Ka moe ohorere koe i te awatea? Tērā pea ko (Narcolepsy) tēnei! Me kōrero tāua mō tēnei

Kua pāngia koe e te hiamoe nui i a koe e mahi ana i te awatea, e kōrero ana rānei ki ō hoa? Tērā pea ka whakaaro koe, "Āe... kāore au i moe nui inapo." Engari ehara i te mea he ngenge noa iho. I tēnei rā ka kōrero tātou mō tētahi momo raruraru moe rerekē. He mate tēnei e kiia nei ko te Narcolepsy . Ahakoa ehara i te mea noa, he mea kua rongohia e te tini tāngata nā ngā tohu e pā ana ki tēnei mate . Ka taea te rongoā, engari ka pā nui ki tō oranga, ki tō mahi, me ō whanaungatanga pāpori.

He aha te Narcolepsy?

He whakarāpopototanga noa iho, ko te Narcolepsy he mate pūnaha io e puta ai te moe ohorere, kore e taea te whakahaere i te awatea. Ina koa, kāore e taea e tō roro te whakahaere tika i te moe me te ara ake. Ka taea e tēnei te meinga koe kia tino hiamoe i te awatea, ahakoa te nui o te moe e moe ana koe i te pō.

He aha ngā tohu matua o te Narcolepsy?

E whā ngā tohu matua o te Narcolepsy. Engari kāore te nuinga o te tangata e pāngia e ngā tohu e whā i te wā kotahi. Tērā pea ka pāngia ētahi e te kotahi, e rua rānei. Kia tirohia tātou he aha ēnei tohu.

• Te Moe Nui i te Awatea : He tohu noa tēnei o te Narcolepsy. He rite ki te "whakaeke moe" ka moe ohorere koe. Ahakoa te aha e mahia ana e koe, ka hiahia koe ki te mutu me te moe.
• Cataplexy: He ngaronga ohorere tēnei o te mana whakahaere uaua . I ētahi wā he ngawari noa iho, pērā i te wiri o ngā uaua i tetahi taha o te mata, o te kaki rānei. Ki te tino kino, ka hinga ohorere pea koe ki te whenua. Me kōrero taipitopito atu tātou mō tēnei.
• Ngā moemoeā e pā ana ki te moe : Ko ēnei ngā moemoeā e puta ana i te wā e moe ana koe, i te wā rānei e tata ana koe ki te oho ake, ā, he tino whakamataku.
• Pararutiki Moe : Kua rongo pea koe i tēnei kōrero mō te "mataku i roto i te moemoeā, ā, kāore e taea te neke" me te kī a ētahi, "te ahua kua piki ake te rewera." Koinei te wā kāore e taea e koe te neke i tō tinana ahakoa kua ara ake koe, kāore rānei i tino ara. Me titiro anō tātou ki tēnei.

He kōrero anō mō ​​(Cataplexy)

I kōrero mātou i mua ake nei ko te cataplexy he ngaronga ohorere o te kaha o te uaua. E rua ngā momo matua o te narcolepsy i runga i te kitea, te kore rānei o tēnei tohu cataplexy:

• (Momo Narcolepsy 1) : Ko te tohu o tēnei momo ko te (Cataplexy) . Tata ki te 20% o ngā tūroro (Narcolepsy) kei roto i tēnei momo.
• (Momo Narcolepsy 2) : Kāore he tohu o tēnei momo (Cataplexy) . Ko te nuinga, arā, tata ki te 80%, ka taka ki tēnei momo.

I te nuinga o te wā, ina moe tātou, ka mutu te whakahaere a te roro i ō tātou uaua kia kore ai tātou e mahi i runga i ā tātou moemoeā. Ko te hunga e pāngia ana e te cataplexy ka pāngia e te ngaronga ohorere o ngā uaua, he rite ki te mea e pāngia ana e te moe REM, ahakoa kei te ara ake rātou.

I ngā take ngawari, ka pā pea te cataplexy ki ngā uaua o te mata me te kaki anake - hei tauira, ka piko pea te kauae. Ka pā rānei ki tētahi taha o te tinana anake. I ngā take kino, ka taea e te cataplexy te hinga ohorere, ka mate pea. He torutoru meneti te roa o ēnei wā, engari kāore pea koe e taea te kōrero, te neke rānei i tēnei wā.

Ko tētahi atu āhuatanga motuhake mō te cataplexy ko te mea ka taea te whakaoho e ētahi kare ā-roto . Ka puta pea i te wā e harikoa ana koe, e kata ana, e kata ana rānei. Ka puta anō hoki i te wā e ohorere ana koe, e mataku ana, e riri ana rānei, engari he iti ake te auau.

He rerekē te āhua o te cataplexy i roto i ngā tamariki me te hunga e ono marama te pakeke i te wā e puta tuatahi ai ngā tohu. Tērā pea ka pōuri ohorere rātou, ka kōpikopiko ō rātou arero, ka pāngia rānei e te ngoikore o ngā uaua kāore e pā ana ki te kare ā-roto.

He iti ake anō mō ​​te mate moe

Ina moe tātou, ka mutu te whakahaere a te roro i ō tātou uaua kia kore ai e mahi i runga i ngā mea e kitea ana e tātou i roto i ā tātou moemoeā. Engari ina ara ake tātou, me mahi tika anō tēnei whakahaere. Engari ki te pāngia koe e te mate moe, kāore tō tinana e whiwhi anō i taua whakahaere uaua. Ka taea e koe te manawa me te neke i ō kanohi, engari kāore e taea e koe te kōrero, te neke rānei i ētahi atu wāhanga o tō tinana.

He tino noa ngā moemoeā i te wā e pāngia ana e te mate moe. Ka tino mārama, i ētahi wā ka tino whakamataku. He waimarie, he torutoru meneti te roa o te mate moe (ahakoa ka roa pea te wā ki te tangata e pāngia ana).

He tohu anō kei reira?

Haunga ngā tohu matua e whā, tera pea ka pāngia te hunga whai narcolepsy e ētahi atu tohu me ngā whanonga. Ko ētahi o ēnei ko:

• Ngā Nekehanga Aunoa : I ētahi wā, ka neke tonu pea ngā wāhanga tinana o te hunga whai narcolepsy, pērā i ō rātou ringaringa, ahakoa kua moe rātou.
• Te Wareware, te Koretake rānei : He mea noa ki ēnei tāngata te wareware i ā rātou mahi i mua i te moe.
• Ngā pahūtanga/kōrero ohorere i te wā e moe ana : Tērā pea ka kōrero ohorere te tangata e pāngia ana e te narcolepsy i tētahi mea (he maha ngā wā kāore he tikanga, he koretake rānei i taua wā). Ina tupu tēnei, tērā pea ka ara ake anō rātou. Engari he maha ngā wā kāore e maharatia.

Ko wai ka pāngia e te narcolepsy? He pēhea te noa o tēnei?

Ko te tikanga, ka tātaritatia e ngā tākuta te narcolepsy i roto i te hunga i waenga i te 5 me te 50 tau te pakeke. Heoi, he mea noa i te hunga taitamariki , i waenga i te 18 me te 25 tau te pakeke. He nui ake te tūponotanga ka pāngia ngā tāne e te mate.

Ehara te narcolepsy i te mate tino noa.E whakaatu ana ngā rangahau kei waenganui i te 25 me te 50 i roto i te 100,000 tāngata puta noa i te ao e pāngia ana e tēnei mate. Heoi, nā te mea he maha ngā tau e pau ana ki te tautuhi i te mate, he uaua ki te kī tika e hia ngā tāngata e pāngia ana e tēnei mate.

He pēhea te pānga o te Narcolepsy ki tōku tinana?

Hei mārama ki te narcolepsy, he pai ki te mōhio ki te āhua o te mahi a tā tātou moe. He maha ngā wāhanga matua o tā tātou moe:

• Wāhanga 1: Moe Māmā . He wāhanga poto tēnei. Ka tīmata ina moe koe. Tata ki te 5% o tō moe katoa.
• Wāhanga 2: Moe Hōhonu ((Moe Hōhonu)) . He hohonu ake tēnei. Tata ki te 45%-50% o te moe katoa (ka piki ake tēnei nui i a tātou e pakeke haere ana).
• Wāhanga 3: Moe Pōturi . Tata ki te 25% o te moe katoa (ka heke tēnei i te pakeketanga). He tino uaua ki te whakaara i tētahi i tēnei wā. Ki te whakaarahia ohoreretia rātou, ka uru rātou ki te āhua o te kohu hinengaro e kiia nei ko te "moe koretake". Ka puta anō hoki te hikoi moe me te kōrero moe i tēnei wā.
• Moe (REM) : Ko te tikanga o te moe (REM) ko te (Rapid Eye Movement) , arā, ka tere te neke o ngā kanohi. I tēnei wā ka moemoeā tātou. Ina moe te tangata (REM), ka kite koe i ngā kanohi e neke ana i raro i ngā kamo.

Ki te kore koe e pāngia e te narcolepsy, ina moe koe, ka tīmata koe i te wāhanga 1, kātahi ka haere ki ngā wāhanga 2 me te 3. Ka huri koe i waenga i ēnei wāhanga, ā, ka mutu ka uru ki te moe REM, te wāhi ka tīmata ai koe ki te moemoeā. Whai muri i te huringa REM tuatahi, ka tīmata koe i tētahi huringa hou ka hoki ki te wāhanga 1, 2 rānei. Ko te roa o tētahi huringa he 90 meneti pea. Ko te nuinga o te tangata e haere ana i roto i te whā ki te rima ngā huringa i ia pō (mēnā e 8 hāora tā rātou moe).

Engari ki te pāngia koe e te narcolepsy, kāore tō huringa moe e puta pēnei. Engari, ka uru koe ki te moe REM tata tonu i te wā e moe ana koe . I te pō katoa, ka moe poto koe, he maha ngā wā kāore e oti te huringa moe noa.

I roto i te narcolepsy, ahakoa te pai o tō moe i te pō, ka tino hiamoe koe i te awatea. He tino uaua ki te whakamutu i te moe. Engari he poto hoki tēnei moe e puta mai ana i te awatea (tata ki te 15-30 meneti). Ina ara ake koe, ka hou te wairua, ā, ka rite koe ki te mahi anō i tāu i mahi ai i mua. Heoi, nā te mea he maha ngā wā e puta ai tēnei i te rā, ka tino whakararuraru te narcolepsy i tō oranga.

He aha ngā take o te narcolepsy?

He rerekē ngā take o te narcolepsy i runga i te momo narcolepsy kei a koe, engari he wāhanga motuhake o tō roro e pā ana ki ēnei, ko te hypothalamus te ingoa, e whakahaere ana i te moe me te ara ake.

Ngā Take o (Momo 1 Narcolepsy)

I te tau 1998, i kitea e ngā kairangahau tētahi matū e kiia nei ko ngā orexin (e kiia ana i ētahi wā ko ngā hypocretin) . Ka whakamahia ēnei e ētahi neuron (ngā pūtau roro) hei tuku karere. Kei roto i tētahi wāhanga o te roro e kiia nei ko te hypothalamus ngā neuron e whakamahi ana i ngā orexin. Ko ēnei neuron te mea matua e āwhina ana kia mataara tonu tātou.

Ko ngā taumata o te orexin ka kitea i roto i te wai cerebrospinal (CSF) – te paparanga angiangi o te wai e karapoti ana i te roro me te taurakira. Heoi, i roto i te hunga e pāngia ana e te narcolepsy, he tino iti, he kore rānei e kitea ngā taumata o te orexin i roto i te CSF. Ko te tikanga tēnei kua mutu te mahi a ngā pūtau e hanga ana i te orexin, kua whakangaromia rānei e tētahi mea.

E kī ana ētahi atu rangahau ko te take kāore e mahi ai ēnei neurons he raru pea nō te pūnaha ārai mate . Ko te tikanga o tēnei ka whakaekea e te pūnaha ārai mate o tō tinana ngā neurons e hanga ana, e whakamahi ana hoki i te orexin, te orexin tonu rānei, ngā mea e rua rānei.

Tata ki te 90%-95% o te hunga whai Narcolepsy Momo 1 he whakarerekētanga ira motuhake e pā ana ki tō rātou pūnaha ārai mate (e kiia ana ko HLA-DQB1*06:02 ). Heoi, tata ki te 25% o te taupori whānui kei a rātou tēnei whakarerekētanga engari kāore he Narcolepsy. Nō reira, kāore ngā tohunga e whakamātautau mō tēnei whakarerekētanga, ā, kāore rātou i te tino mōhio he aha te mahi a tēnei. He taunakitanga anō hoki kei reira ka taea te horapa te mate i roto i ngā whānau. Mena kei te pāngia te Narcolepsy e te whanaunga tuatahi (matua, teina, teina, tamaiti), ka nui ake tō tūponotanga ki te pāngia e tēnei.

Heoi, ka taea hoki te whanake o te Narcolepsy Momo 1 i muri i ētahi mate huaketo me ngā mate kitakita, inā koa ngā huaketo rewharewha pēnei i te rewharewha H1N1 me ngā huakita e hua ai te korokoro strep. E whakapono ana ngā tohunga he take pea tēnei nā te mea ka taea e ngā mate te whakaputa i ngā huringa me ngā hapa o te pūnaha ārai mate.

Ngā Take o (Momo 2 Narcolepsy)

Ahakoa he nui ngā mōhiotanga mō ngā take o te Narcolepsy Momo 1, kāore i te tino mōhiotia te Momo 2 Narcolepsy. Kāore anō kia tino mārama ngā tohunga he aha te whanaketanga o te Narcolepsy Momo 2. Engari e whakaaro ana rātou he rite tonu ngā take. Hei tauira, tera pea nā te kino iti ake o ngā neuron e whakamahi ana i te orexin, he raruraru rānei ki te huarahi e haere ai te orexin i roto i te roro.

Narcolepsy Tuarua

I ētahi wā onge, ka puta te narcolepsy i te kino o tō hypothalamus. Ka puta pea tēnei kino i ngā mea pēnei i ngā whara o te upoko (concussions), ngā whara roro (ngā whara roro), ngā whiu, me ngā pukupuku roro.

Ka taea hoki e te narcolepsy te tohu i ētahi atu mate kāore e pā ana ki a koe, kua riro pea i a koe. Hei tauira:

• (Te Ataxia Cerebellar Autosomal Dominant, te Narcolepsy me te Turi (ADCADN))
• (Te Narcolepsy Matua-ā-Iwi, te Mate Huka Momo 2 me te Momona)

He mate hopuhopu te narcolepsy?

Kāo, ehara te Narcolepsy i te mate hopuhopu. Kāore e taea e koe te pangia e tētahi atu, kāore hoki e taea e tētahi atu te pangia e koe.

Me pēhea te mohio ki te narcolepsy?

Tērā pea ka whakapae te tākuta kei a koe te narcolepsy i runga i ō tohu. Heoi, he rite tonu ngā tohu o te narcolepsy ki ērā o ngā mate roro me te moe maha atu. Nō reira, he mea nui kia mōhio koe mēnā kei a koe te narcolepsy.Ka taea anake te whakatau i te mate mā te whakamahi i ngā whakamātautau motuhake.

I mua i te whakahaere i ngā whakamātautau matua mō te narcolepsy, ka tirohia tuatahitia e te tākuta mēnā kei te nui tō moe. He tikanga ngāwari tēnei e aroturuki ana i ō tauira moe-ara. Hei tauira, ko te actigraphy . Kei roto i tēnei ko te whakamahi i tētahi taputapu, pērā i te mātiti ringaringa, hei aroturuki i ō tauira nekehanga (pērā i te wā e moe ana koe, me te wā e ara ana koe, e nekeneke haere ana).

He aha ngā whakamātautau e whakamahia ana hei tautuhi i te narcolepsy?

He maha ngā whakamātautau ka taea te mahi hei tautuhi i te narcolepsy:

• Rangahau Moe (Polysomnogram) : Ka whakamahia e tēnei whakamātautau ngā momo pūoko hei aroturuki i tō moe. Ko te wāhanga matua o tētahi rangahau moe katoa, e kiia nei ko te polysomnogram , ko te whakamahinga o te electroencephalogram (EEG) . Ka aroturukihia e ēnei pūoko ō ngaru roro. Mā tēnei ka taea e ngā tākuta te kite i te wāhanga o tō moe i ia meneti. Ko te hunga whai narcolepsy ka tere ake i te tikanga ki te moe REM, nō reira ka taea e tēnei whakamātautau te kite i tēnei. Ka tuhia hoki te wā e ara ake ai rātou i te wā e moe ana. Ko tētahi atu take he mea nui tēnei whakamātautau ko te nui o te hiamoe i te awatea ka taea hoki te tohu i tētahi āhuatanga e kiia nei ko te sleep apnea . Ka taea e tētahi rangahau moe te whakaū kāore koe i te sleep apnea.
• Whakamātautau Moe Roa (MSLT) : Ka ine tēnei whakamātautau i te ngāwari o tō moe i te awatea. Kei roto ko te tango i ētahi moe i roto i tētahi wā kua whakaritea. Ka taea te whakatau mēnā he nui rawa tō hiamoe i te awatea. He tohu noa tēnei o te narcolepsy. He maha ngā wā ka mahia i te awatea i muri i te rangahau moe i te pō.
• Whakamātautau Pupuri i te Maranga : Ka ine tēnei whakamātautau i te pai o tō noho mataara i te awatea, ahakoa kei te ngāwari koe ki te moe. Kāore i te whakamahia whānuitia hei tirotiro i te narcolepsy, engari ka taea e ia te āwhina ki te whakakore i ētahi atu raruraru. He mea whai hua anō hoki hei tirotiro mēnā kei te whai hua ngā rongoā whakaohooho.
• Te Tātari Tuaiwi (Te Puni Tuaiwi) : Ka taea e tēnei whakamātautau te kite i ngā taumata iti o te orexin i roto i tō wai cerebrospinal (CSF). He huarahi matua tēnei ki te tautuhi i te Narcolepsy Momo 1. Ko ngā taumata orexin iti he tohu pea kāore anō kia pāngia te tangata e te Narcolepsy e te cataplexy, engari he tohu pea kei te pāngia rātou e te cataplexy ā muri ake nei. Heoi, nā te mea kāore ngā taumata orexin e rerekē i roto i te hunga e pāngia ana e te Narcolepsy Momo 2, ehara tēnei i te whakamātautau tautuhi i ngā wā katoa.

Ētahi atu whakamātautau

He maha atu anō ngā whakamātautau mō te hunga e pāngia ana e te narcolepsy. Hei tauira, ki te pāngia koe e te cataplexy, ka rite pea ki ngā tohu e pā ana ki te nekehanga o ētahi atu mate roro, pērā i te haurangi. Nō reira, ka whakamātautau tuatahi pea ngā tākuta mō ngā āhuatanga kino ake, pērā i te mate haurangi. Nō reira, ka roa pea te wā ki te tautuhi i te narcolepsy. Ko tō tākuta te tangata pai ki te whakamārama i ngā whakamātautau me whai koe me te take e mahia ana.

Me pēhea te rongoā i te narcolepsy? Ka taea te whakaora?

Ka taea te rongoā i te narcolepsy, engari kāore e taea te whakaora . Ko te rongoā te tīmatanga mā te rongoā. Engari ka taea hoki te āwhina i te whakarerekē i tō mahinga o ia rā me tō momo noho. He pai te urupare a te narcolepsy ki te rongoā. Ka taea e tēnei te āwhina ki te whakawhāiti i te raruraru i puta mai i ngā tohu.

Kia maumahara, he mate mō te wā roa te narcolepsy, engari kāore e kino haere i roto i te wā.

He aha ngā rongoā mō te narcolepsy?

Ko te rongoā te rongoā matua mō te narcolepsy. Ko te nuinga o ngā rongoā e aro ana ki te hiamoe nui i te awatea. Heoi, ka pāngia hoki ētahi atu tohu e ētahi rongoā. Anei ētahi momo rongoā ka taea te hoatu mō tēnei mate:

• Ngā Rongoā mō te Mataara : Koinei ngā maimoatanga tuatahi. Hei tauira, ko Modafinil me Armodafinil . Ka whakaoho ēnei rongoā i tō pūnaha io. Ka āwhina tēnei ki te whakaiti i te kaha me te auau o te hiamoe i te awatea.
• Ngā Amphetamine me ngā Whakaohooho Amphetamine-rite : Ngā raau taero pēnei i te methylphenidate (e mōhiotia ana i raro i ngā ingoa waitohu Ritalin®, Concerta®, Qullivant®) me ngā huinga amphetamine/dextroamphetamine (e mōhiotia ana i raro i te ingoa waitohu Adderall®).
• Ngā Rongoā Whakaiti i te Pōuri : Kei roto i ēnei ko ngā Aukati i te Whakahokinga Anō o te Serotonin-Norepinephrine (SNRI) (hei tauira, Venlafaxine - e mōhiotia ana ko Effexor®), ngā Aukati i te Whakahokinga Anō o te Serotonin Selective (SSRI) (hei tauira, Fluoxetine - e mōhiotia ana ko Prozac®), ngā Aukati i te Pōuri Tricyclic rānei (hei tauira, Clomipramine, Protriptyline rānei - kāore i te tino whakamahia whānuitia ēnei i ēnei rā).
• (Sodium Oxybate) : Ka āwhina tēnei rongoā i a koe kia pai ake te moe, ā, ka whakaiti hoki i te auau o te (Cataplexy). Nā ngā pānga o tēnei rongoā, he tino mana whakahaere i roto i te maha o ngā whenua. Heoi, he maha tonu te whakamahinga hei rongoā i te (Momo 1 Narcolepsy).
• Ngā rongoā e pā ana ki te histamine : Ko tētahi tauira o taua rongoā ko te Pitolisant.He kaitukino i ngā kaiwhakawhiwhi histamine tēnei. Ko ngā kaitukino kaiwhakawhiwhi he rongoā e aukati ana i ētahi matū o tō tinana kia piri ki ngā pūtau. Ka whakaitihia, ka aukatia rānei e tēnei ngā pūtau kia mahi i ētahi mea.

Ahakoa he maha ngā kōwhiringa maimoatanga mō ngā pakeke (narcolepsy), he iti noa iho ngā kōwhiringa maimoatanga mō ngā tamariki. Ka taea e te tākuta tamariki, e te tohunga rānei o tāu tamaiti te kōrero pai ki a koe he aha ngā kōwhiringa maimoatanga e wātea ana ki a koe me tā rātou e taunaki ana.

Ngā raruraru/ngā pānga taha o te maimoatanga

He nui ngā rongoā e whakamahia ana hei rongoā i te narcolepsy me ōna tohumate, ā, he nui te tūponotanga ka pāhekohekohia ki ētahi atu rongoā. Ko te toto toto tiketike me ngā manawataki ngakau koretake ētahi o ngā raruraru ka puta mai i tētahi momo rongoā whakaohooho. He tino morearea te Sodium Oxybate ina honoa ki ētahi atu rongoā e whakapōrearea ana i te pūnaha io matua. Kaua rawa hoki e whakamahia tēnei rongoā me te waipiro .

I te nuinga o te wā, ko tō tākuta te tangata pai rawa atu hei kōrero ki a koe mō ngā pānga taha, ngā raruraru, me ngā taunekeneke rongoā me mōhio koe. Ka taea e ia te whakarato i ngā mōhiohio e hāngai ana ki tō āhua motuhake, tō hītori hauora, me ngā āhuatanga whaiaro.

Me pēhea taku tiaki i ahau anō me te whakahaere i aku tohumate?

Kaua rawa koe e ngana ki te tātaritanga, ki te rongoā rānei i te narcolepsy māu ake . Nā te mea he mea noa hoki ngā tohu o tēnei mate i roto i ētahi atu mate kino, pērā i te sleep apnea me te epilepsy. Waihoki, ka taea e tēnei mate te whakararu i ētahi mahi, pērā i te taraiwa me te kaukau. Nō reira, me toro atu ki te tākuta mō te tātaritanga me te maimoatanga .

Kia pēhea te roa ka pai ake ai taku āhua i muri i te maimoatanga?

Ko te roa o te wā e tīmata ai te mahi a te maimoatanga, e puta ai rānei ngā pānga o te maimoatanga, e whakawhirinaki ana ki ngā āhuatanga maha. Ko tō tākuta te tangata pai rawa atu hei kōrero ki a koe he aha ngā mea hei tumanakohia i runga i tō āhua, te roa o te wā e mahi ai te rongoā, me te roa o te wā e kite ai i te huringa o ō tohumate.

Ka taea te whakaiti, te ārai rānei i te whanaketanga o te narcolepsy?

I te nuinga o te wā, ka puta ohorere te narcolepsy. Nō reira, kāore e taea te whakaiti i te mōrearea o te whanaketanga, te aukati rānei i tōna whanaketanga.

He aha taku e tumanako atu ai mēnā kei a au te Narcolepsy?

Kāore te narcolepsy i te tino mōrearea. Engari ko te moe ohorere, kore e taea te whakahaere, ka raru nui te oranga. Tērā pea kāore e taea e te hunga whai mate pēnei te taraiwa (mō te wā poto, mō te wā roa rānei - kei runga i ō rātou tohu me tō rātou āhua).

Ahakoa kāore i te tino mōrearea te narcolepsy, i roto i te momo narcolepsy 1, he nui ake te mōrearea o te whara mai i te hinganga i ngā wā o te cataplexy. Ka taea hoki e te narcolepsy te whakaputa i ngā āhuatanga mōrearea i te wā e taraiwa ana, e whakamahi ana i ngā taputapu hiko, i ngā mīhini taumaha rānei, e kaukau ana rānei.

Ina pāngia ngā tamariki e te narcolepsy

He maha ngā wā ka raru ngā tamariki e pāngia ana e te narcolepsy me ngā pānga o te mate. Ka uaua pea te arotahi ki ngā mahi kura, te pupuri i ngā whanaungatanga pāpori, me te whai wāhi atu ki ngā mahi kura me ngā mahi i waho o te kura i te hiamoe i te awatea.

Heoi, he mate hauora te Narcolepsy. Nō reira, e tika ana kia tiakina ngā tamariki e te Narcolepsy e te ture. E hiahiatia ana hoki e ngā kura kia whakarite i ngā whakaritenga. Hei tauira, te whakarerekē i ngā wātaka akomanga, te whakarite wā mō te moe, te okioki rānei, me te whakangāwari ake i te tango rongoā a ngā tamariki i te kura. Ka taea e te tākuta tamariki, e ētahi atu tohunga rānei o tāu tamaiti te āwhina i a koe ki te kimi i ngā otinga hei āwhina i tāu tamaiti.

Mō ngā pakeke mahi (Narcolepsy)

Pērā i ngā tamariki e tiakina ana e te ture i ngā kura, e tiakina ana hoki ngā pakeke e pāngia ana e te narcolepsy e te ture. Kāore e whakaaetia te whakahāwea i tētahi i runga i tētahi mate hauora, tae atu ki te narcolepsy (hei tauira, i te Hononga o Amerika, i raro i te Ture mō ngā Hauātanga o Amerika).

Nā te mea he tiakitanga ture tērā, ka taea e te hunga whai narcolepsy te kōrero ki ō rātou kaitukumahi i ō rātou wāhi mahi, me te tiki wāhi noho kia taea ai e rātou te mahi tonu me te whakahaere i ō rātou āhuatanga.

Me pēhea taku tiaki i ahau anō? (He tohutohu whai hua)

Mena he narcolepsy tōu, he maha ngā mea ka taea e koe te mahi hei whakahaere i tō āhua me te whiwhi i te hua pai o tō maimoatanga. Ko te nuinga o ēnei mea ko te pupuri i ngā tikanga moe pai (Good Sleep Hygiene) me te whakarerekē i tō kaupapa me tō mahinga.

• Kia mau ki tētahi tikanga moe ōrite : Mā te whai tikanga ki te haere ki te moenga me te ara ake i te wā kotahi ka pai ake te kounga o tō moe.
• Whakaritea he wā moe : Whakaritea he wā moe e tika ana mō tō tau. Me whakarite hoki he wā hei whakangā me te whakamarie i tō hinengaro i mua i te haere ki te moe.
• Whakawhāitihia te pānga ki te mārama kanapa me ngā taputapu hiko : Ka taea e te mārama mai i ēnei taputapu e tata ana ki te wā moe te whakararuraru i te huringa moe-ara o tō tinana.
• Āta karohia te inu waipiro, te kawheine, te whakamahi tupeka, me te kai tata ki te wā moe.Ki te hiakai koe i mua i te moe, he pai ake te kai māmā. Ki te mea kei te tango koe i ētahi rongoā, me mutu rawa te inu waipiro (mā tō tākuta koe e kī atu mēnā kua tohua he rongoā pēnei ki a koe). E tino taunaki ana hoki ngā tohunga kia mutu rawa te whakamahi tupeka (tae atu ki ngā hikareti, ngā hikareti hiko ((vaping)), me te tupeka kore auahi ((tupeka kore auahi))).
• Kia kaha te tinana : Ahakoa he hikoi noa iho, mā te noho kaha ka āwhina i te kounga o tō moe.
• Moe iho : He maha ngā wā ka pai ake te ahua o te hunga whai narcolepsy i muri i te moe. He āwhina te mōhio ki ngā wā o te rā e tino hiamoe ana koe, me te whakarite i tō moe i aua wā.

Āta karohia ngā mahi mōrearea, me mahi rānei i ngā mahi ārai.

Ka taea e te narcolepsy te whakararu i ngā aituā kino, tae atu ki te mate. Hei tiaki i a koe anō me te hunga e karapoti ana i a koe, kaua rawa e taraiwa ki te kore e whakaaetia e te tākuta .

Ki te pāngia koe e ngā tohu o te narcolepsy i a koe e taraiwa ana, kati tonu te taraiwa ka whakapā atu ki tō tākuta. Ahakoa te āhua kore whakamarie o tēnei, he mea nui kia āraihia he aituā whakamate, he aituā whakarerekē rānei i te ora nā te moe i te taha o te urungi.

Ko tētahi atu wāhi e tino morearea ai te narcolepsy ko te wai . Mena he narcolepsy tōu, he mea nui kia mau tonu i te koti ora i a koe e kaukau ana, i runga rānei i tētahi poti, waka rānei e taunaki ana i te tiaki ora. Ki te kore he tiaki ora, ka pā he hua kino ki te moe i roto i te wai.

Āhea ahau me toro atu ki te tākuta?

Ki te moe ohorere koe, he tohu tēnā me toro atu koe ki te tākuta. Ehara i te mea ko te narcolepsy anake tēnei, engari he tohu anō hoki mō ngā momo mate hauora. Ko ētahi o ēnei he mate kino. I roto i te nuinga o ngā wā, ko te roa o te whakaroa i te tātaritanga me te maimoatanga, ka nui ake te tūponotanga o ngā raruraru, ka iti ake rānei te whai huatanga o te maimoatanga.

Āhea ahau me haere ki te Wāhanga Maimoatanga Ohotata (ETU) ?

Ki te hinga ohorere koe, ki te ngaro rānei tō mārama, rapua tonutia he awhina hauora i te hōhipera, i te rūma whawhati tata rānei. He tohu nui tēnei mō ngā mate maha, tae atu ki ngā mate manawa, ngā whiu, me ngā manawataki manawa koretake. He mate manawa ohorere ēnei, ā, me tere tonu te maimoatanga.

Ko ngā whara e pā ana ki te hinganga ko ngā whara ka puta mai ina hinga ohorere koe, pērā i te tōia, te ngaronga rānei o te māramatanga.Tērā pea ka whara koe. Me rapu tohutohu hauora tonu mēnā kei te whakaaro koe kua whara tō mahunga, tō kaki, tētahi wāhanga rānei o tō tuara. Ka taea e ngā whati me ngā whara o te taurakira te whakararuraru tuturu, te pararutiki, tae noa ki te mate.

Ki te hinga koe, ā, kei te tango koe i tētahi momo rongoā whakaiti toto , inā koa ka pā tō mahunga, me rapu tonu koe i te awhina hauora. Ka taea e ngā hinganga me ngā whara te whakaputa toto ā-roto morearea. Me rapu awhina hauora koe kia kore ai he whara e arahi ki ngā raruraru morearea ki te ora.

Ngā mea tino nui hei maumahara māu (Karere hei kawe ki te kāinga)

Nō reira, ko tāku tumanako kua taea e koe te maumahara ki ētahi o ngā mea tino nui o ngā mea kua kōrerohia e tātou (Narcolepsy).

• Ehara i te hiamoe noa iho nā te ngenge te narcolepsy. He raruraru ki te kaha o te roro ki te whakahaere i te moe me te ara ake.
• Kia tūpato ki ngā tohu matua o te hiamoe nui i te awatea, te cataplexy (te ngoikore ohorere o ngā uaua), ngā moemoeā e pā ana ki te moe, me te pararutiki moe . Kāore ēnei tohu katoa e puta i te katoa.
• Ko te take o tēnei āhuatanga he iti iho i te matū orexin i roto i te roro, he raruraru rānei nō te pūnaha ārai mate.
• Me whai whakamātautau hauora motuhake hei tautuhi i te narcolepsy. Nō reira kaua e whakatau tere i a koe anō.
• Ahakoa kāore e taea te whakaora katoa i tēnei mate, he mate tēnei ka taea te whakahaere mā te rongoā me ngā huringa momo noho .
• Whakaarohia te haumaru. Kia tino tupato i te wā e taraiwa ana, e kaukau ana, e mahi ana i ngā wāhi teitei. Whaia ngā tohutohu a te rata.
• Ki te pā mai ēnei tohu ki a koe, kaua e wehi ki te toro atu ki te tākuta. Kāore koe i te mokemoke. Kei te wātea te āwhina.

Ko tāku tumanako ka whai hua ēnei mōhiohio ki a koe. Mena kei te pāngia koe, tetahi atu rānei e mōhio ana koe e tēnei momo raruraru, he mea pai kia rapu tohutohu hauora i te wā e taea ai.

` Narcolepsy, hiamoe nui i te awatea, cataplexy, apnea moe, moemoeā moe, orexin, mate roro