Toggwaamu ssuubi: Emboozi Entuufu ez'okubeera ne kookolo w'obwongo

Ne bwe tuwulira ekigambo "kookolo," bangi ku ffe tutya. Era bwe tuwulira ekigambo "kookolo w'obwongo," okutya okwo kweyongera. Naye owuliddeko abantu abasukka ku bibalo n’amawulire agakwata ku by’obujjanjabi ku bulwadde buno ne babutunuulira n’obuvumu n’essuubi ebitasalako, ne babeera nabwo? Ekitundu kino kikwata ku mboozi z’abantu abatuufu abawangula obulamu bwe butyo. Emboozi zino zituyigiriza bingi ku bulamu n’essuubi.

Lives beyond statistics: Ka tuwulire emboozi zino

Bwe tuwulira ku kookolo w'obwongo naddala ebika ebisinga okuba eby'amaanyi nga ``Malignant Glioma,'' tutera okuwulira amawulire agatali malungi nnyo. Naye abantu bano be tugenda okwogera nabo kati be bakakasizza nti emboozi ezo zonna ezitaliimu ssuubi nkyamu. Abamu bamaze emyaka egisukka mu kkumi nga balwanyisa obulwadde buno, nga bawangaala obulamu mu bujjuvu.

Emboozi ya Jim: "Kkookolo tasobola kufuga bulamu bwange".

Teeberezaamu Jim ayagala nnyo emizannyo era akola dduyiro buli kiseera. Yatuuka n’okutendekebwa mu misinde gya marathon. Olunaku lumu mu 1998, bwe yali atendekebwa, amangu ago yafuna ekizibu ky’okukonziba , embeera efaananako n’ey’okusannyalala. Oludda olumu olw’omubiri gwe lwagenda nga luzibye ddala. "Nnali sirina kye mmanyi ku kiki ekyali kigenda mu maaso mu kiseera ekyo," Jim bw'agamba.

Ne bwe baamugamba nti, "Nedda, nedda, si kintu," baamutwala mu ddwaaliro mu ngeri ey'amaanyi. Oluvannyuma lw’okukeberebwa ennyo, enkeera abasawo ne bamuwa amawulire amabi. "Embeera mbi nnyo. Olina ekizimba ku bwongo."

Mu kusooka kyazuulibwa nga `(Oligodendroglioma)`, oluvannyuma kyakakasibwa nti kika kya kookolo eky’amaanyi ekiyitibwa `(Malignant Glioma).` Ekizimba kino tekyasobola kuggyibwawo ddala nga kilongoosebwa kubanga kyali kizingiddwa ku `(motor strip)`, ekitundu ekikulu eky’obwongo ekifuga entambula.

Naye Jim teyaggwaamu maanyi. Yatandika okukozesa eddagala lya radiation ne chemotherapy . Mu kiseera ekyo, yafumbirwa n’azaala omwana ow’obulenzi. Yagenda mu maaso n’okuzannya emizannyo ng’alwanagana n’obulwadde bwa kookolo. "Buli kookolo lwe yakomawo, kyantwalira ennaku bbiri oba ssatu okuddamu okuyimirira. Naye nnasalawo, kookolo ono sigenda kumufuga kufuga bulamu bwange. Ngenda kuddiza obulamu bwange. "

Jim akyali mulamu leero, alwanyisa kookolo era ng’ayamba abalala. Musanyufu nnyo oluvannyuma lwa lipoota ye eyasembyeyo mu MRI. Kubanga ekizimba kitandise nate okukendeera. Jim agamba buli muntu nti, "Kuuma essuubi. Ojja kulaba ebibalo bingi. Tosaba ekisinga obubi. Laba eby'okulonda byonna. Ekisinga obunene kwe kukuuma essuubi ddala. "

Emboozi ya Maria: "Nnali mmanyi nti sijja kufa".

Maria naye yazuulibwa n'obulwadde buno oluvannyuma lw'okulwala ``Seizure'' mu bwangu. Abasawo baagambye nti alina ekika kya kookolo eky'amaanyi ayitibwa ``Glioblastoma''. Oluvannyuma lw’okulongoosebwa, era yaweebwa eddagala eriyitibwa radiation ne chemotherapy.

"Nze neegamba nti, oba ndi mulamu oba nfa. Naye nnali mmanyi nti sigenda kufa. Nnalina obwesige bungi. Nnali wa maanyi nnyo. Nagamba nti, 'Sigenda kuleka kino kunwangula.'"

Alowooza nti amaanyi gano yagafuna mu bazadde be. Bajja mu Amerika ng’ababundabunda mu byobufuzi okuva e Cuba, nga buli kimu bakireka ne bajja n’obuvumu bungi. "Ekyo kye kyali essomo lye twasooka okuyiga ku buvumu," Maria bw'agamba.

Lipoota ze eza MRI ziraga nti tewali nkyukakyuka yonna okumala emyaka egisukka mu etaano. Ekyo kitegeeza nti kookolo y’afuga. Obubaka bwa Maria bulambulukufu. "Toggwaamu maanyi. Towuliriza bibalo. Kubanga ebintu bingi ebiyinza okubaawo. Nzikiriza nti okuwona kwange kyamagero."

Emboozi ya Sarah: "Mpulira emirembe mingi munda".

Sarah yali akolera mu dduuka eritunda ebyuma bya ofiisi. Omulimu gwe gwali gwa kuyigiriza bakasitoma engeri y’okukozesaamu ebyuma. Amangu ago, yatandika okulaba enjawulo. "Bwe mba nnnyonnyola kasitoma ku printer, nfiirwa ebigenda mu maaso mu mutwe wakati mu mboozi. Sisobola kugimaliriza."

Mu kiseera kye kimu, yatandika okulumwa omutwe buli lunaku, ekintu ekyali ekitali kya bulijjo gy’ali. Yawummula wiiki emu n’akeberebwa omusawo mu bujjuvu. ``CT scan``, ``MRI``, era oluvannyuma lwa bino byonna, yafuna amawulire amabi. Yalina n'ekizimba ku bwongo ekiyitibwa ``Glioblastoma``.

Oluvannyuma lw’okulongoosebwa, naye yafuna ekizimba. Wano we yategeeredde nti yalina obusimu obutonotono nga buno emabegako, ne bwe yali akola ku kompyuta.

Saala nnamwandu era alina abaana munaana. Naye ali mu muudu nnungi nnyo. "Sigwa. Sikkiriza kugwa. Mpulira emirembe mingi munda. Enzikiriza yange ey'eddiini ennyamba okubeera omukkakkamu."

Kiki kye tuyinza okuyigira ku mboozi zino?

Tusobola okulaga emiramwa egiwerako egy’awamu okuva mu mboozi zino essatu.

1. Tobuusa maaso bubonero obutali bwa bulijjo: Bw'oba olina obubonero obupya obutali bwa bulijjo, gamba ng'okukonziba mu bwangu, okulumwa omutwe ennyo ennyo, oba okwerabira amangu, tobugoba nti "buli bwa bulijjo." Laba omusawo mu bwangu akuwe amagezi. Okuzuula amangu obulwadde buno kikulu nnyo mu bujjanjabi.

2. Essuubi n’ebirungi: Omulamwa omukulu mu mboozi zonsatule gwe ssuubi. Zitulaga engeri gye kikulu okulowooza obulungi ku bulamu n’obutava ku lutalo, ne bwe kiba nti obulwadde buno buyitiridde.

3. Enkola ey’obuwagizi ey’amaanyi: Ab’omu maka, emikwano, n’enzikiriza z’eddiini biyamba nnyo mu biseera ebizibu nga bino. Okuwulira nti toli wekka kiyinza okuleeta okubudaabudibwa okw’amaanyi mu by’omwoyo.

Kookolo w’obwongo kusoomoozebwa. Ekyo kituufu. Naye si nkomerero ya bulamu. Singa omuntu afuna obujjanjabi obutuufu, endowooza ennywevu, n’obuwagizi bw’abaagalwa bo, okusoomoozebwa kuno kuyinza okuvvuunukibwa. Jim, Maria, ne Sarah bye byokulabirako ebikulu eby’ekyo.