He rerekē ngā kanohi o tāu pēpi? Kaua e manukanuka, me kōrero tāua mō te coloboma!

Kua kite koe i tētahi panoni iti i roto i te āiri pango (cornea) o te kanohi o tāu tamaiti, he āhua rite pea ki te kōhao kī? I tirotirohia rānei tāu pēpi e te tākuta, ā, i kī mai he hapa iti kei roto i te kanohi? He mea noa te mataku ina rongo koe i ēnei mea. Kaua e manukanuka. I tēnei rā ka kōrero tātou mō tētahi mate e kiia nei ko "Coloboma", e rangona pinepinetia ana i ngā wā pēnei.

He aha rawa te coloboma?

He kupu ngāwari noa iho, he hapa te coloboma i te kanohi o tō pēpi, arā, kāore tetahi wāhanga o te kiko kanohi e tino whanake. Kei te whānau mai anō. Tērā pea kei te kanohi kotahi anake, kei ngā kanohi e rua rānei.

I te nuinga o te wā, ka kite tātou i te coloboma i te wāhanga tae o te kanohi, arā, te iris . Kātahi ka rite te wāhanga mangu i waenganui o te kanohi, te pupil, ki te āhua o te kīpō . Engari koinei te huarahi tino kitea mai i waho. Hei tāpiri, kei reira anō ngā momo coloboma i roto i te kanohi kāore e kitea mai i waho.

Kāore ētahi tohumate e puta mai i ngā kōropupū. Engari ko ētahi ka pā kino ki te tirohanga a te pēpi. Ko ngā tohumate e whakawhirinaki ana ki te wāhi kei reira te kōropupū i roto i te kanohi me te momo kiko e ngaro ana. Ka taea e te tākuta te kite i tēnei i te wā tonu ka whānau te pēpi.

Ko wai ka pāngia e te coloboma?

Ina hoki, ka taea te whānau mai o tētahi pēpi me te coloboma. E kiia ana he mate ira . Ko te tikanga ka taea te tuku iho mai i ngā mātua ki ngā tamariki. Tērā pea ka rongo koe i tēnei e kiia ana he "mate whānau".

Heoi, anei te mea nui: Ahakoa he coloboma tō whaea, tō pāpā, tō tokorua rānei, ehara i te mea ka pāngia rawatia tō tamaiti e te mate pukupuku.

He pēhea te noa o te coloboma?

E ai ki ngā tatauranga, tata ki te kotahi i roto i te 10,000 pēpi e whānau ana i ia tau ka pāngia e te coloboma. Heoi, e ai ki te kōrero i mua ake nei, ehara i te mea ka puta he tohu e kitea ana i roto i ngā coloboma katoa, nō reira tera pea he paku teitei ake tēnei tau. Ko ētahi tāngata ka ora me te kore he tohu, me te kore he raruraru, me te kore hoki e mōhio kei a rātou te coloboma.

He aha te pānga o te coloboma ki ngā kanohi o te tamaiti?

Ko te nui o te pānga o te coloboma ki tāu tamaiti, kei te wāhi kei roto i te kanohi. Ka pā pea ki te kanohi kotahi anake (unilateral coloboma) ki ngā kanohi e rua rānei (bilateral coloboma). Mena kei roto i ngā kanohi e rua, ka pā pea ki ngā wāhanga rerekē o ngā kanohi.

He aha te pānga ki te kanohi?

Kāore ētahi o ngā kōropuma e kino ki te tirohanga a te tamaiti. Heoi, ka taea e ētahi te whakapō katoa i te kanohi e pāngia ana. Hei tauira, ko te retina o te tamaiti, ko te macula (te wāhanga o te retina e āwhina ana ki te tirohanga koi), ko te io whatu rānei.Mena he coloboma tō rātou, tera pea kei te kitea tonutia e rātou, engari kua pōrearea pea.

I te mea he tamariki tonu tāu tamaiti, tērā pea kāore koe e kite wawe i tēnei huringa o te tirohanga.

Ko te hunga whai coloboma ka nui ake te tūponotanga ka pāngia rātou e ētahi atu raruraru kanohi i muri mai i te oranga, hei tauira:

• Ngā katarata
• Te mate glaucoma
• Te wehenga o te retina

Ngā wāhanga o te kanohi ka taea te whakawhanake i te coloboma

Ka taea e te Coloboma te whanake i roto i tetahi wāhanga o te kanohi o te tamaiti. Hei tauira:

• Iris (wāhanga tae o te kanohi)
• Retina (he kiriuhi e aro ana ki te mārama i roto i te kanohi)
• Io whatu ( io e kawe ana i ngā mōhiohio tirohanga ki te roro)
• Macula (te wāhanga o waenganui o te retina e whai wāhi nui ana ki te tirohanga koi, mārama hoki)
• Te tinana kiriuhi (te wāhanga o te kanohi e āwhina ana ki te whakarerekē i te āhua o te karu arotahi me te whakarato kai ki te kanohi)
• kamo

Me kōrero tātou mō Iris Coloboma?

Ko te coloboma o te iris te momo tino kitea . E ai ki te kōrero i mua ake nei, ko te iris te wāhanga tae o te kanohi.

Ko ngā pēpi i whānau mai me te iris coloboma ka kiia hoki ko te "congenital iris coloboma". Ko te kupu hauora "congenital" he mea i whānau mai me te tangata. Pērā i ētahi atu momo coloboma, ka puta te iris coloboma i te kanohi kotahi anake (unilateral) i ngā kanohi e rua rānei (bilateral). Ko te hunga whai iris coloboma ka kitea pea ētahi atu coloboma i roto i ō rātou retina, i te io whatu rānei.

Ka tātaritatia, ka rongoatia hoki te iris coloboma i te huarahi kotahi me ētahi atu momo coloboma. Ka whakamahi ētahi tāngata i ngā karaihe whakapā motuhake hei āwhina i te kapi i te nuinga o ō rātou kamo. Ka taea te mahi pokanga hei whakarerekē i te āhua o te iris coloboma, engari kāore e pai mō te katoa. Kōrero ki tō tākuta, ki tō tākuta kanohi rānei mō ngā maimoatanga e tika ana mō tāu tamaiti me te wā e tika ana kia hoatu.

He aha te āhua o te iris coloboma?

Ka taea e te coloboma o te iris te hanga i te āhua o te tauira o tāu tamaiti he rite ki te kōhao kī, ki te āhua rānei o te kanohi ngeru . Ka whakawhirinaki tēnei āhua ki te wāhi kei reira i runga i te iris me te nui o te kiko kua ngaro.

Tērā pea ka rongo koe kei te "rere" te āiri ki roto i te wāhanga tae o te kanohi. Kaua e manukanuka, kāore he mea e taka ana i waho o te kanohi, e neke haere ana rānei i roto. He paparanga kiko matotoru te āiri me te āiri. Ko te mea anake, nā te mea e ngaro ana te wāhanga āiri ka kitea ake te wāhanga o te āiri e kapi tonu ana.

Ka pāngia te tirohanga e te iris coloboma?

Ae, ka pā te mate kanohi ki te tirohanga a te tamaiti.

Ko ngā uaua o tō iris te kaiwhakahaere o tō karu - te pūaha pango iti e tuku ana i te mārama ki roto i tō kanohi. Ko ngā pēpi i whānau mai me te iris coloboma he kore kiko i roto i ō rātou iris. Ka uaua pea tēnei mā ō rātou iris te whakahaere i te rahi (whanui) me te iti (kiki).

I runga i te rahi o te coloboma, ka puta pea ngā tohu e pā ana ki te tirohanga a te tamaiti. Hei tauira:

• Te aro nui ki te mārama (Photophobia) (te ahua e kikorangi ana ō kanohi ina pāngia e te mārama)
• Te tirohanga pōuri
• Te tirohanga takirua (Diplopia)
• "Ngā whakaahua wairua" (te kitenga i ngā tārua pōuri o tētahi whakaahua e titirohia ana e koe, te āhua rānei kei te kitea tonu ētahi wāhanga o te whakaahua ahakoa kua nekehia ō kanohi)

He aha ngā tohu o te coloboma?

Mena ka puta ngā tohu o te coloboma ki tāu tamaiti, ka uru atu pea ēnei ki:

• Te aro nui ki te mārama (Photophobia)
• He kōhao pango he rite te āhua ki te kōhao kī, ki te kanohi ngeru rānei (Pupil)
• Te iti o te tirohanga , te matapo, te ngaronga wāhanga rānei o te tirohanga
• Nystagmus (te nekehanga ā-ringa o ngā kanohi )

Ka pāngia pea tētahi wāhanga noa iho o te tirohanga a te tamaiti e te coloboma (arā, te whānuitanga katoa o te tirohanga ka kitea e rātou). Ka pāngia pea koe e te coloboma e ngā āhuatanga penei:

• Te iti o te tirohanga taha (te mea ka kitea ki ngā taha ina titiro tika whakamua)
• He uaua ki te kite i te hohonutanga
• He nui ake te wāhi matapo i te mea noa

He aha te take o te coloboma?

E whakapono ana ngā tohunga ko te coloboma te mate ira e pā ana ki te whanaketanga o te kanohi o te tamaiti i te wā e hapu ana.

E rua marama pea i mua i te whānautanga o te pēpi, ka hangaia ngā kanohi mā te kati i tētahi wāhanga o te roro e kiia nei ko te kapiti whatu . Ki te kore e kati tika tēnei kapiti whatu, ka puta he coloboma i roto i te pēpi i tētahi, i ngā kanohi e rua rānei.

He mea hanga ngā ira i te DNA (waikawa deoxyribonucleic) . Koinei ngā tohutohu mō ngā pūtau kia mahi me ngā āhuatanga e motuhake ai koe. Ahakoa kua whakaatuhia e ngā rangahau he hononga i waenga i ētahi ira me te tūponotanga ka whānau mai ngā tamariki me te coloboma, kāore anō kia nui ngā taunakitanga hei kī ko ēhea ngā ira te take.

Ko ētahi āhuatanga o waho – hei tauira, ko te inu waipiro i te wā e hapu ana – ka piki ake pea te mōrearea o tō pēpi ki te pāngia e te coloboma.

Me pēhea te tautuhi i te coloboma?

Mā tō tākuta, mā te tākuta kanohi rānei tāu tamaiti e tirotiro.Ka kitea te mate koloboma i te wā o te whakamātautau kanohi. Ka tirohia te kanohi o te tamaiti, ka tirohia te roto o te kanohi, ā, ka tautuhia te kiko ngaro. Me whakamātau te kanohi whānui o te hunga whai koloboma e kitea ana (ka kitea mai i waho) kia tirohia ai ētahi atu koloboma kei roto i te kanohi.

He aha ngā maimoatanga mō te coloboma?

Ki te pono, kāore he maimoatanga i tēnei wā hei "whakakapi" i te kiko ngaro i roto i te kanohi o tāu tamaiti.

Ko te mea nui, ahakoa kāore e taea te whakaora i te kiko ngaro, kei reira ngā maimoatanga hei āwhina i te whakapai ake i te tirohanga a te tamaiti.

Kei roto pea i ēnei maimoatanga:

• Te mau i ngā karaihe whakatikatika (mōhiti, mōhiti kanohi rānei)
• Te mau i te pare kanohi hei ārai i te "kanohi mangere / amblyopia"
• Ngā āwhina mō te tirohanga iti (mēnā kāore e taea te whakapai ake i te tirohanga mā te whakamahi i ngā karaihe tika)

Ka taea e ētahi tāngata whai i te iris coloboma te mahi pokanga hei whakarerekē i te āhua o te kanohi e pāngia ana.

Ka taea te ārai i te coloboma?

Kāore e taea te ārai i te whanaketanga o ngā mate ira pēnei i te coloboma i te wā e hapu ana.

Kua kitea te hononga o te Coloboma – me ētahi atu āhuatanga ira – ki ētahi āhuatanga taiao (ngā mea e pā ana ki te wahine hapu, ki tōna taiao rānei). Kei roto i ēnei:

• Te inu waipiro
• Te momi hikareti, te whakamahi rānei i ngā hua tupeka
• Te whakamahi i ngā raau taero mō te whakangahau

Kōrero ki tō tākuta mō ngā mea me kai, me ngā mea kāore e tika ana kia inu koe i a koe e hapū ana.

Me aha ahau mēnā he coloboma tāku tamaiti? Me āwangawanga ahau?

Ko te nui o te pānga o te coloboma ki te oranga o tāu tamaiti, kei te wāhi kei roto i te kanohi. He maha ngā tāngata e noho tahi ana me te coloboma i ō rātou oranga katoa, kāore he tohu, he raruraru rānei. Mō ētahi atu, ka pāngia pea ō rātou tirohanga mai i te whānautanga mai.

Ahakoa ka taea e te coloboma te kino i te tirohanga a tāu tamaiti, ehara i te mea morearea ki te ora, ā, e kore hoki e horapa . Nō reira kaua e manukanuka nui.

Heoi, he tino onge te kitenga o te coloboma hei tohu mō te mate ira e morearea ana ki te ora e kiia nei ko te CHARGE syndrome . Kōrero ki tō tākuta, ki te tākuta kanohi rānei mō ngā mōrearea ki tō pēpi me ngā mea ka taea e koe me tō tamaiti te tumanako atu i a rātou e tipu ake ana.

Āhea koe me toro atu ki te tākuta?

Ki te kite koe i ētahi panonitanga ki ngā kanohi, ki te tirohanga rānei o tāu tamaiti, me toro atu ki te tākuta i te wā e taea ai . Kaua e warewarehia tetahi mea iti.

Mena kei tō tamaiti tētahi o ēnei tohu , haere tonu ki te hōhipera :

• Te ngaronga ohorere o te tirohanga
• Te mamae nui o te kanohi
• He uira hou, he mea rānei e rere ana i roto i ngā kanohi

Ngā pātai hei pātai atu ki te tākuta/taote

Ina haere koe ki te tākuta, kaua e wareware ki te pātai i ēnei pātai. Mā ēnei koe e āwhina ki te mārama ki te āhuatanga:

• He aha te momo coloboma kei taku tamaiti?
• He aha te pānga o tēnei ki tana tirohanga?
• He aha ngā maimoatanga e wātea ana?
• Kei te nui ake tōna mōrearea ki te pāngia e ētahi atu raruraru kanohi?

Hei whakamutunga, ngā mea hei maumahara

Ko te Coloboma he ngaronga tuturu o tētahi wāhanga o te kanohi o tāu tamaiti. Ahakoa kāore pea e puta he tohu, he raruraru tirohanga rānei, ka mau tonu ki a rātou mō te toenga o ō rātou oranga. Ko te nui o te pānga o te coloboma ki te tirohanga a te tamaiti kei te wāhi e whanake ai i roto i te kanohi. Kaua e pouri, kaua hoki e mataku. Hoatu te tautoko, te aroha, me te tohutohu hauora e hiahiatia ana e tāu tamaiti. Ki te kite koe i ētahi huringa, i ētahi tohu hou rānei i roto i ngā kanohi o tāu tamaiti, kōrero atu ki tō tākuta i te wā tonu ka kite koe i aua huringa. Mā te tohutohu hauora me te tiaki tika, ka taea hoki e tāu tamaiti te harikoa.

Koropōma , ngā mate kanohi, te tirohanga a ngā tamariki, ngā mate ira, ngā āhuatanga e kitea ana i te whānautanga, koropōma āiri, ngā raruraru tirohanga