Imajin, yu pikin bin rili gladi ɛn nɔmal te yestede. Bɔt dis mɔnin i wek ɛn bi pɔsin we rili difrɛn. Wantɛm wantɛm i kin kray, vɛks, nɔ want fɔ de fa frɔm yu fɔ smɔl tɛm... ɛn sɔntɛnde i kin du di sem tin bak ɛn bak. We dɛn si sɔntin lɛk dis, ɔl mama ɛn papa kin fred bad bad wan, nɔto so? Di rizin fɔ dis kin bi sɔntin we yu nɔ kin ivin tink bɔt. Dat na wan sik we dɛn kɔl PANDAS Syndrome. Lɛ wi tɔk bɔt dis simpul wan ɛn klia wan.
Wetin rili na PANDAS Syndrome?
Fɔ tɔk am simpul wan, PANDAS na nyurolɔjik ɛn saykayatrik kɔndishɔn we kin apin to sɔm pikin dɛn afta dɛn gɛt strɛp trot infɛkshɔn. Di wɔd PANDAS na akɔdin fɔ Pidiatrik Ɔtoimyun Nyurosaykayatrik Disɔda dɛn we gɛt fɔ du wit Strɛptokɔk Infɛkshɔn. Pan ɔl we di nem kin tan lɛk se i kɔmplikt, di men tin we mek dɛn gi am di nem rili simpul.
Wi dɔktɔ dɛn biliv se dis na wan sik we pɔsin kin gɛt we i de fɛt insɛf. Dis na wetin i min. We pikin gɛt strɛp baktri, di difɛns sistɛm na wi bɔdi, di imyun sistɛm, kin bigin fɔ fɛt dis baktri. Bɔt sɔmtɛm, sɔm pat pan dɛn strɛp baktri ya kin rili fiba pat pan di wɛlbɔdi sɛl dɛn na wi bren. So , wi difens sistɛm, we kin go wayl, kin bigin fɔ atak di baktri dɛm ɛn, bay mistek, i kin bigin fɔ atak wi yon wɛlbɔdi bren sɛl dɛm. Na da tɛm de wi kin si dɛn chenj ya we kin apin to wi we wi de biev wantɛm wantɛm.
Dis sik kin de pan pikin dɛm wae ol bitwin 3 ɛn 12. Bɔt i kin apin bak pan pikin dɛm wae dɔn big. Dis na tin we nɔ kin apin so ɔltɛm. So, i rili impɔtant fɔ no dis gud gud wan bifo yu panik.
Wetin na di sayn dɛm fɔ dis? Aw yu no am?
Di men tin we PANDAS gɛt na dat ɔltin kin bigin wantɛm wantɛm, lɛk wan nɛt so. Di we aw di pikin de biev kin chenj bad bad wan. Dɛn sayn ya kin te fɔ sɔm dez ɔr wik. Sɔntɛnde, dɛn kin stɔp ɛn afta dat dɛn kin apia bak.
Si di tebul dɔŋ ya fɔ di men sayn dɛm.
| Tayp we gɛt kwaliti dɛn | Tin dɛn we pɔsin kin si frɔm pikin |
|---|---|
| Di chenj na di we aw pɔsin de biev (lɛk OCD) . | Di kayn we aw pɔsin kin biev lɛk fɔ was yu an ɔltɛm, fɔ aks di sem kwɛstyɔn ɔltɛm, ɛn fɔ chɛk ɔltɛm fɔ si if dɛn lɔk di domɔt (Obsessive-Compulsive Disorder - OCD) . |
| Prɔblɛm dɛn we pɔsin kin gɛt we i de fil | Fɔ fred pasmak fɔ lɛ yu separet frɔm yu mama ɛn papa (separation anxiety), fɔ vɛks wantɛm wantɛm, kray, ɛn laf we yu nɔ min. |
| Di we aw pɔsin de muv di bɔdi (Tics) . | Wantɛm wantɛm, jɔk muvmɛnt lɛk fɔ blink we yu nɔ kɔntrol, fɔ twis yu nɛk, ɛn fɔ shrug yu sholda. |
| Di tin dɛn we gɛt fɔ du wit ɛdyukeshɔn | I nɔ izi fɔ rayt, drɔ, nɔ ebul fɔ pe atɛnshɔn pan skul wok, fɔ sho di sayn dɛm fɔ ADHD. |
| Ɔda tin dɛn we de apin | I nɔ kin want fɔ it, i nɔ kin slip fayn, i kin wet na bed, i kin gɛt pen na di jɔyn dɛn, ɛn i kin fil lɛk layt. |
Wetin na di difrɛns bitwin PANS ɛn PANDAS?
Yu go dɔn yɛri di wɔd PANS. PANDAS na wan sik we de insay wan big kategori we dɛn kɔl PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome). PANS gɛt di sem kayn sayn dɛn we PANDAS gɛt. Bɔt, i nɔ min se na strep infɛkshɔn mek i kam pan am. PANS kin kam bak bikɔs ɔf ɔda infɛkshɔn, tin dɛn we de apin na di say we i de, ɔ ɔda prɔblɛm dɛn we de wit di imyun sistɛm.
Aw dɔktɔ kin no se i gɛt PANDAS?
Fɔ no bɔt PANDAS kin tranga bikɔs no patikyula tɛst nɔ de fɔ kɔnfɔm am. Yu dɔktɔ go tek tɛm chɛk yu pikin, aks yu bɔt di sik dɛn we yu gɛt, ɛn nɔ go alaw ɔda sik dɛn. Dɛn kin du dɛn tɛst ya:
- Trot swab na tɛst we de chɛk fɔ strep baktri dɛm.
- Blɔd tɛst fɔ chɛk aw di imyun sistɛm de wok.
- Sɔntɛnde, dɛn kin skan di bren.
- Go to ɛp frɔm pɔrsin wae sabi bɔt mɛntɛl hεlth fɔ mek shɔ se nɔr ɔda mɛntɛl hεlth kɔndishɔn nɔr de.
Di impɔtant tin na dat, if di pikin nɔ bin gɛt ɔ i nɔ gɛt strep infɛkshɔn naw, i nɔ go ebul fɔ bi PANDAS. Bɔt dɛn sayn dɛn de kin bi wan sik we dɛn kɔl PANS. So, i impɔtant fɔ go to dɔktɔ ɛn aks fɔ advays pan ɔl we i bi.
Wetin na di tritmɛnt dɛm fɔ dis?
Di kwik we dɛn no dis sik ɛn trit am, na di mɔ di pikin in chans fɔ wɛl. Bɔrku tɛm, di tritmɛnt kin gɛt fɔ du wit mɛrɛsin ɛn tritmɛnt.
| Di we aw dɛn kin trit am | Fɔ tɔk am simpul wan... |
|---|---|
| Antibayɔtiks | Di fɔs tin we yu go du na fɔ gi antibayɔtik fɔ kil di strep infɛkshɔn. Yu go nid fɔ tek dɛn tin ya fɔ wan to tu wiks. |
| Kɔgnitiv Biɛvhɔral Tɛrapi (CBT) . | Dis kin ɛp fɔ kɔntrol di pikin in bihayvya ɛn fred we tan lɛk OCD. I de tich di pikin aw fɔ dil wit dɛn tin dɛn de we i de tink bɔt. |
| Drug dɛn we de mek pɔsin nɔ gɛt inflammatory | Dɛn kin gi stɛroyd pil ɔ NSAID lɛk ibuprofen fɔ mek di imyun sistɛm we de wok pasmak kol. |
| Di mɛrɛsin dɛn we de mek pɔsin nɔ fil bad | Dɛn kin gi SSRI mɛrɛsin fɔ kɔntrol di OCD simptom dɛm. Bɔt dɛn fɔ jɔs yuz dɛn ɔnda di sɔpɔtishɔn fɔ dɔktɔ , bikɔs sɔntɛnde dɛn kin mek sayd ɛfɛkt to pikin dɛn we gɛt PANDAS. |
| IVIG / Plasmafεrεsis | If ɔda tritmɛnt dɛn nɔ wok fayn, ɛn di sik dɛn rili bad, dɛn kin yuz dɛn we ya fɔ ‘riset’ di imyun sistɛm. Dis na tritmɛnt dɛn we rili kɔmpleks. |
Yu tink se dis tin go bɛtɛ? Wetin wi fɔ du as mama ɛn papa?
Yɛs, dis na di bɛst nyus. Bɔku pikin dɛn kin wɛl kpatakpata if dɛn trit dɛn fayn. Afta dɛn dɔn wɛl wan strep infɛkshɔn, di sayn dɛm kin stɔp smɔl smɔl fɔ sɔm mɔnt. Bɔt sɔntɛnde, dɛn kin bɛtɛ ɛn kam bak.
Di tin we impɔtant pas ɔl na dat if yu pikin gɛt strep infɛkshɔn bak, di PANDAS simptom dɛn go mɔs apia bak. So, na yu wok fɔ protɛkt yu pikin frɔm infɛkshɔn.
Du dɛn tin ya:
- Praktis gud abit fɔ klin , lɛk fɔ was yu an ɔltɛm ɛn fɔ de fa frɔm pipul dɛn we sik.
- Chenj yu tut brɔsh ɔltɛm.
- Sɔmtɛm, ɔda pipul dɛm na di famili kin gɛt strɛp baktri dɛm we nɔ gɛt ɛni simptom (carriers). If nid de, tɔk to yu dɔktɔ bɔt fɔ mek ɔlman na yu famili tɛst.
Sɔm dɔktɔ dɛn kin se dɛn fɔ tek antibayɔtik fɔ lɔng tɛm fɔ mek dɛn nɔ gɛt di sik tumara bambay, ɛn ɔda wan dɛn kin se dɛn fɔ pul di tonsil, bɔt dɛn stil de chɛk aw dɛn we ya go wok.
Mɛsej we dɛn kin kɛr go na os
- PANDAS Syndrome na rial nyurolɔjik ɛn saykilɔjik kɔndishɔn we kin kam bikɔs ɔf strep trot infɛkshɔn.
- Di men sayn na we pikin we bin dɔn gɛt wɛlbɔdi trade kin chenj wantɛm wantɛm.
- If yu si dɛn sayn ya pan yu pikin, nɔ panik ɔ panik, bɔt go to dɔktɔ we de mɛn pikin dɛn wantɛm wantɛm.
- If dɛn trit dɛn fayn, bɔku pikin dɛn kin wɛl ful wan.
- Fɔ mek yu pikin nɔ gɛt strɛp trot bak na impɔtant tin fɔ mek di sik nɔ kam bak.
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