Mena kei a koe te Ankylosing Spondylitis (AS), kua mōhio pea koe ki te mamae o te tuara, te pakari o te ata, te mamae o te kaki, me te ngenge. He tokomaha e whakaaro ana he mate tēnei e pā ana ki te tuaiwi anake. Engari ko te mea pono, ka pā pea tēnei mate ki ngā wāhanga nui o tō tātou tinana, arā, ko ngā 'raruraru'. Nō reira, he mea tino nui kia mōhio koe ki tēnei. Me kōrero tātou mō tēnei i tēnei rā.
Ka pāngia anō hoki ngā kanohi?
Ae, he raruraru noa tēnei e kitea ana i roto i ngā tūroro AS. Kātahi ka whero tetahi o ō kanohi, ka mamae, ā, ka pōuri te tirohanga. Tērā pea ka pāngia koe e te māramatanga. E kiia ana tēnei āhuatanga e te rongoā ko te Iritis, ko te Anterior Uveitis rānei .
Ki te pāngia koe e tētahi o ēnei tohu, kaua e whakaaro he mate kanohi noa iho. Me toro atu ki te tākuta i te wā e taea ai. Ki te kore e rongoatia wawetia, tera pea ka pakaru tō tirohanga mō ake tonu atu. Ko ngā pata kanohi corticosteroid te tikanga e whakamahia ana hei rongoā.
Kia tiakina tō tuaiwi, kaua ko tō tuarā anake, engari ko ō hononga anō hoki.
Kāore te mumura, te pupuhi me te mamae rānei, i puta mai i te AS e herea noa ki tō tuaiwi. Ka pā hoki ki ō hononga nui, pērā i ō turi, hope, me ō pakihiwi . Ina pakaru ēnei hononga i roto i te wā, ka mamae pea, ā, ka uaua ki te mahi i ngā mahi o ia rā. I ētahi wā kino rawa, ki te nui rawa te kino, ka tūtohu pea tō tākuta kia pokangahia te whakakapinga hononga .
Ko tētahi atu take motuhake ko te enthesitis . He whakarāpopototanga noa iho, ko te mumura tēnei e hono ai ō tātou uaua me ngā hononga ki ō tātou wheua. Ka pā te mamae ki raro, ki muri hoki i ō rekereke, ki runga ake i tō wheua kaki, me te hononga o ō rara ki tō wheua uma. Mēnā kei a koe tēnei momo mamae uma, ka pāngia pea koe e te mamae ina manawa koe. Nō reira, ki te pāngia koe e tētahi momo mamae uma, kia mōhio koe ki te kōrero ki tō tākuta kia mōhio ai ehara i te tohu o tētahi mea kino ake.
Ngā huringa nui ka puta i roto i te tuaiwi
Ko te mea nui ka pā mai ina kino haere te AS ko te hononga o ngā wheua o te tuaiwi, te hononga tuaiwi rānei.Ko tētahi mea ka tupu ko te ngaronga o te ngāwari o te tuaiwi, ā, ka kore e taea te pupuri i tōna tuaiwi kia tika, ka piko whakamua. Ka kiia hoki tēnei he kyphosis .
Ina pakaru te tuaiwi i tēnei ara, he tino teitei te tūponotanga o ngā whati o te tuaiwi. Nā te mea kāore te tuaiwi i te ngāwari, ahakoa he iti noa te hinganga ka pā he kino nui. Waihoki, i roto i tēnei mate , he mea noa te osteoporosis , he āhuatanga e angiangi ai, e ngoikore ai ngā wheua. Ka taea e tēnei te arahi ki ngā whati o te tuaiwi.
| Wāhanga tinana e pāngia ana | Raru pea (uauatanga) | Ngā tohu hei tūpato |
|---|---|---|
| Ngā kanohi | Iritis/ Uveitis | Whero ngā kanohi, mamae, pōuri te tirohanga, te aro ki te mārama. |
| Tuaiwi | Te Hononga Tuaiwi, Ngā Whati | Te piko whakamua o te tuaiwi, te pakari haere o te tuara, te mamae ohorere o te tuara. |
| Ngākau | Ngā mate pūnaha toto, ngā āhuatanga rerekē o te manawa o te ngakau | Mamae o te uma, uaua ki te manawa, ngenge, pāwerawera o te ngakau. |
| Pūnaha nakunaku | Mumura o te puku / IBD | Mamae puku, korere roa (korere). |
| Ngā pūkahukahu | Te ngoikore o te mahi a ngā pukahukahu, te whara o ngā pukahukahu (Fibrosis) | Te uaua ki te manawa hōhonu, te maremare tonu, te poto o te manawa. |
| Āhua ohorere! - Rapua he tohutohu hauora tonu. | ||
| Te wāhanga o raro o te tuaiwi | Te Mate Cauda Equina | Te ngoikore o te papa me te puku o raro, te kore e taea te whakahaere i te mimi me te tūtae, te ngoikore o ngā waewae me te uaua ki te hikoi. He āhuatanga ohorere hauora tēnei! |
Ngā pānga ki te ngākau, ngā pukahukahu, me ētahi atu whekau
Ka pā anō hoki te mumura pūnaha e puta ana i te AS ki ētahi atu okana o te tinana.
Te mōrearea o te mate ngakau
He paku piki ake te mōrearea o te hunga whai AS ki te pāngia e te mate pūnaha manawa. Kei roto i tēnei ko ngā mate pēnei i te whiu. Ka taea hoki e rātou te pāngia e ngā mate pēnei i te aortitis, ngā raruraru uaua o te ngakau (cardiomyopathy), me ngā arrhythmias.
Ngā raruraru o te pūnaha nakunaku
Tērā pea ka pāngia ētahi tāngata whai AS e te mate e kiia nei ko te Inflammatory Bowel Disease (IBD) , ka puta ai ngā tohu pēnei i te mamae puku tonu me te mate korere.
Ngā mate kiri
Ka kitea anō hoki te psoriasis, he mate kiri e ahu mai ana i te ārai mate, i roto i ngā tūroro AS. Nā tēnei ka puta he whero, he unahi hoki i runga i te kiri.
Ngā raruraru pūkahukahu
Ahakoa ehara tēnei i te mea tino noa, ka taea e te AS te whakawhāiti i te uma, ka whakaiti i te kaha ki te manawa hōhonu (te kaha o te pukahukahu). I ētahi wā onge, ka puta he whara (fibrosis) i te taha whakarunga o ngā pukahukahu.
Kaua hoki e wareware ki te hauora hinengaro
He mea noa te pouri ina noho roa ana me te mamae me te kore whakamarie tinana. He nui ake te tūponotanga o te hunga whai AS ki te pāngia e te pouri me te manukanuka . Ki te mea kei te pāngia koe e te ahotea, te manukanuka rānei, kaua e huna.Kōrero ki tō tākuta mō tēnei mea. He rite tonu te hiranga o te hauora hinengaro ki te hauora tinana.
He tino onge engari he mea nui ngā raruraru hei tūpato
He tino onge ēnei āhuatanga, engari he mea nui kia mōhio ki ēnei āhuatanga.
- Te Mate Cauda Equina: He āhuatanga ohorere hauora tēnei. Ka puta mai i te pēhanga o ngā io i te pūtake o te tuaiwi. Mena ka pāngia koe e ngā tohu pēnei i te ngoikore o te puku o raro me te papa, te ngaronga o te mana whakahaere o te pūkahukahu me te puku, te ngoikore rānei o ō waewae e uaua ai te hikoi , haere tonu ki te Tari Ohorere o te hōhipera tata (ETU) .
- Te mate amyloidosis: I tēnei āhua, ka taea e tētahi pūmua rerekē e kiia nei ko te amyloid te hanga i roto i ngā whekau pērā i ngā whatukuhu me te ngākau. He tino onge tēnei.
Ehara i te mea hei whakamataku i a koe ēnei mea. He mea hei whakaako i a koe mō tō āhua. Ehara i te katoa e pāngia ana e ēnei raruraru. Engari ki te mōhio koe ki ēnei tohu, ka taea e koe te tautuhi me te rapu maimoatanga wawe mēnā ka puta he raruraru.
Karere Tangohia ki te Kāinga
- Ehara i te mea ko te Ankylosing Spondylitis (AS) he mate o te tuaiwi anake. Ka pāngia hoki ngā kanohi, te ngākau, ngā pukahukahu, ngā whekau me ētahi atu hononga.
- Kia tūpato tonu ki ngā tohu hou e puta mai ana i roto i tō tinana (hei tauira, te whero o ngā kanohi, te mamae o te uma, te uaua ki te manawa). Kaua e warewaretia.
- Kōrerohia mā te mahorahora ki tō tākuta mō ngā tohu hou, ngā tohu rerekē rānei. Mā te kitenga wawe ka āwhina i te ārai i ngā raruraru nui.
- Mena ka puta ngā tohu pēnei i te ngoikore o te puku o raro, te korenga o te mana whakahaere mimi/paru, whakaarohia he āhuatanga ohorere tēnei, ka haere tonu ki te Tari Ohotata o te hōhipera (ETU).
- Kia tiakina tō hauora hinengaro me tō hauora tinana hoki. Ki te pāngia koe e te ahotea, rapua he tohutohu hauora.
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