Omwana wo omuto alina kookolo wa Neuroblastoma? Tofaayo, ka twogere ku nsonga eno mu ngeri ennyangu!

Omwana wo omuto alina ekizimba ku lubuto oba mu bulago ekiwulira ng’ekizimba? Oba waliwo ebiwundu oba ebifo ebya bbululu okwetooloola amaaso gaabwe ebirabika ng’ebikubiddwa? Buli maama oba taata bw’alaba ekintu nga kino atya nnyo era yeeraliikirira. Kitera nnyo. Naye oluusi buno buyinza okuba obubonero bw’ekika kya kookolo ekiyitibwa ‘Neuroblastoma’, ekibeerawo naddala mu baana abato. Kale leero, ka twogere ku nsonga eno awatali kutya era tunnyonnyole bulungi buli kimu ky’olina okumanya.

Ddala Neuroblastoma kye ki?

Mu ngeri ennyangu, Neuroblastoma kika kya kookolo akula mu busimu bw’abaana abato n’abaana abawere. Obusimu bw’omubiri gwaffe bukolebwa okuva mu butoffaali bw’obusimu obutakuze obuyitibwa ‘neuroblasts’. Kookolo wa Neuroblastoma akula mu butoffaali buno obw’obusimu obutakuze.

Ebiseera ebisinga, kookolo ono atandikira mu butoffaali bw’obusimu obutakuze mu nseke z’ekibumba, endwadde bbiri entonotono ezisangibwa waggulu w’ensigo. Endwadde zino zikola obusimu obufuga ebintu bingi mu mubiri gwaffe bye tutamanyi na nti bibaawo, gamba ng’okukuba kw’omutima, puleesa, okussa, n’okugaaya emmere. Ng’oggyeeko kino, kookolo ono asobola n’okutandika mu busimu mu mugongo, olubuto, mu kifuba oba mu bulago. Ekiseera bwe kigenda kiyitawo, obutoffaali buno obwa kookolo busobola okusaasaana mu bitundu by’omubiri ebirala.

Enteebereza y’omwana alina obulwadde buno esinziira ku bintu ebiwerako, omuli ekifo kookolo w’ali, emyaka gy’omwana, n’omutendera (kookolo w’asasaanye wa).

Buno bulwadde bwa bulijjo nnyo?

Nedda, Neuroblastoma kookolo atatera kulabika. Naye ekisinga obukulu kwe kuba nti ye kika kya kookolo ekisinga okulabibwa mu baana abawere. Obulwadde buno butera kubeera mu baana abali wansi w’emyaka 5. Oluusi kookolo ono asobola okulwala ne bw’aba omwana akyali mu lubuto. Tekitera nnyo kulaba kookolo ono mu baana abasukka mu myaka 10.

Emitendera gya Neuroblastoma gisengekebwa gitya?

Singa omwana wo akakasiddwa nti alina obulwadde buno, abasawo bajja kuddako okutunula kookolo w’asaasaanidde n’engeri gy’akula. Kino kijja kusalawo ‘omutendera gw’akabi’ ogw’obulwadde buno. Olwo lwokka obujjanjabi obusinga okusaanira omwana lwe bujja okulondebwa.

Edda omutendera guno gwasalibwawo nga batunuulira kookolo mmeka eyasigala mu mubiri oluvannyuma lw’okulongoosebwa. Naye kati, abasawo bakozesa enkola ekkirizibwa mu nsi yonna. Mu yo, omutendera gusalibwawo nga tutunuulira kookolo w’asaasaanidde, okusinziira ku sikaani (nga `CT scan` oba `MRI`). Ka tutegeere emitendera gino mu bigambo ebyangu.

Lwaki kookolo ow’ekika kino afuna?

Ensonga enkulu lwaki kino kiri bwe kityo eri nti obutoffaali bw’obusimu obutakuze (`neuroblasts`) bwe twayogeddeko emabegako bukula mu ngeri etafugibwa. Enkyukakyuka mu buzaale bw’ebaawo mu butoffaali obwo, obutoffaali obwo butandika okwawukana ne bukula mu ngeri etaali ya bulijjo. Obutoffaali obukuŋŋaanyizibwa mu ngeri eno bukola ekizimba. Abasawo n’okutuusa kati tebamanyi kituufu ekivaako enkyukakyuka eno ey’obuzaale.

Wabula singa omuntu mu maka abadde n’obulwadde bwa Neuroblastoma emabegako, emikisa mitono nti omwana ajja kubufuna. Naye tekitera kubaawo nnyo. Ate era, abaana abazaalibwa n’obuzibu obulala obuzaaliranwa bali mu bulabe bwa maanyi katono obw’okufuna obulwadde buno.

Bubonero ki obulaga obulwadde buno?

Obubonero bw’obulwadde bwa neuroblastoma bwawukana nnyo. Abamu bayinza okutandika mpola nnyo. Obubonero buno businziira ku kifo ekizimba we kiri n’omutendera gw’obulwadde. Ebiseera ebisinga, obubonero we bulabika, kookolo aba amaze okusaasaana mu bitundu by’omubiri ebirala.

Bino bye bimu ku bubonero obutera okulabika:

• Ebizimba: Ekizimba ekikwatibwa mu bulago, mu kifuba, mu lubuto oba mu kisambi. Mu baana abawere, ebizimba ebiwerako ebya bbululu oba ebya kakobe biyinza okulabibwa wansi w’olususu.
• Amaaso: Amaaso agalabika ng’agafulumye, nga galina langi enzirugavu/bbulu okwetooloola amaaso, nga galinga aganyiga.
• Obutabeera bulungi mu lubuto: Ekiddukano, okuziyira, okulumwa olubuto, obutayagala mmere.
• Okukoowa n’okufuuka omumyufu: Okukoowa buli kiseera, okusesema, omusujja. Olususu olumyufu. Kino kiva ku kukendeera kw’omusaayi, nga kino kwe kukendeera kw’obutoffaali obumyufu.
• Okuzimba: Olubuto luzimba era luluma.
• Obuzibu mu kussa: Naddala mu baana abato.
• Obunafu: Obunafu mu magulu n’ebigere, okukaluubirirwa okutambula oba okusannyalala.

Obulwadde bwe bugenda bweyongera, obubonero nga buno era buyinza okulabika:

• Puleesa n’omutima okukuba amangu.
• Obulumi mu magumba, mu mugongo oba mu magulu.
• Obuzibu mu bbalansi y’omubiri n’entambula.
• Okutambula kw’amaaso okw’amangu, okutafugibwa.
• Embeera eyitibwa Horner’s syndrome, emanyiddwa ng’ebikowe by’amaaso okugwa ku ludda olumu lwokka olwa ffeesi, amaaso amatono n’okukendeera kw’entuuyo.

Abasawo bazuula batya obulwadde buno?

Embeera eno etera okuzuulibwa mu baana abali wansi w’emyaka 5. Oluusi, ekizimba kino osobola okukiraba ne mu kiseera ky’okukebera eddoboozi ery’omwana ng’omwana akyali mu lubuto.

Omusawo wo ajja kukukebera ebiwerako okukakasa nti olina obulwadde buno.

Okukebera Omubiri

Okusooka, omusawo ajja kukebera omwana n’obwegendereza. Bajja kukebera oba temuli bizimba n’ebirala ebitali bya bulijjo. Era bajja kukola okukeberebwa kw’obusimu okukebera enkola y’obusimu, enkola y’obusimu, n’okukwatagana.

Okukebera Omusaayi n’Omusulo

Okukebera kuno mulimu okubala omusaayi mu bujjuvu (CBC) okukebera oba temuli musaayi n’ebirala ebitali bya bulijjo mu musaayi, n’okukebera emiwendo gy’eddagala erimu erikuŋŋaanyizibwa mu musaayi n’omusulo nga kookolo aliwo.

Okukebera ebitundu by’omubiri (biopsy).

Ekikolebwa wano kwe kuggya akatundu akatono ennyo ak’ekitundu ky’omubiri okuva mu kizimba n’okyekebejja wansi wa microscope. Kino kye kigikakasa 100% nti ye Neuroblastoma. Era ekebera oba obutoffaali bwa kookolo mu kitundu kino bulina enkyukakyuka yonna ey’enjawulo mu chromosomes zaabwo. Amawulire ago makulu nnyo mu kuzuula omutindo gw’akabi omwana n’enteekateeka y’obujjanjabi.

Okukebera obusigo bw’amagumba

Obusigo bw’amagumba kye kitundu ekiringa sipongi munda mu magumba gaffe amanene. Wano we wakolebwa obutoffaali bwaffe obw’omusaayi. Okukebera kuno kukolebwa okulaba oba kookolo asaasaanidde mu busimu bw’amagumba.

Sikaani z’okukuba ebifaananyi

Ebika bya sikaani ebiwerako bikolebwa okulaba kookolo w’ali, obunene bw’ali, n’okumanya oba asaasaanidde mu bitundu ebirala.

• CT scan: Dayi ey’enjawulo efuyirwa mu mubiri ne bakwatibwa ebifaananyi ebiwerako mu X-ray.
• MRI scan: Ekozesa magineeti n’amayengo ga leediyo okukuba ebifaananyi mu bujjuvu munda mu mubiri.
• MIBG scan: Eno scan ekwata ku Neuroblastoma. Mu sikaani eno, eddagala eritali lya bulabe eririmu obusannyalazo lifukibwa mu mubiri. Eddagala lino ligenda mu bitundu obutoffaali bwa Neuroblastoma we bubeera. Olwo bw’olaba ne kkamera ey’enjawulo, kisoboka okulaba obulungi kookolo w’asaasaanidde mu mubiri. Wabula ebitundu nga 10% ku butoffaali bwa kookolo bw’abaana tebunyiga MIBG eno. Mu mbeera ng’ezo, ekika ekirala ekya sikaani ekiyitibwa `PET scan` kikozesebwa.
• Ultrasound scan ne X-ray: Bino okusinga bikozesebwa okufuna endowooza enkakali ku kifo ekizimba we kiri n’engeri gye kikwata ku bitundu ebikyetoolodde.

Bujjanjabi ki obw’obulwadde bwa Neuroblastoma?

Obujjanjabi busalibwawo okusinziira ku myaka gy’omwana, omutendera gw’obulwadde, omutindo gw’akabi n’ekifo ekizimba we kiri. Ttiimu y’abasawo ejja kukolagana naawe okukola enteekateeka y’obujjanjabi esinga obulungi eri omwana wo.

Obujjanjabi okusinziira ku ddaala ly’akabi

• Low-Risk Neuroblastoma: Abaana abamu abali mu kiti kino naddala abali wansi w’emyezi 6, bayinza okukuumibwa nga batunuuliddwa omusawo waabwe awatali bujjanjabi bwonna. Kino kiri bwe kityo kubanga ebizimba ebimu bigenda ku bwabyo nga tebirina bujjanjabi bwonna. Abaana abalala bayinza okwetaaga okulongoosebwa, okuweebwa eddagala oba byombi okusobola okuggyawo ekizimba.
• Intermediate-Risk Neuroblastoma: Abaana bano batera okulongoosebwa okuggyamu ekizimba. Bwe kiba nga kisaasaanidde mu nnywanto, nazo ziggyibwamu. Chemotherapy eweebwa oluvannyuma lw’okulongoosebwa. Oluusi, bayinza okuweebwa eddagala eriweweeza ku bulwadde nga tebannalongoosebwa okukendeeza ku kizimba.
• High-Risk Neuroblastoma: Abaana bano baweebwa obujjanjabi obw’enjawulo. Kino kiyinza okuzingiramu obujjanjabi bw’eddagala, okulongoosa, obujjanjabi bwa ddoozi ennene nga busimbuliza obutoffaali obusibuka mu mubiri, okuweebwa obusannyalazo, n’obujjanjabi bw’abaserikale b’omubiri.

Ka tuyige ebisingawo katono ku nkola z’obujjanjabi.

Kikulu nnyo okuba ng’otegedde bulungi obujjanjabi obuweebwa omwana wo ne bye bugenda okuzingiramu.

Omukisa ki ogw’okuwonya obulwadde buno? (Okuteebereza)

Kino kye kibuuzo ekisinga obunene mu birowoozo bya buli muzadde. Omuwendo gw’abaana abalina obulwadde bwa neuroblastoma abawona gwawukana.

• Omuwendo gw‟okuwona guli waggulu nnyo eri abaana abali mu kiti ky‟akabi akatono oba aka wakati , naddala abaana abato. Abaana nga 90% - 95% bawona ddala.
• Omuwendo gw’abaana abakulu mu kibinja eky’akabi ennyo abawona guli nga 60% .

Naye toggwaamu ssuubi. Abasawo n’abanoonyereza buli kiseera bagezaako okunoonya obujjanjabi obusingako obulungi eri ekibinja kino eky’abaana abali mu bulabe obw’amaanyi. Waliwo obujjanjabi bungi obupya obwalaze edda ebirungi.

Obulwadde buno busobola okuziyizibwa?

Ebyembi, tewali ngeri yonna gye tuyinza kuziyiza Neuroblastoma. Singa ggwe oba munno mwalina obulwadde buno ng’okyali mwana muto, oba omuntu mu maka go bw’aba alina ebyafaayo, yogerako n’omusawo wo. Naye jjukira, obulwadde bwa Neuroblastoma obw’obuzaale butono nnyo nnyo (1% - 2%) zokka.

Ddi lwe nnina okulaba omusawo?

Bw’oba ​​oteebereza nti omwana wo alina obubonero bwonna bwe twogeddeko, tolwawo olabe omusawo amangu ddala nga bwe kisoboka. Mu mbeera ng’ezo, okuzuula amangu n’okujjanjaba omwana kiyinza okukosa ennyo okuwona kw’omwana.

Omwana bw’azuulibwa ng’alina kookolo, kiyinza okuzibuwalira amaka gonna okugumira embeera eyo. Kiba kiwuniikiriza kinene. Naye si ggwe wekka. Abasawo, ba nurse, n’abakozi abajjanjaba abaana bano beewaddeyo nnyo. Ate era, buuza omusawo wo ku bibiina ebiwagira w’osobola okwogera n’abazadde abalala ababadde n’ebyo ebifaananako bwe bityo. Okugabana ku by’oyitamu n’okuwulira emboozi z’abalala kiyinza okukuwa amaanyi amangi.