Omwana wo omuto alina kookolo? (Kkookolo w'abaana) - Kino tukimanye!

Bwe tuwulira ekigambo "kookolo," ffenna tunyiganyiga katono, si bwe kiri? Tewali bigambo bitegeeza kutya n’okukankana kwe tuwulira naddala ng’ekigambo ekyo kikwatagana n’omwana waffe yennyini. Naye teweeraliikiriranga. Leero tugenda kwogera ku kookolo w'abaana. Kikulu nnyo okuba n’okutegeera okutuufu ku kino. Kubanga leero, olw’enkola ez’omulembe ez’obujjanjabi, emikisa mingi nnyo egy’abaana okuwona embeera zino.

Kookolo w’abaana kye ki?

Mu ngeri ennyangu, kookolo w’abaana kibinja kya kookolo akwata abaana abali wakati w’emyaka 0 ne 19. Kuno kw’ogatta kookolo w’abaana, akwata abaana okuva mu buwere okutuuka ku myaka 14, ne kookolo w’abavubuka, akwata abaana abato okuva ku myaka 15 okutuuka ku 19.

Ne mu nsi nga Amerika, abaana nga 15,000 be bazuulibwa ne kookolo buli mwaka. Naye ekisinga obulungi, olw’obujjanjabi obupya, obukwatagana n’abaana, abaana 8 ku 10 bakyali balamu oluvannyuma lw’emyaka etaano. Kyokka, tulina okukijjukira nti ne bwe tuba nga tufunye obujjanjabi buno, tulina okweyongera okufaayo ku bulamu bw’omwana.

Ebika ki ebya kookolo abaana bye bafuna?

Kookolo w’abaana asobola okwawulwamu ebika bisatu ebikulu:

1. Obulwadde bwa Leukemia ne Lymphoma

2. Ebizimba ku bwongo n’omugongo

3. Ebizimba ebikalu

Ka tulabe buli kimu ku bino mu bujjuvu katono.

1. Obulwadde bwa Leukemia ne Lymphoma

Zino kookolo w'omusaayi .

• Leukemia kye kika kya kookolo ekisinga okubeera mu baana. Kitandikira mu magumba g’omwana. Nga bw’omanyi, obusigo bw’amagumba we bukolebwa obutoffaali bwaffe obw’omusaayi.
• Lymphoma etandikira mu butoffaali obukola omusaayi mu nkola y’amazzi g’omwana. Kye kika kya kookolo eky’okusatu mu baana.

Ebika by’obulwadde bwa leukemia ebisinga okubeera mu baana bye bino:

• Acute lymphoblastic leukemia (ALL) - Kino kye kisinga okuzuulibwa kookolo mu baana.
• Obulwadde bwa leukemia obw’amaanyi (AML) .

Ebika by’obulwadde bwa lymphoma ebisinga okubeera mu baana bye bino:

• Obulwadde bwa Hodgkin lymphoma
• Non-Hodgkin lymphoma - Kino nakyo kirina ebika ebitonotono nga Burkitt lymphoma ne diffuse large B-cell lymphoma.

2. Ebizimba ku bwongo n’omugongo

Bino bye bika bya kookolo eby’okubiri mu baana. Zikula ng’obutoffaali obwa bulijjo mu busimu bw’omwana (CNS) bufuuse obutoffaali bwa kookolo. Waliwo ebika bya bino eby’enjawulo, gamba nga Medulloblastoma ne Glioma. Naye amannya gano gonna tegakukwatako, ekikulu kwe kumanya nti kookolo asobola okukula mu bifo bino.

3. Ebizimba ebikalu

Ebizimba ebikalu bitondebwawo obutoffaali bwa kookolo bwe bwawukana, ne bweyongera, ne bwegatta ne bukola ekibinja. Zisobola okukula wonna ku mubiri gw’omwana. Bino bye bimu ku byokulabirako:

• Kookolo w’amagumba - nga osteosarcoma ne Ewing sarcoma.
• Ekizimba ky’obutoffaali bw’obuwuka
• Hepatoblastoma (kookolo w’ekibumba) .
• Obulwadde bw’obusimu obuyitibwa neuroblastoma
• Retinoblastoma (kookolo w’amaaso) .
• Rhabdomyosarcoma (kookolo w’ebinywa) .
• Ekizimba kya Wilms (kookolo w’ekibumba) .

Bubonero ki obwa kookolo w’abaana?

Wano waliwo ekintu ekikulu ennyo. Obubonero bwa kookolo mu baana oluusi buyinza okufaananako n’obubonero bw’endwadde endala mu baana abato. Lowooza ku kino, abaana abato bangi balumwa omutwe, olubuto, n’ebiwundu ebitonotono. Bino byonna si bubonero bwa kookolo. Wabula singa wabaawo obubonero buno obusigala oba ne bweyongera, olina okwogera n’omusawo ku bubonero.

Okusobola okukuyamba okumanya ebikwata ku kookolo w’abaana, ekibiina ekinoonyereza ku kookolo w’abaana kikoze olukalala lw’obubonero obugenda okukuyamba okujjukira ennukuta z’ekigambo ky’Olungereza `CHILDCANCER`. Ka tulabe kiki kye bali:

• C - `Okugejja okugenda mu maaso, okutannyonnyolwa`: Okugejja okugenda mu maaso, okutannyonnyolwa.
• H - `Okulumwa omutwe, emirundi mingi nga osesema ku makya`: Okulumwa omutwe naddala nga kuwerekerwako okusesema ku makya.
• I - `Okuzimba okweyongera oba obulumi obutasalako mu magumba, ennyondo, omugongo oba amagulu`: Okweyongera okuzimba oba okulumwa obutasalako mu magumba, ennyondo, omugongo oba amagulu.
• L - `Ekizimba oba ekizimba`: Singa ekizimba oba ekizimba kisangibwa mu bulago, mu kifuba, mu nnyindo, mu lubuto, oba mu kisambi.
• D - `Okukula kw’ebiwundu ebiyitiridde, okuvaamu omusaayi oba okusiiyibwa`: Okunyiga ennyo, okuvaamu omusaayi (e.g. okuvaamu omusaayi mu nnyindo, okuvaamu omusaayi mu nnyindo) oba okusiiyibwa okw’amangu ku lususu awatali nsonga yonna.
• C - `Obulwadde obutasalako, obutera oba obutasalako`: Yinfekisoni ezitera okubeerawo era ezitaggwaawo (e.g. omusujja, okusesema).
• A - `Langi enjeru emabega w’omuyizi`: Singa langi enjeru erabika munda mu liiso, emabega w’amaaso amaddugavu (omuyizi).
• N - `Okuziyira okusigala, oba okusesema nga tekuziyira`: Okuziyira okusigala, oba okusiiyibwa nga tekuziyira.
• C - `Okukoowa buli kiseera (okukoowa) oba okufuuka omumyufu okweyoleka (pallor)`: Okukoowa buli kiseera (okukoowa) oba okuddugala okweyoleka (pallor)`.
• E - `Enkyukakyuka mu maaso oba mu kulaba ezibeerawo mu bwangu ne zisigala`: Enkyukakyuka mu kulaba ezibeerawo mu bwangu ne zisigala (e.g., okulaba ekintu kimu oba ebintu bibiri, okulaba okuzibuwalira).
• R - `Omusujja oguddirira oba ogutaggwaawo`: Omusujja ogudda oba ogugenda mu maaso (naddala ogutalina nsonga etegeerekeka) okusinga omusujja ogwa bulijjo.

Omwana wo bw’aba n’obubonero buno obumu oba obusingawo, tekitegeeza nti alina kookolo. Wabula kirungi okunoonya amagezi g’abasawo okusobola okuggyawo okubuusabuusa kwonna.

Lwaki abaana bafuna kookolo?

Kookolo abaawo ng’obuzaale bwaffe bukyuse (mutations) ne bukola obutoffaali obutali bwa bulijjo. Obutoffaali buno obwa kookolo obutali bwa bulijjo bwawukana mangu, ne buziba obutoffaali obulamu. Singa kookolo ono tajjanjabwa, asobola okusaasaana mu mubiri gwonna (metastatic cancer).

Ensonga ze zimu ezireeta kookolo mu bantu abakulu (okunywa sigala, okubeera omusana, eddagala) okutwalira awamu tezikwata ku kookolo mu baana. Enkyukakyuka zino mu buzaale zibeerawo mu baana olw’ensonga abanoonyereza ze bakyanoonyerezaako. Enkyukakyuka zino zisobola okubaawo nga omwana tannazaalibwa oba nga amaze okuzaalibwa.

Ekirungi, okunoonyereza ku kookolo kuzudde enkyukakyuka mu buzaale ezikwatagana ne kookolo omu ow’abaana. Amawulire gano gayamba abasawo okulonda enteekateeka y’obujjanjabi esinga okukola obulungi eri omwana waabwe.

Waliwo ebintu ebiyinza okuleeta akabi?

Abasawo bakimanyi nti obuzibu obumu obw’obuzaale obusikira omwana busobola okwongera ku bulabe bw’omwana okufuna kookolo. Ng’ekyokulabirako, mu Amerika, abaana nga 8 ku 10 ku buli 100 abalina kookolo balina embeera y’obuzaale ekwatagana nayo. Eby’okulabirako mulimu obulwadde bwa Li-Fraumeni syndrome ne Down syndrome.

Kino tekitegeeza nti buli mwana alina embeera eno ajja kufuna kookolo. Kyokka omwana wo bw’aba alina embeera eno, omusawo ayinza okukuwa amagezi okwekebejjebwa kookolo.

Abasawo bazuula batya kookolo mu baana?

Abasawo bakozesa ebigezo ebiwerako okuzuula kookolo:

• Okukebera omusaayi: Bino bikebera oba waliwo ebitali bya bulijjo mu butoffaali bw’omusaayi bw’omwana. Bino biyinza okuba akabonero ka kookolo.
• Okukebera ebifaananyi: Bino bisobozesa omusawo okulaba ebifaananyi by’ebitundu by’omubiri n’ebitundu ebiri munda mu mubiri gw’omwana wo. Eby’okulabirako mulimu CT scans, MRIs, PET scans, ne ultrasounds.
• Biopsy: Sampuli y’amazzi oba ebitundu by’omubiri bagiggya mu kifo ekiteeberezebwa era omusawo w’endwadde n’agikebera mu microscope okulaba oba waliwo obutoffaali bwa kookolo.
• Bone marrow biopsy and bone marrow aspiration : Sampuli y’obusimu bw’amagumba bagitwala okukebera kookolo.
• Okuboola omugongo : Kino kizingiramu okutwala sampuli y’amazzi g’omwana ag’omu bwongo (CSF) (amazzi amatangaavu ageetoolodde obwongo n’omugongo) okukebera obutoffaali bwa kookolo oba obubonero bw’ekizimba.
• Okukebera obuzaale: Bino binoonya enkyukakyuka mu buzaale ezikwatagana ne kookolo omu ow’abaana. Bino bisobola okuyamba okulonda obujjanjabi obusinga obulungi.

Kookolo w’abaana ajjanjabibwa atya?

Waliwo obujjanjabi obuwerako ku kookolo w’abaana:

• Chemotherapy: Buno bwe bujjanjabi obusinga okukozesebwa ku kookolo w’abaana. Kizingiramu okuwa eddagala okutta obutoffaali bwa kookolo. Omwana ajjanjabibwa mu mitendera. Buli cycle erimu olunaku lw’okujjanjabibwa n’olunaku lw’okuwona.
• Obujjanjabi bw’amasannyalaze: Kino kizingiramu okukozesa ekyuma okusindika obusannyalazo okukendeeza oba okusaanyaawo ekizimba. Oba, ekyuma ekifulumya emisinde eri ekizimba kiyinza okuteekebwa munda mu mubiri gw’omwana.
• Okusimbuliza obutoffaali obusibuka mu mubiri: Kino kiyinza okuba eky’okukola singa omwana wo alina obulwadde bwa leukemia oba lymphoma. Okusooka, eddagala lya dose ennene liweebwa okutta obutoffaali bwa kookolo. Oluvannyuma, obutoffaali obukola omusaayi obulungi buggyibwa ku muntu agaba omusaayi ne buweebwa omwana.
• Okulongoosa: Oluusi abasawo abalongoosa basobola okuggyawo ddala ebizimba ebigumu. Emirundi emirala, omwana ayinza okwetaaga obujjanjabi obulala awamu n’okulongoosebwa.
• Obujjanjabi bw’abaserikale b’omubiri n’obujjanjabi obugendereddwamu: Buno bujjanjabi bupya nnyo. Obujjanjabi bw’abaserikale b’omubiri buyamba abaserikale b’omubiri gw’omwana yennyini okulwanyisa kookolo. Obujjanjabi obugendereddwamu butunuulira enkyukakyuka ez’enjawulo ez’obuzaale mu butoffaali bwa kookolo. Obujjanjabi buno oluusi buweebwa ng’ekimu ku bigenda okugezesebwa mu malwaliro.

Okugezesebwa mu malwaliro kye ki? Kye kunoonyereza okugezesa obulungi bw’obujjanjabi bwa kookolo obupya. Bino bikulu nnyo mu kulwanyisa kookolo. Singa obujjanjabi obulala tebuwadde buweerero bumala, omusawo wo ayinza okusindika omwana wo mu kimu ku kugezesebwa kuno.

Bino byonna bikolebwa okusobola okulabirira omwana wo mu ngeri esinga obulungi .

Ddi lwe nnina okunoonya amagezi g’abasawo ku mwana wange?

Noonya amagezi g’abasawo singa omwana wo:

• Singa ebizibu ebiva mu kujjanjaba kookolo biba bibi okusinga bwe wali osuubira.
• Singa omwana wo aba mu ``remission'' (nga talina bubonero oba bubonero bwa kookolo), era n'otandika okwetegereza obubonero obulaga nti kookolo ayinza okuba ng'akomawo.

Tekitera nnyo, obubonero bwa kookolo n’ebizibu ebiva mu bujjanjabi biyinza okuba eby’amangu eby’obujjanjabi. Omusawo w’omwana wo ajja kunnyonnyola obubonero obwetaagisa okujjanjabibwa mu bwangu.

Kookolo w’abaana asobola okuwona?

Mu nsi ezaakulaakulana ezirimu ebifo ebirungi, abaana abasukka mu 8 ku buli 10 abalina kookolo bawona. Kino kyesigamiziddwa ku miwendo gy’emyaka etaano egy’okuwangaala ku kookolo asinga okutawaanya abaana.

Ekigambo "okuwonya" era kikozesebwa okutegeeza kookolo w'abaana agenze mu kusonyiyibwa. Okugeza, abaana 9 ku 10 abalina obulwadde bwa acute lymphoblastic leukemia (ALL) bagenda mu kusonyiyibwa (tewakyali bubonero oba bubonero bwa kookolo).

Naye kikulu okujjukira nti emiwendo gino egy’okuwonawo kuteebereza kwokka. Teziraga bintu ntongole ebijja okukosa omwana wo by’ayitamu. Eno y’ensonga lwaki kikulu okwogera n’omusawo wo ku nteekateeka y’omwana wo.

Omwana awonye kookolo awangaala ki?

Wadde nga kookolo w’abaana atera okuwona, ebiva mu bulwadde buno bisobola okukosa obulamu bw’omwana obw’ekiseera ekiwanvu. Okusinziira ku kunoonyereza okwakakolebwa, abo abawona kookolo w’abaana bayinza okuba n’obulamu obutono okusinga abalala. Era batera okufuna ebizibu by’obulamu nga bakuze, gamba ng’endwadde z’omutima, embeera ezeekuusa ku busimu, ne kookolo ow’okubiri.

Naye si buli muntu nti akabi ke kamu. Bingi bisinziira ku kika kya kookolo omwana gwe yalina n’obujjanjabi bwe yafuna. Ng’ekyokulabirako, okusimbuliza obutoffaali obusibuka mu mubiri (stem cell transplants) kutera okuba n’ebikosa ekikeerezi. Obujjanjabi ng’okulongoosa n’okukozesa eddagala eritali ddene tebutera kuleeta buzibu mu biseera eby’omu maaso.

Wabula buli mwana awona kookolo yeetaaga okulabirirwa okumala ebbanga eddene. Mu kugoberera kuno, okukeberebwa buli kiseera kukolebwa okuzuula ebizibu byonna ebiyinza okubaawo oluvannyuma lw’okujjanjabwa.

Kiki kye nnyinza okukola okuyamba omwana wange?

Abakugu bagamba nti beera muggule era mwesimbu ng’oyogera n’omwana wo ku kookolo. Zino ziyinza okuba emboozi enzibu. Kyokka abakugu balowooza nti abaana baganyulwa mu kumanya ekibatuukako n’ekyo kye balina okukikola. Abaana abakulu n’abaana abato basobola okutegeera ennyinnyonnyola ennyangu. Omwana wo bw’aba muto, oyinza okwagala okwogera n’omukugu mu bulamu bw’abaana oba omusawo w’eby’omutwe mu baana ku ngeri y’okwogera naye ku kookolo.

Ng’omulabirira omwana wo, ggwe amaanyi gaabwe agasinga. Omwana wo ggwe asinga okumanya. Baggyeeko obubonero era obawagire buli ddaala ly’ogenda.

N’ekisembayo, ebintu by’olina okujjukira (Obubaka bw’okutwala awaka) .

Buli mwaka, enkumi n'enkumi z'abazadde bawulira ebigambo "omwana wo alina kookolo." Naye emirundi mingi, bawulira ebigambo "tusobola okujjanjaba, mpozzi n'okuwonya, kookolo w'omwana wo."Olw’obujjanjabi obupya, abaana n’abavubuka abalala bangi badda engulu okuva mu kookolo.

Kyokka, okuwona ddaala limu lyokka mu lugendo lw’okulabirira obulamu bwonna. Ttiimu y’abasawo b’omwana wo ejja kukusomesa ku ndabirira omwana wo gy’agenda okwetaaga ng’ajjanjabibwa n’oluvannyuma lw’okujjanjabibwa. Toggwaamu ssuubi, ng’olina amawulire amatuufu n’obuwagizi, osobola okwolekagana n’okusoomoozebwa kuno.

` Kookolo w'abaana, leukemia, lymphoma, ebizimba ku bwongo, obubonero bwa kookolo, obujjanjabi bwa kookolo, obulamu bw'abaana