpreshɔn. Wan smɔl pink ska go de afta di ɔpreshɔn, bɔt dis go dɔn as di pikin de gro.
Klɛft Palate Ripair
di כpεrayshכn na di palata we dεn kin kכl we di pikin ol arawnd 12 mכnt . Di ɔpreshɔn aim fɔ lɔk di cleft palata fɔ ɛp fɔ it, drink, ɛn tɔk. Bɔku tɛm dɛn kin put di ia tyub dɛn we dɛn de du di ɔpreshɔn fɔ mek wata nɔ gɛda na di yes.
Afta dɛn big big ɔpreshɔn ya, dɛn kin nid fɔ du mɔ ɔpreshɔn as di pikin de gro.
- Fɔ mek yu sabi fɔ tɔk: Arawnd 5 ia.
- Fɔ pripia di gɔm: Dɛn kin nid fɔ graft bon we di tit dɛn we go de sote go bigin fɔ kɔmɔt, bitwin 6 ɛn 10 ia.
- Fɔ mek di fes fayn ɛn di shep we di nos gɛt: We yu yɔŋ.
Di mɛdikal tim we de ɛp yu ɛn yu pikin
Nɔto yu wan de pan dis waka. Wan tim de we gɛt dɔktɔ ɛn wɛlbɔdi biznɛs pipul dɛn we kɔmɔt na difrɛn say dɛn we sabi ɛp yu ɛn yu pikin.
| Spɛshal pɔsin | Di wok we dɛn de du |
|---|---|
| Pikin dɛn we de du Plastik Sɔjɔn | Di men dɔktɔ we de du di pikin in klif lip ɛn palata ɔpreshɔn. |
| Wan dɔktɔ we de mɛn pikin dɛn | Dɛn de wach di pikin in jenɛral wɛlbɔdi, aw i de gro, ɛn aw i de it. |
| Otolaryngologist/ENT we de wok fɔ yu | Wi de chɛk aw di pikin de yɛri ɛn di prɔblɛm dɛn we gɛt fɔ du wit am. |
| Speech-Language Pathologist we de mɛn pipul dɛn we gɛt sik | I de ɛp di pikin in tɔk ɛn langwej skil dɛm. |
| Ɔtodɔntist | Dɛn kin gi tritmɛnt fɔ mek di tit dɛn we krɔs alaynɛd ɛn fɔ kɔrɛkt di say we di jaw de. |
| Wan dɔktɔ we de stɔdi bɔt aw fɔ yɛri | Dɛn kin chɛk di pikin in yɛri ɔltɛm. |
| Laktashɔn Kɔnsult | Dɛn go gayd yu fɔ gi yu pikin in bɛlɛ ɔ gi yu milk tru ɔda we dɛn. |
A kin gi mi pikin in bɛlɛ? Wan kwɛstyɔn we bɔku mama dɛn gɛt.
Dis na kwɛstyɔn we rili impɔtant. Yɛs, sɔm pikin dɛn kin gɛt mama in bɛlɛ , bɔt i nid spɛshal sɔpɔt ɛn gayd.
di pikin de sכk in mama in milk bay we i de mek wan vaykum (sכkshכn) insay di mכt. We gap de na di palata, i nɔ kin izi fɔ mek dis vaykum. So, di pikin nɔ kin ebul fɔ sok milk fayn fayn wan.
- Bɔku tɛm, pikin dɛn we na lip nɔmɔ skata kin ebul fɔ gi pikin dɛn bɛlɛ fayn fayn wan.
- di pikin dεm we gεt כnli sכm gap bihayn di bak pat na di ed kin ebul fכ du dis bak.
- i rili at fכ pikin dεm we gεt big kכlכt, כ we gεt sכpכt lip εn palata, fכ gi pikin in bεlε.
tεm lεk dis, di pikin kin wok tranga wan fכ tray fכ sכk, bכt i nכ kin gεt inof milk fכ fulכp in bεlε.
Wetin a de du?
Nɔ wɔri. di bεst tin we yu kin du na fכ mit wit wan laktashכn kכnsult na di כspitul. I go ɛp yu wit dɛn tin ya:
- Fɛn di say we yu de gi yu pikin in mama in bɛlɛ we go fayn fɔ yu pikin.
- Ɛksprɛs yu milk ɛn tich yu pikin fɔ gi am tin fɔ it wit spɛshal bɔtul, kɔp, spun, ɔ sirinj.
- Speshal bɔtul dɛn de we dɛn mek jɔs fɔ bebi dɛn lɛk dis. A go sho yu wetin dɛn bi.
- Monitor if di pikin de gɛt wet fayn fayn wan.
Ivin if yu nɔ ebul fɔ gi yu pikin in bɛlɛ dairekt wan, we yu ɛksprɛs yu milk ɛn gi yu pikin am de gi di it ɛn imuniti we yu pikin nid fɔ protɛkt am frɔm sik. Na wan pan di gift dɛn we yu pikin kin gɛt we rili valyu.
Mɛsej we dɛn kin kɛr go na os
- Kleft lip ɛn cleft palata na kɔmɔn tin dɛn we dɛn kin bɔn we dɛn bɔn pikin. Dɛn nɔto yu fɔlt.
- Dɛn kin kɔrɛkt dis sik fayn fayn wan tru ɔpreshɔn. Di pikin kin liv nɔmal, wɛlbɔdi layf.
- Dis waka kin tek lɔng tɛm. As yu pikin de gro, yu go nid fɔ du bɔku ɔpreshɔn ɛn ɔda tritmɛnt dɛn. Bɔt wan big tim de we gɛt dɔktɔ dɛn fɔ ɛp yu ɛn yu pikin.
- Pan ɔl we prɔblɛm dɛn kin de fɔs we wi de it, wi kin ebul fɔ win dɛn if dɛn gi yu di rayt advays ɛn sɔpɔt am. Tɔk opin wan bɔt dis wit yu dɔktɔ.
- Yu pikin kin shem fɔ di we aw dɛn luk. I rili impɔtant fɔ lɛ wi lɛk dɛn, sɔpɔt dɛn, ɛn ɛnkɔrej dɛn.
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