Kya bulijjo okuwulira okutya n’okweraliikirira okungi ng’owulira ku mbeera y’omutima, ka kibeere ya ggwe oba omwana wo. Naddala bw'owulira erinnya nga Eisenmenger Syndrome, oyinza okuba nga weebuuza nti, "Kino kye ki?" Naye teweeraliikiriranga. Tujja kwogera ku mbeera eno, obubonero bwayo, n’obujjanjabi bwayo mu ngeri ennyangu gy’osobola okutegeera.
Embeera eno ejja etya?
Mu ngeri ennyangu, obulwadde bwa Eisenmenger buva ku buzibu bw’omutima obuzaalibwa nabwo okumala ebbanga eddene . Kino okukitegeera, ka tusooke tulabe engeri omutima gwaffe gye gukola.
Lowooza ku mutima gwaffe nga ppampu entono naye nga ya maanyi nnyo ng’erina ebisenge bina. Waliwo ebitundu bina: ebisenge bibiri ebya waggulu (atria) n’ebisenge bibiri ebya wansi (ventricles). Mu budde obwabulijjo, eno y’engeri gye kikola:
1. Omusaayi ogutaliimu oxygen, ogutambula mu mubiri gwonna, guyingira mu kisenge ekya waggulu ku ludda olwa ddyo.
2. Okuva awo, omusaayi gugenda mu kisenge ekya wansi ku ludda olwa ddyo ne gusindikibwa mu mawuggwe.
3. Mu mawuggwe, omusaayi guno gubaamu omukka omulungi.
4. Omusaayi guno omuyonjo ogulimu omukka gwa oxygen gudda mu kisenge ekya waggulu ku ludda olwa kkono olw’omutima.
5. Okuva awo, genda mu kisenge ekya wansi ku kkono osse omubiri gwo gwonna.
Kyokka mu bantu abamu abazaalibwa n’obulemu ku mutima, wayinza okubaawo ekituli ekitono wakati w’ebisenge bino eby’omutima naddala wakati w’ebisenge ebibiri ebya wansi (ventricles) . Kino kye kibaawo:
- Ebimu ku musaayi omuyonjo ogulimu omukka gwa oxygen ku ludda olwa kkono guyita mu kinnya ekyo ne gugenda ku ludda olwa ddyo ne gudda mu mawuggwe.
- Omusaayi guno oguteetaagisa bwe gweyongera okutuuka mu mawuggwe, puleesa mu mawuggwe efuuka waggulu nnyo . Kino tukiyita ``pulmonary hypertension``.
- Ekiseera bwe kigenda kiyitawo, olw’okuba puleesa eno ey’amaanyi mu mawuggwe, okutambula kw’omusaayi kudda emabega. Kwe kugamba, omusaayi ogutaliimu mukka gwa oxygen, ogutali mulongoofu ku ludda olwa ddyo gukulukuta mu kinnya ekyo ne gugenda ku ludda olwa kkono ne gutandika okutambula mu mubiri gwonna.
Kino kye kikulu mu bulwadde bwa Eisenmenger syndrome. Kwe kugamba, omubiri tegufuna mukka gwa oxygen ogwetaagisa. Embeera eno ebaawo singa obulema bw’omutima obubeerawo ng’azaalibwa tebuzuulibwa era ne bujjanjabwa nga bukyali.
Bubonero ki obukulu obulaga kino?
Ebiseera ebisinga, obubonero buno butandika okulabika nga tannatuuka mu myaka gya buvubuka. Oluusi, zisobola n’okulabibwa mu buwere. Bino bye bimu ku bubonero obwangu okutegeera.
| Obubonero | Ennyinyonnyola ennyangu |
|---|---|
| Okukyusa langi y’olususu eya bbululu (Cyanosis) . | Emimwa, emisumaali, n’olususu birabika nga bya bbululu/ebya kakobe olw’obutaba na mukka gwa oxygen mu mubiri. |
| Okuzannya kiraabu | Ensonga z’engalo n’obugere zirabika nga zeetooloovu ate n’emisumaali girabika nga gizimba. |
| Okukaluubirirwa okussa | Okuwulira ng’okooye era ng’okooye naddala ng’ofuba akatono. |
| Okuzimba omubiri (Edema) . | Okuzimba naddala mu bitundu ng’amagulu, enkizi n’olubuto. |
| Omutima okukuba mu ngeri etaali ya bulijjo | Okuwulira ng’omutima gwo gukuba mangu oba ng’omutima tegukuba. |
| Okuziyira n’okulumwa omutwe | Embeera eyinza okuva ku butabeera na mukka gwa oxygen. |
| Obulumi mu kifuba | Okunyiga ekifuba oba okulumwa olw’okunyigirizibwa ku mutima. |
Okugatta ku ekyo, embeera eno eyinza okukosa obutoffaali obumyufu mu mubiri, okuzimba omusaayi oba omusaayi oguyitiridde.
Omusawo kino akizuula atya? (Okuzuula obulwadde)
Omwana wo bw’aba n’obubonero buno, omusawo ajja kusooka kukusindika ew’omusawo w’omutima gw’abaana. Ayinza okukola ebigezo ebiwerako okukakasa embeera eno.
- Okukebera omubiri: Ekintu ky’olina okusooka okunoonya ye langi y’olususu eya bbululu, enkyukakyuka mu ngalo, n’okuwuliriza omutima.
- Ebigezo eby’enjawulo: Ebigezo bino bikolebwa okukakasa ekituufu ekizuuliddwa.
| Ekigezo | Kiki ky’olaba mu kino? |
|---|---|
| Echo Scan (Ekifaananyi ky’omutima) . | Eno ye sikaani y’omutima. Kisobola okulaba obulungi ensengekera y’omutima, oba waliwo ebituli wakati w’ebisenge, n’engeri omusaayi gye gukulukutamu. |
| ECG (Ekifaananyi ky’omutima eky’amasannyalaze) . | Kino kiyamba okulondoola enkola y’amasannyalaze g’omutima, kwe kugamba, ennyimba z’okukuba kw’omutima. |
| Okukebera Omusaayi | Omuwendo gw’obutoffaali obumyufu mu mubiri (obuyinza okweyongera olw’obutaba na mukka gwa oxygen) n’ebirala bitunuuliddwa. |
| Okussaamu Catheter y’omutima | Kino kigezo kya njawulo. Akatundu akatono (catheter) kayisibwa mu musuwa ne kayingira mu mutima, ne kisobozesa puleesa eri munda mu bisenge by’omutima n’emisuwa egigenda mu mawuggwe okupimibwa butereevu. |
Kijjanjabwa kitya?
Obulwadde bwa Eisenmenger bwe bumala okukula, ekituli mu mutima ekyakireeta tekisobola kulongoosebwa kuggalwa kubanga puleesa mu mawuggwe yeeyongera dda nnyo. N’olwekyo, ekigendererwa ekikulu eky’obujjanjabi kwe kufuga obubonero n’okutumbula omutindo gw’obulamu.
Enteekateeka y‟obujjanjabi eyinza okuli:
- Ebika by’eddagala:
- Eddagala erigaziya emisuwa mu mawuggwe ne likendeeza puleesa.
- Eddagala okukuuma ennyimba entuufu ez’okukuba kw’omutima.
- Eddagala eriziyiza omusaayi okuzimba (blood thinners).
- Okuziyiza yinfekisoni (eddagala eritta obuwuka).
- Oluusi empeke ezirimu ekyuma.
- Okuggyamu omusaayi: Singa obutoffaali obumyufu buba bungi nnyo ate ng’omusaayi gwo gubeera munene, oluusi kiyinza okwetaagisa okuggyamu omusaayi mu mubiri gwo (phlebotomy).
- Okusimbuliza omutima n’amawuggwe:Kino kikolebwa mu mbeera ezisinga okuba ez’amaanyi, ng’omutima n’amawuggwe byombi biremye. Kuno kulongoosa kuzibu nnyo, okunene.
Obeera otya n’embeera eno?
Kituufu embeera eno ebeerawo obulamu bwonna, naye bw’ogiddukanya obulungi n’okugoberera amagezi g’abasawo, abantu bangi basobola okubeera n’obulamu obw’okumpi ne bulijjo.
Ekisinga obukulu kwe kusigala ng’okwatagana n’omusawo wo buli kiseera n’okugoberera ebiragiro bye mu butuufu.
Emize egimu emikulu gy’olina okussa mu bulamu bwo:
- Weewale okugenda ku buwanvu n’okuggwaamu amazzi.
- Dduyiro ow’amaanyi n’emizannyo tekiba kirungi, naye buuza omusawo wo dduyiro wa ngeri ki gy’osobola okukola.
- Lya emmere erimu omunnyo omutono . Weewale ddala okunywa sigala.
- Tomira ddagala eritali ku ddagala, wadde ly’omira ku mutwe, nga tosoose kwebuuza ku musawo.
- Funa okugema kwo mu budde. Okwoza bulungi n’ebiwundu ebitonotono okwekuuma obutakwatibwa buwuka.
- Tokozesa bbaafu eyokya oba ssauna. Ziyinza okuvaako puleesa okukka amangu.
- Bw’oba oyolekedde okulongoosebwa okulala oba ekintu ng’okuggyamu amannyo, kakasa nti obuuza omusawo w’omutima oba weetaaga okumira eddagala eritta obuwuka nga bukyali.
Okumanyisa abantu mu ngeri ey’enjawulo ku nsonga z’embuto
Bw’oba oli mukyala alina embeera eno, okufuna olubuto lwa bulabe nnyo eri obulamu bwo n’obw’omwana wo . Olw’okuba olubuto luteeka akazito ku mutima, abasawo emirundi mingi tebaluwa magezi. Kikulu okwogera mu lwatu n’omusawo wo ku nsonga eno.
Okubeera n‟embeera eno kiyinza okukusoomooza mu nneewulira. Buuza omusawo wo ku mpeereza z‟okubudaabuda oba ebibiina ebiyamba ebiyinza okukuyamba n‟ab‟omu maka go.
Obubaka Obutwala Awaka
- Obulwadde bwa Eisenmenger mbeera ya maanyi ereetebwa obulema bw’omutima obuzaalibwa, naye busobola okuddukanyizibwa obulungi.
- Embeera eno esobola okuziyizibwa nga ozudde n’okujjanjaba ekizibu ky’omutima ekisirikidde ku myaka emito.
- Kikulu nnyo okugoberera enteekateeka y’obujjanjabi omusawo gy’akuwa mu butuufu. Totandika oba toyimiriza ddagala lyonna ku bubwo.
- Enkyukakyuka mu bulamu (endya erimu omunnyo omutono, okulekera awo okunywa sigala, okukola dduyiro omutuufu) kiyamba nnyo mu kufuga obubonero.
- Okufuna olubuto lwa bulabe nnyo eri omukyala alina embeera eno, n’olwekyo kyetaagisa okukyogerako mu lwatu n’omusawo wo.
- Si ggwe wekka mu lugendo luno. Totya kusaba buyambi okuva mu basawo, ab’omu maka go, era bwe kiba kyetaagisa, omubuulirizi.
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