I fa te hian hmui/hnuai a cleft em? (Cleft Lip/Cleft Palate) – Nau hnute pek chungchang hi han sawi ila!

Aw, i naupang tê chu hmui emaw, hmui emaw hrual neiin a piang em? Nu i nih angin hetiang thil a lo thlen hian ngaihtuahna tam tak i nei ngei ang. Mahse, lungngai suh, naute tam tak chu heng thilte nen hian an piang chhuak thin. A pawimawh ber chu naute chu a thau tha lehzual theih nan leh tui a tlakchham loh nan hnute tui pek hi a ni. A chang chuan heng naute hian bawnghnute in tur hian tanpuina bik tlem an mamawh thin.

Naute hmui hrual nei chu engtin nge hnute pek dan?

A tam zawkah chuan naute hmui hrual leh hmui lama harsatna nei lo piangte chuan hmanraw bik engmah tel lovin an hnute an pe tha thei a ni. An hnute chu a pangngaiin an pe thei a, bottle pangngai an hmang thei bawk. A châng chuan naute chu a latch ṭhat theih nân latch tlem tal siamrem mai a ngai ṭhin . Nau hnute i pe a nih chuan i naute awmna hmun chu thlak tum la, chutiang chuan i hnute chuan i hnute inkar gap chu a luah khat ang. Hei hian i naute chu awlsam zawkin a hnute a pe thei ang.

Naute hmui hrual (cleft palate) nei hnute pek hian eng harsatna nge a neih?

Mahse, naute hmui emaw, hmui emaw cleft neia piang, hmui cleft nei emaw nei lo emaw pawh nise, hnute atanga direct-a hnute lak harsa an ti hle. A chhan chu an ka chhunga pressure an siam theih loh vang a ni a, chu chu hnute atanga bawnghnute lakchhuahna tur a ni. Straw hmanga thil kan in hian kan hmui chhungah vacuum kan siam a ngai tih hi han ngaihtuah teh. Chuvangin heng naute tan hian chutiang thil tih chu a harsa hle a, a chhan chu a cleft palate vang a ni. Chutiang naute chu hnute pek i tum a nih chuan, bottle pangngai hmanga pek i tum pawhin, hnute a dawng tlem thei a, a thau pawh a tipung lo mai thei (failure to thrive) Chumi awmzia chu naute chu a thang tha lo thei tihna a ni. Eng harsatna dang nge lo awm thei?

• Naute hian hnute a in hian hnar atang hian hnute a chhuak thei . Hei hi ``Nasal Regurgitation'' kan ti bawk. Nute tan chuan hei hi hmuh a hlauhawm thei hle a, mahse hetiang dinhmunah hian beisei tur thil a ni.
• Naute hian nausen hnute a pek laiin nausen pangngai aiin boruak a ei tam thei a , chu chuan pum a ti na thei a ni.
• A châng chuan, naute hian ``syndrome'' dang a neih chuan, a kaihhnawih symptoms, naupai chungchanga harsatna dang, chaw ei lama harsatna ang chite chu a lo awm thei a ni.

Naute hmui hrual (cleft palate) nei chawm nan eng ang bottle nge hman tur?

Naute cleft palate nei chaw pek tur chuan special bottle system hman a ngai a ni . Heng bottles te hi naute chu a hnute lakna tur pressure nasa lutuk siam lovin naute chu ei tur dik tak pe thei tura siam a ni. Hengte hi bottle pangngai ang a ni lo. Cleft feeding bottle system chi hrang hrang a awm a. Eng nge an nih i han en teh ang, i hriatthiam awlsam zawk nan:

Dr. Brown-a Specialty Feeding System hmanga chaw pek dan

He bottle system hian one-way feeding valve a nei a, chu chuan bawnghnute chu kawng khatah chauh a luang thei a ni.. Hei hian bawnghnute chu bottle chhungah a luang leh thei lo. Chumi awmzia chu naute hian a hnute a hnek a ngai lo tihna a ni a, hnute chu a hnute chu a seh emaw, a hnim emaw hmangin a hnute chu a hnim thei tihna a ni . Nipple chi hrang hrang, naute kum a zirin flow rate hrang hrang nei (nausen naupang tak tak (preemie) atanga level 3 thleng) a awm. He bottle hi nu leh pa leh enkawltute tan hman a awlsam zawk fo thin . Naute hian hna a thawh avangin nuin bottle chu a hrual emaw, hmun bik a chelh emaw a ngai lo.

Pigeon chawmtu

He bottle system hian `one-way valve` a nei bawk a , chu chuan bawnghnute chu bottle chhungah a luang lut leh thei lo. `Y-cut nipple` (chu chu `nipple`, Y hawrawp ang chi cut nei) hian a sir te tak te a nei a, a sir lehlamah chuan a thim deuh deuh bawk.

• A thick side chu naute upper jaw gum line-ah dah tur a ni.
• A thim lam chu naute lei chungah a rawn chho tur a ni.
• Nipple kil hnuai lama notch te tak te chu naute hnar hnuaiah dah tur a ni. Hei hian hnute chu ka chhungah a awm tha em tih a enfiah thei ang.

He nipple hi size hnih a awm a. Nipple kha tighten emaw loose emaw hmangin flow rate pawh i siamrem thei bawk. Hei hian eng emaw chen hman thiam a ngai a ni.

Medela-a mamawh bikte chawmtu (Haberman) `(Medela-a mamawh bikte chawmtu (Haberman))`

Hei hi mi thenkhat chuan `Haberman Feeder` an ti bawk. He bottle system hian `nipple` chhungah hnute awm reng turin `one-way valve` a nei bawk . Naute thenkhat chuan an hmuiah `nipple` an hmet a, hnute an ei thei. Mahse a tam zawkah chuan enkawltu chuan naute hnute leh ei leh in rhythm nena inmil turin bottle chu a hrual a ngai thin :

• Naute chuan a hnute a hnek tan veleh bottle chu nghet takin hrual la, chutah chuan chawlh hahdam rawh .
• Hei hi naute hnute a hnek lai chauha tih tur a ni. Naute hnute a ei ri chu ngun takin ngaithla rawh .
• Naute hian rei vak lo a thawk a chawlhsan chuan bottle chu i hrual pawh i bansan tur a ni.

Timing dik tak neih theih nan practice engemaw zat a ngai . Chu chu i naute’n a hnute a hnek laiin squeezing i practice a ngai tihna a ni a, an chawlh laiin i chawlhsan a ngai tihna a ni. Bottle bula line pathum hian hnute atanga hnute lo chhuak flow rate a tarlang a. Bottle chu line pakhat chu i naute hnar hnuaia awm turin i rotate-in flow rate i siamrem thei a ni.

Enfamil Mead Johnson chuan a hmui/a hmui a tikehsawm a, Nurser

He bottle hian `one-way valve` a nei lo . `Haberman` bottle system ang bawkin enkawltu chuan bottle chu a hrual tur a ni a, naute hnute hnek dan angin a speed chu a siamrem tur a ni . Hei pawh hian practice tlem a ngai bawk.

Heng bottle tin hi nang leh i naute tan he zinkawng hi tlem a awlsam zawk nan siam a ni tih hre reng ang che. A chang chuan bottle pakhat hian hna a thawk lo va, a dang i enchhin a ngai thin. Hemi kawngah hian i medical team chuan an pui ang che, i naute nena inmil ber tur an thlang ang.

Eng tips dang nge ṭanpui thei?

Okay, tunah chuan bottle chungchang kan sawi tawh a, he hnute pek danah hian thil dang tlemte a awm a, hei hian a pui thei che a ni. Hengte hi dik taka i zawm chuan i naute tan a awlsam lehzual ang.

• A chaw pek chu minute 30 aia rei lovah tihfel tur a ni . Chu aia rei a daih chuan naute chuan hnute a dawng harsa tihna a ni thei a, a nih loh leh hnute chu a pump chak tawk lo tihna a ni thei bawk. Chutiang a nih chuan hnute tui tlem rang zawka chhuah theihna tur nipple hmang la.
• I naute chu a burp reng theih nan pui rawh . Nu hnute pek laiin minute 5 danah vel. Hei hi a chhan chu naute hian boruak an ei tam avangin a tha hle. Hei hian pum na leh luak chhuak tihziaawmna turin a pui ang.
• Naute chu chaw pek lai leh chaw pek hnu minute 20-30 chhung dinglam hawiin dah la . Hei hian hnar regurgitation tihziaawmna kawngah a pui thei a ni.
• I naute hnar atanga hnute a chhuah chuan puan fai hmangin phihfai rawh . Suction bulb hmanga hnute chu suck out a ngai lo. Chutianga tih chu i naute tan chuan a nuam lo thei hle.
• Naute hmui hrual (cleft palate) chuan direct-a hnute pe thei lo mah se, nute chuan an hnute tui chu an express thei a, an naute chu bottle bik aṭangin an pe thei a ni . Hei hi a hlu hle a, naute hian nutrients leh natna laka invenna chu nu hnute tuiah a dawng a ni.
• Tin, i naute nena inzawmna tichak lehzual turin non-nutritive sucking tih i phalsak thei bawk . Chumi awmzia chu naute chu thlamuanna atan a hnute chu a hrual mai a ni tihna a ni a, bawnghnute in tur a ni lo. Hei hian naute hnute thau (sucking muscles) a tichak bawk. Mahse vawi khatah minute 10 aia tam hetiang hian ti suh.

Engtin nge ka naute hian a hnute a pe tha lo tih ka hriat theih ang?

Nau hnute peknaah heng harsatnate avang hian naute hmui hrual (cleft palate) te chu an thanglian thei lo . Chuvangin, i naute doctor emaw, cleft team emaw, heng cleft natna enkawltu specialist team te chuan i naute rihna hi an enfiah fo ang a, a rihna a pung tawk em tih an enfiah fo ang. Hei hi a pawimawh hle. A châng chuan special bottle system hmang pawhin naute hian chaw ei kawngah harsatna an nei thei a, an taksa rihna pawh an tipung thei bawk. Nau hnute an pek laiin an lungawi lo thei a, bawnghnute pawh an dawng tlem thei bawk. Heng chhinchhiahnate hi ngun takin i ngaihven tur a ni :

• Nau hnute i pek lai emaw, hnute i pek hnu emawa i tap a nih chuan .
• I chok ang maia i hriat chuan ``choking'' a ni .
• Mit atanga mittui lo chhuak a nih chuan `` mittui tlak '' a ni .
• Furrowing eyebrows (hei hian naute chu a nuam lo tih a tilang).
• Naupai laiin i taksa chu hnunglam hawiin i ben chuan ``back arching'' an ti a ni .

Heng chhinchhiahnate hi i nauteah i hmuh chuan hnute pek kawngah harsatna engemaw zat a nei tihna a ni. Tichuan i chaw pek danah hian inthlak danglamna tlemte siam i tum tur a ni.

Entir nan:

• I naute’n vawi khatah hnute a ei zat kha tihtlem la, hnute tui luang chhuak slow zawk hmang tum ang che .
• Chaw pek laiin chawlh hahdam fo thin ang che . I naute chu thawk turin hun pe la, hnute chu hniam tir rawh.
• Bawnghnute tlem i in hnuah bottle chu a sir lamah tlem tilt la , hnute tui luang chu rei vak lo titawp rawh.

I naute hnute pek chungchangah ngaihtuahna emaw zawhna emaw i neih chuan i cleft leh craniofacial team te nen inbia nghal rawh . Chu team-a feeding therapist emaw nurse practitioner emaw chuan i naute chu i hnute i pek laiin a enfiah ang. I hnute pek dan emaw, test dang emaw tihdanglam an rawt thei bawk. Mahni chauh awm ngai suh.

Engtin nge nu leh pate’n an ṭanpui theih?

Naute hmui/hmeh hring (cleft lip/palate) hnute pek hi a tir lamah chuan a harsa deuh thei. Mahse nangmah chauh i ni lo, tanpuina tam tak a awm . I cleft team, specialist team te hian i mamawh tur support leh information an pe thei che a ni. Hetiang natna vei naute nena thawhhona kawngah hian tawnhriat an nei tha hle. Ultrasound neih laiin naute hian cleft a nei tih hmuhchhuah a nih chuan prenatal consultation pe thin cleft team tam tak an awm. Chumi hnuah nu leh pate chuan team nen inhmukhawmin nau hnute pek chungchanga zawhna an neih apiang an sawiho thei ang. Chumi hnuah naute pian hmain chaw pek dan tur ruahmanna an siam thei ang . Hei hi thlamuanna ropui tak a ni thei. Naute pian hnuah cleft i nei tih i hre nghal mai ang u. Chumi hnuah chuan inpatient staff te chuan nu leh pate chu an naute tana tha ber tur bottle system zawng turin an pui ang . Naute doctor chuan nu leh pa chu cleft team-ah a refer thei a ni. Cleft team hian naute pian hnu kar khat emaw kar hnih emaw chhungin nu leh pa leh naute nen an inhmu tlangpui thin. Nau hnute pek dan an enfiah ang a, zawhna i neih apiang an chhang ang. Hemi chungchang hi online-ah pawh i hmu thei bawk. Entir nan:

• American Cleft Palate-Craniofacial Association (ACPA) - Hetiang pawl website-ah hian thu tangkai tak tak a awm a.

Chuti a nih chuan, he thawnthu atang hian eng thil nge kan in lama kan hruai haw tur pawimawh ber?

Okay, tunah chuan kan sawi tam tawh a ni lawm ni? I fa te hian ``(Cleft Lip)`` emaw ``(Cleft Palate)`` emaw a neih chuan hnute pek hi a danglam deuh thei. Mahse, hengte hi hre reng ang che:

• Nausen hmui hrual nei te hian a pangngaiin an hnute an pe thei fo. An dinhmunah hian inthlak danglamna tenau te chauh an siam a ngai mai thei .
• Naute hmul hrual (cleft palate) te hian bottle bik an mamawh a, a chhan chu an hnute pek leh hnute lakna atana mamawh pressure siam an harsat vang a ni.
• Specialty bottle hrang hrang `Dr. Brown-a`, `Pigeon`, `Medela SpecialNeeds (Haberman)`, leh `Enfamil` te a ni. I medical team nen inbia la, i naute tana tha ber tur thlang rawh. Bottle pakhatin a thawk tha tawk lo a nih chuan pakhat dang enchhin hlau suh.
• I naute chu hnute i pek laiin ding chungin vawn la, a hrual fo turin pui la, minute 30 chhung chauh chaw pek kha tihtlem rawh. Heng thil tenawm tak takte hian danglamna nasa tak a thlen thei a ni.
• I naute hian a rilru a hah emaw, a rilru a hah emaw a nih chuan hnute pek chungchangah harsatna a ni thei. Damdawi lam thurawn zawng nghal rawh.
• Nangmah chauh i ni lo! ``Cleft team'' hian engkim ah an pui ang che. Zawhna zawh hlau suh, tanpuina dil rawh. I tanpui turin an awm reng a ni.

A pawimawh ber chu i naute chu dawhtheihna, hmangaihna leh hmanraw dik tak hmanga hnute pek hi a ni . Hei hi a tir lamah chuan zinkawng harsa tak angin lang mahse, hei hi i ti thei a ni. Tichuan i naute chu hrisel leh hlim takin a lo seilian ang. He zinkawngah hian duhsakna ka hlan a che u!

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Cleft Lip, Cleft Palate, Nu hnute pek, Specialty Bottles, Naupai harsatna, Damdawi lam thurawn, Nausen ei leh in tur