Bw’oba ggwe oba omwana wo olina obulwadde bwa Beta Thalassemia, tumanyi obulamu bwe buyinza okuba obw’okusoomoozebwa. Okubeera ng’olina okuteekebwamu omusaayi buli kiseera n’okubeera n’ebizibu ebivaamu si kyangu. Naye leero, olw’okukulaakulana kwa ssaayansi w’obusawo, tugenda kwogera ku nkola y’obujjanjabi esobola okuwonya ddala obulwadde buno. Ekyo kwe kusimbuliza obutoffaali obusibuka, oba ng'abantu bangi bwe bakimanyi, ``Stem Cell Transplant''.
Mu ngeri ennyangu, okukyusa obutoffaali obusibuka mu mubiri kye ki?
Kino ka tukitegeere mu ngeri ennyangu ennyo. Kuba akafaananyi ng’omubiri gwaffe gulina ekkolero erikola omusaayi. Kino tukiyita obusigo bw'amagumba . Kino kye kitundu ekiringa sipongi munda mu magumba gaffe amanene. Mu thalassemia, ekibaawo nti ebimu ku byuma (obutoffaali) mu kkolero lino, kwe kugamba, mu busimu bw’amagumba, tebikola bulungi. Kale, obutoffaali obumyufu obulungi, obulamu tebumala bukolebwa.
Mu kusimbuliza obutoffaali obusibuka mu mubiri, obutoffaali bw’amagumba obutakola bulungi mu mubiri gwo buggyibwamu ne bukyusibwa ne buteekebwamu obutoffaali obusibuka mu musaayi (Hematopoietic Stem Cells) okuva mu muntu omulamu. Obutoffaali buno obupya bulinga ekkolero eppya. Zigenda mu magumba go ne zitandika okukola obutoffaali obumyufu obulungi.
Kwe kugamba, kiringa okugoba ebyuma ebikadde ebitakola, n’oteekamu ebyuma ebimu ebipya ddala, n’oddamu okutandika ekkolero.
Enkola eno ey’okusimbuliza egenda etya?
Kino kibaawo mu mitendera egiwerako.
Nga tonnasimbuliza
Okusooka, olina okusaanyaawo obutoffaali bw’amagumba obukadde obutakola bulungi mu mubiri gwo. Ekyo kye kigendererwamu eddagala eriweweeza ku bulwadde (chemotherapy) . Ekigambo "chemo" kiyinza okutiisa abantu abamu, naye wano kikozesebwa okukola ekifo mu busimu bw'amagumba obutoffaali obupya, obulamu okuyingira ne busenga. Kiba ng’okugogola omuddo gwonna omukadde n’oteekateeka ettaka nga tonnasimba.
Mu kiseera ky’okusimbuliza
Kino si kulongoosa kunene nga bw’oyinza okulowooza. Kiba nga okuwa omusaayi. Obutoffaali obusibuka okuva mu muntu agaba obuyambi bufukibwa mu mubiri gwo nga buyita mu ttanka y’akaveera (catheter) eteekebwa mu kifuba kyo. Obutoffaali buno butambula mu musaayi gwo, ne bufuna ekifo kyabwo mu busimu bw’amagumba ne busenga awo. Olwo lwe zitandika okukola obutoffaali bw’omusaayi obulungi.
Obutoffaali buno tubuggya wa?
Kino kye kitundu ekisinga obukulu era ekisoomoozebwa mu bujjanjabi buno. Tetusobola kuggya butoffaali ku muntu yenna yekka. Okukwatagana kw’obuzaale wakati w’oyo agaba n’oyo afuna obuzaale kulina okuba waggulu nnyo.
- Omupiira ogusinga obulungi:Omuntu asinga okuwaayo kino ye muganda oba mwannyina w’omulwadde. Zitera okuba n’obuzaale obusinga obulungi.
- Ebirala by’oyinza okukola: Naye toggwaamu ssuubi nti tofunye muganda wo akwatagana n’owuwo. Waliwo emikisa gy’okufuna omuntu akwatagana n’obuzaale ng’oyita mu biwandiiko by’ensi yonna ebiwandiisa abagaba obuyambi, ne bw’oba tolina luganda. Kino kiyinza okutwala obudde bungi.
Obulabe ki obuli mu bujjanjabi buno?
Nga bwe kiri ku bujjanjabi bwonna obw’amaanyi, waliwo akabi akayinza okuvaamu. Kikulu okuteesa ku bino mu lwatu n’omusawo wo.
| Akabi | Ennyinyonnyola ennyangu |
|---|---|
| Okwonooneka kw’ebitundu by’omubiri | Singa omuwendo gw’ekyuma mu mubiri gweyongera olw’okuteekebwamu omusaayi enfunda eziwera n’ebitundu by’omubiri ng’omutima n’ekibumba ne byonoonebwa, akabi kayinza okweyongera n’okusingawo oluvannyuma lw’okusimbuliza. Eno y’ensonga lwaki kikulu okukola obulungi obujjanjabi bwa chelation nga tonnasimbuliza. |
| Obulwadde bwa Graft okusinziira ku Host (GVHD) . | Ekibaawo mu mbeera eno, obutoffaali bw’omugabi, obupya okuyingizibwa mu mubiri, butegeera omubiri gw’omulwadde nga ‘omulabe’ ne gugulumba. Waliwo eddagala erifuga kino. |
| Yinfekisoni | Eddagala erikozesebwa okufuga GVHD n’eddagala eriweebwa nga tannasimbibwa likendeeza ku busimu bw’omubiri. Kino kikusobozesa okufuna yinfekisoni za bakitiriya. Wabula abasawo bagenda kukuwa eddagala gamba ng’eddagala eritta obuwuka okutangira kino mu kiseera kino. |
Ekikulu, obujjanjabi buno butera okutuuka ku buwanguzi mu bantu abato naddala abaana abali wansi w’emyaka 14. Ate era, ebitundu by’omubiri gye bikoma okwonooneka obutono nga tebannasimbibwa, gye bikoma okuba ebirungi.
Ebizibu ebiyinza okuvaamu oluvannyuma lw’okujjanjabwa
Waliwo ebizibu ebiwerako eby’ekiseera ekitono n’eby’ekiseera ekiwanvu ebiyinza okubaawo oluvannyuma lw’okusimbuliza.
Ekisinga obukulu kwe kukwata ku busobozi bw’okuzaala (Infertility) . Eddagala lya dose ennene eriweebwa nga tebannasimbibwa liyinza okwonoona enkwaso z’abakyala n’okukola ensigo mu basajja. Naye kati waliwo eby’okugonjoola kino nakyo. Abasajja basobola okukuuma ensigo zaabwe ate abakazi basobola okukuuma amagi gaabwe (ensigo/egg freezing) nga tebannaba kujjanjabwa. Kikulu nnyo okwogera n’omusawo wo ku nsonga eno nga bukyali n’okufuna amagezi.
Okugatta ku ekyo, bino wammanga biyinza okubaawo nga wayiseewo akaseera katono nga bamaze okusimbibwa:
- Obulumi mu kamwa oba mu mumiro
- Okuziyira n’okusiiyibwa
- Okuvaamu omusaayi oba okunyiga
- Okuzimba kw’amawuggwe
Kitwala wiiki nga 2 ku 6 obutoffaali buno obusibukamu okugenda mu busimu bw’amagumba, ne butandika okukola, n’okuzza omuwendo gw’obutoffaali mu musaayi gwo mu mbeera eya bulijjo. Ttiimu y’abasawo ejja kukulondoola nnyo mu kiseera kino. Kale tewali kintu kyonna kyeraliikirira.
Obubaka Obutwala Awaka
- Okusimbuliza obutoffaali obusibuka mu mubiri bujjanjabi obusobola okuwonya ddala obulwadde bwa beta thalassemia, naye nga tebusaanira buli muntu.
- Kino kizingiramu okukyusa obutoffaali bw’amagumba obulwadde n’ossaamu obutoffaali obusibuka obufunibwa okuva eri omugabi omulamu.
- Omuntu asinga okusaanira okugaba ye muganda oba mwannyina w’omulwadde, naye n’abawaayo abalala basobola okusangibwa.
- Olw’okuba waliwo obulabe n’ebizibu ebivaamu, kyetaagisa okukubaganya ebirowoozo ku nsonga zonna n’omusawo wo mu bujjuvu nga tonnasalawo ku bujjanjabi buno.
- Obujjanjabi buno buli kiseera bugenda butereera, n’olwekyo sigala ng’olina essuubi ly’ebiseera eby’omu maaso.
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